How much does Herceptin improve HER2/neu + prognosis?

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    I try to do sugar from natural stuff. A little agave syrup. I also eat fruit, rationalizing that it is different sugar. Lol. I have to mix my stuff up too because I get bored easily and basically dont like it to start with. I have not done pool classes yet as I just cannot jump into cool water. I like it to be bathwater warm. If not, I get in inches at a time if it is cold and look like a big baby.

  • lago
    lago Member Posts: 17,186
    edited December 2011

    dja625 Osteopenia is not osteoperosis. I too had osteopenia at my first bone density scan.  My onc recomend I add add itional calcium (already taking additional D3). Next bone denisty test (after chemo, chemopause and 5 months of Anastrozole) I only saw a .1 (1/10 of a decimal point) of bone loss.  Depending on how close your o steopenia is to osteoperosis you may have no need for  major concern.

    Sugar in general is not good for you but I have yet to see information from reliable sources that say it can be a cause of breast cancer. Yes if you have a high blood condition suger there may be a link but that doesn't mean that just eating sugar will put you at high risk for breast cancer.

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    Thank you for your response. I am just going to be pro-active about taking calium and vit D. I was low on Vit D. I will have it checked again at my next appt to see if I need extra D in the winter. I will also continue to have bone density tests when needed. Weight baring exercise is great for your bones, so I'm making sure to work-out at least 4 times per week.

    As far as sugar, I am just trying to limit my intake.

    It would be nice if I knew the reason for my cancer, but right now I don't seem to have the answers an don't know if I ever will.

    dja625

    IDC stage 1a, Er- Pr- Her2neu 3+ High Grade

  • lago
    lago Member Posts: 17,186
    edited December 2011

    dja625 both my PCP first prescribed the D3 when I was low D. My onc prescribed the Calcium because of my osteopenia (and weight bearing exercise but I was already doing that). I would check with your doctors before you start taking supplements. You want to be sure you are not taking too much. Yes too much D is not good for you. Not sure about the calcium.

    Don't drive yourself crazy figuring out why you got breast cancer. They really don't know for sure what causes it. I had risk factors like being white, no kids, dense breast tissue and tall but these aren't things I could have actually changed except may not having kids (before 30).

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    My PCP an Oncologist put me on high doses D3 and Calcium and Omega 3 Fish oil when I was low. Then, I was retested, and it was low normal, so they had me go to a normal supplement of calcium and D along with the omega 3 to help absorb it. We'll see how it is when I'm tested again.

    I know sometimes I drive myself crazy wondering how this happened, when I am pro-active about my health. I'm not perfect, but I eat healthier than many people I know, I exercise.

    I also had very dense breasts and had a large tumor when I was only 12 and 3 more going through adolenance. They were all benign, and they were all on the left side. ,,

    When I was 49, I went for my mammogram and they saw some suspicious areas on the right side and it turned out to be cancer.

    My grandma had a mastectomy on my father's side so maybe there is a gene but I was tested for BRACA I and II and I was neg. It could be another gene or the enviroment, who knows??

    This is what happens, I try to find a cause, hit a wall, and get on with living my life and enjoying my family. I had my children when I was in my 20's and I nursed both of them, so it's not that. Who knows??

    There is life after breast cancer and that's what I'm trying to focus on now that my treatments are done and my hair is growing back.

    Back to living Life. Happy Holidays

    IDC stage 1a, Er- Pr- Her2neu 3+ High Grade

  • melly1462
    melly1462 Member Posts: 84
    edited December 2011

    @Lago:  Did I read that right?  Being tall is considered a risk factor? 

    This HER2 thing scares the crap out of me too.  I'm second guessing myself as to whether it was a good idea to wait until after the holidays for surgery.  I feel like the lump has gotten bigger.  

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    Melly1462,

    I felt the same way about waiting. After 2 breast sparing surgeries were unsucessful, I had to wait a month and a half for the bilateral mastectomy. I talked to the doctor about how I felt and she eased my mind as much as she could. Talk to your doctor. The whole cancer thing is nerve tracking. I'm learning (it's a process) to deal with the situation as it comes. Hang in there.

    dja625

    IDC stage 1a, Er- Pr- Her2neu 3+ High Grade

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    I never knew being tall was a risk factor??

    IDC stage 1a, Er- Pr- Her2neu 3+ High Grade

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    I'm only 5'3", so I know it wasn't my height.

    IDC stage 1a, Er- Pr- Her2neu 3+ High Grade

  • lago
    lago Member Posts: 17,186
    edited December 2011

    Melly1462 Yes there was a study that found that being tall was a risk factor. I'm still not chopping off my long legs Tongue out Just do a google search using the terms "tall, breast cancer risk"

    I too was worried about how fast my tumor was growing. I was told it started 4 years prior. My tumor including the non invasive part was 6.5cm! My mammo was 6.11.10. My surgery wasn't till 8.31.2010! I was so scared it was going to get into my nodes or grow/attached to the chest wall. Ended up it didn't change. Yes they are fast growers but not that fast. You BS wouldn't have you wait if there was a problem. If you had IBC believe me they wouldn't let you wait. That spreads really fast.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited December 2011

    It's funny, since my diagnosis I have been less vigilant about making sure I exercised every day and ate only what was good for me. That didn't work before diagnosis so why will it work now. I had my first kid when I was twenty had seven kids and nursed them for an average of about a year and a half each. This whole thing is a crap shoot. 

    I still do try to eat healthy foods and execise but I cut myself more slack. BC has made me realize that I want to live until I die and I will not worry if a piece of chocolate will bring my cancer back. I drink more now than I ever did before. No don't call AA. Now I will have a glass of red wine 2 or 3 times a week. Before it was only for very special occasions. I guess what I'm trying to say is  I am grateful to be alive and I am going to enjoy every day I have.

    My tumor was small and caught early and I may have felt diferent if it were larger.

    P.S. I will be five years out in February.

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited December 2011

    Lago Tall as a risk factor? Well, I'm not surprised-they are really grasping at straws trying to figure this thing out. I was watching a webinar not long ago with Dr. Susan Love and she was explaining that although we have gained tremendous knowledge about breast microbiology, we still don't fully understand the anatomy of the breast ductal system-wow! So close and yet so far...

    Melly1462 Take a deep breath-try not to freak yourself out (easier said than done). As others have said, even aggressive BC takes a long time to develop. My BS said that it had been growing for at least a few years to get to a size where it could be seen on a mammogram (my Her2+ tumor was 1.2 cm).  I know you will feel better once you've had surgery and started treatment, but a few weeks won't change things.

    Rosemary-b I like your way of thinking:) I'm doing the same thing. I was always active before BC and was already eating healthy (my big risk factor was not having children if they are right about that). 'I've always been thin, never smoked and was not drinking at all because it provoked migraines for me. Since the onset of chemopause and the crazy change in hormones, my migraines have miraculously gone away. So, I'm not becoming an alcoholic either but I'm making up for some lost time since I believe this is a crap shoot too! I am thoroughly enjoying a glass of wine when I want it, eating dessert when I feel like it and not feeling guilty if I don't exercise enough. I feel like I was doing all the right things and got BC anyway so I'm just going to move forward doing things in moderation and hope for the best. I'd hate to spend my time and energy being stressed about doing all the right things, have a recurrence years from now and wish I had eaten more cake and had more wine:) Cheers!

  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited December 2011

    I trained like a mad woman, ate only healthy food, didnt drink much and never smoked!

    I now love every day to the fullest and if it means have a glass or two, then so be it.

    Life is for living.... and I'm loving it

  • lago
    lago Member Posts: 17,186
    edited December 2011

    Dragonfly do a google search on tall, breast cancer, risk and several articles will pop up. I don't make this stuff up.

  • sewingnut
    sewingnut Member Posts: 1,129
    edited December 2011

    At 5'8" guess I'm doomed.  Bartender, I'll have another  =;0)

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited December 2011

    Lago I know you would never make something up- My point is that the researchers still have no idea what the cause is so they are associating BC with every trait they can think of...

    On a totally different subject, I was so sad to read the headline that the former Miss Venezuela, Eva Ekvall, died yesterday at age 28 from BC:( I'm not sure which subtype she had. I know she had been very vocal about her treatment journey and had written a book and published pictures of herself going through chemo, etc. BC really sucks!

  • lago
    lago Member Posts: 17,186
    edited December 2011
    DF1 I was kidding. They also list being female as an issue. Tongue out
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Oh no....being a girl....5'9....im doomed. I hate to think of my daughter who is 5'11, 23, no kids, and says she is not having them. Going to adopt. Maybe I will tell her that her risk is reduced if she has kids and then I will have some hope of grandkids. Neither of my children is in a particular hurry.

  • lago
    lago Member Posts: 17,186
    edited December 2011
    Fluffqueen it think is many factors that have to be in place for one to get any kind of cancer. IMO I do feel that the stress I was going through at the time pushed the final button. BTW I'm not that tall. Only 5'6" but I know the gals on Illinois Ladies thread are all heights.
  • dragonfly1
    dragonfly1 Member Posts: 766
    edited December 2011

    I do think that stress may somehow kick off a chain reaction of other pre-existing factors-whatever they may be. I had just had one of the most stressful years of my life leading up to my diagnosis.

  • lago
    lago Member Posts: 17,186
    edited December 2011

    Seems many of us here can say that. According to my BS's guess as to when my cancer started it would have been after working 15 months at the horrible place (and 6 moths after quitting smoking). Yes I know dumb time to quit...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    My most stressful year was in 2006. IF it takes a few years to show up, that would be it. I left the job that I liked a lot, but was just too many hours, high stress, and had gone through some management changes. As a member of senior management, it had quit being fun. Now, as Indianapolis gets ready to host the Super Bowl, I think of what my life would be right now and am so glad I left. I would be working around the clock, totally stressed, with no concept of a home life.

    Lago....I agree that it takes all kinds of factors. I was just kidding on the part about my daughter. I spent my mid 20's to early 30's working in community affairs for a bank. Our boss smoked a pipe, and the guy next to me chain smoked. Even though I had my own office, the whole area was enclosed and usually had a haze to it. I think of that often and wonder if that even could have a long lasting effect. And then I think that here I am, fairly healthy with the exception of BC, and my SIL's husband chain smokes, eats sausage sandwiches, has a terrible diet, and just goes merrily on his way. You just never know.

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    I think we've all had stressful times in our life. I know I have. I have a child with Autism. He is such a joy and he has taught me so much about life. It has been very stressful because I have had to fight so hard for him to receive an appropriate education. Now that he's 26, I still have to fight for services so desperately needs.

    Could this be the reason why I had breast cancer?? I don't know??? Here I go again!

    I know many other families that have a child or children with Autism and other disabilities and they are cancer free. I don't understand this terrible disease and how it strikes.

  • lago
    lago Member Posts: 17,186
    edited December 2011

    Stress is just one trigger. I believe you need several triggers for the cancer bell to go off.

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