WHY would I put myself through this?

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2011

    I have read your story and my heart goes out to you. You've had a rough road littered with the worst side effects and lots of uncertainties about the ultimate efficacy of any choice you make. Whatever way you choose to go if you can make peace with your decision then that will be the right one for you. Though you would really dislike me, I am very cheerful (most of the time except when I'm ticked off at being stage IV), I wish you the best.

    Caryn

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
    exbrnxgrl - Is the dog in your avatar reading a book?
  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2011

    Omaz,

    No, she is using an iPad! We suspect she was on petco.com ordering doggie treats.

    Caryn

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011
  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Lady gray....a couple of notes....herceptin makes me tired also for two days. The only time I have been queasy is now that I am just on herceptin. Once said it is because I went from a smaller dose weekly to a dose dense every three weeks. He said I could go back to every week, or even every two which wasn't so appealing. We slowed the herceptin to a 90 minute infusion and it helped with se's. My queasiness responds on ondasett though.



    I am not into sitting in the family room for chemo. I dont want to chit chat with the other patients, as some look really sick and I just cant face hearing what they have. Whenever possible, I am in the private room.



    I am however very cheerful and friendly with the nurses. I want them on my side when I need favors.



    I hope tomorrow goes better for you.



    I think you are brave to stay with that doc. I'd be gone and sending her a letter detailing why I chose to leave. At least you can control that.

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
    TLG - How are you doing?  We're all here for you anytime you want to talk.
  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    LadyGrey - hope you are stocked up with the right meds this time - best wishes

  • TheLadyGrey
    TheLadyGrey Member Posts: 231
    edited December 2011

    Not doing so great emotionally.

    Met with the oncologist on Friday and have a Gransiteron patch for nausea/vomiting.  Oncologist is convinced it was a bug, but didn't want to take chances.  She also doubled up on post chemo steroids and gave instructions for avoiding constipation.  

    Next treatment is tomorrow morning and I am so depressed I can barely get up off the couch -- MADE myself go run some errands which made me even more depressed with all the Christmas mustic, etc.  My third treatment is two days after Christmas .... ho, f'ing ho.  I think we will just skip Christmas this year as I don't have the energy to deal with any of it.  

    I read about all these woman who consider themselves warriors/survivors/champions etc., and I have not one thing in common with them except I have/had this stupid disease.  I'm scrappy, but right now I am about as far from being a warrior as one could get -- never felt so utterly defeated in my whole life.  

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
    (((((Hugs Lady Grey))))) I will be thinking of you tomorrow.
  • AlaskaAngel
    AlaskaAngel Member Posts: 1,836
    edited December 2011

    Oh boy. 

    One at a time.  My hope is that your medical support is on the ball now and the system failures are completely behind you.

    With you in spirit,

    A.A.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    TLG - Hope you have Emend prescribed - hope you gave her hell over your experience - I would have!!! Easy to pass it off as a tummy bug for her, but it may not have been.

    (((((((((((((((((((((HUGS))))))))))))))))))))))

    Sue

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited December 2011

    No cheery, peppy or perky platitudes, just hoping that you do not have to go through such suffering again.

    Caryn

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2011

    Ditto to everything Caryn said.  I'll be thinking of you tomorrow and hoping that round 2 is a much different and better experience for you. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Tlc- read five Lessons I didnt Learn from breast cancer. It was the first book that I finally felt I had something in common with. Funny and irreverent.



    Although I hadnt started chemo at christmas last year, I had just had my first surgical biopsy a couple weeks before that. Hosting 40 people at my house on christmas eve definately kept my mind on something other than bc. It was a good thing as I can dwell on something and stew about it for hours.



    Are you on an anti- anxiety pill. Mine really helped with my panic disorder. I was depressed, cried everytime someone looked at me, couldnt eat and my heart was pounding. Doc said I had every symptom. Cymbalta worked within 48 hours for most od the symptoms.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    Thinking of you LadyGrey!!!

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
    LadyGrey - Hope you made it through today without any troubles and sleep well tonight.
  • ruthbru
    ruthbru Member Posts: 57,235
    edited December 2011

    Thinking of you LadyGrey!

  • bucky317
    bucky317 Member Posts: 216
    edited December 2011

    Good Luck today Lady Grey!!! This round has GOT TO BE BETTER  than your last one!! Geez!!!! Love ur sense of humorLaughing

  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Bucky...I am pretty sure that wasn't humor she was going for. LOL

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011
    LadyGrey - How are you doing today?
  • Beesie
    Beesie Member Posts: 12,240
    edited December 2011

    Thinking of you and hoping that you are okay!

  • IowaSue45
    IowaSue45 Member Posts: 586
    edited December 2011

    I too have been through it all in the last 1 1/2 years. I have read that her2 pos. horm. neg. at one time was the worst bc to have and out of all her2 only 7 % is just her2  only. I thank God dearly for giving us gals a life saver. I really don't think there is enough info. about just how good it is for us early stagers but if it does better for us than the stage 3 and 4 gal we will be around for a very long time!!! I asked my onc. just how long she thought that I may have had these nasty cancer cells growing and she told me only 4 to 6 months before I felt the 3 lumps. My bc was a little strange to all the Drs I saw because I didn't have 1 solid mass, I had 3 kind of like a chain ooo each 1cm plus an area of 5 cm specked with cancer cells. I think part of this is because of the crazy her2 grade 3 cells. I am so glad to be putting all of this behind me and moving forward. One more great story to share a gal 28 y/o on the thread where I started Aug.10 chemo was stage IV and early this summer she was declared by her onc. to be NED and she is her2 : ) Also good her2 movie to watch is Living Proof I ordered it online....great movie about how herceptin came about and what the Dr.Dennis Slamon had to go through to get it approved. We all need to thank this man!!!

    I worked all through tx only missing 1 day because I didn't feel good. I can honestly say my side effects were minimal and I believe most of it comes from mind over matter for me.Once I make up your mind that this is what you have to do you have to find the best possible way to get through it. Maybe I'm strange but this is how I roll.

  • TheLadyGrey
    TheLadyGrey Member Posts: 231
    edited December 2011

    So far, so good.  The nausea patch seems to be working, plus at the first sign of any gastric distress I pop a pill.  I'm treating myself like a chemo patient instead of Wonder Woman and resting a LOT.  I'm got some very specific advise from the oncologist about avoiding constipation and it has worked as well.  

    Other than the fatigue (and waiting for the other shoe to drop) and feeling guilty about not doing anything for Christmas, I feel pretty good.  But I am REALLY babying myself.  

    I do want to say that the oncologist did take my concerns very seriously and was willing to change my treatment protocol if I had a repeat performance.  

    My chemo nurse was supportive of the Cold Caps so that part went well too -- I think they are getting used to them.  So far so good there as well -- some shedding but I guess to be expected.  

    I misunderstood the once/week for six weeks Herceptin in assuming that included the chemo Herceptins which it evidently does not so Christmas travel is MAJORLY goofed up.  My husband wants me to skip the January 3 Herceptin infusion but I'm thinking if you are going to go through all this hell, do it the way they say.  I'm afraid that if I put that one off or change it it will change my final chemo date a week or so and NO.... just no!  So the family may have to celebrate New Year's without me -- I'm not big on New Years anyway so NBD.   

    IowaSue, I don't think it is fair to say the side effects are all in the head.  I'm glad yours were minimal but I know that some people really, really suffer with them, sometimes, as in the case of neuropathy, long after the chemo itself is over.  Doctors aren't always great about explaining realistically what to expect and suggesting remedies -- I have learned WAY more on this site than I did from my doctors.  To suggest that those who experience unpleasant side effects have some lack of will or mental failing seems unkind to me.  Yes, we are blessed to have this drug (I'd prefer to be more blessed and not need this drug) but the physical price that some women pay for it is higher than it is for others.   

  • ALK
    ALK Member Posts: 46
    edited December 2011

    Lady Gray,

    I want to applaud you for continuing to struggle through this.  Your family is grateful to have a mom that is willing to fight even when we don't feel like fighting any more.  I understand the depression, but I keep thinking about my mom.  She fought and we were given more time with her.  She had a very rare cancer of small intestine, but knew she needed to try for her family.  The last time I saw her in her home was Christmas.  Even though she knew things were tough, she gave us the best present.  She fought for us.

     Now I'm going to fight through this for my family.  Even though I have had to stop working at a job that I love, I know that I will get through this.  It is one day at a time and sometimes one second at a time.  You WILL get through this.  We will be there to help. 

  • Omaz
    Omaz Member Posts: 5,497
    edited December 2011

    TheLadyGrey - Good that you are babying yourself - it is working - yay!  I had herceptin at my chemos, so every 3 weeks.  I never had it weekly, are you having it weekly?

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited December 2011

    LadyGrey - good to hear you are doing better this time, I hope it continues.

    ((((((HUGS))))))

    Sue

  • angelsister
    angelsister Member Posts: 474
    edited December 2011

    You sound like a different lady! I think you're right to rest and to be kind to yourself. You've experienced first hand what this treatment can do when you're not prepared. So if taking care of yourself, taking your meds and resting is how to get through it without quite so much trauma that gotta be the sensible thing to do right? That nightmare wasn't in your head...that was real. And the strength you've shown to keep going despite it? That's real too! Hats off to you, you're incredible you're not a baby x

  • dragonfly1
    dragonfly1 Member Posts: 766
    edited December 2011
    TheLadyGrey I'm so glad that you are keeping us updated. I think of you often and hope that you are managing the SEs. The SEs are very real indeed. I had the most miserable GI effects from TCH from day 6-10 of every cycle including unbearable cramping and diarrhea to the point that I had to convert to a liquid diet during those days just to get through. The MO never found anything that helped. I just drank my Ensure and suffered through those days and was miserable. No amount of positive thinking was going to change it-I vividly remember crying and thinking I couldn't stand it another day but then it would finally end and I'd get my strength back for the next cycle. I also took every single precaution against neuropathy and thought I was fine only to develop neuropathy in both hands several months after chemo ended. We are all so biologically different and there is no way to know who is going to get away with minimal SEs and who is not. No regrets here either-I agree that we are so blessed to have Herceptin. I often think about what Dr. Slamon said in the outtakes from the movie Living Proof. He said that the future lies in targeted treatments like Herceptin and he hopes that we can eventually get rid of "slash and burn" chemo. Until that day comes, we are stuck with a less than perfect option. Hang in there LadyGray and keep telling yourself: you just have to show up:)
  • IowaSue45
    IowaSue45 Member Posts: 586
    edited December 2011

    I apologise to TheLadyGrey I really meant that is what works for me. I wish everyone the best through this. Positive vibs to all.

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