I don't think my husband is attracted me anymore

I had a unilateral mastectomy in August, I just finished chemo (still bald) and I'm almost halfway through rads. My husband hasn't touched me since my diagnosis. He's been wonderful in every other way, but I can tell he just isn't attracted to me. I've talked to him about it and he says it isn't true, but I can tell he's lying. He's a very bad liar. 

I know I'm bald and sick but I've been feeling great since chemo ended and I would like to feel loved and cherished like I used to. I'm 37 and we've only been married 3.5 years. He used to not be able to take his hands off me. Now it's like I have the plague.

I feel so ugly. I had two 34Ds, now I have one. So without my prosthetic, I look really lopsided. He's a visual person, and visually, I'm very unappealing. 

I told him I wanted to have sex the other night. He asked me to turn off the lights. We have NEVER had sex with the lights off. I have never felt so unattractive in my life. And it's never going to go away. Even with reconstruction, I'll have scars everywhere. I'll never be the same, and I fear we'll never be the same either.

Does it get better? Will I ever feel "whole" or attractive again? I don't want my marriage to end over a missing hunk of fat, but how can we both pretend enough to not notice anymore? 

Comments

  • TifJ
    TifJ Member Posts: 1,568
    edited December 2011

    weerah- I wish i could help, but i am in the situation as well. I had a uni in Sept. 2010 and my husband has not touched me since. He has been wonderful as well except in this situation. I don't know if he is repulsed by my look or if he is just afraid how I will react if he tries to touch me. I don't think I look too bad, I am a 34 large B small C and have had reconstuction except for the nipple. We have had several opportunities while the kids are at Grandma's, but we come home and he says "boy I am really tired- goodnight". You can feel the tension in the air. I know my marriage is not in jeopardy, but I sure would like to get "a little"!! Hopefully, someone will come along and give us some advice. I have tried to discuss it with him, but he says nothing is wrong.

  • April2
    April2 Member Posts: 25
    edited December 2011

    Are you sure you haven't misdiagnosed the problem?  My husband told me he's so used to me being fragile and in pain that he has gotten used to being extra careful around me.  He is worried about my mx wound and bruising, which in his eyes looks painful.  Your husband may be afraid of hurting you and looking at your injuries may intensify that concern.

  • bak94
    bak94 Member Posts: 1,846
    edited December 2011

    I think my husband feels this also, and like yours, he is wonderful in every other way. Some also say that their husbands are afraid to touch them, that they might hurt us, so I wonder if that is part of it. I feel ugly, I am also bald and had a bmx. My hubby looks at my scars and does not seem freaked out at all, says it is no big deal, but I do know he loved my breasts! I am overweight and my belly sticks out further than my chest now, I hate it. I think it will take time for us to get used to our new body. I can't have reconstruction for a year. I do think this all will get better, as we get our self confidence back. Maybe some pretty lingerie. I really doubt that you are unappealing, although I understand that feeling. I hope you get some more answers from those who are further along.

  • velutha
    velutha Member Posts: 102
    edited December 2011

    I'm not any further along, I haven't lost my hair yet....but I think what's helping us so far is being extra careful about how we go about physical contact. I had a bmx, so just hugging was a process for awhile. My DH joked that he wanted clearance from the surgeons before we started up again. But basically I just flat out told him that sex was important to me, and I only have so many moments where I feel good, and I want to use them. Yes, I will look better and feel better later, but there is today too.

    And then I dropped the subject. I moved on. And after a couple of days, he made his move. We weren't sex every day people before, so I think we're doing great.

    There are really talented counselors who help with this stuff. If your sig others aren't talking to someone, they should at least be given contact info. This is a big load to carry by yourselves.

  • weerah
    weerah Member Posts: 20
    edited December 2011

    Thanks for all of your responses. It helps to know I'm not alone!

     I know my husband was afraid of hurting me before, at least he could use that as an excuse, but I'm not in any pain and I'm not sick now. He knows that. Now, like TifJ's husband he's really tired all the time, or busy, or anything else that will get him out of sex. 

    I think with us it's become a circular problem with no end. I felt incredibly self-conscious and didn't want him looking at me, so he didn't look at me. Then I noticed he wasn't looking at me, so I felt more self-conscious and wouldn't let him look at me even if he wanted to (but he clearly doesn't). The fact that I'm always covering up, almost draws attention to it. But I don't know how to be less self-conscious because he makes me feel like he doesn't like what he sees. I wish he was a lot better at lying so he could tell me it doesn't matter and he still thinks I'm beautiful and I'd believe him. But he won't even try to say those things because he can't lie. I know he loves me but what kind of marriage can you have if there's this major barrier? 

    We've been to talk to someone but they said it will come with time. But like Velutha said, what about now? And an awful lot of resentment can build up while you're giving things "time". 

  • kennylynne
    kennylynne Member Posts: 152
    edited January 2012

    yes I do know what you are talking about. I am in the same situation. I have asked him if he is still attracted to me and he says that he is..... but really???? I can't even look at myself in the mirror. My hair is just starting to grow back as well as my lashes, one boob and......... have gained chemo weight. He is wonderful in all the ways that he should and reassures me that when I am ready he will be ready however he hasn't made a move yet. I am just going through rads now and am extremly tired and somewhat emotional...... am I putting way too much pressure on myself and him????

  • fredntan
    fredntan Member Posts: 1,821
    edited January 2012

    your not alone. My DH won't even look at the foob. he doesn't like to look at my bald head. but he's wonderful in all the other ways. I've not had much desire either.

  • Hoolianama0508
    Hoolianama0508 Member Posts: 162
    edited January 2012

    I went through this with my husband and thankfully, we had an insightful talk about our feelings and expectations regarding sex.

    The first thing he revealed was how he felt selfish for wanting to have sex while I was not happy with my body image after the bilateral mastectomy. So he decided to distance himself from sexual contact.

    He was also terrified that he was going to lose me, and that, according to him was "messing him up."

    The other thing he revealed was his confusion about how to pleasure me and achieve the same level of intimacy that we had before the diganosis.

    My anxiety about my body had become the pink elephant in the room and it was destroying our passion.

    One day, while fumbling in the dark (at my insistence), my husband turned on the light and told me the following:

    "Babe, I need you to feel comfortable enough with yourself to let me see you. I am not going anywhere and I still desire you." We both cried and then began to honestly talk about how we were feeling.

    I was able to say that I needed him to relax as well and not to pressure himself to perform, so that I would not have to feel pressured too. Let things happen naturally. So what if it is not perfect, together we can figure it out.

    Now, two years later, I can walk around with more confidence about myself. I still have days when I feel ugly about my missing breasts, but I push those thoughts aside and focus on what I do like about myself.

    I hope that our experience can help you and your husband.

  • SheChirple
    SheChirple Member Posts: 954
    edited January 2012

    I have a suggestion.  There are photographers who do boudior photos, much like the glamour shots that were so popular in the mid 90's. They do hari, make up, photo shoot, and put together a very nice photo spread for you.  There are some who specialize in cancer patients, or other body image issues.  Most good photographers can work with you to create photos that are very REAL (not glamorized) shots of you, either covering up with lingerie, sheets, towels, bathing suits or glorifying your new you.

    Perhaps look into a photo shoot like this.  It could boost both your self esteem and your husband's desire for you, especially if he is a visual type, like mine.

    Of course, the best answer is good communication, either yourselves  and/or  with a therapist.

    I don't think I'm having this problem, yet, but.  I am worried.  My BMX was 11/28.  We have continued to have relations about as frequently as before, but I do feel he is afraid to look at or touch my chest. I feel that eventually, as I am now going through reconstruction with TE fills, problems may rear their ugly heads and I am terrified of that.  I enjoy our intimate life so much.

  • kennylynne
    kennylynne Member Posts: 152
    edited January 2012

    Hoolia...... sounds like the conversation my husband and I just had...... I am so glad that we did. I still have insecurities regarding my body image but am hoping that when I am out of active treatment I will feel better. Shechirple when do you start treatment?

  • Hoolianama0508
    Hoolianama0508 Member Posts: 162
    edited January 2012

    kennylynne,

    In time you will gain more confidence and until then, keep the lines of communication open with your husband.

    All the best!

  • Onecent46
    Onecent46 Member Posts: 11
    edited January 2012

    I have the same problem.  Only it's not coming from a husband.  It's my boyfriend of 7 years.  He used to call me beautiful.  He used to always touch me.  I had a dbl mastectomy March 2011.  He has never seen my scars and does not want to.  As I began my chemo treatments, he stopped kissing me and after that stopped hugging me also.  We don't have sex.  I finished my treatments in Oct.  He says he is not interested in sex and hasn't been in a long time.  He still doesn't kiss me but will hug me if I go to him for one.  I don't get it.  At a time when a woman needs reassurance and affection the most, my man can't give it to me.  I asked him if it's me.  If he's still attracted to me and that's when he says he just isn't interested in sex.  I feel so ugly and unattractive.  I miss how things used to be. 

  • christina1961
    christina1961 Member Posts: 736
    edited January 2012

    My DH and I hadn't had sex for more than a year- probably close to two- prior to my diagnosis. For the first four years we had sex all the time. During the past few years,  I used to try over and over again to initiate it until I finally just gave up.  It is obviously the same now but I haven't even tried at all.  We sleep in separate rooms because I cannot sleep well with his snoring. Right now I don't feel like having sex due to going through chemo and all but I'm sure there will come a day when I want to again but I doubt it will happen. I am going to get reconstruction just because I think it will help me feel better.  I live in a warm climate and my clothing choices, while not super low cut or anything, are not things I can wear now.  I don't want to give that up and I think exercising would feel better either being totally flat or reconstructed.

  • faithfulheart
    faithfulheart Member Posts: 544
    edited January 2012

    So Sister's,

    I am here to tell you all that, you are more beautiful now then you have ever been in your life!!!!!!!!!

    Strong, beautiful Women!!!!!!!!!!!! 2 weeks after my bmx, my husband made a move to have sex, I thought  to myself, is this a total mercy sex, or does he really want me?  Here's the thing we already know, men are visual beings right?  We are emotional beings Right?  Meet in the middle............ I had no breast at the time,  my recon was started at the same time as my bmx. They were almost flat barely inflated and all scared up!  My mom and I went shopping, I bought sexy little nighties that I could leave on during sex, if the lights were on, I wore all kinds of sexy little tops or whatever on top, if he wanted to see them he would just move the top, I just felt more secure and sexier with the different tops or nighties  it gave me the confidence I needed and I think he felt this from me. I have been married 22 years, I met my husband when I was 19, I was 41 at dx, I was not going to let this damn disease rob me of 22 years of great sex!!!!  Now I am not saying we did it everyday, but it was a healthy sex life, we have 2 small kids so, really that puts a rench in it right there!!!  I think it's important to feel loved and beautiful by your spouse, do what you can to let him know it's ok to touch you and that you feel good about yourself!!!! Because you should, you are one hell of a women my friend!!!!!!

    I am now fully breasted, with nipple recon too!! although I have no feeling in my breast and my one nipple on my cancer side remains flat, I know now that no matter what It was my confidence and not my breasts that made the difference for us. If I were never able to have had recon, it would be alright, were alive ladie's, live!!!!!!!!! Do what you can to make it happen, there's a very good chance he is waiting to get the signal from you!!!!! Talk and keep an open line  of communication,  you deserved to be cherished!!

    God Bless all,

  • kennylynne
    kennylynne Member Posts: 152
    edited January 2012

    Well said!!! You are absolutely right faithfulheart!!!! Hubby and i had a nice night last night and it was beautifull .......not the clothes ripping mad sex that we have had in the past but this was the first time since August!!! I feel much better emotionally and more secure with my body. We have been married for 24 yrs and sex was always great, we are recently empty nesters and should be having the time of our lives right now instead of going through this shit....... however one step one day we will all get through this!!!

  • kpsmilin01
    kpsmilin01 Member Posts: 1
    edited July 2016

    Hello, I was researching lack of sexual intimacy after mastectomy.. I don't have a husband but I have a female partner who has not touched me since my surgery.. 3.5 years ago. I have expressed how ugly I feel and that if she could just even pretend to find me sexually attractive it would help me.. but she refuses and says it goes beyond sex or wanting sex with me. She says that because while going through chemo and the stress of cancer I was angry and mean she doesn't not desire me.. that if we could stop fighting she would . So I have worked really hard to be what she wants me to be.. I have neglected myself and my needs to try and provide for her the kind of partner I thought I could be and or should be.. yet still not affection intimacy... she accuses me of only waiting to have sex but I feel our relationship is nothing more than roommates at this point. she uses a vibrator for herself so I know she has sexual desire ... I feel so lonely and confused as to what to do.. I want the relationship to succeed and yet I am starting to feel as if I need to walk away so that I can care for myself and my needs...

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2016

    Dear kpsmilion01, Welcome to the community. We are sorry for what you are dealing with but glad that you reached out here. This particular topic has not had much recent activity. The prior post goes back to 2012. So we are concerned that you won't get much feedback. Why don't you take a took at the Sex and Relationship forum and either find a topic that is current or create a new topic. We think that this may offer you more in the way of others lending their experiences. The Mods

  • LtotheK
    LtotheK Member Posts: 2,095
    edited July 2016

    I have been lucky in that my partner has accepted my body in whatever form it comes in, sick and well. I know that is very unusual, but I thought I would share this: I loved my head shaved/bald! Everyone said I looked great. I was talking to my husband about keeping it like that, and a great friend of mine correctly noted "Come on, be fair. It will only remind him of what you went through." Desire and fear are so inextricably linked. While our partners may love us, it is not very sexy to remember the pain and suffering of disease. I wish I hadn't ever invited him to the chemo ward--one of the times they had a hard time running a line affected him very negatively.

  • LtotheK
    LtotheK Member Posts: 2,095
    edited July 2016

    Faithful, your post made me weep buckets in the best way. Thank you.

  • lynay
    lynay Member Posts: 1
    edited January 2018

    I understand how everyone who has this problem with the men in their life feels. I am 63, live in New Zealand and had my breast removed 15 years ago. My husband backed of from me for along time. he was working on a cruise ship and only home for 6 weeks of the year. I found out later hed told a female friend that he hadnt liked touching me, using the excuse he thought he would hurt me. I already felt like a freak and was completely gutted. I left him. We are back together now and have been for 9 years and he is fine now. but I think that the time when we have our breasts removed some men do find it hard to handle and it is a shame there isnt more support groups for men. After having it removed I went to see about having a reconstruction and got this surgeon who asked me why I wanted to have it done after all it wasnt as if I needed it anymore. so I didnt. when I finally did manage to find a surgeon I backed out because I was on my own. The children were there but I needed my husband and he wasnt. when I was 55 I was due to have it done again and I got lost in the system. Now Im to old as I have emphesmia. There are time when I wish I was noraml but I keep telling myself I am alive to see my grandchildren and great grandchildren. Big hugs to everyone.

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