Is There A September 2011 Chemo Group?
Comments
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Belleast: That is horrible about your great niece. I know you mentioned it before but I didn't realize that the matter was still unresolved. I would not miss that trial for anything. I hope March comes quickly and all of that can be put behind you. Finding another lump must be the most horrible feeling. I hope and pray its scar tissue. Hopefully if your doctor was concerned about it he would have ordered the ultrasound quicker. Is there a reason he is waiting?
CJRT: Glad you are doing better. If yoou don't mind will you either PM me or post details of your healing? As you know mine is coming up in february and I was just curious. Seems like you are healing very well.
Rae: So glad you are okay. Its good to hear from you.
Well ladies - I have been on disability since my first chemo. I don't know if I shared but I deceided to go out on disability because it was 100% paid. If I decided just to take chemo weeks off it would have had to be FMLA which is unpaid. Regardless, my last chemo treatment is 1/04 and my surgery is 2/08. I have decided to go back into work in btween. I am not the stay at home type. I think getting back in the grind will really help me mentally get back on my feet. I also want to save the weeks so I have them to apply them to the disability for my surgery. Now that I am on blood thinners that adds a whole new complexity to the surgery. I figured I would save a few weeks to add to my recovery if I need it. This would make my go back to work day 01/11.
Take a look at this picture... thought it was so cute.
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khegidio, I love the pic!!!!!
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Really cute picture.
Rae, sorry about SE...feels like neverending sometimes.
I have been really nauseous this #5. Nothing seems to really help. I can't wait for this to be over.
I agree with you CJRT I would take surgery over chemo any day!
Has anyone seen this? I think very well done.
http://www.thescarproject.org/gallery/
Happy wednesday! Sara ♥
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Thanks, everyone.
Kate- Knew I would ramble on and didn't want to bore the group, so I sent you a PM.
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khedigio,my new mo said since this was first time he had examined me,he wanted to wait and check me again on jan 5th to see if there is a change or still there,i guess. love the pic.
finished my xmas shopping today wanted to get done before rest of SE start ,scalp pain started after i got home. zantac is helping with heartburn.
hope everyone has a great week and a great christmas!
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RJ - Is it your last chemo tomorrow? Do you have 2 weeks off?. How sweet it is baby.
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Helloooooo Ladies!
Kimberly: Yes, yes, and yes!!!!! Last chemo was today. Went fine. I have to go back tomorrow for my fluids and my neulasta shot. I have been scheduled for a bone scan and ct scan on December 27. Dr. said it was really too early but I told him the nurse scheduled me because I wanted to get them done before my new insurance year starts in January which means I would have to meet my 1500 out of pocket expense again. He agreed, although reluctantly. I am glad. Right now my insurance is paying 100% and I want everything done that I can get before I start over. Still don't know about radiation yet. I'm sure I will soon. Onc said my blood work looked really good even through my WBC were only 3.82. Down a little but I'm still fighting this sinus crud somewhat.
Youngest daughter went with me and we went shopping and out to eat. We had a great time and I picked up a few things for the grandson that my oldest daughter asked me to get. I think we're done, but I wouldn't swear to it!!!
Right now I'm feeling really good but we all know that I will probably be feeling the SEs come Sunday and especially Monday. My boss at the convenience store did not schedule me to work again until Wednesday of next week. Hurts the pocketbook, but I probably really need the rest since I don't have the other jobs to worry about right now. So that's what I'm going to do!
Hope you all have a wonderful evening. I'll check in later.
HUGS.
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Congrats, rj!
Today marks 8 wks pfc. Ankles still swell occasionally, fingernails are still on fingers but mostly dead. Hair is slowly reappearing and it looks gray! Seems that taste buds are mostly back however still can't drink my Diet Pepsi...water it is!
Good luck to everyone, fingers crossed for minimal se's this holiday weekend! Merry Christmas!
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Good morning Ladies. Hope you are all doing well today. I'm feeling good right now but I know what's coming about Sunday. Dreading it, but at least my family Christmas get-together is on Saturday so I should be able to get through it just fine. Should be able to get through Christmas morning without much fanfare but later in the day I know I will start crashing. Happily the kids will be leaving around lunch to go to the other side of the family's Christmas parties. Should be able to take a nap then and I will probably really need it too!
Shelly2011: Eight weeks, huh? I was so hoping I would start to feel normal in about 3 weeks. I dread my hands swelling back up, the loss of my taste buds and the ankle swelling. Now I've found that I have an itcy rash. It got better about 2 weekes after last treatment, but I think it's returning. I guess I need to invest in some more benadryl to get me through. Merry Christmas and I hope you have a wonderful weekend.
Hugs!
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rj, congrats on last chemo!!
shelley, glad it's getting better!
as for me, OMG! LORD HAVE MERCY!!!!!!! taxotereSE are worse than taxol!!!!!!!
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RJ- Hurray for your last chemo! That's wonderful! I hope you are able to enjoy your Christmas festivities.
Shelley - Wow - 8 weeks PFC! Hope your rads are going well for you.
Belleeast - I'm so sorry that the taxotere SEs are worse. I'm sending positive thoughts your way.
Kimberly - love the picture! You are so good at remembering everyone and their milestones.
I hope everyone has a good holiday. I will be thinking of you all!
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Linda - Am watching you too, even though you have a long haul. Cripes, long haul for all of us. Did you have to start the next therapy? How are you doing?
I don't so much love Christmas as I love New Years. I just love New Years because the holiday stress is over, the days have reversed and are getting longer again, and it just feels like a clean slate, like time to tackle things with new strength and resolve I feel replenished that I made it through the darkest days of winter and came out the other side and there is another fresh year and ever lengthening days and spring to look forward to soon.
May I take the chance to thank each and all of you ladies for listening to all of my gripes and misery this year, I was never so weak and miserable in my life and you helped keep my head above water by listening and commenting. PinkShirt and BlueJay especially I want to say thank you so much. The right word at the critical time....I love you like you sent life rafts when I was drowning.
Love you ladies, all of you. I know none of us want to have this in common, but thank you so much for being here.
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I have to add onto Kimberly's post. Thank you all for the support and information. I don't think I could have done this without all of you!
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Kimberly - I am touched to hear you say that something I might have written to you helped you out at a rough time. I think that the beauty of a community like this. I wish I could say something to everyone everyday that will lift their spirits. It makes me feel better about the days when I am especially down. You asked about my treatment - I will have my 2nd AC on 12/27. I made it through the first one but it was definitely rough. My last treatment is on 1/23 and then I will have surgery next since I am doing neoadjuvant chemo. I'm trying to put that out of my mind for a little while.
Shelley - I echo your sentiments and want to thank everyone for your support. You truly are lifelines.
I hope that everyone can get the most out of this holiday weekend. I know it will be different and more emotional for most of us. As much as I try to make it "normal," there is an elephant in the room that is definitely not normal. That doesn't mean it can't be good. I am writing this to remind myself of that as much as to encourage everyone else.
Big hugs to everyone. You are all special to me.
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Ha, PinkShirtNow said it much better than I could have.
to you, Kimberly, and to everyone -- peace and courage in this season of light.
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Merry Christmas to all of my sisters. I hope you all have a very fun holiday season no matter what you are doing. Peace and Love....
Kate -
merry christmas to all of you, i hope everyone has a great time with their families and friends!!!
hugs to all, as others have said you all are very special to me, enjoy the holidays!!!
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Wishing all of you a big, merry, side-effect free Christmas!!!
XOXO
Kelli
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Merry Christmas and happy holidays to all of you! Thank you all so much for being such a source of strength, support, humor, compassion, etc., for me throughout this. Hugs...
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I echo what everyone else here has said. You have each helped make this journey a little easier for me. Without you I would have totally been lost. Thank you all so much for just being here. I wish peace and healing for all of us. Merry Christmas my friends and Happy Holidays to each and everyone of you.
HUGS!
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Good morning - I hope everyone had a nice holiday. I am going for AC #2 today so please send positive thoughts my way. Lots of stress in my life at the moment as my 20-year-old son just took off to drive halfway across the country to a conference with a few college friends. I am a worrier by nature and this BC stuff has only made that worse. I doubt I will relax until he is safely home.
This same son has been away at school since I started my treatment so my weakened state was a bit of a surprise for him. I have spoken to him on the phone many times and I have always been upbeat so that he wouldn't worry too much. I guess it is tough to see your mom bald and fatigued. He told me last night how concerned he was for me and I told him that chemo was a temporary thing that I just had to get through however I could. He seemed to accept that but it still breaks my heart to see him distressed.
Anyway, positive thoughts and prayers would be appreciated because I am a bit of a wreck this morning. I'm sure my blood pressure will be through the ceiling when I am tested this morning. Knowing that I am going to feel like crap for the next week is weighing heavily on my mind.
I just had to get that out there. Thanks for your support.
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Pinkshirtnow.... sending positive thoughts your way. Just think.. only two more AC to go after this one.
I hope everyone had a very nice holiday. I enjoyed it with family and friends but must say I'm kinda glad its over. I'm anxious to put the Xmas stuff away and very much looking forward to 2012 and getting through the rest of these treatments. I have 5 more weekly Taxols left. My official return to work date is Feb 8. I will still be getting herceptin throughout the next week every three weeks, and finishing up my recon surgery. I know many of you also have rads and surgery, but at least this chemo stuff will be done for us and we can begin the healing.
Heres to hair watch 2012.... and more importantly.. that 2012 is a healthier and happier year for us all.
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pinkshirt, positive thoughts your way. my first a/c was the roughest, the others were rough but not as bad. here's to less side effects!!!!
bone pain is less for me, pain meds are working. having skin issues on hands, bright red across knuckles and painful, esp right hand covering whole back of hand. picked up udderly smooth hope it helps. also have yucky mouth,it's amazing the side effects that keep popping up!
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Pinkshirtnow: Sending lots of positive thoughts and energy your way. Thinking of you during this difficult time.
ccjj: Had a nice Christmas with the family and just enjoyed laying around doing absolutely nothing Sunday and Monday. Of course, I was in a little bone pain, but being still certainly helped! I'm ready too to put all the Christmas stuff up until next year. First I have to clean out the garage so I can get to my totes! Oldest daughter piled all her stuff in and I can't get to anything!
belleast: Glad your bone pain is less. I can so relate to the painful swollen hands. My hands have not turned bright red and swelled yet and I hope they don't! I took Benadryl all through my treatment and the weekend hoping to stop that painful SE. I just have a bunch of dead, peeling skin right now. Looks horrible I know, but it will heal. Udderly smoother should help.
Saw the ONC today. I had bone scans and a CT scan today. Went over the results and the ONC was very pleased! He said that not only were they good, they were excellent and I had a very good prognosis! Thank you Jesus for another prayer answered. I go to have my Radiation Evaluation on Thursday morning. I guess I'm gonna start that ASAP! Not looking forward to it, just another phase to get through. It's not so much the rads, but having to travel 45 minutes every day one way for 6 weeks that I'm not looking forward to. Just sux, but we do what we have to do.
Hope everyone has a wonderful evening with minimal SEs.
HUGS!
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Pinkshirt- Hope your day went smoothly and side effects are minimal. Sending positive thoughts your way...
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Thank you all for your words of support. My treatment was uneventful and I am still hyped up on the steroids. My bloodwork was good which made me happy. Neulasta shot tomorrow and I will take my Claritin like last time. I didn't have bone pain and I have no idea if the Claritin was the reason but I am not taking any chances.
ccjj- you are right, I need to focus on the fact that I only have 2 more AC treatments. You and I will be finishing up about the same time. I understand about wanting to put away the Christmas stuff but I think I will wait a few weeks. My husband loves the house when it is decorated for the holidays and I don't have the heart to take it down too early.
belleeast - I am glad to hear that your SEs are lessening and I hope the remaining ones go away soon. I have the yucky mouth too and I try to swish with salt water. It seems to have improved things a little bit.
rjbaby - congrats on the good news about your test results and your prognosis! So happy for you!
CJRT - Thank you for your positive thoughts. I hope your healing is continuing well.
Well, I'm off to take an Ativan so that I have a chance of sleeping tonight. Take care, everyone!
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Hello my sisters...has anyone heard from Lee Ann? Hope you are doing well if you are reading but just not posting. I cannot wait to say goodbye to 2011. This has definietely been an unexpected pot hole in my otherwise happy life. You have all made it bearable with your support and words of wisdom along the way and for that I am very grateful. Others in our life just can't fully appreciate this emothional roller coaster full of SE's and moments of complete breakdown. You all DO get it. May we coast into the new year with added resolve to fight this monster down. I have been researching more these days about my metaplastic dx and have decided to stay away from doing that and just focus on the task at hand--1 more chemo Tomorrow and then Radiation starting in January.
I hope that any of you currently suffering physically or emotionally (so bad about remembering who is doing what) will get relief. Thanks again for all you have done for me to make it this far.
Maggie
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maggie, yeeea congrats on last chemo tomorrow. you are right 1 step at a time is the way to do it!!!
went to mo today for my issues- i have mucositis, skin cellulitis on hands spreading up arms and i am neutropenic!! guess maybe he should have given me the neulesta after my chemo on the 20th.
on 2 more meds, supposed to keep track of temp-if i get one or if infection spreads go to ER.
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Good-Morning Ladies,
So tomorrow will be the last day of chemo for me. This morning I started back on my steroids and had my blood drawn. It feels so different this round. I am finding the reality of the final treatment t to be bitter sweet. I am so incredibly happy to be done yet my anxiety about not being on chemo (which prevents cancer from growing) is high. All my fears are returning it sucks. I wonder how long it will take me to mentally get to a point that every ache and pain don't produce an anxiety attack.
Wednesday I went in to have my tattooing done for Radiation. I was glad that the little round dots now adorning my chest are so small and did not hurt to get. The next phase of treatment is going to be so much easier in so many ways.
I hope you all had a SE free Merry Christmas. Bring on the New Year!
Sarah
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Congrats Maggie & Sarah!!! Being done with chemo is such a great milestone. I'm so happy for you
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Belle - I'm sorry you are still having problems with SE's and cellulitis. The mucositis seems to be lasting longer with each of my TCH treatments - most likely from the Taxotere.
Well, chemo was fun yesterday...NOT!!! I went in for my easy chemo - Herceptin only. The place was packed, but that was ok, my infusion nurse was from another office - and I thought that was ok, when she stabbed me 3 times trying to find my port - THAT WAS NOT OK!!! She finally called in a supervisor to stick me and she got it on the first try. I REALLY hope she isn't there next week for my last big TCH treatment!! Even if she is, she won't be touching me, one way or another.
I hope everyone had a great Christmas. We had so much fun with having all the kids and grandkids home. My oldest, his wife, and the grandkids left yesterday =(. The house is so quiet. I miss them already.
I'm looking forward to putting 2011 away and starting a new year. 2012 HAS to be better!!
xoxo
Kelli
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