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  • Pazword
    Pazword Member Posts: 5
    edited November 2011

    Thank you so much for responding. I will appeal. I guess I should be grateful I am able to work at all. My best to you and your wife.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Steven or anyone who knows:  I was told today that if a person applies for SSI and a relative or friend pays for their rent, food, and medical bills etc. the person must sign a "Loan Agreement" to pay back the amount to the person if they are approved for SSI benefits.  If they don't receive SSI benefits, they will pay this money back out of other future income.  They must show the amount in dollars of the loan.  They have to also agree to repay any future loans to the party.

    If they don't do this, SSI will deduct everything the lender paid for the person from any SSI payments.    With this Loan Agreement on file at the Attorney's office to show SSI, the person is able to get their SSI benefits and/or Medicaid without being disqualified for getting the other help to survive before SSI.

    Has anyone had any experience with this and know if there are any problems involved with such a Loan Agreement between the two parties?  Thanks so much for any information.  If you prefere to PM me about this, please feel free to.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited December 2011

    If you want tax withheld from your SSDI here is a link to the form.



    http://www.irs.gov/pub/irs-pdf/fw4v.pdf

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Medi



    Ok..remember that SSI is a pure welfare program unlike title 2 DIB which a person qualifies by virtue of paying into the system.



    As a pure welfare program SSI is income based.



    Example: if a person has a rich uncle that gives them $1,000 a month because they are disabled, then that person is not eligible for SSI because they exceed the income level.



    If that rich uncle gives them $250 in cash, buys $250 worth of food, and let's that person live in a condo the rich uncle owns that has a fair market rental value of $500....then that person can't get SSI.



    Right now if someone has an income (and that is literally anything that comes in not the often used idea of earned income) of ~$900 then that person is not getting SSI. Anything of value they receive for less than that can reduce the amount of SSI payment.



    Now of course that applies to gifts.



    If a disabled person receives assistance from a relative, friend, whatever, with the understanding that the person disabled will pay back when SSI comes through, then that does not count as resource.



    Of course other proble,s for adults on SSI are things like when aunt Sally passes away and leaves a generous inheritance, even several thousand dollars result in the person having SSI suspended until that money is exhausted.



    And don't get me started when an adult on SSI is in line to receive a six or seven figure sum....just google special needs trust SSI...lol...which is a type of trust that protects someones SSI benefit. But those are handles by trust and will attorneys.



    Steven

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Well for those still following along..the wife had her third pet today...to recap....6/11 diagnosed stage iv with mets to liver....single tumor in the breast....8 n the over front to back and side to side.



    Gem star and taxol first round for 12 weeks....no response on second pet with progression.



    12 weeks of a/c....results of thrd pet....continued growth and activity. Although breast tumor is now about haf size ....liver still progressing.



    So next step is the big X...yep xoleda.....any info on big X is appreciated. I did a search...but a lot of profile tags list people's medications...which has them show up in search results.



    Steven



  • bak94
    bak94 Member Posts: 1,846
    edited December 2011

    So sorry to hear of your wife's progression. I have not taken X, but someone will show up soon. I think there is a thread on the stage 4 board all about xeloda. Hope your wife is feeling ok, I know ac can be rough.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited December 2011

    There is a Xeloda thread in the Stage IV forum. It's pretty active. I hope your wife gets some good results from it.



    http://community.breastcancer.org/forum/8/topic/772113?page=35#idx_1021



  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Steven:  So very sorry to hear of your wife's progression.  You are so kind to answer our questions with such personal concerns of your own.  I guess my DD's attorney was right about her signing that "Loan Agreement" from what you posted.  Can't take any chances in case she ends up needing SSI for any reasons.  Thanks for clarifying this for me.

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Chick

    I have seen that.  but at this poitn it is so large 38 pages I think and there  is a lot of tread drfit.  While I understand that people like the supportive nature it is hard to wade through all the posts to find the facts.  Gonna start my own thread or two and try and keep it focused on my specific quesiotn.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited December 2011

    Good idea to start new thread. Someday we might have to get into the benefit of special needs trusts. We will do that for our son because without it the alternatives are abysmal.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Chick:  I would love to read more about the "Special Needs Trust".  A year or so ago we were discussing ways to protect our DD if we flew into the sky and left her here alone "except for tons of great friends".  For some reason, maybe it was the Arimidex zonking me out but it just sounded too complicated for me to accept or understand at this time.  Maybe if I could read a "simple"  explanation of it that could suit our desires.......  Anyway, I'll be checking in when I can to see if anything else is posted maybe from someone who is using it or knows more about it.  Thanks!

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Don't have time to get into the nitty gritty of it.  I just ggoled like I said and this random website has a good overview.

    http://www.nsnn.com/frequently.htm 

    excerpt

    ***

    WHY USE A SUPPLEMENTAL NEEDS TRUST?

    To Preserve Governmental Benefits And Protect Assets...

    A Supplemental Needs Trust (sometimes called a Special Needs Trust) is a specialized legal document designed to benefit an individual who has a disability. A Supplemental Needs Trust is most often a "stand alone" document, but it can form part of a Last Will and Testament. Supplemental Needs Trusts have been in use for many years, and were given an "official" legal status by the United States Congress in 1993.

    A Supplemental Needs Trust enables a person under a physical or mental disability, or an individual with a chronic or acquired illness, to have, held in Trust for his or her benefit, an unlimited amount of assets. In a properly-drafted Supplemental Needs Trust, those assets are not considered countable assets for purposes of qualification for certain governmental benefits.

    Such benefits may include Supplemental Security Income (SSI), Medicaid, vocational rehabilitation, subsidized housing, and other benefits based upon need. For purposes of a Supplemental Needs Trust, an individual is considered impoverished if his or her personal assets are less than $2,000.00.

    A Supplemental Needs Trust provides for supplemental and extra care over and above that which the government provides.

    Supplemental Needs Trusts had been used for years based upon case law. In 1993, Congress created an exception under the amendments to the Omnibus Budget and Reconciliation Act (OBRA-93) which specifically authorized the use of Supplemental Needs Trusts for the benefit of individuals who are under the age of 65 years and disabled according to Social Security standards. The Social Security Operations Manual authorizes the use of Supplemental Needs Trusts to hold non-countable assets.

    Each Supplemental Needs Trust is its own "entity" with its own Federal Identification Number (Employer Identification Number) issued by the Internal Revenue Service. The Trust is not registered under either the Grantor's or the Beneficiary's Social Security Numbers.

    According to Congress a Supplemental Needs Trust must be irrevocable. A properly-drafted Trust will include provisions for Trust termination or dissolution under certain circumstances, and will include explicit directions for amendment when necessary.

    ****

  • NMM
    NMM Member Posts: 138
    edited December 2011

    For those who like to really read...her eis a 176 page paper on the subject.  Cannot speak to how authoritive it is, but at first glance it is a pretty comprehensive overview.

     http://www.floridaspecialneedslaw.com/uploads/file/ASNP 2009 SSI Update - RCC Ops.pdf

  • DFC1994
    DFC1994 Member Posts: 163
    edited December 2011

    I have a question,Doe's husbands income interfer with one being approved for SSI? I have life insurance also,doe's that stop SSI from being approved?

    Thanks,Dee

    PS your wife is in my prayers.

  • NMM
    NMM Member Posts: 138
    edited December 2011

    DFC:  Yes.  There is a formula...but I usually tell people if spouse works anything over about $1,500 knocks someone out.  Of course if there are minor children that amount is adjusted upwards.  But usually in most cases a working spouse may eliminate the ability to get SSI.

    But one should always apply and let SSA make the call.

  • Faith316
    Faith316 Member Posts: 2,431
    edited December 2011

    Xeloda (combined with Tykerb) worked great for me.  After taking AC x 4, 12 weekly Taxol with concurrent Herceptin and 30 rads treatments, none of which did a thing for me, I was switched to X and T and have now been NED for over 2 years.  I hope your wife does well with it also!

    Side effects for me were lots of diarrhea and pretty significant hand and foot syndrome.  I can handle those if it makes me NED!

    Good luck!

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Thanks for the additional info on the SNT, Steven.  My concern has always been that if one sets up this trust, what if they need their money before "flying" off and they end up having very little left to leave to the SN person?  I think I would feel better waiting until I know what financial state I may be in in a few more years before I set up a SNT which may have no funds!  I need to read up on this!

  • Chickadee
    Chickadee Member Posts: 4,467
    edited December 2011

    That's the catch, we really don't know when we might "fly" away. I feel remiss for putting it off but the preparation of the trust can be quite expensive depending on your assets. Also it's important to choose an attorney who specializes in these types of trusts. I did call a locally recommended atty. His minimum fee would approach $2500. That is not something we can just come up with but we will have to do something as we both have serious health issues that could change quickly.

  • naturalhorse
    naturalhorse Member Posts: 33
    edited December 2011

    Steven,

     You are a godsend to this board.  I have read through all of the posts and appreciate your freely sharing your information.  I hope this latest treatment is effective for your wife.

    As a self-employed individual I have modified my schedule as necessary to deal with my treatments.  Is the $1000 SGA limit on gross or net income?  I am in a service business.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited December 2011

    Naturalhorse, I can tell you with certainty that is on gross pay.

  • vacationbound
    vacationbound Member Posts: 171
    edited December 2011

    I know you have probably been asked this Question somewhere before in the thread so pardon me for burdening you one more time but could you please tell me how difficult it is for Stage 3C applicants to get SSDI? I heard you have to be stage 4 to be approved. I have been in outside sales for 16 years-my office is my car-my legs and arms (and my mouth) are my tools, but I am slowly losing my stamina, focus, and i am in constant pain all over my body. I intend on working as long as I can but what happens when I can't anymore?

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Horse:

    Self employed SGA is based on net pay after deducting for business expenses. Employed people are gross pay.

    So if you earn a fee of $3,000 but it costs you $1,800 to earn the $3k then you netted $1,200 as SGA.

     But note:  $1,000 is the line where SSA considers over that amount SGA...but it does not bar them from conisdering amounts below that.  So making $990 is no guarantee that SSA won't can't rule that SGA.

    Better to focus on the amount that is below the trial work period amount and stay under that.

    Here is a link to the most plain language description.

     https://secure.ssa.gov/apps10/poms.nsf/lnx/0410510012

    Steven

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Vacation

    Your quesiton is hard to answer becasue SSA looks not only at medical condition but vocaitonal issues as well.

    The reason some conditions are what some people consider automatic (like many if not most stage 4 cancers) is becasue as a matter of policy and efficency the goverment has determined that individuals with cetain conditions of a certain level who hae stopped working are disabled. that is at the 3rd step of the process.

    For everyone else they must show that there medical conditionstops them form working (4th step) and if it does the govermnet then must identify other work at step 5.  If they can't do so in light of the assesed limitaitons a person is disabled.

    HEre is a handy chart to see the steps.

    https://secure.ssa.gov/apps10/poms.nsf/lnx/0422001035 

    And here is the best plain language description of the stepsIn determining in initial claims whether an individual is disabled,

    the regulations provide that a sequential evaluation is used (except in situations in DI 22001.001A.2.) whereby the following conditions are considered in the order listed:

    current work activity

    any severe impairment(s)

    any impairment(s) which meets or equals the medical listings

    ability to do past work

    ability to do other work-considering age, education, training and work experience.

    https://secure.ssa.gov/apps10/poms.nsf/lnx/0422001001

    So without you being a client which would allow me to get into your records and understand all the nitty gritty the best I can do is tell you to able when you stop working.

    Steven

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Medigal/Chick

    I am not a trust wills attorney but I am pretty sure that you can create a special needs trust that becomes active upon flying away as you put it.

    The special needs trust is only needed when the person themselves ha the assests.

    Example:  Let us say a A very wealth couple passes away without a will or anything.

    An estate worth $1 million goes to thier only chiold who is an adult disabled and getting SSI.

    HE gets a letter from SSI stopping his benefit becaus ehe has too much money.

    makes an appoitnmetn to come see me...I send him on to the trust/wills attorney who I know can handle this and in a few weeks the trust is up and running.

    I write SSA show them the documents and in a month maybe 2 SSI beenfits start again.

    Think if you remeber of the movie with richard pryor Brwester Millions.  SSI is like that.  You lose SSI ONLY for those months you have too much. SPend it quick or get it into a special needs trust and you are back on it.

    So having an attorney create the trust documents..and then leave insturctions in your will for the executor of your estate to activiate the special needs trust upon your death ASAP so that SSI does not stop or if it does it is only one month.

    But again this is not legal advice...just something for you to start a conversation with a trust/wills attorney. Soemtimes the hardest part of dealing with these issues is just knowing what quesitons to ask.

  • Chickadee
    Chickadee Member Posts: 4,467
    edited December 2011

    Now that's good information. It never occurred to me the trust could activate after the fact. At least is we don't get it in place before we fly away it can still be set up.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011
    So Steven, what I am understanding here is that if "we" need to use up all our funds before we get on that plane to either Heaven or Hell, the lawyer won't have anything to activate for the special adult.  Sometimes the best intentions can dry up when heavy bills appear in this day and age.  But I think we still have to pay him the big bucks to draw up the Trust unless I am wrong.  You are the "only" beloved lawyerman who seems to like to work for FREE!  (Unless you are sending all of us who ask you these questions on here Christmas cards with your bill inside!)Wink Thanks so much!
  • naturalhorse
    naturalhorse Member Posts: 33
    edited December 2011

    Thank you for that link Steven and for your answer.  

     Is it unethical/wrong/immoral/illegal to ammend a prior year tax return for the sole purpose of gaining quarter credits?  I'm not 'required' to use all valid expenses on my taxes, right? I would like to amend 2009 to show enough profit to earn the 4 credits.

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Medi:

    One thing you might want to do is talk to a wills/trust attorney about setting up a special needs trust or soem other trust that could maximise your ability to receive medical with minimum out of pocket expense.

    Not sure if it can be doen or would be right for you.  But never hurts to ask.

    Steven

    .

  • NMM
    NMM Member Posts: 138
    edited December 2011

    Natural:

    If you discover an error in your tax return then you should amend it.

    There is no obligation that you take every deduction possible.

    As a comment to all small business owners.  I know when a business is small it is often not profitable or barely so.

    But if you know someone in perfect heatlh who owns there small business and often has negative profit on their tax retunr or very small...you may want to talk to them about how making sure they pay into SSA is important as a relatively cheap insurance to participate in.

    Especially if they have a long work history as an employee before they went on to start thier own business.

    Example:  50 year old person rtires after 30 years work.  Obviously when they hit SSA retirement age they will get retirement.

    Starts own business at 50.  does not pay SSA tax. 6 years later at 56 develops disability.

    Won't be able to get SSA disability Title 2 because past the date last insured window (max is 5 years after stop working).

    So they lose the cash benefit but also access to medicare. 

    Just something to think about.

    Steven

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited December 2011

    Steven, if I were to get SSDI, and then work part-time making less than 1K net a month, do they also count SSDI income as part of your SGA?   Can you only take home 1K a month between both SSDI and working part-time? 

    Whlump/chemo/rads/hyster-ooph/mastectomy/implants

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