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  • Babs37
    Babs37 Member Posts: 455
    edited December 2011

    Yeah Susan!!!! So happy to hear the new chemo is working. Hugs.

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  • MBJ
    MBJ Member Posts: 4,352
    edited December 2011

    Heidi: I so wished it didn't hurt to laugh-that was hysterical!!!  My Ki67 was 99%, too, but it is dead and gone. 

    Blood type O Neg

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  • Paintingmywaythru
    Paintingmywaythru Member Posts: 317
    edited December 2011

    YEAH SUSAN!!!! Wonderful..and yes let's indulge!

    Heidi...I loved it!!! What a story.

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  • GuyGirl
    GuyGirl Member Posts: 182
    edited December 2011

    Got good news yesterday.  PT/CT was clean.  No evidence of disease.  I am doing the happy dance and praying for all of you to receive the same news.

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  • Babs37
    Babs37 Member Posts: 455
    edited December 2011

    WOOOHOO!!!!! Doing the happy dance with you GuyGirl...................Laughing

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  • christina1961
    christina1961 Member Posts: 736
    edited December 2011

    Susan, YAY!!!!  I'm so glad the eribulin is working!!!!  It is kind of a rough chemo, but seems to be effective for many.

    GuyGirl, Great news!!! I'm very happy for you!

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  • christina1961
    christina1961 Member Posts: 736
    edited December 2011

    Heidi, That is hysterically funny!! 

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  • OliveO
    OliveO Member Posts: 15
    edited December 2011

    Here's the update.  Another node lit up in my abdomen near my kidney.  We don't know yet what the prognosis is but will do ct scan of my abdomen on March, 2012 and if necessary a biopsy.  Surgery not in future as there are too many blood vessels and the node is small, so they only option is chemo.  Since I had chemo in 2009, can anyone let me know which we may try now.  Thanks to all TNS.Sorry, already had taxotere & cytoxan, and 26 rads.

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  • naan1004
    naan1004 Member Posts: 520
    edited December 2011

    Heidi, thanks for sharing that, LOL it was so funny

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited December 2011

    HeidiToo - OMG, that is too damn funny!  I passed it on, for sure! 

    Suze - glad you are getting some good results! 

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  • SunnyCoconut
    SunnyCoconut Member Posts: 350
    edited December 2011

    HeidiToo:  Great story!!

    I am O-

    My onc said since my surgery was 1/14/2010 and I finished chemo 5/20/2010, we'll use March as my anniversary date. So I am 1 year and 9 mos out!!!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    I am starting my date from day of dx, cause that is when I learned of this beast and every year on that day is another year I am a survivor.  So I am 9 months out!

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    Ok I am confused, I really dont study this whole cancer thing and really dont ask questions.  So you can only do a type of chemo med one time in your life?  Even though it worked great the first time?  Maybe I should start studying more....

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  • Titan
    Titan Member Posts: 2,956
    edited December 2011

    If you guys are bored and want to play with your phones text 9304 for Josh Krajcik on the x-factor..he is from my home town!

    Karen..from what I have heard there is a lifetime limit on certain chemo drugs...I know that I have not reached that limit at this time with 4 ac and 4 taxol (I asked the nurses)...I had a friend who had ovarian cancer and she had at least 100 taxol treatments over her time with cancer...she told me this when I was freaking out about having taxol so you probably shouldn't worry too much about more chemo..if you would need to have it again..and hopefully that is not even in the equation.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    I sure hope not!  thanks for the info though

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  • gillyone
    gillyone Member Posts: 1,727
    edited December 2011

    Olive - so sorry you are looking at more chemo. I don't know what you will get next but there are many options.

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  • Suze35
    Suze35 Member Posts: 1,045
    edited December 2011

    Having a touch of insomnia tonight...



    Olive - I'm sorry to hear about the additional node that lit up. I can't say for sure what chemo would be next, but many TNs do very well on platin-based drugs, i.e. Carboplatin or Cisplatin, paired with Gemzar. Xeloda is another drug that is well-tolerated, but maybe not quite as effective. I hope you come up with an action plan soon!



    Titan - I actually just asked my MO about my limit of Adriamycin because it is one drug that did elicit a response from my cancer. She said I still have about 10 more treatments before I hit my limit... it is something we'd consider last ditch, maybe just to get me a little more time if my QOL was okay on a reduced dose. Basically, I could probably do 4-6 months on a reduced dose down the road. We'll see.



    ksmatthews - some drugs have a limit due to cardio-toxicity, such as Adriamyacin. For Stage IV, most of the chemos can be used long-term, generally only being stopped when they no longer work,or the SEs become unmanageable, such as neuropathy. I know someone who has been on Abraxane (Taxol) for almost 2 years!



    Heidi - funny stuff! I'll have to ask my DH if he'd go the distance for me lolol.



    christina - I've definitely noticed the Eribulin being a bit harder on me, especially day 2-3. But it is still very manageable. I asked my MO what her longest run on this drug was for Stage IV, and she said it is so new (less than a year old) and typically used as "salvage" that she can't give me good numbers. Just that "they" are very excited about it and are pushing for earlier use. I really hope the clinical trial does the job for you! It sounds like a promising drug.



    painting - its a date :). I'm thinking The Melting Pot for a great lunch/early dinner. Yum.



    Okay, took my Morphine and Ativan, let's see if I can get some sleep!

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  • Reality
    Reality Member Posts: 782
    edited December 2011

    mccrimmon - congrats on finishing treatment. I know what you mean by the constant concern - If I have pain anywhere, I start thinking about mets....Although I am not looking forward to starting oral chemo next month as part of a research study, I am glad that I will be closely monitored for two years. It seems so strange for me to say that, as I used to stay away from med offices as much as I possibly could - now they are a security blanket!

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  • Suze35
    Suze35 Member Posts: 1,045
    edited December 2011

    Anandagram - are you doing the Xeloda study or the CMF/Avastin study at Dana Farber? I did Xeloda for 3 rounds (outside of a study) and can tell you that I tolerated it very well. The biggest concerns are hand/foot issues and fatigue. I'm happy to share any tips/info for you if you'd like. I think it's great you are doing a study, I'm a big proponent of them :).



    Susan

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    Susan thanks for the info.  I really should study more about cancer and treatments, but I just hate to let it consume me.  I have 3 kids and I just would rather spend the time with them.  And when I do to the dr my mind goes blank.  I usually take a list of questions, but they are only what I think of a few days before visits.

    I hope you are doing well. 

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  • Fighter_34
    Fighter_34 Member Posts: 834
    edited December 2011

    GuyGirl- Great news!!! Olive-I am sorry that you will be facing more chemo, but as know it is very doable and if you need to b^tch and scream we are here. Sending strong positive vibes your way.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Always a good laugh:

    http://www.flashfunpages.com/couple.swf

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  • KSteve
    KSteve Member Posts: 486
    edited December 2011

    Ok, today is my 6 month checkup with my oncologist.  On Tuesday I felt a lump above my right breast (original cancer location).  I was NED after my BMX on 1/8/11 and then had radiation.  I'm trying to tell myself that it's nothing, but I am thankful that I already had this appointment schedule.  Life has been going so wonderfully.  This is the first time that I've had a scare since finishing treatments.  All I can think of is that it CAN'T be cancer again.  My daughter is going to Italy to study abroad for a semester beginning in January and this can't happen to her!  This morning my stomach is in knots and I'm praying that it's nothing.  Just had to share because I know you all understand the fear.

    Kathy

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  • Babs37
    Babs37 Member Posts: 455
    edited December 2011
    Good one Heidi!!!Laughing
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  • mccrimmon324
    mccrimmon324 Member Posts: 1,076
    edited December 2011

    Good Luck today Ksteve.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited December 2011

    Praying for you Ksteve.  It could be scar tissue.

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  • TifJ
    TifJ Member Posts: 1,568
    edited December 2011

    Sending good thoughts Ksteve!

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  • Babs37
    Babs37 Member Posts: 455
    edited December 2011
    Ksteve- Keeping my fingers crossed for scar tissue! Good luck today.
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  • KSteve
    KSteve Member Posts: 486
    edited December 2011

    Thanks everyone!  You guys are awesome.  Leaving work now, going to lunch with my 21-year old DD (who doesn't know my concerns) and then going to the appointment at 2:15 p.m. with my DH (who's freaking out a bit right now too!).  I will channel all of your positive thoughts!  I'm hoping for scar tissue too.  Had my nipple reconstruction last Tuesday, so maybe my breasts aren't very happy with me right now!  Again, thanks for the kind thoughts.  I'll let you know what my ONC says when I get home!

    Kathy

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  • OliveO
    OliveO Member Posts: 15
    edited December 2011

    Thank you all for the great positive thoughts.  I wish everyone here a happy holidays.

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