daughters and breast cancer

lamuso
lamuso Member Posts: 123
edited June 2014 in ILC (Invasive Lobular Carcinoma)

I was diagnoised at age 46 with ILC.  My onc. figures I had the tumor for many years prior to diagnosis because of the size (5cm).  What are you gals with daughters told about our own daughters being screened for breast cancer?  I've received different answers from different doctors and nurses.  I know the initial mammogram date is pushed up for women who have mothers with breast cancer.  Any thoughts?

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  • karen1956
    karen1956 Member Posts: 6,503
    edited December 2011

    I was told 10 years younger than Dx or age 40....I was 49 when I was Dx so my DD would need to get first mammo at 39.....but more importantly, they need to be vigilent about doing breast self exam....my girls are 25 and 13....hopefully I've made an expression on DD#1 and that she does self exam...she is quite buxomy....DD#2 is still blossoming!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    I was told 10 to 12 years younger than the mom was when she was diagnosed, or by age 40. My mom was almost 58 (coincidentally, I was diagnosed at age 46), but I've been having mammos since I was 34. so I would want my daughter to start at least by 34, actually by 30 if they'll let her.

    Anne 

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  • Chocolaterocks
    Chocolaterocks Member Posts: 364
    edited December 2011

    hi how interesting I was dx at 49.5 and my mom was dx at age 62. I hope there is a vaccine or somthing better than we have for my dd who is 20. Also started having mammos at 35. AWB- how did they find the LCIS?

    to early for chocolate!

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  • Moderators
    Moderators Member Posts: 25,912
    edited December 2011

    Hi lamuso;

    You might find some info helpful on the main Breastcancer.org site on Lowering Your Risk, including Family History as a Risk Factor.

    Also, the Mammograms pages offer this info on When to Get a Mammogram:

    "There's a lot of confusion out there about when and how often to get a mammogram. For now, the recommendation is that women get a mammogram once a year, beginning at age 40. If you're at high risk for breast cancer, with a strong family history of breast or ovarian cancer, or have had radiation treatment to the chest in the past, it's recommended that you start having annual mammograms at a younger age (often beginning around age 30). This, however, is something that you should discuss with your health care provider."

    Hope this helps!

    --The Mods

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  • elmcity69
    elmcity69 Member Posts: 998
    edited December 2011

    I was also told 10 years prior to my dx date (I was 39; my mother was 49), but since I'm BRCA2+, the ball will start rolling waaayy before that. My current plan is to speak with my children (DD is 13, DS is 10) when they are headed into college - that is, about genetics testing and all that. I don't want to burden their adolescence with this scary stuff. THey've been through enough already. 

    I have talked with my daughter about the importance of drinking only organic dairy; I will never believe the FDA's take on hormones in our milk. She seems to get it. I would love to limit her dairy even more, but our lives are shadowed by cancer enough, I think sometimes.

    Hope this helps.

    j 

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  • Chocolaterocks
    Chocolaterocks Member Posts: 364
    edited December 2011

    J

    About a year ago I noticed that almost everybrand of milk in the regular supermarket changed their labels to hormone free and now I only buy hormone free milk and not organic. I saw a cancer nutritionist who told me that this is perfect.  Hope this helps and you are seeing the same in CT.

    C

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  • tuffgirl
    tuffgirl Member Posts: 63
    edited December 2011

    Hello Leslie!

    we have near the same diagnosis. Good topic! I have decided to gift my daughter with MRI  with Ultrasound (in consultation with our doc) when she reaches about 15 years prior to my diagnosis  age which  like you, was at 46. I was, like many with Lobular, burned by the mammogram and found it myself. take care all

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  • lamuso
    lamuso Member Posts: 123
    edited December 2011

    Hello Canadianmum22  and all who have posted on this site. It is so nice hearing from women who can relate to my worries.  Canadianmum22 I wonder why your are staged 111B and i am staged 11B?  I see our diagnosis is the same except for the grade.  I worry about my two daughters 26 and 21.  My cancer was so hard to find and I had a false sense of security every time I received a good test result.  I thought I would never have to worry about breast cancer as there is no family history.. I worry that a mammogram will not be efficiant for my daughters as that is my experience.  Maybe I have to think about paying for a MRI for each of them as well.  It makes me angry we have to go to extra measures to keep our daughters health in check and safe from the diagnosis of cancer.

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  • ma111
    ma111 Member Posts: 1,376
    edited December 2011

    I was also told 10 years younger then the age of the person with cancer. However, it is inflammatory that runs in my family, so I have taught some of my nieces how to feel for nodes and what to look for. I wasn't behind on my mammogram when I found a soft lump in my arm pit. Self breast exam should be taught in high school.

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