Is There A September 2011 Chemo Group?

Kimberly- You always crack me up! One of these days I may just crack and forget the passive part and go straight to aggressive! :-) 

Mags- Hoping the rest of your day is running smoother. So aggravating!

Belle- Good luck with the doctor tomorrow. Hope you get all your questions answered and feel secure about the treatment plan.

RJ- Hope you get over the cold soon. My whole house has had it for the past week and a half, and I'm desperately trying to avoid catching it before my surgery Friday. 

Soooo.....got kicked out of hospital.....waited forever...they said someone was coming to talk to me and they never did no we went to adminstration and talked with them...3 ladies came out and 1 started saying that the hosp policy changed and they no longer do chemo inpatient,  then she says that the insurance is not saying that I HAVE to get it done there and that so the asministrators said that I would have to take it up with the insurance co to find out what is really covered??? So we asked is this hospital or insurance issue and they said both.  Left crying and aggrevated and called insuance agent who is finding out hopefully something and called MO and she said come tomorrow to office and they will do there...gotta go prepared though to pay...thank God for Credit cards!!  Agent is going to try to get tomorrow's visit reimbursed.  Hospital told doc that as of yet they have not been paid for my 5 treatments and the claims have been denied and that is why they would not do it....knew it had to do with the money...maybe I would be better off on government assistance than having insurance!  Such a freaking joke!!!

Maggie

Maggie, Unreal, just unreal. 

So today I decided that I was going to do my best to finish my Christmas shopping. I have been having reoccurring dreams that I wake up Christmas morning to two excited little kids and I have not put any presents under the tree. So off I went to Walmart and I made a good dent in the rest of my shopping. Hopefully the dreams with subside now.

I am once again feeling pretty good. I have said this before but the FEC-D cycle of three weeks is heaven sent. I really can feel mostly normal for the 2 weeks in between the bad SE weeks. I find myself overdoing it a little instead of getting the proper rest but can only imagine what you ladies on the weekly and bi-weekly schedules are going through.

So the Onc. offered to remove my Pick line at my last treatment. She said I could use my vains for the last 2. I have really been debating over this as for as much as it is a pain for showering and waiting for nursing to change bandages and such, it is also nice to not have to get poked with needles for blood and IV. However we own a hot-tub and I would love to soak when the bone pain is at its worse. Anyone not using a line? Any recommendations?

Maggie-The totally sucks. I am so sorry you had to go through all of that today. I hope it gets worked out quickly. 

Kimberly -  I believe that there are supplements (have not seen them myself but haven't looked either) but he seems rather adamant that you need to take the Tumeric in conjuction with pepper (it improves adsorption).  Capsules are poorly adsorbed by the digestive system.  I am not doing anything until both my chemo and radiation are done because I think antioxidants can affect radiation also.  The book is cxalled "Anti cancer - a new way of life" by David Servan-Schreiber.

Maggie - I can not believe that you are having to go through this insurance crap and that it is interfering with your treatment.  I really hope you do what Kelli suggested and file a complaint.

SPCMadi - I am glad you are feeling better! I still have my moments but I guess you are right it is a bit better than last week.  What is bothering me is the sore throat every morning I wake up at 5:00AM with a sore throat and then I can't fall back to sleep (and I do not want to get up in case I wake everyone up!).  I am going to bed at 9:00 tonight so hopefully I will get a good night sleep.

Take care everyone

CJRT: Been a while since I have been on but I wanted to wish you the best of luck tomorrow.  I hope your surgery goes as smoothly as possible and I hope that your recovery is speedy and easier than you think.  I'll be thinking about you!!  I'm sure you will be glad to get the cancer out of you and get the surgery behind you.  Big Hugs to you and your family!!! You will do great!

Thanks for the support Kate and Mags. I really appreciate it.  Had a bit of a rough day today after getting a call from the GS saying that I wasn't cleared by the hospital because of "changes" in my EKG since one conducted 2 months ago.  I don't know why they waited 2 days to notify the GS, but luckily my GP was able to review my last 3 EKG's and apparently feels that everything is fine and that there is nothing to worry about.  I just got the confirmation about 30 minutes ago that my surgery is going to proceed as scheduled.

Mags- I'm so sorry you went through the stress yesterday and have to deal with things now, but glad that you were able to have the treatment today and seem to have the ball rolling with getting the insurance company.

Lowrider- So sorry that you have had such a rough time. I am glad you were able to celebrate a happy occasion but can only imagine how difficult it must've been. Hoping you start feeling better soon and am so glad about the results of your scan. Positive thoughts being sent your way...

CJRT - Good wishes for a smooth surgery and recovery.  I know we will are all pulling for you.

Maggie -  I'm glad your infusion happened today without the drama.  Sounds like someone is working on straightening out the insurance mess so that is good news.  

 Lowrider -  Hang in there, you are definitely not alone in how you are feeling.  I think the last few weeks on this thread have proven that.

A bright note - I am on a two-week break between taxol and AC.  I am also finished with my twice daily study medication and all the anti-nausea meds that went with it.  For the first time in months,  I feel like the fog has cleared a bit in my brain and I recognize myself again.  This gives me hope that maybe I really will still be "normal" when this journey is over and I will get back to being me again. I'm trying to use these 2 weeks to get all my Christmas stuff done and to rebuild my strength before the next round of chemo starts.  And I'm also trying not to think about it too much...

 Hugs to everyone!

hi everyone,

saw mo today,labs are good wbc is high 26.9 normal is 3.4 to 9.4 guess the neulesta shot worked lol. got a script for percocet 5-325 mg 1 or 2 every 6 hrs hope it works.

cjrt, positive thoughts and prayers for tomorrow headed your way.

maggie, so glad they are getting things straightened out.

lowrider, you are definately not alone, hugs to you.

pinkshirt, enjoy your break.

rj, sorry to hear about your youngest father, he'll probably feel a lot better now that the blockage is gone.

hugs to everyone!!

CJRT - Sending gentile hugs and best wishes for a speedy recovery!

Maggie- I'm so glad you got your treatment. I hope the insurance mess gets straightened out quickly.

Lowrider - We're in this together! Sening hugs. xxx 

Hi girls!! Been away for awhile and still need to catch up on posts..the last post I had was about my hives..which ended up putting me in the HOSPITAL for a week!  The quick story is that next day I developed a fever, called my oncologist, who otold me to go to the ER.  So, getting ready to go I passed out twice...which never happened to me before and was really scary.  Anyway, they admitted me and after 5 days, the team of doctors decided it was a crazy virus that I caught because my resistance was so low from chemo.  So, symptoms were crazy out of control hives all over my body, fever up to 105.6 (the highest), low blood pressure and really high WBC count...which confused everyone bc they didn't know what to make of it after considering that I had a Neulasta shot just 7 days before.  They treated me with mega steroids and antibiotics (before they decided it was a virus).  And they finally let me come home yesterday.

 So here's the thing.....I know that now I''m done with chemo, I'm 3 weeks past my last treatment and I made it all the way thru, but now I'm just so scared I'm gonna keep getting sick.  I used to be one of those people who never got sick, and now it seems like I'm afraid of everything...and like I will always be......that sick lady.  Please tell me this will go away and I''m just in some kind of Post traumatic stress from the whole thing.  

I just want us all to get our lives back.  Love to u all.

Jersey, Glad you are better.....and now I don't feel so bad about being paranoid when my counts tanked out before Thanksgiving.

Oh Jersey...so aweful for you...get better and I hope this never happens again.

Maggie

Karen - Tried the turmeric and pepper this morning mixed with a little sour cream and mayo, trying for a vegetable dip or perhaps a sauce for chicken sandwich.  Not bad.  Plan on replacing sour cream with something healthier like greek yogurt and maybe adding some other flavors (little onion, garlic, horseradish, or dill) and see how those work. If this makes me eat more fresh vegetables and chicken, I guess that's a bonus too. Actually I like vegetables, it's just that I've always loved them with salt, butter, and cheese, not so much just plain.  I am also going to try the oriental market a few blocks from my house and see if they carry fresh root. Thanks for the turmeric tip.  It seems promising, and even if it doesn't work on cancer, maybe it will still help my joints.