Calling all TNs

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  • KSteve
    KSteve Member Posts: 486
    edited December 2011

    To all of you wonderfully supportive sisters -- just got a call from my ONC -- MY PETSCAN FROM THIS MORNING IS CLEAR! No explanation for the raised ALP but who cares! Thank you so much for the kind thoughts and prayers ... Best Christmas gift ever!

    Happy holidays to you all,

    Kathy

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  • KSteve
    KSteve Member Posts: 486
    edited December 2011

    Titan -- looks like you should be planning a trip to Vegas! You said you were a betting woman and you were right! Let me know and I'll meet you there :)

    Kathy

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited December 2011

    KATHY!!!!!!!  WOOOOO HOOOOOOO!  You have yourself a fantastic Christmas.

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    TifJ - yes, Monaghan prescribed it.  It's interesting that he now says the side effects are not worth it if you are low ER+.  His exact words to me were "positive is positive."  Ask him to give you Metformin, and if he says no, ask your PCP.  It may be a better answer for TNs.

    KSteve - congratulations!  I cried tears of joy when I got that call from my RO! 

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  • TifJ
    TifJ Member Posts: 1,568
    edited December 2011

    Hallelujah Kathy!!!

    Michelle- forgive my ignorance, but what is the Metformin for? I see him next week, and ask him what his current take on Femara or Tamoxifen is!!

    Just finished making and decorating sugar cookies and dove chocolates w/caramel on pretzels. The kids are great little helpers- there is frosting ALL over my kitchen table!!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    ksteve yeah!!!!!!!!!!!!!!!!

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    TifJ - there are ongoing clinical trials to determine if metformin is effective to prevent recurrences.  I told Monaghan about this last June but he completely discounted the notion.  At the time the clinical trials were just in Canada, now they are all over the US. 

    http://www.clinicaltrials.gov/ct2/results?term=metformin+and+breast+cancer

    http://www.clinicaltrials.gov/ct2/show/NCT01101438?term=metformin+and+breast+cancer&rank=6  is  recruiting in Kansas at

    Kansas City CCOP. This trial is also being conducted in almost every major cancer center in the country.  I don't think he can ignore it any longer.

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  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    Yay Kathy!  I'm off to buy a lottery ticket..though your WIN was enough for me...!

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  • Kimberleyann
    Kimberleyann Member Posts: 3
    edited December 2011

    I posted this in another thread but I think I was in the wrong place so I've posted again here.  My Mom has just been diagnosed and I have questions.  Her oncotype DX came back at 59.  First alarm bell.  Her gene reports were ER less than 3.7 (negative), PR less than 3.2 (negative), HER2 8.4 (negative according to their scale - the negative cut off is less than 10.7).  Her doctors seemed surprised by these results. 

    I am assuming this means my Mom is TN?  She had her CATscans and echocardiogram today.  She was on radiation therapy (X8 treatments) but that was discontinued yesterday when they received her results.  She has been told she will need to start on Chemo.  Her appt. with the oncologist is next Wednesday. 

    My Mom is 76 but very active and healthy.  She had surgery and radiation for DCIS about 4 years ago.  The new tumour was in exactly the same place as the first one. 

    I am trying to educate myself so I am able to offer the best support.  I live in Canada and my parents are in Florida.  I am a nurse and I'm trying to decide if I should fly to Florida next week to be with my Mom when she receives her diagnosis and treatment recommendations.  Would it be better for me to spend time with her once she is having her chemo?  

    I know so very little about breast cancer and especially TN.  Any advice would be really appreciated. 

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  • CharB22
    CharB22 Member Posts: 310
    edited December 2011
    Fantastic news, Kathy!!! You got your Chrismas Miracle!! Have a wonderful, wonderful holiday.
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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    Kimberleyann - so sorry about your mom, and that she is so far away from you.  That makes it really tough.  In my opinion, your mom will need you more during chemo, if she is going to do it.  I'm not so sure I'd want my mom to do Adriamycin, though, at that age.  This is a tough call and a situation where a second opinion might be a good idea.  I would be sure to ask the oncologist how much benefit your mom gets from doing various chemo protocols. 

    Hugs,

    Michelle

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  • MBJ
    MBJ Member Posts: 4,352
    edited December 2011

    Just stopping by to wish everyone Happy Holidays and a Happy New Year!!!!  Hugs to everyone!

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  • Hope60
    Hope60 Member Posts: 223
    edited December 2011
    Kathy - YAY!!!! Great news!!!!  So happy for you!  Yes, it's the best Christmas gift anyone could get!
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  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Heather, I'll try, but it's so hard, isn't it bad enough we have to suffer through chemo, now my hubby, eek

    Kelly, I know huh, it made me tear up also

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  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited December 2011
    May God give you...For every storm a rainbow, for every tear a smile, for every care a promise and a blessing in each trial. For every problem life sends, a faithful friend to share, for every sigh a sweet song and an answer for each prayer."

    There's more, much more, to Christmas than candlelight and cheer; it's the spirit of sweet friendship that brightens all the year. It is thoughtfulness and kindness, it is hope reborn again, for peace, for understanding and goodwill to all women!

    Wishing you all a safe and happy Christmas
    Lots of love

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  • CharB22
    CharB22 Member Posts: 310
    edited December 2011

    I'm newly diagnosed TN and still have lots of questions. I've seen some women say they are a percentage (i.e., 3%) ER+. Where is that information? On the pathology report??

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  • TifJ
    TifJ Member Posts: 1,568
    edited December 2011

    Char- it wasn't listed on my path report. it was in my doctor's notes. He told me. Just ask your dr. for the results.

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  • CharB22
    CharB22 Member Posts: 310
    edited December 2011
    Thanks TifJ. I'll do that. I meet my MO on 1/4 - hopefully she'll have that info since I'm not due to see my BS for 4 months. Thanks and Happy Holidays.
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  • TifJ
    TifJ Member Posts: 1,568
    edited December 2011

    Happy Holidays to you too Char! Hope your appt. goes well! I think my MO gave me the ER/PR stats. The BS didn't.

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  • bak94
    bak94 Member Posts: 1,846
    edited December 2011

    BernieEllen-beautiful post! I hope your pain gets better over the holidays and that you are able to put your worries away.

    HappyHolidays to all! 

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  • Teka
    Teka Member Posts: 10,052
    edited February 2012

    A Merry Little Wish for an Abundance of Good Health in 2012 :o)

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Teka - Amen!

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  • CharB22
    CharB22 Member Posts: 310
    edited December 2011
    Teka - Amen to that!!!
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  • LRM216
    LRM216 Member Posts: 2,115
    edited December 2011

    Just stopping by to wish all of my wonderful sisters beautiful holidays.  May they be filled with love, joy and serenity. 

    Love to all,

    Linda 

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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited December 2011

    Wishing you all Merry Christmas and a Healthy Happy New Year Ladies

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  • mitymuffin
    mitymuffin Member Posts: 337
    edited December 2011

    Kimberleyann,  it can be helpful to have someone to take notes and listen as a doctor explains the disease and treatment options. It is such overwhelming news that we are partially in shock, making it difficult to process words and information. When my mother was diagnosed with lymphoma (23 healthy years ago) I went with her and took notes. This proved important later when we had to make decisions. 

    Alternately to flying down, maybe you could have a telephone conference with the doctor?

    I'm sure you feel frustated and helpless, and scared. I'm sending you love and good wishes.

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited December 2011

    I would like to wish each and every one of you a Very Merry Christmas and a wonderful Happy Holidays.  I hope you each find this time to be the most healing, most peaceful and inspirational, even if you are going through treatment or testing challenges, as I know we are very strong women, each one of us to be battling or having battled this disease.  The energy is great at this time in the world everywhere as most humans do get humble, so I hope we can grab this energy to heal.  My best wishes for all of you most wonderful and strong women.  Best Wishes for the best new year 2012.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Thought you guys might get a kick out of what happens when you set pet gifts out a bit too early. Hubby witnessed a bag with a tail go flying by @ 5 a.m. this morning. I awoke to a cat lying next to me with the handle of a bag wrapped around his neck. The bag contents were scattered throughout the house. The cats eyes were all glazed. Apparently, Canadian catnip is nuclear grade...

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  • MBJ
    MBJ Member Posts: 4,352
    edited December 2011

    That is hysterical, Heidi!!!

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    HeidiToo  -  OMG, what a riot!!!

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