DCIS Followed By Stage 1 In The Same Breast

Meghan
Meghan Member Posts: 27
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

Hi,

 Has anyone else had this happen? I had a bilateral mastectomy and reconstruction in 2009 and will have a lumpectomy next month. The second lump showed up in the same place as the first one less than a year after the first surgery. Waiting for the results of the second genetic test. The first one was negative and I have no family history. MRI & PET were clear, thankfully. Any advice? Thank you.

Meghan

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Comments

  • crystalphm
    crystalphm Member Posts: 1,138
    edited November 2011

    Are you saying the DCIS is in the same breast you had removed? I just had it in the other breast...so yes, that happens, but I am not understanding if it was found in the reconstruction or what?

    but I am wishing you the best....

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  • Meghan
    Meghan Member Posts: 27
    edited November 2011

    Sorry for being confusing. The DCIS was in 2009. I had the bilateral mastecomy, expanders and implants. Then I found a lump in the same breast the DCIS was in (in what little breast tissue is still there), but now it's stage 1. I don't know if that's considered a recurrence since it's a totally different cancer. I hope that makes more sense.

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  • mom3band1g
    mom3band1g Member Posts: 817
    edited November 2011

    So sorry you are going through this.  Can I ask how you found this recurrence?  I've found a small lump in my DCIS side and am waiting for my bs appt after Thanksgiving.  It's making me nerous.  Did you have radiation the first time?  Hoping your lumpectomy goes well.  Bc stinks.

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited November 2011

    Goodness gracious!  I feel your pain.  I had DCIS, double mastectomy (the other breast was at my request).  ER-/PR- HER2+.  Chemo, then Herceptin (12 month round due to end next month) and last week a lump I found has been confirmed as cancerous.  Surgery scheduled for this week.  The lump is right where the original lump was located, under the scar tissue.  i am petrified!  Are treatment optons available if the original round of meds don;t appear to work?

    I am praying for a different cancer - is this possible?

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  • Meghan
    Meghan Member Posts: 27
    edited November 2011

    @Mom3band1g: I found the lump myself. I didn't have any treatment the first time, just surgery.

    @KeepingFaith69: I don't know what they'll tell you about treatment, I would think they'd have several options for you to choose from. But I'm no doctor. It is possible for it to be a different cancer. They don't know if mine is a recurrance or metastatic, but I was triple negative and now I'm Her2+, so I'll be doing the Herceptin (and chemo, radiation & Tamoxifen) also.

    Please let me know what you guys find out about your situations, and yeah, it stinks. Smile

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited November 2011

    Morning lovely ladies!

    I am so very blessed and grateful to have my family me, pandering to my every whim.

    But as much as they love and support me, none of them really 'get' what we go through ha?  I am feeling exhausted, trying to 'look' not worried so that my mum, sisters, husband and children don;t worry.  Last night i fell to sleep in the afternoon from exhaustion.

    I woke this morning and my boys were washed, fed, scrubbed and packed off to school, the house is gleaming and food was being cooked.

    I feel like a brat when i think "oooooh I just want some quiet" and yet i am so grateful to have them around.

    I get my results on Monday and am praying for a positive result (no spread).  Thank GOD that i have found this site as it is a place where i can be me and express my fears, without breaking hearts!

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  • Meghan
    Meghan Member Posts: 27
    edited December 2011

    I don't think anyone can get it unless they're going through it. I'm glad you have support, and you shouldn't feel like a brat for wanting alone time. I really enjoy mine. My sister-in-law is coming down on Wednesday to help me after surgery. I know I won't really need help, but she REALLY wants to be helpful. So basically I'm dreading the visit. My fiance and I are both on edge and we really don't want to take anything out on her. We can handle it with each other, but that's different. And I totally get what you mean about trying to put on a happy face to keep others from worrying as much. I figure everyone wants the happy, joking me, not the emotional, freaked out me.

    Anyway, what did you find out? Hopefully you got great news today, and don't ever worry about breaking hearts on here!

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  • Beesie
    Beesie Member Posts: 12,240
    edited December 2011

    Meghan, so sorry that you are going through this.  

    From what I've read, after a BMX for DCIS, the risk of recurrence is about 1% - 2%, and the risk of the develoment of a new BC is also about 1% - 2%.  Since this cancer is in the same breast as your earlier diagnosis of DCIS, it really could be either a recurrence (i.e. some cancer cells were left after the previous surgery) or a new primary (i.e. new cancer cells developed in the same area, completely unrelated to the previous diagnosis).  Even with it being invasive cancer this time vs. DCIS last time, it still could be a recurrence.  Approx. 50% of recurrences after an initial diagnosis of DCIS are not found until the cancer has evolved to become invasive.  And the change in hormone status also doesn't mean that it's not a recurrence since hormone status can change as a cancer evolves from being DCIS to being IDC. So it could be a recurrence... but it also could be that a new cancer developed.  Whichever it is, here's hoping that it's localized and that this time is the last time that you have to deal with this! 

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  • Meghan
    Meghan Member Posts: 27
    edited December 2011

    Thank you Beesie. I hope it's the last time I have to deal with it too. I had the lumpectomy and the chemo port put in on Thursday. Now I'm waiting for the biopsy on the back of my head and chemo to start. Good times. Anyway, I hope you're doing well and that you have a wonderful holiday season!

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  • June2268
    June2268 Member Posts: 1,202
    edited January 2012

    Meghan jsut reading your post and hoping all is going well for you.....please keep us updated and know your in my thoughts!

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2012

    Hi Meghan,

    Test came back clear THANK GOD halleluia!!!!!

    No further treatment as my oncologist explainjed there is no point as there is nothing to 'measure'.

    Hope all is gloing great for you (((((HUGS))))))

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  • Meghan
    Meghan Member Posts: 27
    edited January 2012

    Yay! That's great news! I'm so glad to hear that! Laughing

    Things are going pretty well here. I had the biopsy on the back of my head and the MUGA scan earlier this week, so I should get those results in a few days and I start chemo on Friday. That's about all I know. Smile

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  • iluvmy4kids
    iluvmy4kids Member Posts: 1
    edited January 2012

    Meghan,

    I just has a recurrence in the same breast as my masectomy and I am waiting for treatment and scans.. I am just wondering, I notice you are having chemo, is that standard for a recurrence?

    I had bilateral masectomy and chemo after the first DX and I was under the inpression I would only need radiation.

    Thank you for your help 

    Julie 

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  • Meghan
    Meghan Member Posts: 27
    edited January 2012

    Julie,

    I don't know if it's standard or not. I didn't have any treatment the first time, so I think they're just covering all the bases this time, since I got it again within months of the mastectomies. I'll be doing radiation also at some point. Let me know what you find out. Hopefully only radiation it will be. Smile

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  • KeepingFaith69
    KeepingFaith69 Member Posts: 508
    edited January 2012

    Hi,

    For my recurrence, I had surgery and will commence radiotherapy (top the already irradiated area) tomorrow.

    Wishing you well xo

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  • Meghan
    Meghan Member Posts: 27
    edited January 2012
    Congratulations on the end of your treatment! Hopefully you'll never need any more. Laughing
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  • Ulightup
    Ulightup Member Posts: 57
    edited January 2012

    Hi everyone,

    I was diagnosed with right breast dcis in 2005 and opted for mastectomy with sentinel node biopsy. Onc and breast surgeons determined that no chemo , radiation nor tamoxifen was needed. 7 years later I found a pea size nodule in the same breast which turned out to be invasive cancer ...for now stage 1 but they are doing oncotype dx/mamostrat and MRI. I am frightened , but i am going to beat this again. I will have radiation to my mastectomy breast and implant. Wondering if anyone can post how the implant responded to radiation. What type of reconstruction will you have? I may also need chemo and tamoxifen this time. I'm kind of mad they didn't do it the first time, but I guess cancer is so deceptive and can recur been if you have those treatments.

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  • Meghan
    Meghan Member Posts: 27
    edited January 2012

    Hi,

    I wish I could answer your question about radiation, but I haven't had that yet. I have silicone implants, and I'm curious how it will be affected also. Your story sounds almost exactly like mine, except my pea sized lump showed up within months of my bi-lateral mastectomy. Right now I'm doing chemo. I've only had one treatment so far. And you definitely will beat it again! Keep us posted on what you find out from your tests. Wishing you the best. Smile

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  • Ulightup
    Ulightup Member Posts: 57
    edited January 2012
    Thank you. It's nice to have this support the second time around.
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  • Chantal10
    Chantal10 Member Posts: 105
    edited January 2012

    Meghan and ulightup and anyone else who may have additional thoughts... My bilateral mastectomy was 2 weeks ago ( the right was the cancerous one, the left i chose to have removed) I did nipple sparring mast and had both dcis and an area of stage 1. I need to go back for another surgery mid February o remove a spect of dcis left close by my nipple. Question is' did you gals keep your nipples or remove them? I just am not sure what do, have the right nipple removed? I'm concerned about reoccurrence, seems a lot of it going on here. Sorry to hear! :(

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  • Chantal10
    Chantal10 Member Posts: 105
    edited January 2012

    Speck

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  • Ulightup
    Ulightup Member Posts: 57
    edited January 2012

    I had my nipple removed because DCIS was around the area. I was happy with my plastic surgeon since he reconstructed a nipple from left over skin and tattoed the arreola. Trust your instincts and make a decision based on what feels right. You need to be comfortable with your decision. Stay strong!

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  • JMW
    JMW Member Posts: 99
    edited January 2012

    Ulightup and Meghan, sorry to read of your recurrences. My situation is different from yours. I had silicone implants 2 yrs. before my diagnoses. I just had a lumpectomy,  chemo, rads and am now on tamoxifen. I finished my rads in June and there is no change in the way they feel. Still nice and soft......just no change at all except my nipple is a little messed up but thats from the lumpectomy. Hope this helps....

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  • Ulightup
    Ulightup Member Posts: 57
    edited February 2012

    I now have a treatment plan for recurrent breast cancer. I am starting 6 cycles of TC on feb 15 followed by radiation and tamoxifen. I also opted for a prophylactic mastectomy at the end of the year. I feel better now that I know what I need to do to beat this cancer again.

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  • Meghan
    Meghan Member Posts: 27
    edited March 2012

    I haven't been on here in a while, so I don't know if my response is even relevant. I wasn't given the option of keeping my nipples and haven't done anything about it yet. I'd like to get tattoos of something, but don't have the money for it. Anyway, I'm glad you have a plan Ulightup, and thanks for the info JMW. I have 2 chemo treatments left before I start radiation. My mom was recently diagnosed with Follicular Lymphoma and starts chemo next week. That hit me harder than finding out I had it again. Good luck to all of you. :)

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