I told myself I shouldn't do it, but I did anyway...

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I know it wasn't smart and I knew that if I did it I would be right where I am right now... sitting here typing a message of panic.  I had my first ever bone scan this morning, and I did what I knew was a bad idea.  I peeked at the scans.  And now I'm "sure" I saw metastases, but I know I am not qualified to read a bone scan.  When my scan was finished, I looked over to see the technician "marking" a couple very dark spots on my scan... one was in my elbow and the other in my shoulder.  I wasn't worried because I had been told that if you have cancer in your bones, your scan lights up like a christmas tree, but then I came home and googled (another no no) and now I'm freaked, because everything I found on google says a black spot on a bone scan is bad news.

So either talk my out of my panic, or be brutally honest with me...

Is black on a bone scan bad news?

Comments

  • SheChirple
    SheChirple Member Posts: 954
    edited December 2011

    Deep breath.  Remember, as you said, you are not qualified to read a bone scan.

    Dark spots could be anything.  The only indicate an area of bone that absorbed large amounts the tracer.  The reason could be about anything including an old injury, arthritis, infection, etc..

    Light spots are more typical of spots that do not absorb tracer, such as cancer.

    DO NOT PANIC.  Further tests will likely be ordered to help determine, if needed.  I'm sorry you are back into the waiting game. 

  • iammommy
    iammommy Member Posts: 213
    edited December 2011

    I had the same on fingers/feet and it wAs arthritis. Don't panic. Nan

  • April2
    April2 Member Posts: 25
    edited December 2011

    Have you had a CT scan of those areas?  I had a speck show up on my bone scan.  My MO said it would be very unlikely for the spect to be cancer if the CT did not show anything in that area, which mine did not.  The speck turned out to be nothing.  I hope your spots are nothing too!

  • changes
    changes Member Posts: 622
    edited December 2011

     I did the exact same thing when I had a bone scan (hard to resist playing amateur radiologist). As others have said, various things can cause an increased uptake on a bone scan, including arthritis.

  • Lee_Asbell
    Lee_Asbell Member Posts: 12
    edited December 2011

    There can be many reasons the tracer is absorbed faster in some areas of the body, like my aching middle-aged feet. The tech asked me if my feet hurt after the scan. I said, well yes, but that is nothing new. Turned out to be nothing. Try not to freak out too much. Easier said than done, I know.

  • catbill
    catbill Member Posts: 326
    edited December 2011

    Do you have injuries to your elbow or your shoulder?  It could be an indication of previous injuries.

  • Faye33
    Faye33 Member Posts: 180
    edited April 2012

    Thanks for all the responses.  No I have not had a CT scan of the area, and no injuries to the areas.

    The main area I'm worried about is the elbow.  It was very dark... like what the heck dark.  Could this possibly be from the fact they injected the tracer in a vein near my elbow?  Would that show up on the scan?  The tracer was injected 3 hours before the scan.

    I'm telling myself that must be what caused the black on my elbow unti I hear differently. 

  • Ellie1959
    Ellie1959 Member Posts: 316
    edited December 2011

    Please try to relax - when I had my bone scans my big toe lit up like the proverbial Christmas tree- and it was a spur that I had removed. I understand your anxiety. I have been having unGodly back pain lately - and right away I think it is in my bones, and I am almost 6 years out. Please let us know what you find out.

  • pupmom
    pupmom Member Posts: 5,068
    edited December 2011

    I had a bone scan Friday. Thank goodness I did not observe the technician even looking at the scans afterward. I would have freaked over what would probably have been nothing also! A little bit of knowledge can be dangerous! My guess is that, like everybody else says, you have nothing to worry about.

    Best wishes! 

  • reesie
    reesie Member Posts: 2,078
    edited December 2011

    YES. My center puts a band over the injection spot to reduce that problem. The injection spot will definitely show more uptake because there is always a pool of the tracer in that spot even with the advance timing.

  • Faye33
    Faye33 Member Posts: 180
    edited April 2012

    Thanks, guys!  You have helped reassure me and make me feel much better.  I appreciate you taking the time to reply.

  • christine47
    christine47 Member Posts: 1,454
    edited December 2011

    The elbow where they put the dye WILL light up.  I also had a knee and both shoulders as well as skull light up.  I do not have any bone mets, just osteoarthritis, and I don't have arthritis pain.  The skull lighting up post chemo is not unusual per radiologist.  I had my bone scan done because of tailbone pain, I was sure I this would light up, and it didn't.  I hope you have official and normal results soon.

  • Faye33
    Faye33 Member Posts: 180
    edited April 2012

    Heard the results!  The scan was normal!  Thanks for all your supportive comments!

     I've learned my lesson... I won't try and interpret scans anymore.

  • changes
    changes Member Posts: 622
    edited December 2011

    Congratulations!

  • angelsister
    angelsister Member Posts: 474
    edited December 2011

    Thats briiliant. Yay for normal scans! Best wishes x

  • Racy
    Racy Member Posts: 2,651
    edited December 2011

    Congratulations on the good news. Happy Christmas!

  • christine47
    christine47 Member Posts: 1,454
    edited December 2011

    excellent news!!!

  • anonymice
    anonymice Member Posts: 532
    edited December 2011

    Yes!!!!! Congrats and have a happy, happy holiday season!!!

  • bevin
    bevin Member Posts: 1,902
    edited December 2011

    Excellent news. I was going to chime in that my Bone scan "lit UP " too and it was all arthritis, then I read some more posts and saw your latest update. Such good news and in time for the holidays.

    Congrats to you!

    Bevin

  • Faye33
    Faye33 Member Posts: 180
    edited April 2012

    I got the official report in the mail today.  My shoulders had "mild activity", but it wasn't mets... they called it a "degenerative pattern".  Does anyone know what that means?

    I'm assuming some sort of arthritis or normal "aging", however would this be normal at 35 years old, or should I blame nasty chemo for this damage as well?

    Thanks for all the congrats!  Laughing

  • christine47
    christine47 Member Posts: 1,454
    edited December 2011

    Heather,  I had the mild activity in shoulders too, with moderate activity in right knee cap.  Degenerative pattern does suggest arthritis, I think from aging and activity (not a bad thing), I am 47, my shoulders have never hurt, I am quite active, the knee did not suprise me as it hurts sometimes with lunges, and squats.  What prompted you to have a bone scan?  I had/have tailbone pain, and this area was completely normal.  Hope you are doing well.

  • Faye33
    Faye33 Member Posts: 180
    edited April 2012

    I had the scan because I've been having hip pain.  Now that I know my scan is all clear, I'm thinking the pain must be from the Tamoxifen.

  • J9W
    J9W Member Posts: 395
    edited December 2011

    tamoxifen did a number on all my joints!  I finally stopped taking it after 1 year (I had a dx of DCIS though). My hips, knees, ankles and actually my thigh bones hurt horribly while on that darn drug and for about 6 months after stopping it too.  Glad to read your scans were clear. 

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    When I had my bone scan, they asked me very carefully about any breaks I had ever had. I assume because they show n the scan and they don't want to mistake a toe that broke ten years ago for a cancer lesion.

  • CherylinOhio
    CherylinOhio Member Posts: 623
    edited December 2011

    Congratulations!!  I have been having some neck pain so I had an XRAY done back on October of neck and lungs. Both were clear, neck did show some degeneration, plus I was in a rear end collision a few years ago so I always have some pain.

    My questions:  Can an Xray detect otehr abnormalities? and if so I would think the radiologist and my onc would order another test  Second: I heard tamoxofin makes your joints ache so that coudl be it to.

    I see my onc on the 20th of January and will ask abotu a scan or a blood test.

  • deborye
    deborye Member Posts: 7,002
    edited December 2011

    After my CT scan which was ordered due to a rising TM, it did show some degeneration of the osseous skeleton in the spine.  That is due to old age and Arimidex.  I have to do some bone strengthening exercises.  Otherwise all else is normal.

  • jcb51
    jcb51 Member Posts: 382
    edited January 2012

    Many of you have posted that spots on your bone scan turned out to be arthritis or something other than mets. How did they make that determination? I just had several spots show up on a bone scan "consistent with metastatic disease". I had rheumatic fever when I was a kid and I've had trouble with arthritis most of my life. Most of my spots are in areas where I've had problems with arthritis or where I've had a broken bone. When I mentioned that to the doctors I've seen so far, both of them told me that it's definitely mets and not arthritis. After reading your posts I don't understand how my doctors can be so sure my spots are mets. Could someone please help me understand this?

  • apple
    apple Member Posts: 7,799
    edited January 2012

    i had an opportunity to look at one of my scans.. and totally misinterpreted the spots.

    (congrats Faye!)

  • Kenziezmomee
    Kenziezmomee Member Posts: 1
    edited January 2012

    My mom just had her bone scan and it did lite up in most of her bones. She has been in a lot of pain for about a month now. She is almost 2 years out from her last chemo. She had trip neg idc stage 4. Im so scared and sick with worry. Is there anyone out there currently with M.B.D.? I am aware it is not cureable but I can't seem to find a good answer for survival rate... She will have more info in a couple of days. Is there any way it might be something else when there were so many places glowing and her being in so much pain?

  • Leah_S
    Leah_S Member Posts: 8,458
    edited January 2012

    Kenziemomee, I don't know what else would give these results on a bone scan, but bone mets is a treatable condition.

    I don't know a lot about triple negative, but I suggest you post your question on the Stage IV forum to get better answers. If you start a topic, people who can help will see the question and be able to answer.

    Best of luck to you and your mother.

    Leah

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