All about Xeloda

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  • sueper13
    sueper13 Member Posts: 1,224
    edited December 2011

    Yes, Judie, YAY for stable disease!!!!!

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2011

    Yea, Judie, glad it is working.....stable I love that!!

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  • K-Lo
    K-Lo Member Posts: 2,743
    edited December 2011

    Whhhoooooops I just caught Judie and stable and now I'm smiling! Go Judie and go X! Worth all the crap, huh, JJ? Congrats

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  • justjudie
    justjudie Member Posts: 3,397
    edited December 2011

    thank you sue and lori.





    Judie

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  • LivingIt
    LivingIt Member Posts: 710
    edited December 2011

    Also caught your good news Judie!!! Wheeee. Im very glad you are Stable Mable these days. Very sweet. You certainly earned it!

    After X: The Side Effects at 6 weeks off X

    I still have the crazy dry skin, as I mentioined,and this goes for hands and feet too. Still going wild with aquaphor (my favorite). I don't have painful feet like I used to, but they are still sensitive and I cant stay up on them as long as I'd like to. Otherwise its all post rads and Gemzar SE as far as I can tell.

    Not too bad all things considered.

    Miss you Divalicious gals, but I do keep up!

    Zoh 

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  • apple
    apple Member Posts: 7,799
    edited December 2011

    Debbie.. the best thing for nausea for me is to eat totally bland foods and avoid fats and oils at all costs.. that's what gets to me.

    and my xeloda shoes are making me feel wonderful. Having super warm feet all the time, embraced in the fluffiness of sheep's wool is heaven.  (used on ebay).

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  • justjudie
    justjudie Member Posts: 3,397
    edited December 2011

    thanks Zoh. Was also delighted to see you are stable too! Very good news! yes, please do stick around with us, we would miss you too much.



    Judie

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2011

    Have to get some more Udderly Smooth....since back on X they are starting to get red.....

    Zoh  love your posts!!

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited December 2011

    so the nausea I have been having is due to X?  Is it also responsible for the anemia?  Knock wood my feet and hands are ok.  I use the Udderly sMOOth religiously.

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  • apple
    apple Member Posts: 7,799
    edited December 2011

    i think so dreamwriter.. nausea and low red blood cells.  (no tumors tho)

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  • Reneepals
    Reneepals Member Posts: 2,196
    edited December 2011

    Ladies I haven't been on Xeloda for 3 months, but I had to let you know about a fantastic find (you might have heard of them all ready)

    Aloe socks! Gloves too. You can pick them up at Kohl's. They are friggin fantastic! Your feet feel like a baby's butt.  Luxurious & oh so soothing. Try it you'll like it. hehehehehehe

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2011

    yep Dream it is, I have it most times, not as much as when I was on 14/7....now 7/7..

    Thanks Reneepals!!

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  • singletona80
    singletona80 Member Posts: 224
    edited December 2011

    Hey Ladies, hopefully everyone is doing well.  Well tomorrow I start cycle 2 of Xeloda and Taxotere. Going to take Ativan so I can get a good nights sleep tomorrow, cuz Im alway antsy when its my chemo day.

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  • sincitydealer
    sincitydealer Member Posts: 2,712
    edited December 2011

    Judie, that's wonderful news!  I'm so glad it's working for you!  Keep up the good work!Laughing

    Peggy

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  • singletona80
    singletona80 Member Posts: 224
    edited December 2011

    Imma try to stop by Kohl's this week and check these ALoe socks out . . . .Thanks for the sharing your great find !!!

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  • Chris62
    Chris62 Member Posts: 22
    edited December 2011

    Just dx with reoccurence nov 15. Started xeloda 3 days ago.  Is there anyone here who has been using this treatment that has had good results.  It seems most of what I'm reading was progression using this treatment.  It seems if I wait until there is progression instead of using something that stops the progression before it progresses I will be much better off.

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  • Lynn1
    Lynn1 Member Posts: 2,141
    edited December 2011

    Hi Divas!! 

    Judi:  Excellent news!!!  So happy for you!

    Renee: As much as I'm at Kohl's, you'd think I would have found these myself already! Thanks for the tip!

    Chris62:  I have been successful so far on Xeloda.  Just had scans last week and all is still stable.  It got me stable pretty quick too (9 weeks).  Been on it about 5 months now.  Hope it continues!

    I'm having a iffy tummy day!  Didn't even make it to work!  I tried to go, made it about a mile and had to come back home.  Yuck!!  I guess there are some negatives to a 2-week break after all.....I assume it's just my body adjusting back to the X.  I'm going to have to break down and take something (usually don't since it tends to steer me in the total opposite direction which is just as bad), but I have a funeral to attend in about an hour so will do what I must.

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  • apple
    apple Member Posts: 7,799
    edited December 2011

    Chris62  many of us have had great results with Xeloda (and after 'failing' other drugs).  I am very grateful it is working.. My nodes and such immediately shrunk.. just days after starting Xeloda.  it is a bit tough.

    Hang in there and best of luck to you


    I'll definitely check out the socks and gloves Renee.  Having one's hands and feet feel good is such a nice thing.  Pain is relatively exhausting for me at least.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2011

    Going to Kohls tomorrow to check out the socks before hands and feet start again.  Wish my nodes went down, they do didn't...

    Good luck single!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited December 2011

    Hi Ladies, Just stopping in to say Hi...K_Lo found me on the pet thread hanging out with the dogs.  I read and think about you all, but since I am no longer on Xeloda have not had anything to contribute.  I am still not on any treatment, but have been getting some killer cramps and my fingers woke me up the other night burning and when I turned on the light to look at my hands they were bright red.....very strange.  My onco wants to start weekly adriamycin, but I am hesitant to do that since the onco at MDA told me that after so many failed chemos is it rather doubtful that this one will work either so I am in the process of getting my info ready for John Hopkins where they have a special liver unit.....figure it is worth a shot and if they tell me I don't qualify, I can then do the red devil. 

    I am sorry some of you are having a rough time with hands and feet.   Just remember, most likely the SEs mean it is working and if it is, it is worth it.

    PS  I found those Aloe gloves at TJMax and am wearing them to bed even though I no longer do Xeloda because they really do make your hands soft. 

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  • china
    china Member Posts: 1,567
    edited December 2011

    JustJudie, congratulations on your scan results. So glad X worked for you. Doing a cyber happy dance for you. What a great christmas treat!!! Dawn. PS hope it was okay to post here even though I am not a diva x lady. Dawn.

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  • K-Lo
    K-Lo Member Posts: 2,743
    edited December 2011

    Yay Marybe. Please check in when you get can, we're used to hearing your take on things. Crossing fingers for your health.

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  • justjudie
    justjudie Member Posts: 3,397
    edited December 2011

    Thank you Dawn! I am happy for your good news too!



    Judie

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  • apple
    apple Member Posts: 7,799
    edited December 2011

    hay Marybe .. do check in more often and quit hanging around the dogs.  LOL

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2011

    went to Kohl's and bought the socks, they are on sale for 9.00 they are 12.00.....love them and they only had 2 pair left.....

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  • MaryGLA
    MaryGLA Member Posts: 330
    edited December 2011

    Hi Everyone. Wanted to check in because I read your posts for survival tips, but I never post myself. I am a few days into my second cycle of 14 days on/7 days off. I take zofran with breakfast and dinner and then take the X after I have eaten. No nausea so far, but my feet are very red and sore. They seem to hurt equally whether I wear sensible shoes or my more stylish shoes, so I am rocking the stylish shoes! I will check out those aloe socks from Kohls.



    To Chris: I will not do scans until January, but I know the X is working, because my cancer symptoms went away after one week on X (shortness of breath and abdominal pain). I progressed on abraxane and Avastin, so I am thrilled to be feeling better and am back at work full time. Good luck. I hope it works for you!

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  • Tiger_Blood
    Tiger_Blood Member Posts: 270
    edited December 2011

    Hi Guys, 

    Getting ready to gear up for my 2nd cycle. Went in to the onc yesterday for a blood draw for a different tumor marker test and I had a fever. So, they ran a CBC and my WBC was 2.5. The doc says that this is the week that it should rebound. Is that true? He says that if it does not come down we may decrease the dosage. Does everyone have to adjust dosage in the beginning?  

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  • Lynn1
    Lynn1 Member Posts: 2,141
    edited December 2011

    Hi Tiger!  I think it is possible that your counts will rebound on your week off.  Ironically, I've never had any issues with counts on X - even in the beginning when my dose was higher.

    I don't know if everyone has to adjust, but it seems like most do.  From what I've read, this chemo is VERY dose-sensitive so they have to play around a bit to get you on just the right dose.  For example, for me, even one less 150mg pill twice a day made a big difference in my side effects. I think that's amazing really...that one tiny little pill can make or break you.  :-\

    Best of luck to you!!

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  • K-Lo
    K-Lo Member Posts: 2,743
    edited December 2011

    More good reasons to be on xeloda. Its the only chemo I can take that crosses blood brain barrier and can continue to take during rads. I see rads onc Monday re brain lesions which I believe we caught early because I was assertive. Yesterday's CT scans show mixed again in chest, which is better than guessed. Some of the existing things got smaller, some bigger, no new problems. Abdomen and pelvis are clean! Except for noting bone irregularities, absolutely nothing on abd and pelvis. So early bones, caught, on TX. Eye lesion to be watched makes me nervous. Vague dx of cough, narrowing to possible lymphatic obstruction due to micromets. But what we KNOW,we can address. Lungs half responding to X. I feel lucky as hell.

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  • justjudie
    justjudie Member Posts: 3,397
    edited December 2011

    K-Lo:  Bless you, Sister,  that you can feel lucky considering all that you have been through!  I am happy for the scans that show stable.  That is always a good thing. I wish you the best. 

    Judie 

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