Faslodex Girls

Dx'd 1st time 10-2004, now it's back and I'm stage 4 with mets to stomach + possible kidney,colon,pancreas involvement. Getting Falsodex shots but don't know if they are working yet. Anyone else out there with Lobular mets to stomach?

Thanks for starting this thread up again.

I will be starting Faslodex on Wednesday the 14th so I will let you know how it goes.  Kind of worried now as I will be traveling out of the country on Friday.... I'll just hope for the best and carry tylenol with me!

Hoping to get a good run out of the Faslodex!

Naniam - My appetite disappeared while on Tamoxifen and hasn't come back. It's a constant battle to force myself to eat. It's possible that the Faslodex is causing it because it works similarly.

 i've been on fslodex and xgeva sine my dx in may and i've found that if i warm ot in my hands it doesnt hurt going in and the hips dont hurt so much after.  my tms have been going up slightly the whol time but my pet scan 4 months age showed slight healing. i have to take a pet scan on monday since my onc said this month the tms went up a lot. i hope the faslodex can be continued because it is such an easy treatment

Goldie - I hope you can continue the Faslodex also.  I agree that it's one of the easier treatments. 

Sandilee - congrats on a good scan.  My tm have gone down more than once since I've been on it.  I also hopes it works for me for awhile. 

My chemo nurse brings the shots to room temperature, but I don't think they warm them anymore than that.  I will let her know that it may help.  We're always discussing different possibilities for making it less painful for me.

I was so glad to find this tread.  I was dx with mets on january 7th 2010.  I was on armidex and had a compression fracture last week and was in the hospital for 4 days.  I just finished radiation last wednesday  and on Friday the oncologist started me on faslodex.  I found that the injection site was very painful.  It is slowly getting better.  I have also noticed that my appetite is pretty much gone.  Since all of this has happened I have lost 13lbs.  Not that I couldn't stand to lose a little weight but losing it that fast can't be good either.  Does your appetite eventually come back after awhile or will this be a new thing to look forward to. I hope that you all have a great week. 

Yes this medication is very thick and it does sting going in.  Hoping for the best for you Linda.

Just make sure that it is really good and warm - you  won't feel it as much going in, injection site won't be as sore.  That is the secret. 

I haven't had my regular appetite but haven't lost weight -

I'm about to do injection #4, I think. My husband has wonderfully warm hands, so he is the official warmer. I get the Xgeva shot as well. The last time was pretty much painless. I think I remember the first one stung a bit.



I don't know if the Faslodex affected my appetite because I've had much more interference with my appetite from prednisone. I'm down to half a 5mg tab and ready to get off it all together.



So far Faslodex has been pretty easy if you don't count the stinky urine. Scans are this week so we'll see if it's working.

Chickadee and Janice - I got a good chuckle out of that.  I totally agree.

Im one of those wacky chicks using both hormonal and chemo at the same time. Faslodex and Gemzar is the Mix de jour. Believe it or not it seems to have me in a bit of regression. Im loving it. My onc kind of ran out of choices and I wanted to keep trying, so this is it for now. Not a bad combo. Ive never had any big SEs from Fas, but the chemo makes me sleep for a couple or few days after I take it. 

Zoh 

HI, naniam--Yep, I've had the Faslodex and Zometa at the same time (two weeks ago).  The Zometa didn't bother me at all until 12 hours later when I got the chills, fever and body aches side effect.  I had no appetite for 24 hours then I ate bland foods for the next 24.  After that, I was back to my usual  food cravings.  I really go for comfort foods and sweets.  I would like to lose some weight but, I've stayed about the same, so far.

On 12-29, I'll get another treatment of both the Zometa and Faslodex.  The nurse who gave the shots  grabbed a handful of my ample butt flesh and inserted the needle.  I felt a small sting and then, on the second one, I felt nothing.  Not a bad experience, considering needles are involved.

I'm going to ask for the warmed up injection, next time.

I told my nurse about the stinky urine and she said she's never heard of that before.  Humm? 

I'm praying that these two meds will keep me stable for a long time.

Welcome, janicemarie!

If you haven't seen this tip on the zometa, it worth repeating. Make sure they set the drip for at least 30 min and hydrate hydrate hydrate. I have them empty the saline solution into me and have not had one problem. The first time I didn't do any if this and was hit with chIlls and terrible aches 3 days after.

When I got the Faslodex a week ago, I ask questions about the length of time - they told me they do it in 15minutes - some women want 30 and say it makes a difference

Frapp, not having had Zometa, what do you mean when you say you have them empty the saline solution into you?  Do they run the med and a bag of saline together? 

3rings, I have heard the first time is the hardest, 2nd and 3rd a bit of a problem and then it is fine.  I'm counting on that. 

I have always been a go-go type person, at 66 I definitely feel the fatigue from Faslodex.  I hope my body can adjust to the med and the fatigue won't be as much.

Thanks for the tips.  Heard so much about Zometa I just want the first one done and over at this point. 

Frapp, thanks for taking the time to talk to me and give me suggestions.  It just gets to the point you want to get the drug and get whatever symtoms behind you. 

Monday I have labs then see the oncologist. I hate going to the chemo pod at 4-4:30 to get meds; it has been a long day for the chemo nurses and they are ready to go home.  They tend to push the meds a bit.