November 2011 Rads
Comments
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I'm waiting, too - no prophy surgery for me because no strong family history and BRCA neg. I used to be an optimist because I've always been healthy and lucky in life but I'm not convinced that I'm not going to have a recurrence now and I want to be mentally prepared, as much as possible. I'm really going to try and stick out the Tamox -- it has been 3+ months and so far, so good. Just hot flashes that came after 2 mos and will hopefully fade away in time. I don't have endometriosis or other gyne risk. Tamox is so much easier than rads, for me.
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I have been on Arimidex for 9 months. I took Zometa infusion in my port when they discontinued my chemo after they thought I had stage 4. Many of you will be starting Tamoxifen or Arimidex. Give them a fair chance. I took my Arimidex all through rads. I fight some side effects like joint pain and tiredness, but I am NED, and it is worth being on it, for me.
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RealtorJackie - what is NED? I have not heard that before. There are a lot of acronyms on this board...
I am so glad you got your Christmas miracle...Very happy for you.
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MrsMot, NED means no evidence of disease. NED is one boyfriend my DH does not mind me having.
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Realtor Jakcie: Yay!!!!!! Glad you are done..nothing better than the happy dance. Prayers that your onc visit goes well.
Natters & RN4babies: Sorry your husband or partner aren't being more supportive. Hopefully you can both surround yourself with love from other family members for the rest of your treatments.
I had forgotten how wonderful my guy can be until now. He was a champ during surgery and kept me organized during chemo. He's not too interested in hearing about rads though. I think seeing the SE just the one time was enough. It's nice to have all of you to hash it out with. He did point out to me that I only have 2 more regular treatments before the boost. I'm so glad about that since the worst area for me is the center of my chest. It's a dark red and seems to be blistering a bit. Hopefully it will heal quickly, though my RO told me radiation affects continue a week after treatment end.
Had an exciting day yesterday. My parents are out of town and a neighbor called to say their was a broken window and it looked like someone had taken their car. She called the police for us. When my son and I arrived from the hour drive, the police had just finished up. They couldn't find any fingerprints. My parents car, television and jewelry were gone. Unfortunately, my folks hate cell phones and will only turn theirs on when they make a call then turn it off so I can't get a hold of them. My son and I cleaned up everything and got the window repaired. My sisters, brother and I have decided to buy them a new TV for Christmas while they are gone and set it up. Hopefully it won't be too upsetting for them.
The worst part however was when my brother and his wife arrived. My DSL started asking about an uncle who is dying of cancer. He put off doing any chemo, surgery or rads and instead opted for alternative medicine. My sister-in-law kept going on about his dying until I took her into another room saying I didn't think this was good for my son to here now. She then finally caught on and said how wonderful San Diego oncologists were. I was so glad to have the excuse that I needed to get home for a nap! I was about to strangle her. Ah.....family.
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Oh my goodness, nans! That is the kind of excitement you do NOT need this time of year. So sorry to hear about it, and I hope your parents aren't too traumatized when they get back.
I'm going to visit my family and I know they will be wonderful and supportive and cheer me up. We went to see a couples therapist today and we have another appointment scheduled for Tuesday morning. I am really hoping we can turn things around. Before then, I will enjoy seeing my family, especially my adorable niece and nephew.
Nat
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I was wondering if anyone WBC's went down while they were/are getting radiation treatments. Mine are at 2.7. Should I be concerned?
And to the person that complained of having nausea while getting radiation, I'm having that problem too.
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Thank you Elizabeth. I feel stupid.
Toomanycocktails - I don't think my WBC is effected. My husband is sick with a cold and I have not caught it. I had the Nuelesta shots after every chemo and it kept my numbers normal. Now that I am in rads, I haven't had a blood test. You should talk to your doctor. Hopefully he/she will give you good answers to your questions.
So my chest is red and full of red spots that itch like mad! I have put cortizone on it and it works for a few minutes. I sure hope this doesn't get worse, but I think it will. Today was #16. Half way there. Oh and nausea has been an issue with me as well.
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MrsMot, Please do not feel stupid. The only stupid question is the unasked one. We are all here to help each other. I hope your itching and nausea will improve soon.
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MrsMot - you and I are on the same treatment schedule. I've got the itchies, too. My RO told me to take benadryl, especially at night so that I wouldn't scratch it in the middle of the night. It does work for me. I haven't noticed any nausea, though. But there was another older lady at the treatment center on Tuesday and her daughters asked me if I was noticing any nausea, because their mom was having a problem. I guess it's not really all that unusual. I would ask your RO for something to help if you don't have a drug left over from chemo.
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My skin finally started improving, so much so that I'm attempting a bra today. One of my coworkers who had a UMX with recon gave me a big bag of bras of all different sizes and I found one from Wacoal with a pink ribbon on it that might have been designed for BC peeps because there are no seams inside and the inner material is extra soft, no underwire, and even the bottom seam is kinda soft compared to most bras, rather than rough elastic. I'm still padding my raw areas with a thick coat of Aquaphor, then a Tefla bandage, then some gauze pads, though. But it's as small as an eraser now, maybe, and the rest of my breast seems to be finally healing. I am 10 days out from my last boost. Less swelling and tenderness and the breast seems more brownish tan than angry red, too. The raw area has mostly peeled and is growing some new skin. I was so encouraged by the way it looks that I tried wearing a bra this morning and I even went for a short run. It made me feel so normal again, between that and being able to wear a bra to work for the first time in 6 weeks
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Mrs. Mot.
I too had that bumpy, itchy rash. My MO suggested I take Benadryl. It took almost a week but the bumps and itch are gone, just the blotchiness to finish healing...HELPED A LOT. Oh, I also used a Cortizone cream on the area.
Vickie
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I use a cortisone cream when I itch so much that I can't stop scratching. And I take 50mg of Benadryl every night to help me fall asleep, so that probably helps me avoid scratching overnight! You can get it OTC - it's called Simply Sleep and most drugstores have their own store brand that is basically the same thing (diphenhydramine).
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Just had my first boost today...I was completely surprised. I thought I had one more to go before they started. I checked when I got home and sure enough...I miscounted. I forgot the Sunday treatment we did the weekend of Thanksgiving. What a great Christmas present.
Mrs. Mott and Luv RVing hope the itching gets better. I've been doing like Natters and taking some over the counter Benadryl to help me sleep. It just keeps my mind from going to much during the night.
Natters- a bra!!! I'm so jealous. My surgical bra is comfy but makes me look like an 80 year old with saggy boobies.
And a run too. I'm very impressed. You give us all inspiration.
I just got a Yoga for breast cancer DVD from a friend for Christmas. I always loved Yoga but haven't done it since my MX. I'm looking forward to starting it up again. Hopefully I will get enough strength back that I can go to the class I used to take.
Have a great weekend everyone!
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Yup, cortisone cream followed by Moisturel cream, add in a benadryl capsule and I seem to be itch-free so far today. Off to #17 in a few minutes.
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Benadryl is a great idea. I have been taking one at night along with Ambien just to help me sleep and stay asleep. I might start taking one when I get home after tx. I had picked up a 600 count Costco brand (Kirkland) for $10.00 or so. So its cheaper then Benadryl but same stuff.
LurRVing I do have compazine left over from chemo so I have had to pop one of those here and there. I carry them with me in my bag at all times now. It hits me about 30 minutes after a meal. One minute hungry...next feel like barfing. What fun!
I need a bra like that Natters - I cannot find one that is comfy and fits. One boob is swollen and now anything that touches my chest bugs the ** out of me (necklace, bra, etc.). So I am going freebird with a sweater or jacket. I am happy to hear that you are healing. My time will come too and it will all heal.
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After driving to treatment today, I found out the machine had broke down. I was laying there waiting for the treatment to begin; but nothing happened. The tech comes in and tells me that she would have to call the repairman; and that it would, probably be about a hour and a half before the machine would be back up. She gave me the choice of skipping a the treatment (my husband and grandson were out waiting in the car). I decided to skip the treatment.
I want this to be over. I'm so tired. But what can you do?
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The delays are SO frustrating and it can make rads seem to last forever....sorry to hear about your experience today, TooMany
I hope we forget all these setbacks and all the tears in time, maybe appreciating the holidays that much more in 2012. -
Thanks Natters. I've got 12 more tx's to go. (28 tx's plus 10 boosts)
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Hope everyone has a very happy holiday. Took two days and went to Victoria BC to see all their lovely lights. Six more boosts starting tuesday. Techs had a four day holiday but that was okay . The RO had me take a week off because my skin was looking bad. Have to say I enjoyed the break even though it means I don't finish until January 4th. They are taking the 2nd off as well. Praying that everyone's new year will see them on the road to recovery and a visit by NED.
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Merry Christmas everyone! Here's to a wonderfully stress free fun day.
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HAPPY HOLIDAYS TO ALL MY SISTERS! LET'S CELEBRATE LIFE TODAY! Love to all!
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Merry Christmas to all...
So much to be thankful for....and you, my BCO friends, are a huge factor in my recovery.
Bless you and your families today and in 2012.
Joan -
I was thinking as I drove to treatment today how lucky I am that it is so close and that my appointments are so quick especially since I have my son with me today. I spoke too soon though, usually I am in and out in 10 minutes today I am still waiting after 20 minutes. I'm now regretting my decision to let my 13 year old wait in the car listening to music. Hope I get called soon!
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Hope everyone had a great holiday! Back at it today. My poor skin is sore, bull of red bumps and so very itchy. I dread going in today, however, the sooner I start back the sooner I finish. I hope they are not running late either.
That always happens Nans when you bring someone along. Last time my husband came with me, it took 30 minutes when its usually less then 10. I am sure you are done by now.
May all have a minimum to no SE week.
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Hi everyone! I have only 3 rads left. I am sooooo excited to get my life back. Hope everyone had a nice time off. I am enjoying relaxing and being with family and friends.
My skin has turned black, itching and peeling. The tech assured me it was normal. Any friction from fabric makes me miserable.
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Missey, keep your eyes straight ahead and soon you will cross that finish line! Keep going'
I did #21/30 today...#22 in just a few hours. Am red, have itchy rash, and wonder how the boosts will affect my "ground zero" area. I know I'll get through, at this point.
Best wishes and hugs for all...
Joan -
I had my last boost two weeks ago today. The area of the boost is brownish-pink and has a very leathery texture. The itchy bumps on my chest are fading away and the other burned areas are pink and sensitive, but everything is so much better than when I was getting rads. I feel for those of you getting towards the end, as that was really difficult, but you will make it through and there is a light at the end of this tunnel. Take care of yourself.
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There IS a light at the end of the tunnel. My boosted area wasn't too raw before I began boosting and it never got too burnt. However, under my arm where my breast meets my chest was very raw for a couple weeks and it started to spread and peel under my breast. It did start to heal up about 10 days out from my final full-breast treatment, I would say. At first I was freaked out because it did continue to get worse after my tx ended, but in less than a week that stopped. Now I am healed up enough to wear a bra again, even though I am still using lots of Aquaphor and sticking a surgical pad between the bra and my skin on that side where I was really raw.
I know how hard it gets closer to the end, but YOU CAN DO THIS!
Nat
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I forgot to follow up with some of you on my throat issue. I spoke with my doctor (who I am just loving!) and she said that the area they are radiating is part of my lymph nodes in my neck. She said its normal. My throat feels tight, I really need to chew my food thoroughly in order to swallow.
Thanks for the encouragement Natters. I felt like doo-doo last night after #19. I really did not want to do this anymore. But, I feel a little better this morning and will go. Its easier then chemo...but its not. Its a different form of torture. Why does the treatment have to be so bad? Three and a half more weeks to go. Ugh.
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