Is There A September 2011 Chemo Group?
Comments
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Maggie - How frustrating for you! I can't imagine anyone saying that AC isn't chemo. Your hospital seems to be making it up as they go along. I'm glad you are able to get your treatment at your doctor's office so that you stay on track even if you are paying for it yourself. Does your insurance company have a case manager assigned to you? I can see why this would keep you up at night!
Hugs!
Linda
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Hi everyone
Kate - Thank goodness you have such a good doctor. As if the chemo isn't bad enough now you have to worry about every SE being more "dangerous" than common. I am so sorry that you have to go through this but glad that your dad was with you (and believe me he was probably incredibly grateful that he was able to be there for you at this time). I hope everything went well with your chemo today. Remember, you are almost done - soon this will be a bad memory! Take care of yourself.
Kimberly - You are right about the cultural aspects of baldness. I actually saw theb movie "Water" a couple of months ago on Netflix. It was really good. There is a big stigma about widows in some countries. In India (I am not sure if it is still the current attitude) the widows are made to live in separate houses (with other widows ) and are shaved bald - this is whether you are a 45 year old widow or a 13 year old widow (yuck!). I guess you do not need your hair because you do not have to look attractive because you will never be married again. How is the hair watch going? Any pinpricks dots yet?
Cooka - You said you had stinging in your triceps and that twigged you on to your LE. I have some pain in my elbow (inside of my arm), my wrist and sometimes my bicep hurts. I have been assessed and they said no LE - but I do wonder about the arm pains. Where did you find info that told you the tricep hurting was a possible sign?
Belle - I laughed about your comment about your shrink. My mom thinks her shrink is harrassing her (my mom is a tiny 81 year old woman) and wants my sister to come in with her for her next appointment. The shrink told my mom that she thought she was feeling sorry for herself. What an idiot! Perhaps she is depressed (which is why she needs to see her). I told my mom that probably alot of shrinks are not "people" persons and that she should just get the prescription and go see my counsellor!
Maggie - Sorry that you sre still dealing with insurance crap. In spite of the touchy feely ads insurance companies are in it to make money and do tend to put up roadblocks wherever they can.
SPCMadi - How are you? I am on day 4 post treatment and barely slept last night (so sore). I have no tastebuds and I am not at all hungry. However on a positive note I am still doing better than the first Taxotere. Hope everything is going well with you.
Well time to go. I am not leaving the house for the next few days (minus 20 with windchill and winds gusting to 45 km - Arghhh!). I will nap, pop tylenol and watch Netflix. Hope everyone has a good weekend. Take care everyone.
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Kayrem: I a doing surprisingly well this round. Had one bad day of muscle ache and pain on Tuesday, then I told myself I was going to move and it seems to have subsided mostly. Just some mild ache in my thighs and a feeling of weakness if I walk to long or do a flight of stairs. My mouth is totally dead again. Once again my tongue is white and feels like sandpaper I have been using Biodene mouthwash religiously, last round I got a prescription from the Onc. which helped but I am out and I have not called for a refill. I was hope in it would clear up on its own as the mouthwash tastes horrible and is bright yellow leaving my teeth yellow. The last thing I need is to have no hair, eyelashes and thinned eyebrows plus bright yellow teeth. I think even my kids might run the other direction.
I had my Breast MRI on Wednesday. It was uneventful I was able to lay still no problem and had no wait which was a bonus. I got my call from the Hamilton Cancer Centre re imaging for my RADS. First tattoo for me.
Sorry to hear it is so cold out there. Lots of wind and rain here but it is still mostly warm. The kids are hoping for snow but I am happy to keep it warm fro as long as possible. I am not a winter person.
Hope everyone is doing well this week.
Sarah
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Jersey: The itchy rash seems to have subsided pretty much. Took about 3 days though but I am much better today. I'm glad I didn't have a severe reaction. My hands are what's really bothering me though. I look like I am burning from the inside out. But those too are clearing every so slowly. Only one more treatment for me and I think I'll make it okay. I am planning to ask if there is anything he can do for my hands. Thanks for sharing your information. I appreciate it.
Anxiously awaiting next Wednesday and being off work for two glorious weeks! Should be a great holiday around here. I've decided that if I don't feel like cooking, cleaning, doing repair work,etc., then I won't! If I want to lay around on my butt the next two weeks, I think I will. After all, I want to be rested before I go back to work because I'm pretty sure my radiation will begin in February.
Hope you all have a wonderful evening. I'm a little tired tonight and plan to get my shower and head to bed early. My feet and legs are swelling someting terrible and I want to get them propped up!
HUGS!
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Oh Kate.. thank goodness for your MO not blowing off your shortness of breath. That is truely scary. I am very excited for you that you get to stay on schedule for your treatments. Any delay in this process is too much to take. Enjoy your wine tonight. I don't blame you.
Maggie.. so sorry about the insurance issues. That makes me mad. Its ridiculous the run around you have been getting. I doubt you are their first breast cancer patient and its not like your getting experimental treatment. It cant be their first go at this. Its not fair you have to fight them to get them to do whats right. Thank goodness you only have two tx left.
Shelly2011... sorry if you posted this already and I missed it, but how is the hair coming in now that you are 6.5 weeks out. Anything yet? I cant wait
RJbaby...Congrats on one more to go. I have found it so amazing how hard you have worked throughout this. Enjoy your two weeks off. You deserve it.
Belle.. your shrink comment made me laugh also. I'm debating whether I should see someone about this whole breast cancer deal. My husband thinks it would be good for me to talk to someone. I'm not sure I need it. I guess it cant hurt. I am doing pretty good most of the time. I think some depression about this is normal isn't it? I mean this is crazy what we are all going through. I find I'm mostly positive about it. The thought of not being there for my kids freaks me out the most at times, but it is what is right. Its other peoples reaction to my breast cancer that gets me depressed the most sometimes. They are well meaning and all but sometimes their extreme sympathy, concern, and shock makes me feel like its not going to be okay. Ugh...
Question... considering getting on an airplane in January to visit my dad and his wife. She has to have a dmx for breast cancer in January. Thought I could go and help her out for a few days in between my treatments since I feel okay. However, I will have two treatments left and airplanes are full of germs. Not to mention my lymph edema risk. I haven't had it yet, and worried flying will set it off.
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Karen - Actually, the hair is filling in, somewhat. Sometimes 3-4 days it seems no different and then somedays I wake up and it looks like it has had a growth spurt. Unfortunately I am 95% white naturally and it is all as pale as fishing line for covering up the bald head. Hmmn, get the illusion of being bald even though there is considerable growth going on and that's how it is for white-haired folks. In that way, I have to be a little more patient because it's not going to cover or show up well until I get some length and all the hairs break through. Oh well. Still have my eyelashes and have to settle for that for now. I do get excited on the growth spurt days, believe me, as you will too. So cool that you already saw "Water." Someone else that likes odd movies and foreign films.
RJ - Do you ever see a dermatologist? Just wondering if they could diagnose and help you get things fixed faster. I know the skin thing makes you miserable. Sorry to hear you are getting the puffy feet and ankles. Mine are water balloons and depress the hell out of me, make it hard to move and cause permanent skin changes and I just ------- hate it. I hope yours is mild.
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ccjj, hair is slowly appearing, but is mostly fuzz. At first I thought it was coming in grey, but am now seeing some darker hair. Still some nice shiny bald spots too, so not even close to being able to go topless! Pluss my head itches, using some facial moisturizer on it. Gotta love Cleveland weather, so dry outside and inside! Today makes 7 weeks pfc.
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ccjj---I am flying in January cross country. My lymphedema therapist ordered me two lymphedema sleeves that I have to wear while on the plane. Also bought some masks for my face as we just cannot be too safe. I had #7 yesterday at docs and will go get neulasta shot today. one more and chemo is done!
Maggie
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If anyone is on Taxol/HErceptin weekly and is nearing the 12 week mark, could you PM me and tell me what type of side effects you are expereincing toward the end of it? I am on week six and doing well but just found out they will be continuing this for another 6 weeks (and then another protocol). I work so I was hoping to get some idea of what MIGHT be in store for me. Thank you,
Q
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Kate, wow! So glad to here they caught those clots in time, how scary. Hope chemo went well!
Kayrem, I was doing a lot of Yoga (planks, downward dog, etc.) and paying attention to how my arms felt because I was worried about LE...left arm just started feeling different...a little achey, stinging in upper arm only...so I measured them (which was not an exact science and should be done be someone who knows what they are doing) and realized my left arm was swollen a little. Then i noticed when I pressed on my skin in some areas it left a mark that didn't go away immediately. Saw my onc and got an LE referral. Probably should not have been doing yoga without a sleeve but the research is mixed on that:( Anyway, I think it is worth it for all of us to get a script for at least a consult from a cerified LANA therapist. My therapist said stage O is when your arm has pain in spots but no swelling yet.
Hey has anyone heard from Rae?? wondering how she is doing...
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Hello ladies. Hope everyone is doing well tonight.
CCJJ: Thanks so much! I have continued to work as much as possible throughout all this mess. Now I'm just ready to get it over with. Seems like the tiredness and aches and pains have gotten worse with each chemo. So glad I will be off 2 weeks so I can rest and relax and maybe get some of my strength back.
Kimberly: No I haven't seen a dermatologist. The onc did tell me that my hands doing what they are doing is a SE of the taxotere. So, now it's Friday and about 2 weeks past my last treatment and they are starting to look and feel much better but.....this Thursday is my last treatment and I can count on them swelling up and looking so horrible again. Not to mention the painfullness. The onc did put me on antibotics for that sinus crud that I had and still have somewhat. On a good note, my youngest daughter will be going with me this time. She didn't get to go the first treatment because she had just started Radiology school, but she is on break and will be going with me for my last treatment. I am so proud of her! She passed her first semester! Yes! She got her papers today on her clinical rotations for next semester. So exciting!
Shelly: Got a little peach fuzz going on on the top too! Can't really see much cause I'm naturally gray headed, but as soon as I get some length to it, the wigs will be gone! Yes! Can't wait.
Hope you all have a peaces SE-free evening. Will talk to you soon.
HUGS!
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Good morning all,
sounds like the ongoing SE are getting the best of us. It is interesting how differently we all react though. So, I went to graduation. Felt good to get "dressed" in something other than sweats or pajamas for the week. I had tx on Monday and the Neulasta on Thursday, thinking it would make a difference. I did not feel any different, in fact the shooting pains and achiness which I always thought were from the neulasta started in Wednesday. So I guess all SE from chemo itself. I felt really bad during ceremony, but really glad i went. I got a text later from my son thanking me for going. Made me cry. I will post a picture as soon as I can get out of bed and function! This scalp pain is really bad, Not like a regular headache, top/back of head hurts really bad. Three ibuprofen help, but wth? Has anyone else besides Belle and me had this? Also, I seem to have body temperature issues, shivering under the covers, only to wake up drenched in sweat? I know I only have one tx left Jan 3, but I an so sick of this! Hope you all have nice weekend!
Sara ♥♥
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Sarasowise - I have the scalp thing going on also -really painfull at times I can't even wear a hat. Same thing achy at the top/side/back of head.
I am having lots of body temperature issues also. Cold one minute, boiling next. Last night I was so achy that I broke down and had a bath (then of course whem I took my temperature I was at 37.95 celsuis! - but I did not worry about it obviously due to the hot bath).
We will finish up at the same time Jan 3 is my last treatment also. I keep saying to myself only one more time to go through this....
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Sara - Congratulations on your son's graduation! I know it was not easy for you to attend the ceremony but I'm sure it meant a lot to your son. You should be very proud of yourself for going.
Kayrem - I'm having a bit of a problem with body temperature regulation too. I was doing fairly well but the hot flashes have definitely started. Not much fun.
Thinking of you all tonight. Be strong.
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Sara, interesting about the delayed Neulasta and still got the yucks early. I always blamed the Neulasta, but I guess from what you say it must have been the chemo with the steroids wearing off.
Well, the good news is that the diuretic and beta blocker from my GP are slowly giving me some help with my lingering side effects of edema and fast heart rate. OK, I still have a lot of edema, but less than it was and seems to be improving. Definitely less pain. Nosebleeds have stopped. Twitchy eyes have stopped although still occasional watering and blurring. My toes are not as numb but still not back entirely. I'm getting a little hair and slowly getting some energy back, but it can't come back fast enough to please me. Eating red meat and/or eggs once a day to work on anemia and get hemoglobin back up, not good for cardiovascular but I figure a month should do it. I find salt-restricted diet kind of miserable, trying to stay under 2 grams a day. What will the new normal be when all this settles out?
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Merry Christmas to all who have kids coming home for the holidays, to all who have youngsters looking under the tree for their presents, and the most precious of all, those who have youngsters looking for reindeer tracks and santa sightings.
Rae - Your pals are waiting to hear you are still alive. Please check in.
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Kimberly - I'm glad to hear you are getting some relief from the diuretic and beta blockers. I'm on 2 different BP meds that have finally controlled my racing pulse and BP, but I'm still swelling up some. I'm still debating about asking about taking a diuretic.
Rae - Where are you? We are all thinking about you. Sending hugs!!
Well, its day 4 after TCH #5 and I'm starting to feel human again. I decided to drug myself over the past few days and just pretend they didn't happen. This has worked well for me. Nothing dangerious, just the meds I have, taken as needed, instead to trying to be strong and not take them. Now I'm left with my usual headache and bone pain, but that will hopefullly be gone by tomorrow.
It's time to get moving and finish up the little last minute Christmas stuff before the grandkids arrive on Tuesday
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Actually I am wondering about Rae and LeeAnn - if you are out there reading but not able to post know that we are thinking about you. I also hope things are going well with you Kate. -
ditto---do not like it when one of our sisters goes MIA.
I am feeling better today..yesterday was aweful. Just can't wait to be done with all this crap and get back to real life. Going to apply for some aide through ACS for the radiation as it would be best to get it locally vs driving so far. Pulling my entire family off this crap insurance first chance we get---too bad i am stuck with it.
Maggie
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Hi everyone. Thanks for all the well wishes. I am doing fine with the clots....started my coumadin and my daily shots. I am back to the dr tomorrow to check my coumadin levels and to the hospital on tuesday for ultrasounds to see if they can determine the origin of the clots. I guess this will determine how long I am on the coumadin - most likely 6 months.
I am most excited about only having 1 treatment left to go. Friday and yesterday were he'll - my SEs were horrible this time around but all I could think about is just one more....just one more. I can do this. My sister in law kept my son Friday night and Saturday night and that helped immensely. My husband just left to go pick him up. Although I am not feeling great, I cannot wait to see him. Miss him like crazy.
Sounds like most of us are ready for Christmas! We have everything purchased, just need to wrap the gifts and put them under the tree. This is our first year doing 'santa' for Jake. He is still too young but I cannot wait to see him tear through his stuff.
I think I might be getting into the spirit a little. Hope we can all enjoy Christmas this year. -
hi everyone,
hope everyone is having a good weekend. i,too, have been taking my meds (pain) instead of trying to tough it out!
rae and lee ann, thinking of you. pray you are both fine.
i have 2 more chemo, tues 20th and last one jan 3 yeeeeaaah!
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Hi all, I have so busy fighting cancer and staying above water that I havent been on this board since my diagnosis. I started chemo in September - now have 4 rounds of A/C under my belt and just started round1 of 4 of Taxotere. While A/C sucked it was manageable so I was stunned to find myself in severe dibilitating bone pain by day 3 on taxotere. I am looking for advice on how to manage. 800 Ibuprofin put a dent in the pain (and I am not a whiner).
Thanks for your help and advice. -
itsok - Ask your Onc. for something stronger. Taxotere is literally a pain!! I'm taking Dilaudid on the the worst days, because I get an itchy reaction to Percocet. Thankfully the pain only lasts 2-3 days for me. I hope it's the same or less for you. I just had #5 of 6 of TCH and have had bone pain each time. I hope you're feeling better soon!
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Hello ladies. So glad to see most of us are through or almost through with treatments. For those of you that have a few left, you can do it! For those of us who have only one treatment left....yippee!!!! We are almost there my friends! My last treatment is this Thursday and I can't wait. I want to be done, done, done! Can ya hear me now?
I have begun to have some major swelling in my lower legs and feet. They absolutely look horrible. I don't know if there is anything the onc can do, but I certainly intend to mention this to him on Thursday. I'm so excited that my youngest daughter is going with me. Nothing like some moral support on my last treatment. Then out to dinner and shopping. Should be some good mother/daughter time.
Mags: So glad you are better. And can't wait for you to get some "real" insurance! Yours has truly been a pain in the arse!
Khegidio: I am so sorry about your SEs. They really suck sometimes. I think my bone pain and tiredness got worse with each treatment. Hooray for you! Only one treatment to go! Feeling good about that! And yes I am so ready for Christmas. Can't wait to see grandkids tear into their presents on Christmas morning. I haven't missed a morning in each of these kids lives on Christmas and I'm so glad they will be here with me this Christmas too. Dalton and I will start our holiday cooking tomorrow night. I will make many batches of fudge and he has turned into quite the little helper. Absolutely loving the holidays with all the lights, hustle and bustle and sounds of Christmas.
Belleast: You're almost there girl! Only two more! Wow. I really don't know where all the time went. When I first started this journey, the end seemed so far away and now here we are. We're almost done. Congratulations to us!
itsok: Ahh.....the terrible T. Yes the bone pain sucks big time. Are you getting the neulasta shot the day after treatment? Most on these boards recommend taking Claritin starting the day before the shot and then continuing for a few days afterwards. I do that plus take Extra Strength Tylenol also. I just started the Tylenol last treatment and I seemed better with the bone pain, but we shall see with this treatment. I will recommend trying to ice your fingernails and toenails if you can. I didn't do that and I am paying for it by having my nails hurt so bad and now they are pulling away from the beds of my fingers. Taxotere is known for this side effect. So get some frozen peas and put that bag on them fingers and toes girl! Just a headsup. Kelliregi is so right! Taxotere is really a pain in many more ways than one.
Hope everyone has a wonderful day tomorrow. Only 2 more days and I will be off for 2 beautiful, glorious weeks! Been counting down the days I tell ya!
Hugs to all of us!
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Hey everyone I am so sorry I haven't been posting. I have had such a hard time as have many others on here. I was terribly depressed and almost completely bedridden from the SEs. The worst was the stys on my runny eyes that made reading impossible for awhile. Everyday i would wake up with something else hurting or breaking down. I have started feeling better that's all relative, but much better than I have been. I have one more chemo after Christmas it was suppose to be before but I said no way I want to taste my food and be out of bed for the holidays. I am already better from the break.
I am going to go back and read everyone's posts and catch up with you all. I just wanted to say I have missed you!! With hugs and love Rae -
Rae - so good to hear that you are feeling a bit better. I am so sorry that you have been hit so hard by SEs. This chemo stuff is so hard physically and emotionally. I'm glad that you only have one more chemo and that you postponed it so that you have a chance at enjoying Christmas. This is a stressful time of year, even without BC and I hope we all can find some joy in the little things that the holidays bring. All the best to you.
Linda
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rae,so glad to hear from you. good idea taking a break,don't blame you a bit.n
ok, my mo had her baby early, so seeing new mo ,i want my old one back!!!
he didn't even know i was triple negative,WTH read the chart. anyway, i'm doing texotere 1st one was today,he eliminated 2 premeds 1 for heartburn and my emend WTH. immediately after treatment heartburn started,i don't even want to think about nausea starting without the emend. on good note since less chance of reaction they pushed the texotere faster took only 1hr instead of 3hrs.
my last chemo he changed from jan 3 to jan 10,said no proven benefit to doing dose dense,will do every 3 wks. no neulesta shot because of this. i am not happy one reason i wanted dose dense was to get done quicker, get my radiation done quicker. i have a murder trial for my great niece who was beaten to death, to go to on march 5, will probably last a week in chicago. we have been waiting almost 3 yrs, i am going no matter what!
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Rae: So glad to hear from you and that you are feeilng better. So sorry to hear that the SE's were so terrible. It's amazing how much better I feel during this break. Even the BMX seems easy and like a great break compared to the chemo. I hope you continue to find yourself feeling even better and stronger so that you can enjoy the holidays and so that you feel much better able to handle the last one.
Belle: So sorry to hear about your new MO. The change of plan must be so stressful. Hopefully you will at least get the benefit of less pain without the Neulesta. Can you meet early with the RO to make sure you can still to the schedule you want? That is terrible about your neice. I hope you find a way to work everything out to be there.
Hope everyone is feeling better and stronger every day. I look forward to being one of you ladies that are finished with chemo. I will be going back for the last cycles starting January 4th. I have some appointments this week but am looking forward to pretending BC doesn't exist for the remainder of December so that I can enjoy my kids and family. Hugs and holiday wishes to you all...
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rj, enjoy your 2 weeks off. you have definately earned it.
cjrt, i have appt with ro jan 9, so hopefully will know more then!
also, i found a lump to the right and above the lumpectomy scar last fri, had been a month since i checked. dr felt it too,said since it was the first time he had checked my breasts,he would check again next time and if it is still a concern would order ultrasound. i am hoping it is scar tissue or something.
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Rae--we missed you...sorry you are doing so poorly with these dumb SE's. Welcome back and enjoy the end of the yr SE free hopefully.
Belle your new Doc sounds aweful. What difference is there now to doing last chemo 3 wks out...isn't is the last one. Frustrating I am sure. Hope the lump is just scar tissue--will be praying for that for you.
cjrt--woot woot for you. I agree tha Mast was a cake walk compared to chemo.
Saw a great shirt while shopping with my sister and mom yesterday that said "I fought like a girl and WON!" She looked at me and gave me a thumbs up and said you can do it too! I was wearing my scarf so she knew I was a BC sister when I was reading her shirt and smiled. Gotta get us all one of those shirts when we are done with BC!
Spent over half an hr in the restroom of a restaurant last night though--how embarrassing. Could not get off the toilet. Came back out all flushed (no pun intended) and had to rub ice on my face to cool off. My Metformin dose just got upped so may be that. Not going back there for a while haha.
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