December 2011 Surgeries - want to wait together?

Hi All,

I went to my first post-op appointment today with PS.  He removed the bandages and took out the drain and onQ.  Did not like the feeling, but was not all that bad either.  I had my first glimpse...  I am at home now and my first shower is coming up with next look...  Maybe TMI. 

I also found out that I am DCIS, IDC and LCIS...all in one breast... so, my choice for a UNI may have been different if I knew I had all 3 types.  My MO is on Friday and I will have a better idea of game plan.

I have really needed to read all the posts - it has been very helpful.   

Carol Ann

Anyone know when you can start wearing underwire bra's again?  I still have enough soreness that I can't go without a sports bra - the weight of my breast pull down on the section that was removed.  But the sports bra really aren't cutting it for work - they give me no shape, feel like I have one big blob on my chest and it's bad enough the scar is visable without them looking like that - any adavice would be appreciated!

Good  luck today Denise! Positive vibes coming your way!!!

Good Luck Denise - praying and sending good vibes!

Sorry ladies, lately I've been a little brain dead. I don't do well with pain meds or meds period! Since the mastectomy I've mostly slept. When I'm awake, I'm miserable. I don't know how you ladies do it. I am soooo glad I only had one breast removed. It was nice to wake up with some assemblence of a breast. Because my ps used botox he was able to put in 300 saline cc ... not sure I got it right. He put in 60 cc today and 40 next week. I'll be totally filled by next week and in six weeks I'll have the new impant. I'm not sure how I feel about all this. I've real mixed feelings about the implant. In the future I can see myself removing the implant for complete fat grafting.

Well...I also met with my bs today. Final results. These results are not based on the previous biopsy report as its from a different lab. The biopsy report from Oct. 4th...1.7 to 2 C of idc HER2+++ with some high grade dcis.

 The surgical report is invasive ductal carcinoma, grade 3, Her2 positive, nottingham score 8 of 9, forming a 1.8 x 1.8 x 1.0 CM  also found dcis high grade como necrosis 10% of mass (this is about all I understood of 5 pages).

 I am tempted to ask my surgeon to send my tissue samples to legacy who have done past reports. At least they are easier to understand.

If you put the biopsy and surgical report together then the size would be greater than 2 C, but if it depends only on the last surgical pathology report then I am a grade 1 a. 

Confusing ??? I'll meet with my oncologist mid January. Hopefully she will explain more fully this very confusing report.

  Right now, I can't even think past this mastectomy...the idea of doing or taking anything making me feeling sick is out of the question. I just want to feel normal right now.

Thanks everyone, I am in my room and trying to rest. Have a roomie with cops so the coughing is a distraction, but I was just told I am going to a private room.

Sitting in the hospital the day after! The biggest step is over, the pain is not too bad, except when I get up for the restroom. Dr. Said surgery went very well, now we just have to wait for pathology on the nodes.



Nurse just said I may get to go home today! That would be wonderful!



I hope everyone else is hanging in there.



Denise

Janie - with score that low (2) research shows that the benefits of chemo don't outweigh the risks. Do you have your report?  If so,there is a video on the genomic website that is helpful.

My score was 16 and MO did not recommend chemo.

Thank you Fitzdc and Ginger 48 for the information it helps. I have the path and will check out the video.

Chrissilin- I am doing a second opinion and hope it dosen't just mudding the waters with something tolaly different like telling me I should do chemo. Then what a 3rd opinion?

I hate cancer like was so much easier before this.........

CarolAnn - your first shower.....AHHHHHH!!!

spunkyboobster - Let us know how it goes at the oncologist's appt tomorrow!

Terry71 - healing nicely - good to hear!

Kayce234 - I would love to think I'd never have to wear an underwire bra again, but I think that may not be realistic, especially after exchange surgery.

Ginger48 - You're a preschool teacher? Oh, my - prayers for you as you deal with those sweet little germ bombs!

CookieMonster - What's the saying?  "for every day spent in bed or in the hospital, one week of physical activity is required to regain the strength that was lost." Give yourself time to get your strength back. Seriously. Teaching is hard! (I'm married to a retired teacher...)

Janie-Bug -  - prayers for a good decision that you are comfortable with...

g8rDee - - hope you are home and recuperating!

BIG HUGS TO ALL THE DECEMBER SISTERS!!!

~~~~~~~~~~~~~~

Well - today I am ONE MONTH out from my BMX/recon. I've felt so much better after my fills on Tuesday....today I drove myself to my quilt class. It was soooo good to see the ladies!!! Got lots of gentle hugs. I've really missed this class. We laugh for almost three solid hours. Good medicine!

Any of you who had a mx have a swollen tummy? Is it the breast fluid? If it is it seems dangerous just to be sitting there.

Blessings- you sound wonderful! I would love a three hour laugh session!



Tomorrow is my first meeting with MO. I am a bit nervous and weirdly excited. I will report back tomorrow!

Prayers for all the sisters seeing their oncologists tomorrow!!!

Had my first apppoinment with my ooncologist today. It went better than I anticipated. No hormone therapy for me! I am thrilled but still anxious about the whole thing and I expressed this to her. She feels, based on my pathology, the fact that the area of idc was so small and that I had a bmx the risks of taking Tamoxifen don't outweigh the benefits. Based on everything, and with no further treatment survival rate is around 90% after 10 years. The Tamox wouldn't change that. I'm considered not at any more risk than anyone else. She stressed that my results were really good and it was caught at pretty much the earliest stage possible.



How do I feel about it all? It's strange and will take some time. It's only been 2 months since my dx and I need to get my head around the fact that I've done everything I can. I asked what else I can do and she said I'm already doing it. I don't smoke or drink, working on eating healthy and dropping some weight. A healthy lifestyle is important. There will always be a part of me that wonders what if. There are no guuarantees in life. I need and will start living it! Each day is a gift and I wil have many more days to embrace the gift.