oncoType over 40-anyone a few years from diagnosis?

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Steff66
Steff66 Member Posts: 33
edited June 2014 in High Risk for Breast Cancer

Has anyone of you had a oncotype over 40 and is some years from diagnosis? worried about this...

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  • mmm5
    mmm5 Member Posts: 1,470
    edited August 2011

    Hi I had a 47 and am 3 and half years from dx-

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  • singlemom1
    singlemom1 Member Posts: 434
    edited August 2011

    what type off tx did you have mmm5?

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  • Steff66
    Steff66 Member Posts: 33
    edited August 2011

    i have had FEC 60 and now on taxol 12 weeks. I would also like to know what treatment you had. Take care and great to hear you are this far out already! Hugs, Steff

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  • Steff66
    Steff66 Member Posts: 33
    edited August 2011

    Just bumping this up to see if there are any sisters who were HER2- negative. My cancer is luminal B with a high ki 67, but I am highly ER+ at the same time. I am concerned about the recurrence risk the next 2-3 years. Wishing you all a good day.

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  • Steff66
    Steff66 Member Posts: 33
    edited September 2011

    bump - hoping to hear from anyone. :-)

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  • Beeb75
    Beeb75 Member Posts: 325
    edited September 2011

    Steff,

    How high was your Ki-67? i didn't get oncotype because of my positive node, but curious about what it might have been. By the way, when I was first diagnosed, I talked with a woman who had Oncotype over 40. She was about 3 years from diagnosis and was doing great.

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  • Steff66
    Steff66 Member Posts: 33
    edited September 2011

    My ki 67was 40, ER 100%, and lobular. Getting a second opinion because lobular seldom has such high ki67. Worried about the high grade too, but try to take one day at the time, are in the middle of taxol treatment and hopes it helps.

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  • Myopiawmn
    Myopiawmn Member Posts: 38
    edited December 2011

    My oncotype score was 47 and I'm a little over 2 years from dx.

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  • NancyHB
    NancyHB Member Posts: 1,512
    edited December 2011

    I have copies of all of my path and Oncotype reports, and have yet to see any reference to "ki 67".  Can anyone tell me what that is?  My Onctotype is 42; interestingly I went from being PR+ in my biopsy, to PR- in Onctoype, and am .1 away from being ER- (currently 6.6 vs. 6.5 for being negative).  This puts me this ---><--- close to being triple negative.

    Where can I find the ki 67 number?  Thanks!

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  • velutha
    velutha Member Posts: 102
    edited January 2012

    Ki 67 is a marker you would see in your path report, probably in the same section as ER, etc. A high ki67 is associated with more aggressive tumor. Not everyone orders it, especially if they are ordering oncotype anyhow, as oncotype does a better job of assessing recurrence risk.



    If your path is odd/borderline, ask for a second read by another lab, ideally your nearest cancer center. Your initial pathologist and BS should know several they routinely call for unusual cases.

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  • 1OUgirl
    1OUgirl Member Posts: 27
    edited January 2012

    I am a 6 1/2  year survivor of breast cancer and I had oncotype test score of 52 and I'm so thankful and blessed to say I am doing wonderful.  I did 4 rounds of Adriamycin/Cisplatin and 4 rounds of taxotere then radiation and 5 years of Tamoxifen.  I was stage 1 and when I was diagnosed, my onc said that the test had been out and approved for general use for only 11 months.  She urged me to get test done because I was 43 and she wanted to make sure we hit the cancer with everything that was needed.  I thank God for that test because otherwise my onc would have suggested just radiation and Tamoxifen.  That high onco test number was the highest my onc had seen at the time and she says that she is very please with how I'm doing today.  I rarely think about that number now and in fact I  encourage anyone with a high score to remember that the test was designed to give peace of mind to both those who do need chemo as well as those who do not need chemo.  I hope and pray we all on this board stay well and healthy. 

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  • navygirl
    navygirl Member Posts: 886
    edited January 2012

    My score was 50 and I'm 3 1/2 years out. My tx was 4 rounds of dd a/c, 12 rounds of tch, and 6mos. Of herceptin after. Currently on femara. Ditto what 10ugirl said :)

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  • retired55
    retired55 Member Posts: 3
    edited February 2012

    Looking for this subject too.Onco type Dx 56%.Partial mast. with reconstuction.3 rounds FEC.2 instead of 3 rounds of taxol due to hands and feet neuropathy. About to start 6 weeks radiation.5 yrs of Arimidex.I've handled everything with a positive,even stoic attitude. But the Onco type result terrifies me.It's the only thing I've cried about.Had an uncle with metastatic lung CA. My nodes were neg.but had invasion of lympho vascular bed. There is so little info about this.Genomic owns the test and the only research.That research is based on Tamoxifen tx only and the test has only been used since 2008.Not enough people yet to answer your question. Basic theory is throw everything at it, maybe it will work. I do feel assurance that it may help but for right now I'm just terrified and not ready for any of this. Also praying my side effects of chemo are not permanant. And will pray for you too.

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  • mkgutierrez
    mkgutierrez Member Posts: 9
    edited March 2012

    My oncotype is 41, I am currently heading to 3 of 6 rounds of T/C.  I just found out that I am BRCA1/BRCA2 positive.  So additional surgery is in my future.

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  • Rose12
    Rose12 Member Posts: 95
    edited March 2012

    I just received my Onotype score. It was 61. With 34% reocurrance. I was shocked. I am meeting with the chemo Dr. next week. I already know I have to have radiation. I just hope I will have enough strength after chemo to continue for 6 weeks of radiation. I have grade 3 no progrestrone. How do I find out about the BRCA?

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  • edwards750
    edwards750 Member Posts: 3,761
    edited March 2012

    I had an Oncotype score of 11. Def blessed it was so low but we all know there are no guarantees. There is a lady on this forum who had an 8 score and hers came back. Still the odds are in your favor and we are all alike in that we have bc but you also have to take into account genetic factors, lifestyle, etc...so there is no one size, fits all. A lot of oncologists are using the oncotype test and in fact my sister who was just dx and had a mastectomy; she has lobular invasive carcinoma, was told my her Onc to have the test done. It is a godsend but still doesnt mean the outlook with a high score is a death sentence...not by any means. Diane

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