Is There A September 2011 Chemo Group?

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  • belleeast
    belleeast Member Posts: 653
    edited December 2011

    kelli,thanks what do you do for muscositis, i am so sorry you have had to deal with this each treatment,this sucks! my daughter picked me up some yogurt, the texotere nightmare thread and shelley said it helps restore the balance.

    sorry about your nurse,how could she not see your port! i've discovered about myself-i'm less tolerant of rude and incompetent medical people since all this started. either that or i've finally started to speak up for myself ! either way,i like that change in me, i won't allow anyone to be rude to me or try to ramrod me anymore without speaking up!

  • belleeast
    belleeast Member Posts: 653
    edited December 2011

    sarah, i know how you feel, it's a relief to be almost done with chemo but that panicky fear is lurking right behind. i think all we can do is try to remember most of us diagnosed with bc do not get reoccurances or mets. it's hard i know. glad to hear the tats didn't hurt, i go for my rad consult on jan 9th. last chemo on 10th, yeah baby!!!!

  • CJRT
    CJRT Member Posts: 524
    edited December 2011

    Belle- I'll be interested to hear what Kelli does but my onc. recommended Florastor for me- a priobiotic you can take in the capsule or open and sprinkle. You can get it OTC. Awesome that you're on the final countdown!

  • Kelliregi
    Kelliregi Member Posts: 138
    edited December 2011

    For the mucositis, I've been taking a probiotic and eating yogurt. I'm not sure if it helps, but I figure it can't hurt =). I also use biotene gel and have a mouth rinse called reBalance that I use several times a day. The one thing that seems to give me the most pain relief is liquid Maalox. I swish it around and hold it in my mouth for a little bit, then swallow. with the last two chemos, I've gotten thrush along with the mucositis. 

    Does the mucositis seem to be somewhat systemic for y'all too? I have stomach issues and major diarrhea (sorry TMI) when it's at its worse. I can't wait until this is over!!!

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited December 2011

    Good evening ladies.  Hope you all are doing well.

    Just a little update on me.  I went for my RO consultation today.  I am marked and scanned and ready for my first radiation treatment to begin on January 9.  They said my first treatment would last about an hour to hour and a half.  She said the rest would not be near that long.  Good!  But I am marked up like a dissection toad frog. All around my boob, both sides of my abdomen and a circle from the cleavage around under the breast. I will have to have rads to my lump node area. Wasn't planning on this one. I guess that's why I am so marked up. Now I am going to have to find a good time for me.  I dont' know what to do about that.  I either miss the morning bus route, 1/2 day in my office job (or close to it) or miss the afternoon bus route.  What to do, what to do.  On top of all this, I was called for jury duty!  Can you imagine that!  Right in the middle of all this.....and it's my first time in 33 years (since I was registered at 18).  I am so hoping next year gets better.

    My oldest daughter and I have begun to fuss over stuff and I know part of the reason is because I just don't feel good.  I hate her attitude.  I mean geez!  (Rant coming!)  I have been diagnosed with breast cancer, had surgery, finished chemo, and now fixing to begin radiation and I can work circles around her!  I am so hoping they find them a place at the first of the year.  I want my house back and I need a break from the 5 year old and 18 month old.  I guess you can tell I don't get much help around here.  I realize she has to be at work at 5:00 a.m. and that is really early, but she gets off at 1:00 p.m.  Comes home, takes a nap and will finally go pick up her kids from the babysitter.  My day begins on the bus at 6:15 a.m. and ends at 4:45 p.m.  Then some days I have an hour break then on to the next job for 4 hours.  WTH?  I cannot keep my house clean....toys, clothes, stuff everywhere.  UGH!  I am so tired of it all!  Okay.  Enough.  I'm so sorry to put this out there, but I just needed to vent today.  Maybe I will be able to keep it together until they get their own place.  Please ladies....just a little support on a down day.  Thanks!

    My stupid, itchy rash is back. And I so thought I would be able to stave it off using Benadryl. No such luck. Got to put up with this until about Monday or Tuesday.  Cannot use lotions or creams right now on my breast until the first treatment. And as you would guess, they are itchy, blotchy red! I am scratching myself to death over here!  Oh how I love those side effects......NOT!

    Thanks for letting me vent.  Tomorrow is going to be a better day....I just know it.

    HUGS!

  • PinkShirtNow
    PinkShirtNow Member Posts: 134
    edited December 2011

    rjbaby- I have to tell you that you are one amazing woman.  I cannot even imagine working the hours that you work while going through all this.  The fact that you have taken in your daughter during her time of need makes you even more incredible.  I think we never give up our mom role, no matter how old our kids get.  I am sorry that your daughter has not held up her end of the bargain.  I don't blame you for needing to vent.  We can love them enormously but that doesn't make it easy to live with them.

    I'm so sorry that you continue to have that stupid itchy rash.  That is just plain not fair.

    Hang in there - you have come so far.  I know you are miserable but you are a wonderful person and I truly admire how you are handling all this.  You are way ahead of me and I am not even working.  Hang in there.

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited December 2011

    Thanks Pinkshirt.  I appreciate your kind words.

    HUGS!

  • shelley2011
    shelley2011 Member Posts: 199
    edited December 2011

    rj, you have been amazing through this continuing to work as hard as you do.  2011 is almost over, our "year of cancer" is drawing to a close.  Let's just look forward to 2012 as the "year of recovery" and celebrate!

    Belle and anyone else with lovely mucusitis....my MO also wrote a script for an anti-diarrheal.  Way better than Imodium.  I took it each round before the diarrhea set in.  Worked really well, and the beauty of it was that it worked differently than Imodium so that I was 'regular' again once I stopped taking it instead of all constipated like Imodium does.  Hang in there because luckily it is one SE that stops as soon as chemo stops. 

    HUGS to all!

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited December 2011

    shelly2011:  Than you Shelly.  I am so looking forward to having all this behind me.  Maybe then I won't be so crabby!

    Today I woke up and my port site is swollen.  I am hoping it is just because I did some heavy lifting yesterday while taking down some Christmas decorations.  It is very uncomfortable and I seem to be more aware today of where the port is.  Another problem to deal with I guess.  I'm ready for them to take it out, but don't think they will for a while.  They used the port to inject the dye for the scans the other day.  I suspect they will use the port for at least a year or maybe more.  I don't know.  But it is something I plan to ask my BS on the 9th.  At least I can say I have had a wonderful group of supportive doctors and staff during all these treatments.  That means a lot to me.  And it looks like my RO and his staff are going to be as good as the rest of them.  Yippee!

    Yes its that time of year to remember where we've been and to remember that the coming year will be a year of recovery.  Thank you all for being here.  I consider all of you my cyberfriends and without you this journey would have been so difficult for many of us here.  So here's a toast to us, traveling through this journey and coming out on the other side stronger, wiser and lots more thankful for each day we have to spend with our family and friends.

    HUGS!

  • belleeast
    belleeast Member Posts: 653
    edited December 2011

    rj, ((((HUGS)))) to you!!!

    can this year get any worse, yes it can!! my best friend/cousin,my confident,the person who i could tell or do anything with, who never judged me,accepted me for who i am,who wasn't afraid to tell me like it was,who made me laugh,who loved me,who supported me thru my trials and troubles is gone. my heart is broken!!!!!!!

  • Kayrem
    Kayrem Member Posts: 164
    edited December 2011

    Belle - I am so sorry to hear about your friend. I also lost a dear friend 1 1/2 months ago.  It is terrible to lose someone you care about deeply.  I understand. 

    RJ Baby - I have read your posts all these months and not known how you have done it but been amazed that you have been able to do treatments and work as hard as you have.  I think you are such a strong and caring person to open up your house to your daughter and her children under the circumstances. I would have thought she would have tried to lessen your load (not add to it).  You are not crabby - you are worn out, exhausted and probably feel like crap.  You probably also just want some peace and quiet. Vent away baby - ANYTIME!!

     SPCMadi and Maggie - Congrats on your last treatment!  I will be joining your club on Tuesday. Looking forward to it/NOT looking forward to it.  I will be glad to get it over with but YIKES the SE's are really getting nasty.

    But nice things to look forward to at the end.  Will go to Grand Forks with the kids for a couple of days (they have a good hotel with a nice waterpark in it) before radiation starts in February.  Then planning a trip to Disneyworld in May.

    Good luck with SE's Kelli, Pinkshirt and Rae (hopefully they will let up and give you some quality).

    I hope everyone had a good Christmas - ours was great but really busy! Santa was good to everyone, including  me!  I got a stainless steel steamer unit (and pasta boiler!) which is great because we have pretty much been steaming all our food for the last 5 years in a plastic steamer.

    LeAnn - I hope you are doing well and I am thinking of you.

    Kimberly - How is the hair watch going!  Yes I do like foriegn movies  (always have - it is kind of wierd- I will be honest some I do not really get - Like La Dolce Vita - still think it was kind of a waste of time!).

    Hope everyone has a good New Year.  A nice relaxing New Year! And hopefully ....all of us will have good news and good health in 2012!

    Karen

  • khegidio
    khegidio Member Posts: 100
    edited December 2011

    SPCMadi and Maggie: Congrats on your last treatment.  I cannot wait.  My last one is next Wednesday and I am already having anxiety over it.  Like... what's next? It almost feels weird and I am nervous that I will be having a month of no treatment until my surgery on February 8th.  Don't get me wrong... I am so ready to be done with chemo, just a little nervous at the same time. 

    Belleeast: So so sorry to hear about your friend.  Unreal that something like that happens on top of what you are already dealing with. May you find some comfort and peace while you mourn. 

    RJ: Wow you have so much going on.  You are a rockstar!! I have a year and a half year old and that is tough but I have been fortunate enough to go on short term disability so I don't have that to stress about.  Power to you sister and may your daughter step up and help you out some more. 

    What I need to do is stop reading some of the other threads on this site. Every now and then one of the stage IV Metastatic threads catches my eye and I read into them and freak myself out.  My goodness those women are brave but I am hoping, like we all are, that I get to be and remain cancer free.  I need to get my mind out of the gutter and onto more positive things.  I am so looking forward to 2012 and I hope it is a year of good news for all of us!!

  • ccjj
    ccjj Member Posts: 128
    edited December 2011

    Khegidio....I know exactly what you mean about being nervous about chemo ending and what stops the cancer then.. I also have been getting side tracked by the other boards of more advanced BC.  I keep trying to find a pattern of which initial dx progressed or recurred and there doesn't seem to be one. Many ladies had very small tumors, and no node involvement and still progressed, others had lots of pos nodes, and all different hormone status. It is scary, but I guess we just have to move forward and hope we are all okay.  I keep trying to remind myself that the statistics are on our side.  We all have an 80-90% plus chance of beating this and that's pretty good.  I have been researching lifestyle changes.  My heavy Carb diet, definitely consumed more alcohol than I probably should have in my lifetime. That and the fact I did have my children after age 35 after years of birth control probably all contributed. Nothing I can do about any of that now. I also just looked at all my makeup and skin care products.  90% of them have the parabens and at least 4 other additives that are estrogen causing.  Not sure how far I will take the lifestyle changes.  Most people do all the stuff I have and don't get cancer. But obviously I'm not one of them. I figure if I can make some changes though at least I will feel like I'm trying and contributing to my future health.   I just wanted you to know that your not alone.  I spent the first half of this journey obsessed about my treatment. Now that its all in place and almost done I am freaked out about going forward. I really want to enjoy the end of my chemo treatments though. So..I plan to make some changes and try to enjoy the months ahead. Worrying will not be a productive use of my time.  Might be easier said then done, but that's my plan.  Although.. I just had treatment today and am on a steroid high.  I will be weepy and worried again by Monday! Crazy...

    Happy new year everyone... onto a healthier 2012. 

  • shelley2011
    shelley2011 Member Posts: 199
    edited December 2011

    Hi all, and Happy New Year!  Did any of you glance at the Dec chemo thread?  Apparently they  have changed the scale for the oncotype dx.  Now an 11 is the top of the low risk.  Phew, makes me glad that at an 18 I chose to do chemo!!!!

  • SCPMadi
    SCPMadi Member Posts: 42
    edited December 2011

    Happy New Years Ladies! I hope you are all able to enjoy a SE free evening! I hope 2012 is a better year for all of us. 

  • belleeast
    belleeast Member Posts: 653
    edited December 2011

    Happy New Years everyone!!! here's to a better year for all of us!!!!

  • Jerseylicious
    Jerseylicious Member Posts: 44
    edited January 2012

    I just wanted to say Happy New Year to all of you wonderful ladies! Let's ALL have a healthy and wonderful 2012....and thank you to all of you, I simply could NOT have gotten thru this without you.

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited January 2012

    Congrats Maggie and Sarah.  You survived the chemo and I hope the worst is over for you.

    Happy New Year's ladies.  We all want to leave the cancer diagnosis year behind and go forward to better times and we do the best we can to make that happen. I always thought the term warriors was overdone in describing surviving treatment until I saw all of us have been through,  I thought "in the trenches" was overdone, until I heard your stories.  You make me so proud how much strength women have and what they can get through.

  • Kelliregi
    Kelliregi Member Posts: 138
    edited January 2012

    Happy New Year!! I'm so happy to say goodbye to 2011 and hello to 2012. I can't help but believe that 2012 has good health and happiness in store for us all.

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2012

    Happy New Year everyone!  May 2012 be a year spent happy, healthy and cancer free!

    Belle:  Thank you for the hugs!  I am so sorry about your friend.  I am sending lots of big hugs your way.

    Kayrem:  You hit the nail right on the head.  I am just worn out  Thank you for your kind words.  Been resting the last two days.  Grandson is at his father's and daughter and grandaughter spent the night with one of her friends.  Don't think for a minute that I'm not loving the peace and quiet cause I am!  Got to finish a few projects that I needed to do and just enjoy some me time.

    Kegidio:  Thanks!  I just know 2012 has got to be a better year!

    Well, I thought 2011 couldn't get any worse but it did.  Shortly after my last post on Friday, my computer crashed.  I am having to use my yougest daughter's laptop.  The good news is the computer tech said it could be fixed.  The bad news is the hard drive is failing and it will cost between 200 and 300 dollards to fix.  So 2012 couldn't get here fast enough for me.  At least it is fixable and he thinks he can save most of the data but will not guarantee it.  I'll take it!

    My port site is still swollen.  I think there is fluid build up around it but I don't know why.  The only thing I can think of is I over did it a little after Christmas while doing my cleanup around here.  Don't know if I should call my doctor tomorrow or just wait unitl my appointment on the 9th.  It really is not bothering me, but I do know it's not right.

    Hope you all have a good evening.

    HUGS!

  • belleeast
    belleeast Member Posts: 653
    edited January 2012

    rj, i think you should call your dr, get it checked out.

    thank you everyone for the hugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    Happy New Year Everyone!  Wow 2012!!  I will be the big 50 this year!

    khegidio and ccjj, I have had many feelings like you both (and probably many others). Tomorrow is my last TAC.  People keep saying "yeah, last one woohoo".  I am so ready to be done but at the same time worried about future.  I know I should just be positive but lately find myself feeling down. I too read some of the sad stories on BCO and get really freaked out. I compare people's dx and then get more scared.  I know I could be so much worse off and tell myself worrying gets me nowhere.  I start rads in January and then I guess some hormone tx, which also doesn't sit well.  But, we do what we have to and try to move on. 

    Kind of funny how scarred and scared are so similar!!

    Sara ♥

  • CJRT
    CJRT Member Posts: 524
    edited January 2012

    Congrats to all you ladies finishing up! I go back Wednesday after my break. I'm getting anxious about it but trying to stay positive. I understand what you mean about the different concerns that arise when chemo ends, but I am really looking forward to being at that point!

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2012

    Going to PCP first in the a.m. then on to surgeon to see what kind of damage I've done to this port of mine.  The area is about the size of a small fist and you can tell it has fluid in it.  One of the EMT's came in the store tonight and looked at it and said I might have bursted a vessel or something but definitely warranted a visit to the surgeon.  I hope they just go ahead and take it out tomorrow since I am done with chemo.

    Other developments today involved the store where I work.  The owner called me today to let me know that they are cutting back everyone's hours and she hated to do it, but she is cutting my Monday nights.  You know, I'm not really going to complain because, well, just maybe a need a little break.  Sure will hurt my pocketbook with me starting rads, but what can ya do?  Maybe it is a blessing and I just don't know it yet.  At any rate, when business picks back up, I'm sure we'll all be back to our regular shifts.  Seen this happen before.

    Wishing everyone a wonderful day with no SE's.  I'll be back soon.

    HUGS!

  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited January 2012

    RJ - Tight financial, but the the bonus of time off.  There is a lot of stress financially from this, the bills.  When hours are cut either because you need to cut hours or they need to cut hours, I can relate.  Then what are you going to do without the normal pay?  I have to say for 6 months I was too tired to shop for anything, and that helped the budget. I know the budget can get really tight, looking at the cancer bills.  Is it okay to take time off?  Can I afford time off? If there was ever a time off that I needed it, it is now, during the cancer treatment,and so I have to suck up the cost of that too. The good news is that you feel better every day out of treatment and get closer to your normal self.

    About your port, hope they just remove it.

  • SCPMadi
    SCPMadi Member Posts: 42
    edited January 2012

    Good Morning Ladies,

    I am in the middle of my post #6 SE's feeling horrible, yet knowing that I don't have to do it again makes it more tolerable.  Took my first shower sans cuff this morning I am not sure why but this seemed like heaven to me. I am so glad the pick is gone. I hope you are doing well and that if you are not dne your Chemo yet you are almost there. 

    Sarah

  • cooka
    cooka Member Posts: 278
    edited January 2012

    Hi everyone, hope you are having a great New Year's so far! I was off the grid but glad to see so many of you have finished or are nearing the finish line:) 

  • mags20487
    mags20487 Member Posts: 1,591
    edited January 2012

    Hi Cooka...have not "heard" from you i a while...hope you are well.  Things are coming back to normal after the last chemo.  I am trying to get the readiation portion settled with the insurance co so I bet you can guess how that is going.  They have started to pay claims but have held back 10% of everything and so the bills are pouring in.  I am supposed to have a $2500 oop max but not sure what is going on now.  Such fun. 

    The taste buds are settling back in.  Could taste a wonderful spaghetti dinner my SIL made 2 nights ago.  First time the sauce tasted good.  Going shopping today to find a fab outfit to wear to my franchise conference  for accepting the award that we will get for the year.

    Cording in the left arm is so persistant.  Saving my 25 therapy visits this calander year for after recon--which I hope is done by the end of 2012.  Wanting to start back to working out.  Will do anything I can to prevent recurrence of this nightmare.

    To all of you still finishing chemo i wish you well.  Finish strong ladies.  

    To all of you who have not posted in a while I pray that all is well with you as well and that you can start to put these SE's behind you and move on to living again.  I feel fortunate to have found support and strength here.  This is way too hard to do alone.  I joined the Jan rads thread so may see some of you over there too.

    Here's to a new year full of new hopes and dreams for us all.  2012 is gonna ROCK!

    Maggie

  • rjbaby69
    rjbaby69 Member Posts: 349
    edited January 2012

    Morning ladies.  Hope you are all doing well.

    Well, surgeon is on vacation until Monday.  Showed my port to my PCP Tuesday and he said it would probably wait until Monday.  He said the surgeon would probably drain the fluid off of it and probably would not take it out.  At any rate, nothing has changed.  Still pumped up like a balloon where the port is.  It is not really painful, just feels tight.  No bigger or smaller than before.  Just the same,

    This is my last day of vacation.  Hate to see it end because I know I begin rads Monday.  I, too, have joined the January rads group.  Looking forward to getting this part behind me.

    That's all my updates for the day.  Plan on taking it easy and doing some last minute cleaning and preparing for work tomorrow.  Hope you all have a SE-free day and for those of us that have finished, may we rock on to the next phase.

    Thank you all for being there for me while fighting this beast.

    Lots of Hugs coming your way!

    HUGS!

  • khegidio
    khegidio Member Posts: 100
    edited January 2012

    Rj: my goodness I hope they fix your port. Sounds painful.



    Scpmadi: congrats to you. I am right behind you sista.



    I am sitting in mny last chemotherapy as we speak. TAC see you later. I am about 2/3rds of the way done. Should finish up around two thus afternoon then maybe a nice lunch before I go down.



    I decided to go back to work next Wednesday so looking forward to that. I will be there right up until my surgery on February 8th which will take me out of work for an estimated 4 weeks. Then more follow up visits to review pathology reports to see if I need radiation. Right now my tumor is not big enough to really qualify me, nor do I have multiple lymph nodes involved (only one from what they can tell). If my surgery Identifiesmore than that or my margins are not clear then I might have to do some radiation. Hoping not but i will do whatever they think I need. Then comes the hormonal treatment. The plan was to have me on tamoxifen for 5 years but with my recent pulmonary embolisms, she doesn't feel like that's a safe medicine for me since it raises the risk of clots. Turns out my other options that are equally if not more effective are ado aromatose inhibitors or something like that. Problem is, they only work if I am postmenopausal. So they will have to also give me shots to put me into menopause. Not what I wanted but my husband and I made a decision a while back that our goal is to have me around as long as possible for our son, and to not jeopardize that for another child. So i am okay with that. Get healthy first. If we want another child, we can adopt.



    So a lot going through my mind right now but I am so glad I am inching toward the being done phase.



    Congrats to all of us that are.



    You ladies give me strength.

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