Lets draft a letter to Washington

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  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011
  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Merilee:  I will eagerly be awaiting the draft of the letter you hope to send.  It still sounds to me like you are focused on bc and we seem to have two different goals here.  If I don't feel I can send the "drafted" letter, I will still come up with my own and mail it on the same day you send your letters.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Medigal- Thank you for your kind words of support. I believe we can accomplish a common goal and much more. I would also like to say that I am very sorry to hear about your daughter. I think most of us who are mothers would certainly rather have problems ourselves than watch our beloved child go through such difficulties. Pile that on top of your own diagnosis and I have say that is a lot  to be dealing with all at once. I have to believe that you are made of amazing strength.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited December 2011

    Single payer healthcare - but then, this is Washington. We wouold have to hope that the senate can first agree on debate rules for the folowing:

    ---What is the procedure by which to, in a bipartisan fashion, open the envelope containing the letter from BCO posters. Will Reid postpone voting until after the 2012 elections?

    That is, once the House Appropriations Committee votes to consider the motion to receive the BCO envelope either by snail mail or by e-mail. That agreement might take months. They must first agree on the subcommittee debate rules regarding "what is e-mail" and "what is snail mail."

    Athena, the Snide Washingtonian

    Great thread, though.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011
    Athena:  I can understand your  feelings about Washington.  However, I don't think, unless I am wrong, that we were planning on putting all our letters together in a box and mailing at the same time.   Hmmmm.....that could be a plan.Wink   As I understand it, the senators etc. don't even read all their mail whether snails or emails.  They hire others to "glance" through them and mark down how many are "for" a subject and how many "against" and all the senators get are "counts" and we all may get the same "form" letter telling us they appreciate our concerns and agree with us concerning them.  What they don't do is agree to "do" anything about the problem!!   That is why I am so gungho on just sticking with "one" issue and banging them  with how serious we are about getting it resolved.  We stand a better chance of getting help on "one" problem like health insurance than a multiple set of problems.  Just my opinion.
  • cycle-path
    cycle-path Member Posts: 1,502
    edited December 2011

    "However, I don't think, unless I am wrong, that we were planning on putting all our letters together in a box and mailing at the same time. Hmmmm.....that could be a plan. As I understand it, the senators etc. don't even read all their mail whether snails or emails. They hire others to 'glance' through them and mark down how many are 'for' a subject and how many 'against' and all the senators get are 'counts' "

    That's correct. Many office holders ask that a small number of letters be selected for them to read personally, but there's no way any of them can read them all. I've been involved in many a letter writing campaign. I always advise people that quantity of letters counts more than quality. You do not need to write a Pulitzer Prize winning letter. Your opinion is basically being tallied.

    That being said, I've been told that each letter is consider to represent the views of at least 200 other people, because only one in 200 or so will actually bother to write. So writing is worthwhile.

    But in addition to writing letters to elected officials, letters to newspapers and other periodicals are also very worthwhile. For example, it's worthwhile to write a letter to the LA Times in support of the person who wrote the editorial I posted.

    A newspaper's product is not actually news, but faces in front of advertisements. When you write letters you're showing the paper that their article caused your face to linger over their advertisements, and you're encouraging them to provide more articles on the subject about which you wrote. 

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011

    I am a in person person.....years ago when the bussing of our children started in NY there was quite an uproar.Needless to say i lived in an upscale neighborhood that just opened a new school only a few blocks away from our home....well they wanted to bus my kids to a nearby school that was about 5 miles away...I was very active in my Civic Assoc.Went to meetings day and nite and bottom line was we slept on the steps of City Hall.just a group of us along with senators and lawyers....maybe 30 people.still have the article....WE WON!!!!!

    JUST SOMETHING TO THINK ABOUT....

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Granny:  Like you said "years ago".  Many of us were lots younger and healthier and able to do such things but unfortunately what you may be "hinting" at is no longer an option for some of us.  I won lots of battles too when I was young and healthy enough to physically take them on. I think if we can put together this plan to flood Washington with thousands of letters, it will have a good impact. What politicians look at is "votes".  Thousands of letters mean that can be more thousands of people too angry to vote them back in office.  So letters do count, imo, especially in an election year.  That is why we have to decide what we want to say and get this show on the road asap!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011

    that was just ME.sure i would still go.And I understand many cannot.thats ok.remember i said we were about 30 people.it was just a story that worked.

    hey im in for what ever everyone agrees upon.....

    Lets just get this show on the road!!!!!!!!!ASAP.Walk,Run,Write. I dont care as long as we dont go round and round with this and it only becomes a debate....

    Im spreading the word.AND prayin whatever happens works.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Granny:  I totally agree with you.  We can't waste time debating what has to be done and end up not doing anything.  This is too important!  I hope tomorrow we can get some input on what we want to put in the letters and get them mailed. 

    I have an idea.  Why don't we select the DAY we want the letters to be mailed and let each person just write their own letter.  I already know what I want to ask my senators to do.  I want them to come up with some type of affordable healthcare for ALL people who need it no matter what their illness is.  So many people have lost their healthcare insurance through loss of jobs, or having to work part time jobs which don't give coverage or not being able to work and having to wait two years for Medicare if they are lucky enough to be approved for social security disability. 

    We have many, many Americans who put off getting needed medical procedures because they don't have insurance and can't afford to pay for their own medical care or medications. Our young adults with chronic medical problems  are suffering because they lose their jobs and have to be supported and cared for by their parents because they live in a country which gives healthcare to the elderly (Medicare), the poor (Medicaid) but forgets about the people in the middle who don't fit into these categories. Not every one without a job can afford COBRA.   I would urge my senators to come up with a Bill to provide healthcare to ALL Americans who need it no matter what their age is.  We need cures for all diseases but what good is a cure without healthcare insurance to pay for what we and the others who suffer need.

     Now I know what my letter will say. If you want something else just put your heart into words and get that letter written.   I hope we can decide tomorrow what DAY we are going to mail them so they can get to Washington about the same time.  As Granny wrote:  "Lets just get this show on the road!!!!!! ASAP!

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    When it the Christmas break over ? I don't want the letters to arrive and then everyone go on break, I think we should try for the day that they all come back or the day after. Then perhaps in the early summer when weather is not a factor we can try to organize those of us who can and are willing to go stand in front of the white house. I agree we should pick a date and let the press know we are doing it so they can cover the story. I would like to see a letter template posted here so those who just want to print and sign, can. I would also encourage anyone who wants to write there own thought to do so as well.  Perhaps even writing a second page with real life stories. It is the numbers that will get attention initially. (sadly)

  • crog234
    crog234 Member Posts: 801
    edited December 2011

    I am in. I am one of those people who could use the health insurance. The only reason I had any coverage at all is because I belonged to the Maine breast and cervical program.. We don't make enough to pay for health insurance but make to much for Medicare..... I worked part time before all of this but am now out of work due to getting blood clots during chemo. I ended up in the hospital and got DVD. That in turn affected my foot. I have a numb foot on the bottom with lots of pain on the top. Tendons tightened up and am using a dynasplint to try to stretch those tendons so I can hopefully walk again at some point... Anyway I would be more than willing to help. I am not a good writer so would love a letter template to use..



    Cindy

  • J9W
    J9W Member Posts: 395
    edited December 2011

    Would it be possible to set up some type of website also where people could click for support. Maybe call it the 1,000,000 Breast March and besides writing and mailing letters, let people go there to show their support. Just keep a tally of how many people click in support.

    Let this start to take on a life of it's own.

    I'm more than happy to write/send a letter and will ask all my family and friends to do the same thing. I think the first issue has to be healthcare access and insurance companies should all play by the same rules. It's a sin that I can have an MRI every six months because my insurance company allows it but someone else can't because their insurance won't cover it.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Moderators

    Are you reading this? There is a golden opportunity here for your site. Will you help?

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited December 2011

    I've been following this thread, even though I -- and several others on BCO -- can't participate because we're not U.S. citizens.

    I just want to add a couple of things:  All the letters in the world won't do much good unless the media are made aware of the letter-writing campaign.  Once the media are involved, that's when the politicians start to pay attention.

    The website "clicking for support" has possibilities.  In fact, why not make BCO the website?  BCO can also create publicity by sending out press releases and using personal media contacts.  This not only makes the politicians aware of your concerns, but also serves to provide a higher profile for BCO.

    I send you my moral support and sincerely hope that the whole issue of health insurance (and lack of it) eventually leads everyone in your country to seriously consider that "healthcare is a right, not a privilege".

  • sagina
    sagina Member Posts: 1,219
    edited December 2011

    J9W so true, my friend and I were diagnosed in the same month last year.  Within 15 days I had an mri, scans and started chemo - we did have different BC - but her insurance wouldn't pay for the MRI as a diagnostic (not sure if mine would have, but my biopsy was certain, hers wasn't).  She paid $900 for a breast MRI that confirmed cancer.....

    She later lost her job at the university she work for, and couldn't afford the $956 a month Cobra.   6 months later she found another job, with insurance, but of course any cancer related treatment etc won't be covered for a year....

    I understand the need to get attention for health care reform, I lived in Germany while my ex was military and had many German friends and saw the social medicine in action, it worked, but nothing is free of course.  A very large chunk of each of their paychecks went to funding their healthcare.  I'd be willing to pay up to guarantee insurance....now that I understand how important it is.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    I like it, what do you think ladies? There is power in numbers and I can see the sense of joining forces. Your thoughts? We could add our persoal stories on page 2. Lets make um cry!

    Hilick-would your group want to send a mailing the  same day we choose to send ours? I think everyone should ask their family to send one as well. Lets make a mountain of mail that can not be ignored.

    And yes we need the press to be alerted that it is going to happen and when so they can be there to capture the delivery. Maybe if we jam the post office on that day others will notice and jump in as well.

    Any one know how to contact the moderators other than reporting a post? That is the only option I saw on this site.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    I also think we should add the stats that the American Cancer Society published. 240,000 new cases in 2011.  2.5  Million have this devistating  diagnosis in the US alone.

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    I love that this is picking up momentum. I can't wait to hear from the rest of you what you think.

    I will sign the petition and do the mailing in coordination with all of us. When is the petition going to the white house?

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011
  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    I read all the info on both of the above NBCC links "End Breast Cancer" etc. and I don't see anything in them about "Medicare for All" or about health insurance problems.  Can someone tell me where they included this or is their entire goal focused on ending bc by 2020?  Whatever the researchers come up with will have something to do with needing certain treatments or drugs and people need INSURANCE for this.  Without insurance bc will only end for those who can afford the treatments or drugs or have the necessary insurance, imo.  Frankly, I think it is great they have this goal but I need to see "health  insurance" included or it will not be something I feel will be workable for too many people.  If we join with them, are we just going to have their same goals?   Just like to know where I am going before I get involved with any undertaking.  Thanks!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited December 2011
    Count me in !!!!!
  • kiley56
    kiley56 Member Posts: 164
    edited December 2011

    I'm in also so but, I thought the goal was to write a letter, about the need for All people, with health care issues to be addressed. So many people with chronic conditions fall thru the cracks.  I think we could use our numbers to help creat a draft that would include All Americans.  If other countries can do it why can't We!

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2011
    We'll help in any way we can Wink
  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited December 2011

    I can cheer you on!

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    Kiley:  I'm with your idea.  I think this needs to be about ALL people with chronic diseases.  I think we need to settle on exactly "what" we are going to be focusing on soon or it will never get out the door.

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited December 2011

    Joining Blue in the cheering section!

  • Merilee
    Merilee Member Posts: 3,047
    edited December 2011

    Kiley,  health care and coverage is certainly an urgent goal. But without accountability, insurance will just continue to pay for fixing the bigger problem after the fact. Getting some bucks poured into prevention, research, and accountability,  is certainly equally as important so that we can stop this wicked disease in it's tracks as well as its causes.

    When I read the words  "we want to end Breast cancer by 2020" I was so moved at the thought I nearly wept. The thought of my daughter, or any other woman never having to endure what we have been through is powerful for me.

    The main idea here is to flood Washington with our discontent all at once. That is news.  Once the media picks up the story, many issues will be highlighted, including the discriminatory insurance mess in general. Have faith, this will work. I know there is such a desperate feeling of urgency, very understandable hearing everyone's stories. We need to stand up and tell them in a critical mass and let Washington know that our votes are enough to either launch or end political careers. They had better pay attention!

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    My story:  About 1970 a mother had a DD who was diagnosed with diabetes.  In 1980 her younger DD got diagnosed.  The mother was so devastated she was determined to "Find a Cure for Diabetes".   She started and became President of the first JDF in her city and turned her home into an office to raise thousands of dollars for diabetic research.  She raised so much money she got a trophy,  plaque and honors for her work.  One day her younger DD told her it was useless that she was exhausting herself because "they will never find a cure for diabetes.  They make too much money from it".  These words came out of a child who had to give herself several shots a day of insulin and prick her little fingers for blood daily.  The child had an adult's wisdom.  Today is 2011 and they still have not cured diabetes.  We did the Washington thing, had galas with movie stars to help raise money etc. etc.  but no cure for diabetes.   The child is now an adult suffering multiple complications and only the fact that we are dedicated to keeping her medically insured is the reason she is still alive.  Without insurance, we could never have gotten her the care she needed to survive her complications. 

    I hate to throw a dagger in the hope for "A cure for breast cancer by 2020" but as many people who need this and are working for a cure, there are just as many greedy people who probably are making sure it never happens.  Too much money to lose.  Nothing wrong with hope.  I ended up with a cerebral aneurysm in 2002 which I think the stress of fighting for a "cure" did to me.  But I survived thanks to medical insurance and good doctors who knew how to save my life.  My story is not what you want to hear but I am a realist so I will only fight for what I know has a chance in Washington.  Have a great day, ladies.

  • Medigal
    Medigal Member Posts: 1,412
    edited December 2011

    hill:  Thanks for the link and the additional info.  That's what I needed to read.  Upward and Onward!

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