Tumor growth just three weeks after last chemo treatment

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DebbyN
DebbyN Member Posts: 6

I'm very worried. Over the last few days, I've noticed my tumor has begun to grow again and has become very painful. Almost as painful as when I was first diagnosed. Has this happened to anyone else? I contacted my doctor today and he contacted my surgeon and had my appointment changed from next week to this Thursday. He said he felt it was vital to have surgery ASAP and the tumor was more aggressive than he had originally thought. 

Please help! 

Comments

  • cookiegal
    cookiegal Member Posts: 3,296
    edited December 2011

    I'm not a three but after my biopsy my tumor swelled. I never felt it before that, and it kind of creeped me out. I am not sure if this is useful at all...but it stayed that way for 6 weeks, until I had surgery.

  • manekineko
    manekineko Member Posts: 9
    edited December 2011

    DebbyN,

    Is this your first surgery? Looks like you had lymph node tested (you posted 2/2 positive). Did you have your lumpectomy or mastectomy? Anyway I had my recurrence on chest wall (right where I had biospy) 9 months after my mastectomy. Tumor was not painful but it was getting larger day by day. I was on Tamoxifen so my doctor changed my medication to Femara then sent me off to breast surgeon. I had surgery to take out my recurrence then did whole breast radiation therapy. Almost one year now and no evidence of disease. I am glad you acted promptly. I read lots of breast cancer survival books. Each survivors have their own theory why they have survived but one thing is always there. They took a charge on their health and act upon it.

    Good luck, Manekineko

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2011

    Debby, it sounds as though your doctors are responding quickly to your situation, and taking action to get this change resolved without delay. Please come back after your appointment Thursday, and let us know what you learn. This wonderful community is here to support you, and we're all wishing you the best.

    Judith and the Mods

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited December 2011

    Debby,

    Sheesh I'm sorry you are having this scare.  I've had my share over the past 2 years and it never seems to get any easier.  But hopefully they can get your surgery date moved up and get rid of the tumor once and for all.  Then perhaps you can have some peace of mind.

    Let us know what the doc says Thursday.  We're all here for you!

    Sharon

  • DebbyN
    DebbyN Member Posts: 6
    edited December 2011

    Thanks everyone for your support! This past year has been a total nightmare and I've felt very alone. I'm surrounded by friends and family that love and support me, but I don't have support from people that have actually been in my shoes. 

    One year ago, my 20 yr old son came home from basic training very sick. A week later, after several mis-diagnosis we learned Joseph has Leukemia. My world started spinning. Eight months later, I was diagnosed with triple negative stage 3a breast cancer. Many times my son and I sat side by side receiving our chemo at the same time. Within a month, I lost my house, most of my clients and had to move two hours from home with my parents so they could help. To be honest, I'm just now beginning to research my own cancer. I just googled triple negative yesterday. I've been so overwhelmed with my son's health, I've ignored my own. It wasn't until my tumor started to grow and the doctor's concern threw me into a panic, that I began to research. I'm still so totally ignorant of my prognosis. I can tell you anything you want to know about leukemia but little to nothing about triple negative stage 3 breast cancer. My son is very sick and in and out of the hospital. We are on a first name basis with the EMT's. I've brushed my cancer off as a small thing because I'm not as sick as my son...until yesterday. For the first time since my diagnosis I'm really scared about my own health. I'm trying to hide all of this from my boys so not to ruin their Christmas. I smile and joke and act like everything is great. Until they go to bed and I totally fall apart. 

  • jennyboog
    jennyboog Member Posts: 1,322
    edited December 2011

    Oh Debby....bless your heart.  What a terrible year for you.  I think that's normal...your a mom, it's what we do....we put everyone elses needs in front of our own.  You said your tumor was growing, is this just by your feel?  I only ask because I had a large tumor and I thought the same thing while I was doing chemo, a mammo showed it was not growing.  The chemo made my tumor hurt also, it ached and was sore all the time, I would also have sharp pains in that breast.  I'm so happy you have an earlier appt. and I hope you get some answers that you feel good about, let us know.  My thoughts and prayers are with you and your son, I hope things turn around for you soon. 

  • DebbyN
    DebbyN Member Posts: 6
    edited December 2011

    The tumor growing is just by my feel. I would totally LOVE to hear that it's not really growing. I've had it swell within the first few days after chemo, but this seems different. I remember, before I started chemo, I could really feel the tumor when I was driving. When I had my right hand on the steering wheel, I could feel the tumor rubbing against my arm.That feeling went away about a month into my chemo, but over the last few days, it's returned. The pain feels different as well. I have a constant dull ache, with occasional knife sharp pains...even after taking really strong pain meds. I thought I was ready to wean myself from the pain meds, but if I don't take them, I can't function.

    I'm very relieved I don't have to wait to see my surgeon. My biggest fear is getting really bad news from him and then having to try and put on my happy face through Christmas. I suck at acting and I'm barely able to do it now, it's going to be even harder if something really IS wrong.

    I called my mom this morning for support. Her response? I'm being a hypocondriac, like when I was a little girl. She actually compared this to the time when I was five and stubbed my toe and was convinced my entire foot was broken. REALLY?? I know she' s trying to help, but she's actually making me feel worse. And pissing me off. Comparing cancer to a stubbed toe?? Arggggggg!!!

    I was also wondering if any of you guys had to get more chemo after surgery? At my last appointment, my doctor said he didn't think more chemo was going to be needed, because my tumor had responded so well to chemo. That's all changed now that I'm feeling growth in the tumor.  

  • MaxineO
    MaxineO Member Posts: 555
    edited December 2011

    Oh Debby. I am so sorry to hear this. Please get some help taking care of your son. He needs you to take care of yourself and so do you.

    You have had chemo; is your surgery scheduled yet? I suspect that will become a high priority, so please be sure to schedule it soon. Even if it affects Christmas. I know your family will understand because they need YOU to be healthy.

    Sorry to hear about your mom's heartless comment! I could go on and on about unknind statements I have had directed at me. I suspect she means well, and she is probably just trying to comfort herself because she is scared for you.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited December 2011

    I'm sure you know what you are feeling and what you're not, I do hope it turns out to be nothing.  As a BC patient we always are hypersensitive and think the worse but that doesn't deserve the comments we get from time to time, even though they may stem from that persons own fears.  I'm sorry about your mom's comment, my mom told me once she wished I would just move on and stop letting it effect my life....my comment back to her was, me too, you think I don't want that.  That's why I love this site so much, it's my own personal BC haven where others get it, I can take off the fake smile and survivor t-shirt and be the scared person I am.  I was suppose to do chemo after my BMX but didn't because I responded so well to chemo.  My dr said lets save it in case we need it down the road so I did.  I was a bit freaked out by it though I wondered if what I did was enough, I didn't want it but I did if that makes sense. 

  • DebbyN
    DebbyN Member Posts: 6
    edited December 2011

    My appointment with my surgeon was eye-opening. It appears my oncologist has made several mistakes in his treatment of my breast cancer. I should have already had a mastectomy according to my surgeon. He said he normally does mastectomies around 2 weeks after the last chemo treatment. It's been a month for me. My oncologist told me I would have surgery around 8 weeks after my last chemo treatment!  My surgeon said with aggressive breast cancer, and with a tumor as large as mine (it was about the size of a tennis ball), surgery needs to be done as soon as possible. My oncologist also said I would not need radiation. My surgeon said that was also wrong.

    He said there were no gray areas in my case. Mastectomy and radiation were both a must. My surgery has been scheduled for January 4th...the soonest my surgeon could do it. He did an ultrasound today and was pleased to find the tumor had shrunk considerably and had not spread to my lymph nodes. That was very good news. He said I had responded very well to chemo and he really had not expected a good outcome for me when I first came in his office in August.  I was very relieved my oncologist had not cost me more damage, but I'm still very upset and plan to change oncologist ASAP. He's also my son's doctor. Joseph is 20 so he'll have to make the decision to change doctors, but I plan to be very honest with him about the things my doctor did wrong. It makes me very nervous knowing this same doctor is treating my son's leukemia. 

  • jennyboog
    jennyboog Member Posts: 1,322
    edited December 2011

    Debby, I'm so sorry this has happened to you.  I don't blame you for switching and being scared for your son, I would be also.  Cancer is such a terrible thing to happen, we're already scared enough and we need a medical team we trust and have confidence in...your confidence in him has been broken now, you would question everything he said from now on.  I hope you find another dr you feel comfortable with soon.  I'm glad the ultrasound showed no growth or spread...small victories! 

  • elmcity69
    elmcity69 Member Posts: 998
    edited December 2011

    Debby, you and your son are on my prayer list, double time!

    Jenny is right: you are absolutely justified in switching, and your concerns for your son. SO glad to hear that there wasn't further growth.

    Take it a day at a time, 5 minutes at a time, whatever - until January 4th. Counting the days with you!

    xo

    J

  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2011

    Debby,

    I send love and prayers for you and your family.

    Be blessed xox

  • vivirasselena
    vivirasselena Member Posts: 278
    edited December 2011

    Sending you and your son all the love and light and prayers in the world.

    I know what it's like to get hit back to back....my baby brother died of a brain tumor in October of 2010, and 2 weeks later I got my diagnosis of breast cancer.

    God bless you and your beautiful son.

  • DebbyN
    DebbyN Member Posts: 6
    edited December 2011

    Thank-you everyone, for your kind words and encouragement. Having breast cancer is scary enough...when you find out the doctor you trust is not taking care of you as he should, it's terrifying. 

    My son, Joseph, had a chemo treatment Monday. He had the mega whammy as we call it. He had a spinal tap to check for any new  leukemic cells and then two chemo drugs put in his spine while they're in there. He also has 'regular chemo' through his port and one given by shot. Since his diagnosis last December, he's never had the mega whammy without ending up in the ER. Fortunately, this time he only had weakness and minor nausea. We were thrilled! If you had told me two years ago I would be celebrating over a 'good' chemo treatment I would have thought you were crazy. Oh how cancer changes your life.

    My son's strength amazes me. He has about 18 more months of chemo. Just four months of chemo knocked me to the floor, but he just keeps charging along. He'll be 21 next month. The age when most people are celebrating their passage into 'adulthood'....my son will celebrate his birthday in the chemo room at The West Clinic. Life can really bite.... 

  • spendygirl
    spendygirl Member Posts: 231
    edited December 2011

    Debby just wanted to send you hugs.  What a time you are going through.  I can't even imagine one of my children having cancer, that's tough enough - but then you have it yourself.  You sound like such a strong lady.  Sending you prayers and lots of positive energy, Tracye

  • gretagrady
    gretagrady Member Posts: 3
    edited April 2012

    Hi Debbie N,

    I read your December 20th post which really speaks to a situation I'm going through now.  I feel that the tumor in my right breast is growing- but not really sure.  I was diagnosed with stage II DCIS cancer.  My tumor was about 5 cm.  ER-, PR +.  I was started on Taxol, but after 7 weeks of Taxol it was found that my cancer had actually grown.  I was started on a triple cocktail of FACand the tumor decreased by 50% after 10 days.  My last ultrasound a month ago showed that the tumor decreased another 20%.  However, on the following week I had a chemo treatment and I started getting a lot of aches and pains in my tumor- sharp pains mixed with dull pains.  Now it's been three weeks with lots of pain, and visually it looks like my tumor has become more prominent.  I have lost a little weight so I've reasoned that maybe the prominence is due to the weight loss.  The tumor and is very very hard.  My Oncologist has said that the hardness could be due to dying tissue and cells, and I've read on other blogs that chemo does of course cause death to tumors, and that can cause pain.  I am trying to get another ultrasound this week.  my Oncologist is reluctant to order another one so soon since I just had one 4 weeks ago- he wants to give the chemo time to make an impact.  I'm just not willing to wait.  So I've said all this because I saw on one of your entries that even though you felt that your tumor was growing, and that it was aching again like it did when you were first diagnosed, that actually it had not grown and that it was ultimately seen as responding to the chemo.  I just want to see how things have gone for you, and if when you were thinking that your tumor was growing if you saw any prominence or visual changes, or was it just the pain? 

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