anyone starting chemo in Nov 2005
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I was so shocked to hear about the death of Dana Reeve. Cancer is such a brutal disease. I hope that she has peace now, and is joined with Chris once again.
She and Chris were beautiful people, and truly honered what in "sickness and health" means in a marriage.
Makes me think about my own life, and how blessed I feel to have a partner that has stood by me through all the hard times. -
Hi girls,
I am just trying to catch up with all the posts. I didn't have great PET Scan results today. The mass in the breast seems to have slightly increased and the lung nodes that were dormant in January are showing up on the CAT Scan, but not the PET Scan. So new course of treatment is Xeloda. I start tomorrow. It is oral, so no infusion. My hair will grow back I hear the fatigue is horrible (I know about that, I've been on Taxotere, LOL), the hand/foot syndrome is absolutely horrible. I am hoping it won't be too bad, but trying to prepare for the worst with the side effects.
MaryLou, I am so excited for you. I'll be thinking of you Thursday and will hear you ringing that bell all the way here in PA!!!
Kim -
Kim- so sorry to hear the test didn't come back as you had hoped. My prayers will be with you. I can understand about the hands and feet. I can't get much relief at all. I'm going to ask him about that tomorrow.
I only have 9 hours till my last treatment starts!!!!!! I just wonder how long it will take for all the side effects to go away. I'm thinking a month to six weeks maybe?????
Hope all of you all are doing well today.
ML -
Kim - sorry to hear about the PET scan results. Hang in there and know that there are prayers being said for you.
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Had the last treatment today!!!!!!! My Onc talked to me about the Nuropthy , he said it could be permanent , or take up to a year to go away.
He said I could wait and have treatment next week and see if it was better. Or bite the bullet and just take a chance ..... Well that was a no brain er for me, I wanted this part of the journey to be behind me forever.
I had a long talk with God when I got home , so I put all my troubles in his hands.
I was sleepy when I came home, so after a long prayer, crying, and the upgrade on the meds, ( He went from 300mg to 600mgs of Neurontin ) I slept like a baby for two hours.
Then I woke up every two hours with hot flashes , and to pee, LOL I have been drinking water like crazy.
I fixed a nice dinner for Michael when he gets home from work after I got up. I don't have a Neulasta shot this time. I'm glad. Maybe the leg pain will be less.
I don't think I can take it on top of the neropthy.....:( I had such a brutal time this past treatment. I really didn't want to go through another treatment.
But I know that I have to fight this, so I went on with the program and glad I did.
I have blood work on the 21st. Hope my blood count is okay by then.......:)
To all my sisters I wish the very best. And I want to think you from the bottom of my heart for all the support you have given me.
Love to you all
ML -
Mary, Congrats on hanging in there and finishing with chemo!! I hope your recovery from all these dang side effects goes smoothly. Neuropathy- what a drag. I hope it ends soon.
Take care friend and may you have many happy days ahead,
Margerie -
Mary Lou, that is amazing news! I am soooooo happy for you. I can't wait till I can join your "I'm DONE" club.
Kim-I will be praying for you each and every day. We are all here for you. Always.
My update-I had treatment today-EVERYTHING! My week of pain and miserey were well worth it because my blood counts were really good. Also, my oncologist said he feels NO Tumor, (he insisted, because I didn't want to believe him). He took me to his office, and mapped out the rest of my treatment plan and said he expects me done by the end of April. He will have me do an MRI to see if there is any tumor left, and I asked "what if there is?" He said exactly what I wanted to hear, "I am confident that there won't be." His nurses all say that he won't just say something like that. He lowered my carbo dose which worried me because I know that is the med. that is working so well, but he said it is ok, I will still respond well. YAY! I was never so excited as I was today! I already told the chemo nurses to expect food and gifts from me. The lady who cooked us Valentine's dinner was at the center with her stepdaughter (she has Hodgkin's) and she offered to cook them something. The nurses have no idea what they are in for! GOOD FOOD!!!
I am so glad to have a good day. I had a terrible bout with depression for the past two days. I cried uncontrollably. My poor hubby. Didn't know what to do with me. I think he was scared of how I was acting.
I was rather emotional. I burst into tears while putting dishes away in the lazy susan ( it's old and in crappy condition, so stuff falls off the shelves all the time). I cursed and started to cry. He just looked at me (nervously.) I feel bad for him when I get that way. I know this is tough on him, too. He doesn't need to see me do that.
Gotta get ready for bed. Love and prayers, Debbie
PS-Kaye? How are you doing? Seeing the world? Having a good time? Praying for you. -
Oh Mary Lou, I am so happy to see you are finished with the chemo. Good for you to have continued with it even though you were feeling like crap. I hope the Neurophy goes away for you fast.
Deb, glad you got the whole treatment. When is your MRI? I hope and pray for no tumor.
Thanks for the prayers everyone.
Kim -
Mary Lou - Congratulations on finishing chemo! I am so happy for you. Take care and enjoy the accomplishment!
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Mary Lou - Congrats on last treatment!! My last one is scheduled for next week but I have been in such discomfort from treatment #5 that I told everyone that I want to cancel it. But after hearing about your strength & fortitude, I too can be strong. Thanks for being such a great inspiration!
Deb - Glad to hear that you were able to get the full treatment. I pray for many more happy days for you & your family!!
LAT56 -
Mary Lou: Congratulations! I hope you are feeling strong today.
Debbie: I'm so happy to hear you got some upbeat news and now can focus on your plan. That really made my day!
Lat56: Sending encouragement for your treatment next week. I pray for you. It's so hard going in when you know exactly how bad you will feel afterwards. You have come so far. Just a little more, right?
I hope all my sisters have a peaceful weekend.
Anna -
Hi everyone, I wanted to say that a lower dose of chemo really makes a difference. I can hardly tell I've had it! Gheesh, if it were like this the entire time, I would have sailed through the whole thing!
Has anyone else gotten the Pink Ribbon exchange yet? I know recipient number one got it....
Love and prayers, Debbie -
No exchange yet, but really getting excited !!!!! Girls, thanks for all the good wishes.
I have felt really good , not much pain and the hands and feet are better with the stronger dose of meds.
My head has a thick coat of white fuzz. Michael said it looks like cotton. I'm glad it is white, I think it will color even....And it looks to be bone straight so far.
Can't wait for my new breast......I won't know what to do with out the girls making my bra cut into my shoulders.....I'm really happy about this part coming...
I hope I start to feel a little better about myself. I just want to blow dry my hair!!!!!! And wear make-up to look better, and not to draw on what is missing.
ML -
Mary Lou, I absolutely love your attitude.
(((hugs)))
Kim -
Mary Lou, You just cracked me up when you referred to your breasts as "the girls!!!!!" I really think we all need to meet on our one year anniversary of chemo because I think we would all have a blast.
I got a note that someone else got the exchange...it's working it's way around!
Feeling a little pukey, but I don't care...the end is near! Love and prayers, Debbie -
Deb- Glad you got a laugh out of that. I think I'm ready to move on to the next step of this journey. This week end has been very busy , so far I have been able to stay up.
I do stop and have a nap, but not in bed like I am after the Neulasta. Legs are hurting and feet are tingling. Along with my finger tips. It is hard to do normal stuff.
But I think it will go away , at least that's what I'm hoping. Someone said to take B6. They sent me a personal message. So I'm trying it.
ML -
Hi to All~ I haven't visited this site in so long, I can't seem to get to the last post?
Anyway, responding to Debbie's post. I do get them online and I responded, then realized that it said "DO NOT REPLY TO THIS MESSAGE" whoops, I am not sure where my post went, but it must be floating out there in cyberspace somewhere?
I am doing well and so glad to hear that most of you are done with treatments and doing well also.
I have a blog that you can follow up on me with my adventures. I haven't left yet traveling, but will be shortly.
http://spirit3kd.blogspot.com/
Kaye -
Good to hear from you Kaye. I am happy to hear you are doing well.
Safe traveling. Looking forward to reading about your adventures.
Kiim -
Kaye!
I'm so glad you checked in before you left on your travels! Glad you're feeling well! Will enjoy your blog!
Chin up!
Lana -
Kaye,
Great blog. Thanks for posting. I look forward to visiting the sites with you (via cyberspace). Enjoy your travels and God be with you always.
Odalys -
Hi Kaye! Good to hear from you. I read your blog-it's really good. I hope that your travels are absolutely enjoyable, and as Odalys said, God be with you always.
Hope everyone else is in good spirits. I am feeling ok...a little pukey, a little tired, but ok!
Love and prayers, Debbie -
Hey Debbie - Hope the pukey feeling goes away soon. My stomach is starting to settle down. Its a good thing because I'm ready for something else besides saltine crackers and ginger ale. Taste buds are still gone but I'm hopefull they will return soon.
Hugs -
I went in for Taxol/Herceptin #8 today and then saw the oncologist for my monthly check-up. All in order, it seems, but I am beginning to feel some tingling in the last two fingers on each hand. Getting ready for the Decadron high to set in any minute and have the Ativan ready to go.
I don't know why, but all day I have been thinking of you, Debbie. There's something about your kindness and the very endearing tone in all of your posts. I love all my sisters on this board. I wish all of you well. I wish we could all sit together and just laugh and support each other. That would be a fine party. Debbie you create links. You are doing it in a tangible way with the Pink Ribbon exchange, but you do it also with your words. I have felt this about many of my sisters on this board in the past, but I have decided to start saying it. Thank you for all the good you bring into my day, Debbie.
Good luck to all who are going in for treatment this week. We are forging ahead!
Anna -
Anna, you just made me cry!!! I love you all so much, and it was so thoughtful for you to say what you did. Thank you from the bottom of my heart. I am humbled!
Also, do you take Neurontin for the numbness yet? It should help!
Has anyone ever received a gift from someone whose name you don't know?!? How on earth do you address a thank you card? Our neighbor just gave me a beautiful hand-knit scarf and I don't know her name!
Well, I now have a song in my heart-Thanks again Anna, you really made my WEEK!
Love and prayers, Debbie -
Hi ladies.
Had #9 of 12 taxol + herceptin today. I have had good numbers for 2 weeks in a row- no neupogen again- hooray! Glad to only have 3 more weeks!
They had to hold my rads for a few days as my skin was FRIED. But no big deal, they say, because I am doing chemo at this same time. This is why I got so burned, the chemo. 8 more rads to go.
Caught my kids' cold. But at least all the snot is keeping my nose moist. Go to OB to discuss ooph tomorrow.
Hope you are all having a good week.
Margerie -
Margerie, I hope you are feeling better soon and the cold goes away fast. Glad to see that your numbers are good for 2 weeks in a row now. Yeah!!
Hugs,
Kim -
Kim - I've been thinking about you. How are you doing after the surgery and how are you feeling on Xeloda?
Hugs... -
Margerie - great to hear about your numbers. Hope they continue to climb.
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Mary Lou - I also take B6 every day and have not had any more hand/foot syndrome episodes and/or leg cramps since I started taking it. Hope it helps you too.
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Odalys, doing much better. Even back driving now. Just locally.
I have been on the Xeloda 1 week now. So far so good, but I think I may be getting diahhrea. Don't mean to be gross, but it is soft, not diahhrea. I wanted to ask you and MaryLou about the hand/foot syndrome. What chemo drug gave it to you? How bad was it? I am sorry I don't remember what you all said about it, just that I remember you saying it was painful. I asked my onc. about B6 and he said it is not necessary. He really isn't one for supplements. Do you think I should take it. I bought the Elta cream and use it at night.
Thanks for asking.
hugs,
Kim
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