November 2011 Rads
Comments
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Natters - I think they are called radiacare. I will have to look when I get home. They can be worn for up to three days and don't dry out. They remind me of those gummy hand toys the kids have that you can slap against the wall and it sticks. One side has a plastic (?) cover and one side has a red cover that you remove to place the gel against your burn. My RO said they are hard to find. One person called them magic gel sheets.
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ooh - thank you for the info!
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Natters, There are Radiadres gel sheets and Cool Magic gel sheets made by MPM Medical. Ask your RO about these. I don't see why they wouldn't give or order them for you. The Phone number for MPM is 1 800 232 5512. You may be able to get on your own I don't know if requires an order or not. Hope this helps.
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Thank you ptdreamers. As soon as I saw the name, I remembered that is what is on the box. I was so thrilled when they worked, I didn't pay attention to the name. Just went AHHHH!
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Darn - what is with these rad machines!! I was 1/2 way to my appt. (one-hour drive), when I received a call to let me know the darn thing was down. I should have known, as there was a 2 hour appt. wait yesterday due to it being broken and then repaired. I just want to get the treatments done before the traveling becomes tough in the Adirondacks. Now I have to add another day on to the end. Oh well, not all is lost as I am home, making turkey soup.
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Just wondering....I should ask the rad onc, but just dread getting into a conversation with him or the nurses, as they often give me the run around, and the "just let us take care of it" attitude. So, I will ask all of you - Do rad doses change from treatment to treatment? I am asking this as I know that some days I receive a longer treatment than on other days. It also seems to differ with different techs. I really do not know what the doseages are, but the buzzing is a lot longer some days than others. Maybe I am just hearing things....
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...actually, I am not imagining the longer buzz, as yesterday, I actually was afraid because one of my zaps lasted so much longer than it usually does! I honestly thought the machine was stuck.
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Anandagram,I would ask. Mine seem to be the same, ten on the left then 12 after the machine swings over to the right. Sometimes it takes longer to position me, different tech etc. but the zaps themselves seem to be consistant. Its your body and you deserve to be fully informed.
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ptdreamers - thanks! I will ask for those if it gets worse this week. I only have 4 more tx to go - all boosts that pretty much miss my worst areas
I got some more of the Xeroform and Tefla and the big padded bandages that look like maxi-pads so I'm all set for now. The nurse said my wound was pretty superficial so hopefully it will start to heal soon. It's pretty painful if I reach for anything right now, or start to lay on it, or when I take a shower. But I'm still working and doing everything I need to get done. I will say the fatigue doesn't bother me during the day, but at night I am sleeping like a teenager (meaning - tons! like, 8-10 hours, unless I set my alarm earlier).
Ananda - I have had that thought once or twice, that it might be taking slightly longer from time to time, but I never asked, either. They don't seem to want to give me any kind of info at my rads place, so I only ask when I'm absolutely dying to know something.
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Anandagram - I'm so lucky to have nurses, techs and an RO who are caring and helpful. The second rad tx was short, then the third was longer, so I asked if they varied the doses. They were surprised that I had noticed, but told me that the dose was always the same. The machine had been giving them trouble. It would pause, they would reset and continue. That may be what's happening in your case, too.
My last boost is tomorrow. The areas that were raw and oozing have dried up, although they're still very pink, but that's new skin. It feels tight, but so much better. It looks like the worst is over and I've survived.
My sisters just sent me a gift card to Victoria's Secret. I had to laugh - I feel so not sexy, but I know I'll get there. Something to look forward to!
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Jamie - thanks - that is probably what is going on - the darn machine broke down yesterday and today!. Congrats on your last boost.
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Hi ladies, just wanted to check in briefly with some info I got in case any of you are dealing with rash or itching like I did.
I ended treatment 2 weeks ago with a bad rash that extended outside the treatment field. It started the week of my boosts and continued about a week afterward. I used triamcinolone cream 3x a day until it subsided. Then, over this past weekend, it flared up again. I asked for a referral to a dermatologist and saw her yesterday. She took a 10-second peek and said it's eczema, and that I should use the triamcinolone for one full week AFTER the rash is gone. She said radiation is something that can set off eczema in some people who have sensitive skin like I do. Kinda felt silly to hear that was all that it was, but also relieved.
I'm off to Hawaii with my husband and kids and my parents in a couple of days. Not looking forward to the farmers tan I'm going to get from wearing a high-neck t-shirt to keep my radiated chest from gettting too much sun. But I'll take the warmth and relaxation!
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....Jamie - too funny that techs would be surprised that you would notice the changes in buzz time - mine is permanently ingrained in my brain!. lol
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9 more to go...
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Dawmson, Jealous of the Hawaii trip even you have to stay covered up. It is downright chilly here in our fair state of Washington. Three more full than six boosts. Can hardly wait.
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Tvacrat-great news! Both on the last boost and the improved skin. How are we going to celebrate?
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Hey lilylady- we're almost on the same time line. If all goes well I have 10 more. Can't wait to be done. Just in time for New Year's Eve. My husband and boys are going to visit his family for New Years but I think I might stay home. It's a 7 hour drive and a stay in a hotel. I've finally gotten comfortable wearing no bra around the 3 of them (even with a large sweatshirt on you can tell I had a mx) but don't think I could handle it around the extended family. So I think I'll have a quiet celebration on my own.
Tvacrat-Congrats on finishing up. Hope you are able to celebrate somehow.
Ananda-Hope your techs are able to answer your questions. Don't let them make you feel like you don't deserve to know. It's your body. Be assertive...think of all of us standing their next to you giving you strength.
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One boost to go, tomorrow, then I'm done! Woot Woot!!!! I took cupcakes to the staff today which they really appreciated. I'm so looking forward to the new year! Now I have to make a decision about Tamoxifen........
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Rn4babies-Yay!! Congrats on completing rads!
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Fredntan: I wear a cami, inside out against my skin, Then I put a cotton bra on over it. The bra does not irritate my skin, and neither does the seems from the cami. I have been doing this since treatment #1,. I am finished this week. I will have completed 33.
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I had my last boost today! Happy Dance!!!! I took a thank you card and Christmas treats for the staff, took a few pictures of me with my 'mold' so I could show my family and a few friends what I had been trying to describe with the mold and sci-fi type machine. I had a wonderful Dr. and staff and told them they really helped make this part of my BC journey easier.
I am red and itchy and told to keep using the aloe gel and cream for the next 3 months and then lotion for the next year to help my sking heal well and not get 'tough'. Dr. said I may experience fatigue for the next 6-8 weeks. I go back in one month for a check-up.
I am so glad to have this finished and move on. (and get all this tape and x's off my chest!) Like you rn4babies, I now have to decide on Tamoxifen. I have the prescription filled and are suppose to start taking it this week, but I think I'm giving myself the rest of the week to catch my breath before taking the next step.
I hope all of you finish up well and heal quickly. Thank you for being so encouraging these past weeks as we all shared this part of our journeys together. Many blessings on each of you and I pray you each have a long and healthy future!
Merry Christmas and Happy New Year!
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Fredntan - Kdajay said it perfectly. Don't worry about the rads till its time. I started about a month after chemo and I needed that time to recoop. Your body is going through the ringer on chemo. Rads are so much easier...I promise you that! I still have my port, but my appt with my surgeon is the 20th, so since I have received a clear PET scan, I am sure he will schedule its removal after rads. Oh, and I lost all my eyelashes 7 weeks after my last chemo. The gift that keeps on giving!
I just completed #10 and so far no skin issues. Knocking on wood...
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Congrats JenBro you did it! So very happy for you. May you live a long healthy life! Congrats Rn4babies! You too! So happy for you. Tvacrat you too! You all did it! May you all never have to go through this ever again!
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JenBro - Yay! Have a very Merry Christmas...your present has already arrived.
Question for those of you who may have finished a little while ago. Now that the burning and some of the swelling has subsided, I noticed a hard spot/lump in my breast right around my scar. Is this normal after rads? I go to the RO tomorrow and will ask about it. Just a little concerned since it is in the same spot as before. Will I ever be through with this?!
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Hello Ladies: Here is an update on my 33 RADs treatments thus far -
My team consists of 1 male RO and 3 females and 1 male techs. I love the doctor, but the techs I can take or leave. Per my Monday weekly meeting the doctor, I will have only 12 more treatments as of today. I will have 8 boots. He will also be increasing the dosages so that I will not have to do 2 a day's. NICE.
My skin is holding up pretty well. I've had eczema all my life so there are a few spots of that on and away from my radiation area. Thankfully the RO prescribed some steroid cream at a previous visit and it is helping with the itching.
So there is some light at the end of the tunnel. I will be finished by Friday, Dec. 30.
My hair is making some strides at filling in. I can see some black strands poking through the gray. Just wishing for full coverage. I am trying to be patient.
Thanks for reading and have a nice day.
Missey
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rn4babies - so jealous that you are done today - WOOHOOO! Congratulations!!!
I thought I would be so happy this week but I've been fighting with my partner and my skin is getting worse rather than healing. The nurse told me that the wet dressings do not really promote wound healing, but that they just give me relief. Today is Dr day (my last - THANK GAWD) so I am curious to see what the RO says. I plan to ask him how long I can expect to keep losing skin and experience fatigue. He probably won't know which, fair enough, we all seem to be different in our SEs and timeslines for SEs.
Tomorrow I will have to juggle my partner's knee surgery in a hospital across town with rads, ugh. They are supposed to call her today after 3 to tell her when to be at the hospital and I'm hoping they give her the latest time, something like 10-10:30am, so that I can try to get my rads tx in beforehand. Otherwise, I'll have to leave her alone in the hospital for 2 hours while I drive back and forth to MY hospital for my boost. I just hate to do that. What if something goes wrong and I'm not there? It's really stressing me out.
Nat
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Natters - There is so much stress in both of your lives right now! I am sending calming vibes your way and will say an extra prayer for your partner. Here...this is for you {{{{{{HUG}}}}}}
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JenBro and 4Mybabies, Congrats! Realtor Jack, you are almost there, great. Natters, wishing you and your partner the best possible outcome. Hope it all falls into place. The techs at my center said that the effects are cumulative and I guess they are right, Fine until last weekend when I continued turning redder and redder. Now have all the complaints those who are just ahead of me have. Slathering on the hydrocortisone, aquaphor and Miaderm. Three more tx and then six boosts. Boosts will be split into four and two for the holidays so maybe it won't be so bad.
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I'm done!!! Can't quite believe it. Lots of hugs and well-wishes all around. I brought them some cookies and a really nice thank-you card that expressed all my thoughts and feelings. I'll see the RO in four weeks. Parts are getting redder, but most of me seems to be healing. I certainly feel a lot better than I did this time last week or even last weekend.
Wishing all of us rapid healing, good health in the future, and many more new years to celebrate with those we love. Thanks for being with me on my journey.
Jamie
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tvacrat - Breathing a sigh of relief for you!
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