Where are the Skin Sparing Nipple Sparing Procedures Done?

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  • AK_Girl
    AK_Girl Member Posts: 9
    edited December 2011

    I had a single NSM done 12/15/11.  Dr Javid and Dr Louis at SCCA/UW in Seattle. 

  • TinaT
    TinaT Member Posts: 2,300
    edited January 2012

    San Francisco @ California Pacific Medical Center (CPMC).  PM me for details...

  • Annabella58
    Annabella58 Member Posts: 2,466
    edited January 2012

    HI all, I am so disappointed myself...just had consult with PS, not only am I a lousy candidate (38DD at least, but pitosis is extreme.) I'd not want to have two surgeries with the good chance of necrosis and losing the nipple, to keep it.

    I wish. 

  • TinaT
    TinaT Member Posts: 2,300
    edited January 2012
    anniealso - So sorry....hugs to you!  By two surgeries you mean like a reduction/lift before the NSM?  Ugh, nothing about BC is easy Cry.
  • tigerw0man
    tigerw0man Member Posts: 63
    edited January 2012

    Abbott Northwestern - Virginia Piper Breast Center - Minneapolis, MN



    Dr Margit Bretzke - general surgeon

    Dr Mark Migliori - plastic surgeon



    Great results!

  • Ginger48
    Ginger48 Member Posts: 1,978
    edited February 2012

    I had NSBMX at Mass General in Boston in June 2011 with

    BS Dr. Michelle Specht 

    PS Dr Amy Colwell

  • srlilly
    srlilly Member Posts: 9
    edited February 2012

    Theodore Tsangaris, MD at Johns Hopkins in Baltimore.  He offered nipple sparing despite my cancer diagnosis.  Clear margins post-op and I got to keep my nipples.  Excellent surgeon.

  • egzc
    egzc Member Posts: 10
    edited February 2012

    Dr. Tsangaris at johns Hopkins performed mine as well, april 2010. I agree, excellent surgeon. Dr. Manahan performed a bmx with DIEP. Despite the challenging journey I have faced, I was blessed with their skills and experience.

  • Carolanne03
    Carolanne03 Member Posts: 42
    edited February 2012

    Mass General Hospital Boston, MA

    BS Dr Barbara Smith

    PS Dr Amy Colwell

    Very good experiences

  • teelag
    teelag Member Posts: 12
    edited February 2012

    just south of Denver, CO

    planning on BMX: skin sparing, nipple sparing, direct to implant reconstruction

    BS: Dr. Jodi Widner (she suggested it before I even knew about it!)

    PS: Dr. Lisa Hunsicker

    http://www.revallaplasticsurgery.com/procedure_breast_reconstruction.php

  • Nightnurse
    Nightnurse Member Posts: 86
    edited April 2012

    Does anyone know of any surgeons in Arkansas that do the NSM/SSM? 

  • Cyn0619
    Cyn0619 Member Posts: 63
    edited April 2012

    Hi

    I had BMX but nipple sparing only on one side. Cancer too close to nipple on other side. I went to Lima Linda hospital in Redlands CA.

  • jenlee
    jenlee Member Posts: 504
    edited April 2012

    Orange County, CA  -  Dr. Jane Kakkis at Orange Coast Hospital

    I ended up being treated elsewhere for reasons unrelated to Dr. Kakkis, but Jane has an excellent reputation and I was very impressed with her. 

  • Kd6blk
    Kd6blk Member Posts: 114
    edited June 2012

    I am confused. I thought with a double mastectomy rebuild that nipple sparing was a good idea. My surgeon advised against it today saying that you have to preserve it with breast tissue and that puts you at some risk. Have you all heard the same thing? Is it worth sparing nipples?

    Lisa

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2012

    It is worth sparing nipples if the cancer is far enough away. Safe as well as for a prophylatic mastectomy.

  • LISAMG
    LISAMG Member Posts: 639
    edited June 2012

    Lisa, retaining the nipples adds a minute risk, approx 2-5% the most, according to research. Very personal decisions. It was definitely worth keeping mine, wouldnt have it any other way, unless I had no choice. Remember, the choice is yours and your alone, if u r a candidate. Many docs who do not perform these highly technical procedures will poo poo them as well. If u want nipple sparing, find an experienced surgeon who has performed many NSM's. Good luck!

  • TinaT
    TinaT Member Posts: 2,300
    edited June 2012

    Kd6blk - Unfortunately, NSM is not offered in my local area.  Reason, I am told, is that the breast surgeons are willing, but we don't have vascular microsurgeons here that do breast reconstruction like DIEP, etc.  Fortunately, my wonderful local BS knew I was a good candidate even though she couldn't offer NSM herself.  So she arranged for me to see a BS/PS team 2 hours away.  It's been difficult (had some healing issues), but definitely worth it!  I would recommend pursuing NSM even if you have to travel a bit to find it.  As LISAMG wrote, many docs who can't or don't offer a procedure will sometimes just not bring it up at all or downplay it.  

    My BS followed a pretty common routine, which is to core out the tissue behind the nipple for separate scrutiny by the pathologist.  My cancers were not near the nipple and I was not very large before MX.  I knew if the pathologist saw anything initially during surgery the nipple(s) would not be saved and the possibility existed that one or both would have to be removed after the fact if more extensive pathology showed any cancer in that retro-nipple tissue.

    I encourage you to at least schedule a consult with a BS who performs NSM even if you opt not to go that route.  I think it will help you to know that you at least checked out all of your options.

    Best wishes! 

  • Kd6blk
    Kd6blk Member Posts: 114
    edited August 2012

    Thank you Tina. I live near PRMA so looking like that will be my choice...I have lots of questions....

    Lisa

  • Jules1018
    Jules1018 Member Posts: 26
    edited June 2012

    Sioux Falls SD and Rochester MN

  • LAjen
    LAjen Member Posts: 13
    edited July 2012

    Los Angeles CA

    BS: Dr Joshua Ellenhorn

    PS: Dr Joel Aronowitz

    both work out of Cedars Sinai, St John's (santa monica)

    and their own surgery center 

  • thatsvanity
    thatsvanity Member Posts: 391
    edited August 2012

    I had a nipple sparring bilateral mastectomy with immediate alloderm implants---the plastic surgeon who performed the implants is Dr. Chasan in Del Mar, CA and the general surgeon is Dr. Sherman in La Jolla California.

  • KellieDenise66
    KellieDenise66 Member Posts: 122
    edited September 2012

    I'm scheduled for a NSM next week with BS Dr. Harness / PS Dr. Salabian. Both are in Orange, CA. I'll keep ya posted as I go. Best wishes to each of you wonderful ladies. Thanks for all the valuable info!

  • Kd6blk
    Kd6blk Member Posts: 114
    edited September 2012

    NOLA and PRMA do NSM.

  • Kd6blk
    Kd6blk Member Posts: 114
    edited September 2012

    NOLA and PRMA do NSM.

  • CyndiJW
    CyndiJW Member Posts: 18
    edited October 2012

    I had skin/nipple sparing bi-lateral mastectomies with reconstruction on 8/21/12 in Nashville, TN. Dr. Brian Tierney was my excellent PS but without my knowledgeable and skilled BS Dr. Pat Whitworth it would never have happened. I had read about the procedure, but just barely as there were not many write ups about it that I had run across. As soon as Dr. Whitworth named it as one of my options I jumped on it! I had a small malignancy on the far left edge of my left breast and had the right removed for prophylactic reasons (strong family history). I have yet to have my TEs filled (only 4 wks post-op) but am thrilled at keeping my own nipples. Both doctors do excellent work!



    Cyndi

  • salarie
    salarie Member Posts: 6
    edited September 2012

    Ladies, I am new to this forum, even though my surgery was just over 2 years ago and I'm amazed and disappointed that NSM is not more broadly known at this point. It seems to me that women looking for NSM options need to scan hundreds of posts in this topic and the other NSM thread, unless there is something I'm missing. I have spent a little time pulling some of the information together from this thread and made a very rudimentary website to try to capture everything in one place, and sorted by state. Please check out the site by clicking the link below and give me some input as to whether this is worthwhile and I should continue compiling the information or whether this is not a useful tool.  

     https://sites.google.com/site/nsmlocations/

    Thank you! Smile 

  • SpecialK
    SpecialK Member Posts: 16,486
    edited September 2012

    salarie - Tampa Bay Breast care also does NSM.  I can also give you a link with some stats and photos from the Univ. of S. Florida on NSM which has some good info, but the photos include both surgical photos (graphic) and "before and after" shots.

  • 301724
    301724 Member Posts: 478
    edited September 2012

    Dartmouth-Hitchcock Medical Center, Hanover NH

    BS: Kari Rosenkranz

    PS: John Nigriny

  • pod8008
    pod8008 Member Posts: 1
    edited November 2012

    Were you happy with the results

  • mermaidswim
    mermaidswim Member Posts: 1
    edited December 2012

    Hello,

    I am in Ann Arbor Michigan, had a lumpectomy in August by did not get clean margins.  I did chemo while I did genetic testing, am just completing chemo and have a variation on the PTEN gene.  I am very interested in saving my nipples, for the pleasure as well as the appearance.   The U of M doctors do not do NSM.

    I am looking for doctors in Michigan/Ohio/Chicago?

    For those who've had the NSM, what is the physical sensation in the nipple like? 

    The Cleveland Clinic website has an article by Dr. Crowe referred to "skelatonizing" the nipple, which I presume means killing the nerves and removing all the tissue.  Can anyone explain that?

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