Q's about prophylactic breast surgery
I was wondering if anyone could answer these questions about PBM's.
1. How long would it roughly take in the operating room to do PBM and reconstruction at the same time?
2. In your experience, did insurance cover this procedure?
3. How far does the scarring extend? Will the scars be visible when you wear certain types of clothing? Say a tank top, for example?
4. Are there ways to screen the small amounts of remaining tissue?
thank you~
Comments
-
Hi beepbeep,
You're sure to get a ton of good insight from the ladies here shortly. In the meantime, you may find it helpful to check out the main Breastcancer.org site and the Prophylactic Mastectomy page.
Hope this helps!
--The Mods
-
I had a modified mastectomy on the bc & prophylactic on the non-bc side. I'm sure your insurance will pay if you doctor gets surgery pre-certified. It may depend on how they code it, but most offices are used to doing those sorts of things. I would definitely talk to your doctor about it. It was my choice to have the non-bc side removed.
Depending on the type of reconstruction you have, I doubt that your scars will show. I had delayed reconstruction a bilateral diep. My ps surgeon didn't have anything to work with & I had a lot of rads damage on the bc side. She did an amazing job have some fairly low cut tops and the scars do not show at all.
As to the how long you will be in surgery would depend on the type of reconstruction. I had 2 doctor and it took about 8 hours for the bi-lateral DIEP because it is a micro surgery. NJ
-
The O.R. time depends on the type of reconstruction you want and the number of skilled surgeons working on you. For tissue transfer (DIEP/GAP/hip flap) some facilities have two very skilled plastic surgeons working on you at the same time and this greatly cuts the time in surgery. I had a bc diagnosis and DIEP reconstruction, then decided 4 years later to do prophylactic GAP on the other side. Insurance covered the surgeries. My insurance would have also covered bilateral propylactic surgeries without a bc diagnosis if I had a significant family history, if I was BRCA positive, or if I had other significan risk factors that could lead to a bc diagnosis. The scars are completely hidden even if I wore a bikini (which I am not going to wear). Get a copy of the latest edition Kathy Steligo's "Breast Reconstruction Guidebook." It is the best I have seen on the topic and will give you the kind of information you are seeking (and more).
-
Hi in my experience:
1. I was in the operating room about six hours.
2. Kaiser did not cover the type of reconstruction I had, but they did cover a mastectomy and other types of reconstruction.
3. I have scars that do not show with a tank top.
4. The tissue removed in my mastectomy was sent to a lab for cancer screening.
I hope that helps, but like the mods said there is a lot of information on breastcancer.org, and mayoclinic.com. I hope that helps,
Amy Lynn -
1. How long would it roughly take in the operating room to do PBM and reconstruction at the same time? All depends on the type of reconstruction, flap procedures are very long. I had NSM with expanders and my surgery lasted 4.5 hours total.
2. In your experience, did insurance cover this procedure? Yes, my risk reducing surgery was fully covered, based on family hx. alone, using evidence based criteria.
3. How far does the scarring extend? My scars are hidden, LIMF, or inframmary fold. Will the scars be visible when you wear certain types of clothing? What scars?? U cannot see them with or without clothing. Say a tank top, for example? Never.
4. Are there ways to screen the small amounts of remaining tissue? Clinical breast exams 2x year along with monthly self exams are the recommendations i was given with implants. If anything were to develop, an abnormality would most likely be easily palpable since implants are placed under the muscle. I will not pursue any further screening/imaging unless waranted. Why go thru surgery to be faced with continued worries/fears by unfounded screening methods?
-
My answers are the exactly the same as LISAMG! Make sure you ask if they will do nipple sparing!
-
My answers are the same as lisamg but I have scars visible only when naked or in a bikini. The drains caused 2 small scars under each armpit. My nipple sparing mastectomy scars go from armpit to nipple. I'm fine with all my scars.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team