Immune system help after Chemo

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Hi ladies, I have not seen a thread on this topic and would like to know what others have found to help bring up white counts after chemo. Mine is lingering  just below the normal range and it makes me nervous. I want to be someplace in the middle. I am here to pick the collective brain.

Thanks

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  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Merilee my count is low  and falling lower as well. The last time I was at my natural health store I asked them to suggest something to help build it up. I have been using something called Ligustrum they suggested. It is recommended by the Cancer Institute I think. I won't know if it is working till my next blood work up, but my thoughts are it can't hurt, and it might help.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Thank you Kira I will look it up. Another member told me last night that she has had good success with Corilius Mushroom. I guess they use it routinely in Japan for chemo patients.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Kira-may I ask how long you have finished with treatment? I finished Chemo in June and rads in Sept. Forgive me if I should know, it is very hard for me to keep track of who is who and where everyone is in their plan.

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Merilee I never finished my chemo. I had a very bad reaction to the first treatment I had last year in Sept. I spent months just trying to over come the effects of that one treatment. Was told by my BS as well as the new onc. they would not be willing to continue the chemo treatments. In November of last year my white count was mid normal, but over the last year it has gone down steadily. I saw the suggestion of the mushroom suppliment. I plan to pick some of it up as well.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Well maybe we can figure this out together Kira.

    I had a terrible time with chemo too and had to take a reduction for the last 3. I was sure that the first one almost killed me. What is your onc saying about your counts? Mine is not concerned, but I am. Mine was 3.1 about 6 weeks ago and then was up to 4.1 after 3 weeks or so of high doses of Vit c and 13C, and zinc. My onc is blaming it on the rads, my rad Doc is in complete denial that rads could have hurt me and even tried to tell me that I was burnt red from laying in the sun, not his rads. Needless to say he looked like nothing but a jack ass o me from that point on. I have come to believe that it is I who will save my life, not the medical community.

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Marilee mine was up to as high as 7.1 back in November of last year, but now it's 4.1. My Onc. doesn't  even want to talk about why it's going down. He keeps telling me things are looking good, but at the same time my tumor markers have shot up. I went from 19 to 27 in 6 months. I know it's still in the normal range it it kinda concerns me.

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    Egg whites are really helpful. I have kept up my white cells through 8 chemo treatments that way. One way I eat them is in pancakes. I make the pancakes with whole grain flour, berries and egg whites only, no yolks.

    I also try to eat fish a lot, easy on the stomach and high in protein. Often I will make a simple white fish of some kind with salsa. 

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Kira Mine held on for chemo with the help of neulasta but after radiation is when mine tanked. I was surprised and was caught off guard. Now I am in fix it mode.

    Momine- I have also upped my protein, my wellness doctor asked me to do that a few weeks ago.

    She also gave me Glutathione. I think I want t come over for pancakes :) I'll bring the Acave syrup.

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Merilee the neulasta does bring the counts up during chemo, but there is no lasting effect from it. I think the counts drop from both the chemo as well as the radiation treatments. It's a cumulative effect. I often wonder where mine would be if the chemo treatments had been continued. I didn't stop chemo because of my white count, but rather because of a systemic infection that I came down with.

    Momine egg whites to treat low white counts is interesting. My Onc told me to eat whole eggs daily for the extra protein which I've been doing. I had been eating just the whites.

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    Kira, I eat whole egss too, but for cholestorol reasons, it is not great to eat 3-4 whole eggs per day. By eating whites, you can increase the amount of eggs without ODing on cholestorol. Several people told me that the protein in egg whites was the most effective to up white blood cell counts. Not sure why or even if it is true, but it seemed to work for me.

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    Merilee, you shall be welcome any time.

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Momine, I agree too many whole eggs can raise cholesterol which is why I was eating egg whites. I'm thinking maybe I should eat a whole egg along with an egg white instead. I have found eating the eggs daily seems to be giving me more energy which I'm hoping will mean my counts are going up.

     I do miss pancakes. With the pain from the Femara in my joinsI have taken glutin out of my diet, but I must say I miss the bread products sometimes.

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    Kira, try other flours without gluten. My health food store has flour made from buckwheat or rice  and a bunch of other kinds too. When I make pancakes, I use a little flour (but you could use buckwheat or other) and then cornmeal, oatmeal etc for the rest of the bulk. It tastes good and is good for you.

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    I already have the flour, but it doesn't make fluffy bread or pancakes. I wonder if I mix it 50/50 how it would be. I find if I am careful to only eat glutin maybe one time a wek I'm fine.

  • Momine
    Momine Member Posts: 7,859
    edited December 2011

    It won't work for bread that well,  but it should work for pancakes. Just use a little extra baking powder if necessary. 

    Another thing you can try, for making bread, is to go for flatbread instead of fluffy. Just make a simple dough of whatever flour, sat and water, maybe a little oil. Roll out fairly thin, crepe-thin, and bake for a few minutes in a hot oven. It is sort of like a chapati/wrap/tortilla type thing, but can be good if you are craving a bread-like substance. 

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Momine I never thought of cooking it that way. I love the idea, and will give it a try today. I'm making soup and would love some bread with it.!

  • seacretgardn
    seacretgardn Member Posts: 269
    edited December 2011

    Kira and Merilee, do you mind if I ask what tx you received and what determined your Drs to lessen or stop your txs?



    There are so many SEs and it's difficult to wonder if one is just going to exhibibit more SEs orvif this is indeed a toxic amount.



    I wish you both the best in repairing your immune system, and will share anything I happen to learn.



    I know of someone who received large dose vitamin infusions on her alternate tx weeks, she was able to work through AC then T.



    This of course was discouraged by my onc.



    I just don't know.



  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    secretgartn, My dx is much different than yours. My tumor was 7mm no nodes involved. Originally no plan to have chemo till the Oncotype test came back at a 24 which is the gray area. It was my decision to go for the chemo. I had the internal radiation right after the lumpectomy, 2 weeks later I began chemo. It was way to early to start chemo, and my body just was unable to handle it. I ended up in the hospital with an imfection that took 3 months to clear up. By the time the infection was cleared up it was to late to finish the chemo treatments. I was going to recieve TC/4, but only did the first treatment.

  • seacretgardn
    seacretgardn Member Posts: 269
    edited December 2011

    Thank you for your reply Kira.



    Prayers and hugs for continued improvement.



  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Here is a short and sweet history

    3  years ago- 1cm tumor, after two attempts at clean margins, a BMX-no chemo, no rads

    11 months later a second 1 cm tumor  in my arm pit- 4 rounds of CMF-no rads

    8 Months later a 3rd 1cm tumor also in my arm pit-4rounds of TC 33 rads

    Currently waiting for lab results from skin biopsy for possible  skin cancer from rads

  • peggy_j
    peggy_j Member Posts: 1,700
    edited December 2011

    Merilee, sorry to hear about your ongoing issues. This isn't chemo specific but when I had a dental infection my DDS said you can boost the immune system with extra Vit C, D and especially plenty of sleep. My BS's nurse said that walking 1/2 hr a day can boost the immune system. FYI in case this helps.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011

    My doctor said that it can take years after chemo for the WBC count to come back up...and  other than just trying to live a healthy life style there is really nothing to make it come back quicker other than to give it time. I think he is right; when I had my checkup in November my WBC count was in the normal range for the first time since I finished chemo, which was in June 2007!

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    What a long time for our counts to come back. I will say ruthbru you have been a great advocate for a healthy life style, and I'm sure it has kept you in better shape during those years. I thank you for your dedication to helping those new to this disease as well as the great advice you give. You were so much help to me last year when I was new to all of this and very scared.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011

    Thank you very much, kira! You have made my day Smile.

    I will add that my platlets are still kind of low too, & he has the same advice for them....time, time, time.....the idea I take away from this is, if you are feeling O.K., then you shouldn't be overly concerned about the numbers.....

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Good news, my biopsy came back as B-9

  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011

    That is the best Merry Christmas present!

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011
  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011

    Relax now and enjoy the holidays!

  • seacretgardn
    seacretgardn Member Posts: 269
    edited December 2011

    Merilee, that is just wonderful news.



    Thank you also for your reply.



    I hope nothing but the absolute best for you.



    Laura

  • kira1234
    kira1234 Member Posts: 3,091
    edited December 2011

    Merilee what a great Christmas present!

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