Sort of OT: Frozen shoulder, anyone?

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2011

    Pitanga....I totally agree!  My stiffness occurred gradually with the introduction of the Lupron injections that depleted my estrogen...  I now know the meaning of patience and hard work.  I have to be patient when I become acutely symptomatic, and I have to work hard at flexing my muscles before and after episodes so that when I do have a setback, it is more often than not, temporary.  The bottom line for all of us is that we need the right pain management during acute episodes so it's not THAT debilitating...AND we have to tweak our meds....I'm glad you found a protocol that works for you.  I have friends who have had trigger finger and I know it's no picnic either!

  • pitanga
    pitanga Member Posts: 596
    edited November 2011

    Voracious,

    I agree with you, it´s a delicate balance during pain episodes-- reducing  physical activity so as not to aggravate things, yet keeping moving enough so the joints don´t stiffen even more. I am still working on getting to the right equilibrium. For me Arimidex was the pits. ,I am still on Zoladex (Lupron) but since switching from Arimidex to Aromasin the SE's have been much more manageable. Before all this began I didnt have the slightest idea that estrogen played a role in joint health.

    You are on Lupron and tamoxifen? 

  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited November 2011

    Pitanga...When I had my 6 month check up recently at my internist, he asked how I was feeling.  I told him, my only complaint was the stiffness...besides my weak, achy shoulders.  He then went through a whole explanation about how the estrogen depletion was causing the stiffness.  He said, biologically, I probably aged 5 years from the ovarian supression.  When I started the Lupron and yes, Tamoxifen, he said, "I think you will beat the cancer.  However, I'm more concerned with what the treatment is going to do to the rest of your body."  My father died young of a heart attack, so heart disease is a MAJOR risk factor.  He is monitoring me closely for signs of risks for heart disease.  Thankfully, after two years of therapy, I have no risk factors for heart disease, except for the menopause. Women's risk of heart attack and stroke goes up following menopause. He told me that I am going to be a difficult case for him if my "numbers" continue to stay in the normal range.  I asked him why I would be "difficult."  He said, if I had additional risk factors, like controlled hypertension, obesity, diabetes or elevated cholesterol, then it would be an easy decision for him to put me on a statin.  That's also one of the reasons why I walk a minimum of three miles each day. Exercise plays an important roll in keeping the stiffness at bay AND reduces my cardiac risk.  I guess, emotionally speaking, the breast cancer diagnosis was never such a big deal for me, because I always thought, and still think, as does my internist, the risk of heart attack has always been of greater concern. I am consumed with following the data on women and heart attacks. If you think the data on cancer screening is murky and controversial...you should read, if you haven't already, the data on women and statins. Yikes!

  • Cynthia_in_Missouri
    Cynthia_in_Missouri Member Posts: 1
    edited December 2011

    I had a frozen shoulder about two years ago, when I was 51. After trying cortisone, some therapy, chiropractor, and several visits to my ortho doc, I had surgery. It was through the outpatient center. The surgery took a little longer than he expected, about 1 1/2 hours, but he was able to clean it out, free all the adhesions, etc. Recovery that day was not difficult.  I began physical therapy within 48 hours. Lots of stretching, electronic stimulation (which really helped!), and moist heat. In fact, the electronic stimulation helped so much that I was able to purchase (less than $100) a home portable version called TENS.

    Having a frozen should was hard for a while. Before surgery, I couldn't even put on a belt (and I weight about 120 lbs.) Within a month or so after surgery, I had great mobility and little pain, if any. By the end of about five months, I was good as new, with a full range of mobility and zero pain - ever. To this day, I have no issues with it.

    The therapists said that after the initial injury (which is what cause the frozen shoulder in the first place), instead of working it out, I did greater harm by keeping my arm immobile, which allowed scar tissue to begin forming. It was all downhill after that.

    I know some say the non-surgical route works, but the thought to have pain for a couple of years and not being able to work well (lots of computer related work) just wasn't an option. Today, I have no regrets and am happy to say that I had a good orthopedic surgeon and physical therapists. I'd suggest to do what makes you comfortable. Life is too short to spend it in pain if you can do something about it today.

    Good luck!

  • pitanga
    pitanga Member Posts: 596
    edited December 2011

    Cynthia,

    Thanks for sharing your experience. How fabulous that the surgery was so effective.

    Someone else who posted a while back also had a good experience with surgery. Interesting that doctors are so reluctant to suggest it. In my case the orthopedists did not even consider it as a first option, at the same time that they were telling me it could take a year or more to get my range of motion back.

    Lisa 

  • dreaming
    dreaming Member Posts: 473
    edited December 2011

    Mine lasted a year, first they thought it was a rotator cuff injury, they wanted  to do surgery, saw more doctors and what helped was PT, they use electric waves to move my shoulder, then massage, and exercise, it was very painful, I had also exercised to be done at home.

    I had difficulty getting dress, taking my coat  off, not pleasant at all, very painful.

    I have been very good about doing my exercises because of my mastectomy and all the lymph nodes removed, I was advised they were for life.

    After a year I was fine.

  • dja625
    dja625 Member Posts: 21
    edited December 2011

    I had the same thing, first with my left shoulder. I went to have my should manipulated, I had  15 laser treatments that were unsucessful. I finally had an MRI and went to a Orthopedic Surgeon, and had surgery. I had a large bone spur removed and now my shoulder is 100% now after surgery and PT.

    Then... shortly after I was healed from my shoulder surgery, I was diagnosed with breast cancer. I went through a 2 breast sparing surgeries that were unsucessful, a bilateral mastectomy and reconstruction. After all the breast cancer treatments, chemo, surgergies etc... my right shoulder froze! I went back to the Orthopedic doctor and I was back in surgery. I had a bone spur on the right side! After another surgery, I am doing great! No more shoulder problems. I know how painful it is. I feel for you. I'm back at the gym and I have no more pain. I have my life back! Good luck to you. Go to a good doctor and get an MRI and do what you need to do to get it taken care of.

    dja625

    IDC stage 1a  Er- Pr- Her2neu 3+ High Grade 3 no lymph node involvement

  • dreaming
    dreaming Member Posts: 473
    edited December 2011

    Ladies that have several lymph nodes remove, keep doing the exercises for life.

    I stopped and that was the reason I had frozen shoulder. There are many reason why one gets a frozen shoulder, but .BC.that had a mastectomy and lymph nodes removed, are prone to it.

  • Snobird
    Snobird Member Posts: 593
    edited December 2011

    I had frozen shoulder 2 yrs post radiation. It was horrid. I tried acupuncture which made it worse. I ended up doing PT first at a facility and then at home on my own with the exercises I learned in PT. What I found that really helped was cross country skiing. I did it on fairly level golf course trails and I think that repetitive motion finally broke up the scar tissue and freed up my arm. It was almost overnight after a couple of weeks of skiing for half to a full hour depending on how I felt. Woke up with full range of motion and no pain.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    What a relief it is to see that I am not alone in suffering with this shoulder and arm pain.  My right breast was removed Nov of 2011 and my left shoulder started hurting about 6 months ago.  Now it is all the way down my left arm and a constant burning pain in my left arm.  About 2 wks ago maybe, my right shoulder is starting out hurting just like my left one did.  Thank goodness I see my Oncologist on the 31st of this month.  Something has got to give.

  • Shayne
    Shayne Member Posts: 1,500
    edited May 2013

    Im a massage therapist and i had frozen shoulder.  It took about a year to resolve.  A long year.  I went to 2 different PTs.  In the end I found out the exercises and did them on my own.  It resolved very quickly after that.  I had a small hand weight that I would swing when I walked.  Lying on the floor with a broom stick moving it over my head.  Taking your hand and crawling up a wall.  Using the edge of a wall and pressing the front of my shoulder against it.  Stretching it while under the water in a hot tub.  All of these every day, 2 or 3x day.  Very very painful experience, esp at night.  

  • cookiegal
    cookiegal Member Posts: 3,296
    edited May 2013

    Hi....I think we have a frozen shoulder thread on the Pain forum.

    It sucks, you have gone through BC and now you have this disabling pain.

    One doc told me that breast cancer related frozen shoulders tend to go away between year one and year two.

    That was about right. Gentle swimming helped. At the beginning I could only do breast stroke with one arm, but eventually I started working the second arm in there. Elementary backstroke too.

  • jittersmom
    jittersmom Member Posts: 165
    edited May 2013

    wow just found this thread! i just had a full body bone scan! Waiting to hear from my MO...I am thinking my problem is frozen shoulder after reading all of everyone description. I had asked about PT now i am going to ask again. I cant do up my bra, cant reach and like one of you said if I move my arm or someone grabs my arm or pushes it is is drop to your knees pain! and sleep forget it if I am on my sides the pain wakes me up....thanks for the insight ladies.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    I have had this for so long that I’ve learn most of the do’s and don’ts I think?  It helps me to sleep some by taking 3 Ibuprofen about an hour before I go to bed.  Once I’m in the bed I have 1 king size pillow below my head, 1 king size pillow at a slant on the right, 1 king size at a slant on the left and I also hold a queen size pillow with my left arm which holds my shoulder in a non-painful  position.  My poor hubby deals with it for the most part because he can tell I’m truly in pain.  I will be seeing my oncologist on May 31st and am going to approach him about some sort of treatment before I lose my mind completely.  haha

  • jittersmom
    jittersmom Member Posts: 165
    edited June 2013

    Just got back from vacation....OneHungLo..how did you make out when you went to see your MO? I am so sick of pain at this point, and sick of taking things for the pain

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited October 2013


    Hi fellow FroSho sisters, I have been reading your posts and I have more freezing in my left shoulder. I too am a pillow princess. My sister and I are looking into the warm water pool at our YMCA as a solution.

  • swellrider
    swellrider Member Posts: 17
    edited October 2013


    looks like the cortisone is working for me. I have much better range of movement in less than two weeks. I should be able to get my radiation. Unfortunately i started my tamoxifen and it is causing muscle spasms and lots of tense sore muscles.

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited October 2013


    Swellrider, good news about the cortisone shot helping your shoulder. So sorry to hear about the SE's from tamoxifen. Hugs!

  • swellrider
    swellrider Member Posts: 17
    edited October 2013


    Thanks - its still going well - less than two weeks until I start. If these are the only side effects from tamoxifen, then I consider myself lucky. The Magnesuim, Calcium and D supplement are helping nicely. Lots of shoulder excersizing going on here!! Plus cooking turkey for Canadian Thanksgiving and having a relaxed day surrounded by family.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited October 2013


    Keep up your shoulder exercises. I stopped about 6 months ago, and it only took 4 months for it to freeze again. Back in therapy the pain was so severe, and this time I am going to be faithful with my exercises.

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2014

    I want to apologize for thinking about joining the local Y for its warm water pool. Shortly after I posted in October, Mother Nature unleashed the Mother of all winters on us. It was like doing the Iditarod every morning to get to work, and the same was true going home. I will sit quietly amongst my pillows and do exercises at home. I promise!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2014

    Hey there Ladies,  it's been a good while since I've posted on this site.  Guess what?  All my shoulder problems are GONE!!!  Thats right, GONE!!! 

    I exercised them gently every day for about 5 or 10 minutes, used hot pack - cold pack treatments and had my husband run a hand held messager up and down my neck and upper back area every night.

    Just know, it can get better! 

  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • cindala
    cindala Member Posts: 23
    edited November 2014

    Keep moving is the answer.....

  • OncoWarrior
    OncoWarrior Member Posts: 5,234
    edited May 2015
  • VLH
    VLH Member Posts: 1,258
    edited July 2016

    Reviving yet another older thread, have any of you with a frozen / encapsulated shoulder had radiation therapy? I've had the shoulder issue for a few years so it's unlikely that there is a connection to cancer although it's on the affected side. I tried physical therapy, but it was so excruciating on top of my Fibromyalgia that I would feel sick and/or faint if the therapist worked on breaking up the encapsulation and I couldn't sleep for the next few nights after each treatment. When the ortho doc said that treatment might take months to work, I gave up so have limited range of motion. I haven't seen a radiologist yet, but raising the arm over my head would be very problematic.

  • crystalphm
    crystalphm Member Posts: 1,138
    edited July 2016

    Hi VLG, No, I have not had radiation. I have had my shoulder issue for a while, but cancer and a car accident caused a fast decline. And yes, it is on my cancer side. I had a similar experience at the PT, the pain was sharp and horrible. I did end up getting a cortisone shot with good results, it did not make my Lymphedema any worse. But I am cautious about shots big time. I feel for you, it is a painful journey.

  • VLH
    VLH Member Posts: 1,258
    edited July 2016

    I'm glad the cortisone injection helped, crystalphm. I've been through a total hip replacement (with revision the next day due to a surgical error), multiple Synvisc injections and 25+ years of Fibromyalgia so don't think I'm exceptionally wimpy, but that PT was brutal.

  • new__me
    new__me Member Posts: 128
    edited August 2016

    i had exchange surgery March 2016. One week post op i began to develop frozen shoulder syndrome, it has been 5 months. The night pain is subsiding but still hard to sleep and daytime is much better. Taking Advil. Shoulder is still frozen. I cannot raise that arm above shoulder height without intense pain.. it simply won't move. I have been told it might be a year until it thaws

    Should i be doing PT? I don't know how it would be done since the joint is immobile/frozen. Should i just wait for it to thaw and then have PT?

  • bradie234
    bradie234 Member Posts: 11
    edited September 2016

    i talked to radiation dr because i can not put arm behind my back.I can have severe pain but he said it is do to radiation.He offered pt but been through that before and they caused more pain so i decided to just deal with it.

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