Diep 2012

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  • alison34
    alison34 Member Posts: 138
    edited January 2012

    well its 10pm here in the uk

    i go into hospital tomorrow and get the op thur

    i will keep you ladies posted on how i get on xxxxx

  • c8ndygr1
    c8ndygr1 Member Posts: 186
    edited January 2012

    @alison34, wishing you all the best, a smooth surgery and a quick recovery. We'll be thinking about you and waiting to hear how you are doing post-surgery.

  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2012

    Good luck, Alison! 

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    We will be thinking of you ALISON! CANNOT WAIT TO HEAR HOW WEL YOU ARE DOING!!!!

  • khegidio
    khegidio Member Posts: 100
    edited January 2012

    I have a bmx and free tram reconstruction on the same day. Surgery date is scheduled for 2/8/2012. Nervous but have seen this surgeons results and know many people in the breast cancer community that have recommended him. Dr. Brenda Simpson is my bast dr. And Dr. Beegle is my plastic surgen that will be working on me at the same time. I am looking forward to getting it totally done.

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    Today i met for the 2nd time with a diep surgeon i have found in San Diego. I saw her in sept. and knew i would go back again once my ppo started. I brought a list of questions,most i learned about from bco.diep2011 thanks girls. Anyways in conversation she told me she had studied in new  orleans and that was by far the best place for the diep, she mentioned all the dr.s name i have heard on the nala sight,but she herself has taken what she learned and has done ove 50 herself. She was very knowledgable and proffessional but nice. She showed me alot of her pateints photo's some complete and some still waiting for stage 2 she said she has a 90% survival rate,but also said that only meant one pateint and explained why.soooooo i am very excited and think i may have found the one,i have another appt. on the 23rd to do the doppler test i wanted to do but ran out of time she went well over the 59 min.consult. The doppler is when she checks the arteries and viens to be sure there are no abnormalties she doubts there is with me but i really want it. She also was honest about pain,yes there will be pain,but i would rather her be honest ,than sugar coat it like they do in the beginning of dx. so thats it,i got 2 more consults next week one diep,on fatgrafting . covering every option this time around ,I cannot wait to have these implants out! take care all!

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Good luck Allison

  • tamlyn110
    tamlyn110 Member Posts: 195
    edited January 2012

    Good Luck Alison, Can't wait to hear all about it.

  • Kaseymomto2boys
    Kaseymomto2boys Member Posts: 55
    edited January 2012

    Good Luck everyone. I am scheduled for DIEP Jan 18th. I had a bilaterial masectomy with immediate reconstruction Nov 2010. Once I found out I had to do radiation after chemo I had the expanders removed and elected to wait on the DIEP reconstruction. Dr. Craigie and Kline will be doing my surgery at East Cooper Medical center. I am very anxious to know how long the surgery will take since I have already had my masectomies?

  • TexasRose
    TexasRose Member Posts: 740
    edited January 2012

    Good luck, Alison! Hope all went well! Can't wait to hear about it!

  • julianna51
    julianna51 Member Posts: 438
    edited January 2012

    Good morning all,

    Has anyone found anything regarding if there is a greater risk in a long .surgery versus a surgery of short duration?    I'm really wanting to go with the DIEP but I keep getting flack from those close to me...and their concerns echo my own (long surgery, recovery, lots of "cutting"...greater risk for infection?) but in my heart I want this natural approach, I want to feel like my foobs are more real than not.   How are each of you coming to peace with the risks (and are they as big of a risk as it feels)?

  • anonymice
    anonymice Member Posts: 532
    edited January 2012

    I could sure use some advice.  Truth is, with the type of cancer I have (IBC) I just have been very "live in the moment".  Reconstruction was not much on my mind, and not even discussed until I am cancer-free for a year.  I told my surgeon (bitch) that I would be unlikely to get reconstruction (because I wouldn't be allowed to) so would like as flat a chest as possible and I swear she did everything she could to make me look horrible.  It's bad, ladies.  Everything you hear folks complaining about, I've got.  You could snowboard on my chest, it has so many hills and valleys.  

    So, my results have been good - statistically-defyingly good for IBC.  I am beginning to think I may see age 50 (I will be 46 next month).  I am starting to muster the courage to hope.  I was declared cancer free in May (still had rads and on herceptin, when my heart can take it, for another 3 cycles).  

    So, how "chubby" do you have to be to get this done? I am losing about 5 lbs a month (through being active and a little calorie reduction) but am still a bit heavy at 160.  I am 5'6" with a smallish/medium frame and currently, not a whole lot of muscle tone - but I'm working on it!  But believe me I still have plenty of tummy fat, and not in a "oh my gawd I'm just so FAT" Valley Girl way, but for real.  I can pinch SEVERAL inches.   Laughing

    I'm also a mountain biker and hiker.  Well, I was.  Ain't hiking or biking anywhere right now (cannot tolerate cold anymore at all) but will get back to it in March. 

    So, is there any guideline on how much body fat you need?  Would I be able to hike or bike after surgery healing?  I just like to do the rail trails, I'm not screaming down the mountainside on my bike.  And, I would not mind having to work harder for conditioning.  And anuttuh ting, if all I could get was an A cup I'd be good with that, although it seems like everyone says C is perfect so I would like to try on some C foobs to see if I agree that it's *my* perfect.  But I was a DD, and am not missing the backaches.

    I fear implants - don't trust them.  Sound opinion or not, it's how I feel.  Plus I'm 46 so (hopefully) that would mean several more breast surgeries in my life and I am not up for that, I already have lymphedma in my arm and a bit in my chest.

    Sorry for rambling.  I guess I want to know, should I stop losing weight?  I'm not really heavy enough for it to be seriously detrimental to my health, yet obviously it would preferable to get back to my normal weight of 135.   Would I be able to bike and hike in a moderate way? 

    Thanks very much for any advice.  I'm seriously undereducated on reconstruction procedures, but that NOLA in September thread, to which I've been referred before, has more than 14000 posts!  It's the War and Peace of BCO.

  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012

    Julianna51, I did the DIEP in December and was a little unnerved (more than worried) about the length of the surgery. The preadmission exam included lots of checking to ensure I was in condition for the length of the procedure, including ECG, questions about my cardiorespiratory endurance, etc. The anaesthesiologist has a mutual interest in us waking up and closely monitors throughout the procedure. From the patient's perspective, the duration is not apparent. I did really, really want a nap as soon as I came out of anaesthesia, and was not interested in all the chitchat, but then I felt the same after my C-section with epidural. Physically, the long anaesthesia was very relaxing. Beats all the massage and acupuncture I've been having for the past year to try to get the stress knots out.

    The hospital stay (5 nts for me, typical 3-5) was an advantage because the bed was easier to sleep in than the furniture at home and there were qualified nurses and medical staff checking on me, and 3 of my 4 drains were out before I went home. The last drain came out after 2 days at home. In contrast, my umx was a morning admit, home by lunch deal, and I had a drain for 2-3 weeks, checked daily and then alternate days by a minimally qualified healthcare aide who gave me an infection. This time, when I developed an infection, I was still in hospital and on IV, so I could have the antibiotics administered by IV drip. Some hospitals give the antibiotics routinely for prevention.

    The DIEP cutting is sewn up by a plastic surgeon. I suppose that's the same for other PS reconstructions. But it is noticeably a more comfortable incision than the umx stapled up by the BS. Obviously, I am still stooped over somewhat because my front is not stretched out yet, but all things considered I am pretty comfortable. The day before I left the hospital, I did laps around the ward (about 5km in sets of about 1km). I walked on the treadmill for an hour at just under 2 weeks post op. I have a half-marathon (which I am sure I will walk rather than run) at 6 weeks post op.

    The DIEP seemed to be an elegant solution to reconstruction, and everything seemed to be proceeding smoothly, but I worried about the catch. I finally started to relax when I did not oversleep and made it to the hospital for my 6:00 admission, and when I rolled into the OR and saw all the lights and my CT scan on the computer monitor and all the surgeons and fellows and nurses, I felt more at peace than at any point in the past year and a half. Everyone has their own values and priorities, but that was my DIEP journey, anyway.

  • goldlining
    goldlining Member Posts: 1,178
    edited January 2012
    Pamonymous it's worth a consult. Your abdomen sounds similar to mine. The surgeon said the removed breast (one remaining one) was 700g and the abdomen flap was 500 g (divided into two breasts), and I have gone from DD to what seems to be C. (I would be happy if some of it was swelling, and it goes down to B or even A. My legs are still heavier than my "fighting weight" but at the consult the surgeon said "don't lose too much weight", and I happily complied. However, if I slim my legs down and my boobs get smaller, I will not be miserable. Some surgeons can stack flaps from hips and abs to get more volume. Exercising was my main reason for deciding on DIEP (or flat). I did not want implants either (too much of a gamble with so many allergies) and I did not want to compromise my ab muscle. As I just posted to Julianna51, I am already walking for endurance, and I expect that after the stipulated 8 weeks of moderation ab-wise, my exercise capability should be pretty back to normal.
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2012

    When I first consulted with my former BS and former PS on having DIEP, I was told the BMX with DIEP would be 6-8 hours of surgery as the two surgeons would work in tandem.  And the PS would have a colleague working with him, too, on the DIEP.  Now that I've had the BMX and will "just" have DIEP, I would expect the surgery to be shorter.  My new PS (from Brigham & Women's) works in tandem with her partner, so again I would expect something like 4 hours. 

    I just scheduled my consultation for March 8th.  I am finishing radiation next week (just 5 boosts left, hallelujah!) and I think I want to plan on the surgery to happen at the end of August.  I want/need/ to enjoy my summer after being in treatment since June 2010.  And I want my family to be able to enjoy summer, too.  This will give my skin enough time to heal, and give me time to get in shape.

    By the way, I am 5'2" and weighed about 125 when I was told I had enough tissue for a "B" cup on both sides.  I've lost a couple pounds since then, so I'll be trying to make sure I don't lose any more weight and maybe gain back what I lost.  I had my first consult after finishing chemo and was told I qualified.  My first PS (in Kansas City) told me I was too thin and I weighed a bit more, so my guess is that "enough" is in the eyes of the beholder and the skill level of the surgeon.

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2012

    Hi ladies,

    I just read through this thread and there's a lot of concern about the length of the DIEP procedure. I had a UMX w/DIEP Dec. 15 (3 weeks ago). We had to get to the hospital at 4:45 am, they rolled me out for surgery at around 7:30. At 11 am, the BS called DH and said that her part was done, I was doing great and all looked good. We were told 8-10 hours of surgery. The next phone call DH got was at about 4:30 pm and they said they were about half way done. DH (and the rest of the family) were miserable waiting. Finally around 9 pm, my parents went home and DH put DS to bed at the in-laws house (they're about 4 blocks from the hospital). When I woke up in recovery, I was the ONLY patient there and I remember being confused as I looked at the clock and thought it said 10:35. I did indeed say 10:35 pm. My surgery took 14!!! hours but I don't seem any worse for the wear from it. The nurses all oohed and aahed over my DIEP results - they were very impressed. My BS said that with a PS who's a perfectionist, that sometimes happens. I suppose I'd rather have that than terrible looking results.

    So for those of you worried about the length, know that it's doable and the doctors keep a very close eye on you while under to make sure you're still thriving. In the end, I'm pleased with the results so far, but there's still lots of adjusting to come.

    Feel free to ask questions of me, if you have them. 

    -Judy

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2012

    Hi all!

    Just popping in here to provide some info from the main Breastcancer.org site on DIEP Flap reconstruction.

    Hope you find this helpful!

    --The Mods

  • anonymice
    anonymice Member Posts: 532
    edited January 2012

    Thanks very much, Goldlining. it's very encouraging!  I see from your response that I was confused - I thought that the DIEP was detrimental to your stomach muscles (how, I wasn't sure) but it appears that is another procedure. LuvRVing, gosh, if you could have it at 125 lbs, I should have enough fat to put breasts all over my body!!  Tongue out

    Mods, will check that link out.

    Thank you very much for your patience in answering my stupid questions.  (One of my favorite quotes:  "there are no stupid questions, but there are plenty of inquisitive idiots"), LOL. 

  • CookieMonster
    CookieMonster Member Posts: 1,035
    edited January 2012

    Pamonymous - after my DIEP my surgeon said he could have given me a third breast. (He only constructed one, as I did a Uni not Bi)

  • redninrah
    redninrah Member Posts: 773
    edited January 2012

    Just got the. Phone call for surgery time. I have to be at admissions for 615 and surgery 8am. And then I'm done by either she. Said. Ten past 10 or 10 past 12. Interesting.....I was so nervous I didnt even listen to her MSG properly lol" oh this Is on Monday!!!!!



    It's coming..................

  • sunflowerE152
    sunflowerE152 Member Posts: 83
    edited January 2012

    I had unilateral delayed DIEP June 27th and my surgery was 8 hours.  My mom was the first one in the waiting room in the morning and the last one to leave in the afternoon.  It was more unnerving for her than it was for me.  They do watch you very closely.  I lost a lot of blood and my blood pressure dropped really low to the point that they gave me two units of blood the first night.  I never lost consciousness and I felt fine, but my PS had to come back and was in my room for over an hour that night. 

    I would do it again.  The pain was not that bad, and I like my reconstructed breast much better than a prosthetic or an implant I think.  I am not totally symmetrical (even with a lift on the other side) because it is a little flatter than my natural breast and does not have the droop.  However, I am fine in a bra and my new areola and nipple reconstruction are beautiful.  I have had 4 surgeries and it took almost a year for the entire process.  Because the breast had been radiated, I had a TE put in, 6 wks to heal and 6 wks to fill.  The actual DIEP surgery and time for it to heal, then a tattoo of the areola, lift of the natural breast, and finally lipofill and nipple reconstruction.  I am a teacher and scheduled the major surgery for the summer so it has worked out great.  Good luck to all of the 2012s.  Get started as soon as possible, because it does seem to drag on forever!

  • julianna51
    julianna51 Member Posts: 438
    edited January 2012

    Thank you ladies...for helping to calm some of my fears (again)!

    My PS said I could probably only get a large B rather than the C I had before (and hoped for again).  I think I would be okay with that though.  

    I was a bit discouraged this week because I wanted to get my surgery scheduled for late May/early June and they said they aren't scheduling out that far yet...to call back in March.   LOL, I guess that is a ways out...I just want to get it planned.

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    hi Ladies ,thanks sunflower for your honest experince, love hearing the good,the bad,and the ugly! I too have too wait for my diep,i wanted it in feb ,but now it looks like march or april. hope i still have my pouch cause im dieting and excerising now ,i believe the stronger and healthier you are going into surgery ,maybe recovery will be easier ,who knows. I do still have 3 more consult though so that gives me time to be sure im doing whats right for me,2 are with fg ps's,im checking them out but pretty sure they are newbies at fg and im not up for that or traveling across the country to the experienced fg surgeons. However i have been able to find a few well experienced diep ps's here.Because i do not want to travel for this diep either,thank god its been around a bit longer and there are more ps's that have done quite a few all over the country. Even the ps i may go with went and studied at Nola and spoke highly of all the ps's there so i believe she has got it down there way she has done over 50 ,with 90% succsess so they are a out there ladies who are looking take care  all ...

  • ReadingMama
    ReadingMama Member Posts: 573
    edited January 2012

    Julianna - my surgery was also 14 or 15 hours, I forget already, chemo brain :).  As others have said, its harder on those waiting then on you.  I was definately in a fog the first few days and some of that is def. attibutable to the long time, but I also would do it again.  My PS also is a perfectionist and he goes very slowly and wants to make sure there is no flap failure.  I also had a previously radiated breast (only finished rads 6 months before sx), so he had to take extra time there.

    Pamonyous - Def worth the consult.  THe most important thing with DIEP is to find a qualified surgeon, who you are comfortable with, who has enough experience with DIEPs.  Also, as others have mentioned, some PS can do flaps from the hips and butts also. 

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    thanks for your input ReadingMama love hearing everyones stories.Take Care

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    Redninhar ,Will Be thinking of you this Monday! It is this Monday correct the 9th? Thoughts will be with you...you will do great!!!

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    Thanks Moderators for giving us that site to visit, great info

  • beacher4209
    beacher4209 Member Posts: 540
    edited January 2012

    Pamonyous and Cookiemonster you two are hystrerically funny,thanks for the laughs take care

  • redninrah
    redninrah Member Posts: 773
    edited January 2012
  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited January 2012

    Good luck tomorrow, Redninrah!  Wishing you a complication-free surgery and speedy recovery.

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