Here's what cheezed me off today
Comments
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Kaara, I had to have the hospital in Boston fax the report to my PCP and then convince my hometown office to make a copy for me, but no one has offered to explain it to me. That will be my project tomorrow. How are you feeling today? It is going to be hard for me to get results since I get to go through this over the Christmas weekend. But I'm taking it a day at a time and counting the little successes.I am keeping an open mind and doing a lot of listening, but also listening to myself and doing what is right for me. I have people telling me to just get the MX and get it over with because of my family history, but that does not feel right to me at this time. So continue listening to yourself. I'm glad to have your company on this journey.
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Macatacmv, if you post your path report the ladies here will be able to help you interpret it. It's a whole new language! If you post it as a new thread you'll get answers. Don't worry - the answers will be "this is what it says" not "this is what you should do" since we all know you should do what's best for you.
Best of luck.
Leah
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Kaara, Good grief, Charlie Brown.
About your path report, assuming your surgery was performed at a hospital, call the medical records department and find out where to go to pick up a copy of your Medical Records, including your pathology report.
Macatacmy, there are many internet sites about how to read your pathology report. Type "how to read pathology report" in your search engine; or type words you do not understand one at a time to get a definition (type medical terminology definitions in your search engine). Plan B: pick up a copy of the 5th edition of Dr. Susan B. Love's Breast Book.
Namaste. CMG
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I've been encouraged by many posts on this discussion thread, and disheartened by those who mentioned unsupportive husbands, daughters, sons, family and friends...which has resulted in me feeling very fortuante to be so supported in love by my husband and daughter, family & friends.
My best friend who figuratively "fell over" when I said no thanks to radiation 15 years ago following DCIS/lumpectomy now tells me she did not understand my decision then; however, understands now and will honor my choices now (no adjunctive thereapy other than massage and yoga). Wow! I feel very fortunate.
Understand that what other people say and do "says" much more about them than it does about you. My arms are around everyone with a hug, CMG
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YaYa5, A UV light sanitizer???? WTF? Heck, she might as well have given you a box of tampons! I'm sorry she didn't include you and wasn't very thoughtful. I hope your birthday was enjoyable regardless.
HAPPY BIRTHDAY YaYa!!
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macatacmv, did you ever get an explanation on your path report? You are more then welcome to PM me and I will try to help you out. There is also a great website that will explain everything in detail about staging, etc. My guess is that by now you should also have information on your HER2 status.
http://www.nccn.com/files/cancer-guidelines/breast/index.html#/1
Let us know how you're doing.
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rockym, thank you so much. you are very, very kind.
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YaYa, for your daughter's birthday, give her a battery-powered toothbrush, then tell her you're taking 2 of your friends to Vegas! Yeah, I know it's mean but I'm pretty cranky today. Damn SE's!!!!
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YaYa5, Sending you a belated, but heatfelt Happy Birthday wish.
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rohanna----haven't been on in awhile-------your question about being well hydrated before a blood draw is on mark. YES. The worst attempt on getting a blood draw or start an IV is when the patient is dehydrated. Water away, go to the trough, if it's allowed LOL. sheila
Just read about the digging for a vein and the Male nurse saying out loud "please jesus' RO---I never said it out loud, but I always said a prayer before a Phlebotomy stick or IV stick. It's an art and a skill. No two veins are alike. We each learn our own techniques that make us successful. He prayed out loud---should pray silently. Out loud is scary.
A nurse or phelbotomist can do hundreds or thousands of sticks. The one they miss the patient thinks their incompetent. May have done a 99 before you and then miss you. We feel like shit. Being a nurse isn't easy, we constantly have to do things. that hurt people. I remember one poor woman who had 3 Er nurses try to put in a bladder cath and when she got to the floor that was the first thing b/c she was starting to feel lots of pressure. I showed a new grad my technique. The woman's comment was "you need to go teach them in ER". Well who knows with each it may have been the first time they missed. The opening to the bladder looks like an apersand ^ about twice as wide. Hit that without good visualisation and light. Just saying Things aren't easy.
Hydrated patients for a stick are the easiest. Plus lower your arm over the bedside and pump your arm then have tourniquet applied and see if that helps. I wouldn't stick somebody more than twice before I'd turn it over to another. Some you get some, some you don't. Knowing when to stop is important. Duh most add I never dug, Namaste sheila
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Mutiple comments about how to get test results ------if the tests were sent to a hospital to be done----you can go to medical records and sign a release form and get the record as soon as it's signed by the specialty doc------for example, if it's pathology---they do tissue evaluation once signed by pathologist you have a legal right to a copy. or diagnostic imagiging--xray/ mri/ultrasounds/ct/pets----Radiologist signs you can get a copy. I almost 99% of the time did it this way. I then could do my own research and walk in to the Onc /PCP/ GI/ etc doc and after they tell me the results and their rec's I'd then tell them what I was happy with doing. Can't tell you the number of times I'd tell them about a newer way something was being done. Like my brain tumor. ONC and Neurologist had never heard of it----glad the neurosurgeon did. Frankly, felt I was living in a medical wasteland. Medical records has a right to charge a per page fee by law and you have to show a picture ID.
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YaYa 5 , agree with Rocky. your daughter has forgotten you . She needs a wake up call. A bit of "Tough Love". She's still trying to win her MIL over, but she needs to remember who you are. I recognize what you are going through . Going through it with my son. Bummer.
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Well, my in laws came for weekend (actually my idea since my son was graduating college). Very nice people. My MIL was so glad to see me she brought me a set of "really nice shampoos that help with thickening!" Not kidding, she brought shampoo!! I told my husband I am sure she meant well, but really! He says , oh she can't do anything right. I said, I am f%$#(*g bald!!!!!
Anyway, people are amazing!
Sara ♥
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After calling the nurse again on Friday and expressing my concern that the weekend was coming and I didn't have my results, she called pathology, had the report faxed over, and the dr. called me. It was all clear on margins and nodes! Whew! What took them so long! I have a dr. app't on the 29th to check my progress from surgery and I'll get a copy then. I'm healing quickly so no worries there.
As for reactions from my kids, they are all over the block...the ones I thought would be the most concerned aren't showing it at all, and my youngest (the tough guy) has called me every day to see how I'm doing and what I've found out. He can't be more supportive. I happened to mention that in passing and the others got defensive. What was I supposed to say...nothing I guess.
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rohanna - LOL perfect. (I'm cranky today too.)
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Thanks, SAS! From now on, I'm going to really hydrate! I guess my beef is that every time I have a blood draw now, they miss the vein. I guess it's because the people doing it are wearing lab coats from a local "college" that runs a nine month course on working in a lab. Maybe I should find out who the instructor is. They used to have a lady that was excellent at drawing blood, but I haven't seen her in about a year. I REALLY miss her!
Your story about the bladder opening reminds me of something that has puzzled me for a very long time. Why is it that a man obsesses his whole life about hitting a little hole about the size of a skittle, yet can't hit the potty when they pee?
sara, she brought you shampoo???? I don't know what to say!
Karra, yaaaaaaayyy on your results! I always love good news!
Phgraham, I've been cranky since I was diagnosed! I'll be glad when 2011 is OVER!
Nips still peeling 5 months later, CARRY ON!
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Kaara, congratulations on the good news! What a nice Happy Holiday piece of information :-).
Rohanna, Okay... so I know there is something wrong when I'm just too grumpy to be cheezed. We must be on the same roller coaster these days.
Sara, next time your MIL comes over how about giving her a box of sanitary napkins for a "thoughtful gift." Tell her she may need them one day... ya never know. Of course I'm guessing she hit menopause a while ago :-).
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Kaara congratulations, such good news for the holidays.
Rocky and Rohanna------grump away you have the right
Sara------thoughtless gift, but I bet she thought she was being kind in someway. "helps with thickening", I bet she thought it would make your hair grow faster. I started using Dove body wash when bald. Liked it very well, but expensive. Now ,I use cheapo VO5 on hair and body. Cheap, from a bottle which is cleaner than bar soap. I think I can buy three bottles for one dove bottle.
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Lol my in laws came for the weekend,too. FIL is a sweetheart. MIL is like Marie on Everybody Loves Raymond. As soon as she walks in the door, she hugs me and says "you look great! You know, all things considering...." ugh
And my Christmas gift: a Joy of Cooking cookbook (nice...) when I said thank you, she replied "you're welcome, there's a lot of basic recipes in there, so it should be easy" (I'm a really good cook!) -
Rocky, I think our roller coaster runs through the House of Horror!
mom of 3, don't you just love passive/aggressive in-laws! Let's take our MIL's and lock them in a dark closet and see if anyone emerges.
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rohanna, speaking of in-laws... I am leaving in the morning with my family to see my MIL, SIL and a cousin or two of my husbands. We are packing up the car and taking a road trip. We haven't been out that way in two years and MIL hasn't seen the kids in about a year. I just couldn't put it off any longer so I'm going to have to suck it up. Oh well.
I don't think there could be a worse time to visit. I'm sort of down and running slow so I'm probably gonna have to just smile and listen to whatever stupid things may come. I just found out from my MO that I've had anemia for 2 months (probably finally caught up to me) and of course I either tore my meniscus from a fall or did something else to my knee that is making life difficult. Chemo didn't even kick my ass the way this effed up knee is. I guess my hubby's side of the family will have the upper hand since I have a feeling I will be sitting quiet a lot.
Lucky family of his :-).
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Hi all! I know this really isnt BC related but I am ready to pull my newly grown hair out. I wish people would quit trying to dress me. I am 45 damn years old and if I wanna wear all black all the time so flippn what!!! Do I say ooo your wearing that color OMG let me get some sunglasses on cause its hurtn my eyes. No I dont do that so stop doing that to me! Oh and if I wanna wear my jeans, tshirts, and my black boots to church get over it. Im not a girlie girl!!I am who I am and thats that. Ooo and lets not forget the tattoos that I love to get. I dont wear jewelery but I consider them like my jewelry. Do I say OMG when you wear that ring that is about as big as a freakn chicken egg, no!!! Oh yes and my personal favorite is just think how much money you have spent on them. Do I say how much have you spent on all the freakn jewelery your wearing or have stashed in boxes cost, no I dont. I am who I am get over it. Im cool with it. Im the one who has to look in the mirror everyday and I love who I am!!!!! Thanks for letting me rant!!!!
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Rocky, have a safe trip and I'll be thinking about you. While you're packing, may I recommend two absolute necessites for in-law visits? Benedryl and a stun gun. If the Benedryl doesn't knock them out, taze 'em! My MIL, BIL and SIL have not contacted me since my diagnosis. Actually, I'm quite glad because I don't need their phony pity and stupid suggestions and comments. Ooooh, I guess I'm still cranky!
Hey, Paula! I wear black all the time and if some smartass asks me if I'm in mourning, I tell them "Yeah, for the death of good taste. You know, like not asking stupid, intrusive questions." Makes me very unpopular, but stops the comments. We finally found a church that doesn't care what you wear or how many tattoos you have. Makes church a whole lot more enjoyable. As for tattoos, that's your body and it's none of their business. Since my diagnosis, I have no tolerance for stupid people with loose mouths. I don't make apologies for it anymore. I'm sure people mean well, but some don't. It sure makes me think before I speak. It's funny, but I've found the best quality people on this thread. We don't judge, we just try to cope.
Cheeze on, Sisters!!!!!!
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Rohanna the sad thing is I love my church family. Tons of them have been there to support me thru all of this. Alot of them dont care how I dress or how many tats I have. The funny thing is the little ole ladies are the ones who give me the least grief of all. Thats why I love them so. They are like my granny was. They love me for me! Im just not into outward apperances and never have been so it just kinda frosts my cookies when others are like that. I'm the one who always talks to anyone on the street, it drives the hubby crazy cause sometimes I just chatter away and he is in a hurry,lol!
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Paula66: If you are comfortable with who you are, then it doesn't matter what others think.
I have a beautiful GD who has tats all over her body and flaming red hair that you see from a mile away, and another GD who turned her beautiful long hair into dreads. It might not be my idea of how they should look, but they are the most awesome GD's you could want. I love them both unconditionally and would never say a word to them about their appearance. I have two other GD's who look like beauty queens, and their personalities tend to be a little self absorbed; however, I love them unconditionally as well. They are all right where they are supposed to be at this time in their life.
Enjoy life's moments, and don't worry about what other people think or say. It's their problem, not yours.
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Just wanted to wish everyone a safe and Merry Christmas and a Happy Hanukka. Thanks for making this thread a place you can go to say anything and not be afraid that you'll be judged or jumped on. I couldn't have hung on like this without you! Now before I get so sweet that I make your teeth decay, Merry Freakin' Christmas!
NIPS OR NIPLESS....CARRY ON!!
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Happy Holidays to all my cheezy buddies! An extra special holiday greeting to rohanna for starting this thread and helping to make these tough times bearable. We all have such great cheezy stories and we also have a great sense of humor (all be it a little twisted :-)).
Our humor is what will get us through this and may 2012 kick ass over 2011 for all of us!
Nips Up, Carry On!
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Happy Holidays Everyone! May God shine his blessings on you in 2012 and beyond!
Off to DD's for holiday dinner and gift exchange. Presents for the grands, and white elephant gift exchange (funny gifts) for the adults. It will be fun as usual, and the place will be chaotic with dogs, cats and kids running all over the place. I usually fill in as the dishwasher, have my rubber gloves with me so I don't ruin my new manicure...lol! DD is a great cook...uses every pot in the house, and leaves them sitting...drives me crazy but that's just the way she is. Gotta love her!
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Happy Holidays to all ...
rohanna & rockym ... thanks for making me laugh everytime I come here! My tummy scar hurts ... but it's worth it. Laughter is the best medicine.
Best wishes ...
Nipless, Carry On!
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Hey Everyone, I still do not have a complete diagnosis. I have only talked to my BS on the day of my biopsy, then on the phone twice and now again right before my lump & SNB. I asked her if it was normal for her to just call me, cause that is what she was saying she would call me next week with results. I got a copy of my path report from the biopsy but can't really understand too much except the grade 2. Now all the paperwork I have from the procedure on Thursday just says biopsy, is that what a lump is considered? These procedures keep knocking me out for days, just starting to get some energy back. So glad I had prepared for Christmas, and that my daughter and son can be here with me. We are enjoying spending time together, no matter what comes next. Sorry I was out of touch for a while, I couldn't remember the name of the thread. LOL
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