Paliative care coverage in BC

Options
suz45
suz45 Member Posts: 796

Hi, Ive got a question regarding palliative care expense coverage in British Columbia... I'm sure each Province is different.

What exactly is it (PC)... Ive asked my GP, Substitute Oncologist (mine is on a 6 month hiatus) pharmacists and the BC cancer Agency Counsellor (this is supposed to be her job) and I still  cant get a straight answer from anyone. I been sort of told that once I was put in the palliative care program all medications in regards to cancer & tx side effect were supposed to be of no cost to me.. including OTC meds. I'm new to this right now and would like to know how I go about this, and what I'm supposed to do. (or the Dr)

As it stands now, nothings happening... Ive been paying for any meds that my DH's extended medical doesn't cover (being retired it has a lifetime cap and I don't want to use it up as he may need it in the future). Is there a certain protocol that Dr's are supposed to follow when they write me a prescription? Or is there something that I'm supposed to do?

It gets quite frustrating when you cant get a straight answer out of anyone in the medical system. So if anyone has some advise for me it would be greatly appreciated.

Hugs Suz

Comments

  • GG27
    GG27 Member Posts: 2,128
    edited December 2011

    Have you tried getting in touch with the BC Cancer Agency, they were really good with information once I called them, they are mainly volunteers, but there is usually at least one employee there who can answer questions.  I'm sorry that you haven't been able to get any answers, I found that the medical personel are lacking.  I just reread your request & see that you've already tried this.  

    I found this http://www.hospicebc.org/  & also this http://www.vch.ca/your_health/health_topics/home_hospice_palliative_care/hospice_palliative_care  (sorry I don't know how to make it a short link)  I'm assuming because you're in Vancouver that you are with coastal health authority.  There are a number of links on the right side on the last link.  I hope this helps some, it's sometimes so difficult to get information.    If I can help in any other way, please don't hesitate to ask. 

  • suz45
    suz45 Member Posts: 796
    edited December 2011

    Thanks Mfrog - I just noticed your post today. I'll have a closer look at the link when i get on a different computer... huge grrrr as I dropped my laptop so have resorted to using my really old one & its shuts down on me constantly. Once the post christmas rush is over I'll have to look into getting it fixed or buy a new one (it was just a over a year old) Thats what I get for leaving it on the arm of my lazyboy. Really appreciate the information & research you did!

    Hugs Suz

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited December 2011

    My Mom worked in Palliative in White Rock's hospital (volunteer). As far as she knew, the drugs administered were paid for by the hospital. That's when you're in the hospital.

    Don't know if it's the same if you're at home. I don't want to die at home and leave that mess for someone else to clean up!! How could my DH want to be in the same room that I died in? I've been with both my parents when they died and there were bodily functions and other procedures that I really wish I never saw. And THAT was in the hospital hospice!! At home, it would have been up to me to clean them up or suction out the mucus in their throats. You can't wait for the service to show up to do those kinds of things.I know some women say they'd feel honoured to do those functions, but seriously, I'd rather not have had to wipe my Dad's butt. A memory I don't want to have to have. I was very impressed with the hospital hospice. I'm sure private centres would be as caring, but then again, does provincial insurance cover what needs to be covered at a private centre?

  • Kathy044
    Kathy044 Member Posts: 433
    edited February 2012

    Hi Suz, sorry I didn't see this sooner. My husband recently started on palliative care (or early palliative care as I like to think of it. He's still under active treatment, but needs some home support). PM me if you'd like to talk about the program or just stuff. I've spent my share of time hanging out on the sixth floor at BCCA (Van) with my husband lately. Maybe we've seen each other.

    I'm assuming you've found answers to your questions by now, but in case anyone else is interested, under the BC Palliative Care Benefits Program many meds, including otc, are provided at no cost, but not everything, sleeping pills, for example, are not.

    http://www.health.gov.bc.ca/pharmacare/outgoing/palliative.html

    Kathy

Categories