stage III choosing alternative

fufu
fufu Member Posts: 43

A close relative of mine who i adore has recently been diagnosed with invasive ductal carcinoma, stage III, grade III. She is young and has a young child and has decided to refuse all medical treatments. She has chosen to live a holistic lifestyle instead and believes that this will cure her cancer. I am worried, confused, and scared. I do understand her fear of chemotherapy but i feel that the holistic approach is even more risky. Has anyone been cured of this type of cancer by living a holistic lifestyle???

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Comments

  • Racy
    Racy Member Posts: 2,651
    edited November 2011

    Has your relative had surgery? Is it possible that if she knew chemo was manageable she might change her mind? Has she done a lot of research with authoritative sources? If you can identify what her specific concerns are about conventional treatment it may be possible to educate her that her assumptions are wrong.



    Perhaps you could tell her about this site and the wealth of information and support to be found here.



    Personally, I do think her approach is risky.

  • MaxineO
    MaxineO Member Posts: 555
    edited November 2011

    I'm sorry to hear about your friend. I don't think it's a good idea to think your body can heal itself. Many of us lived incredibly healthy lifestyles and still got bc.  Cancer is insidious. Living healthy may help it not come back, after you've had treatments, but it's not going to make it go away.  Best of luck to you. Perhaps after the initial shock wears off she will realize that she needs to be more aggressive in her approach to healing.

  • KSteve
    KSteve Member Posts: 486
    edited November 2011

    I think the fear of chemo and other treatments may be driving her decision.  Maybe if she talked to some who have been through it and can realize that it is very managable, she might reconsider.  I personally think with stage III, grade III, she may be sealing her fate (and not in a good way) if she chooses to do nothing.  I would think she would want the most time with her child as possible.  I continued working through chemo, bilateral mastectomy, radiation, and exchange surgery (just a couple weeks off after BMX and a week off after exchange surgery).  It is totally doable, even with a small child.  That's not to say it wasn't a challenge sometimes with fatigue, but I will tell you that the whole process is very scary in the beginning.  Maybe she just needs some more time to absorb it all.  I would be glad to share my experiences with her if she wants to talk or email.  Good luck!

    Kathy

  • PlantLover
    PlantLover Member Posts: 622
    edited November 2011

    I would also be happy to talk with your relative. I had chemo before surgery and after surgery.  While it wasn't easy, it is doable.  Yes, I worked full time through all of my treatments.  Personally, let me say that again, PERSONALLY I would not take a chance on Stage III BC being controlled without some "conventional" treatment.  Do you happen to know if her tumor is HER2+?  If it is, that would make me even more concerned if she does not seek more treatment.

    I know it must be breaking your heart! It may be very difficult for you to accept her final decision if she chooses the holistic path,  but if you must then just hold her hand and love her ... it's really all you can do.

  • jennyboog
    jennyboog Member Posts: 1,322
    edited November 2011

    I think there is a Holistic forum, your question might be answered better there, no chemo for anyone.  I did chemo and I have no regrets, I saw my tumor shrink and my IBC go away so, I knew chemo was working.  It's a personal decision & I hope she finds what works for her, it's scary for all at the beginning...holistic or chemo.  Surgery is a must for her though.

  • MiniMacsMom
    MiniMacsMom Member Posts: 595
    edited November 2011

    Fufu:  I am in a similar situation to your relative.  I found my lump after nursing, now stage 3 high grade aggressive. I am willing to "go through this with her"  I don't have a young women's support group locally and I am a stay at home mom to my 16mo old son.  I start my chemo on Monday after getting my second opinion at MD Anderson in TX.  Basically I have been told that chemo sucks but that its managable.  Do I want to do chemo, NO but I will do anything to spend every second I can with my son :)  My tumor was huge and in my lymphs also, so I understand her hesitation.  It seems like there is no point, that everything is already over, but its not true.  The treatments work. and a good center will make sure that she gets the best treatment with the lowest side effects.  Also there are tons of meds I have been given to manage the treatments. 

    That being said, I have been told it will be a sucky 6 months, but I will trade that for a wonderful 20+ more years.  Good luck, it sounds like she is lucky to have such a loving wonderful friend who cares so much about her.  Keep caring, she will need the support no matter what decision she makes in the end!

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Thank you to all of you that have actually taken the time to share your stories, the courage and compassion you all possess is truly heartfelt. My relative is my first cousin who is very important in my life. She has not had any surgery as she refuses. As she was awaiting results a friend of hers recommended a holistic health center and she went there for three weeks where they taught her how to live this holistic lifestyle and the tumor shall go away. I for one don't buy it. I believe her decision is based on fear as her mom and my mom, they were sisters passed of chemotherapy four years ago, one three days after the other. But, she must open her eyes and see the survivors, my husband being one of them, sixteen years in remission, he actually is considered cured. Back then the chemo was even worse as the anti nausea meds were not as advanced.  Anyway after attending this holistic health center she truly believes she will be cured with that alone and will hear nothing that has to do with conventinal medecine from anyone. I did push today for her to at least have surgery, but do not think that i was succesful in making her rethink her decision. I am sooooooooooooo scared.

  • KSteve
    KSteve Member Posts: 486
    edited November 2011

    fufu: I understand why you're so scared.  I would be too.  The thing is, she gave the holistic health center a chance to present their case to her about how she can be cured.  I would think she would give her oncologist a chance to do the same.  If she doesn't like her original oncologist, get a 2nd opinion.  I understand how scared she must be about chemo with what happened to you moms . . . that was tragic.  But their circumstances were most likely not identical to hers.  All you can do is be there for her.  I just hope she doesn't wait until it's too late.  Will she do scans again in a little while to make sure the holistic "stuff" is working?

  • Racy
    Racy Member Posts: 2,651
    edited November 2011

    So sorry to hear about your mom and aunt.

  • She
    She Member Posts: 503
    edited November 2011

    Fufu, I don't blame you for being scared.  I've been on this journey 15.5 years and am not aware of one single person surviving Stage 3 Grade 3 BC with a holistic lifestyle alone.  No doubt she is terrified herself, but the reality is she has BC and could be risking her very life without at least surgery.  You obviously care deeply for her and have already done your best to convince her; so I suggest it is time for some really tough love.  Yes, you are risking your relationship but what is more important?  I'd say staying alive.

    I'm not against a holistic lifestyle or alternative meds.  In fact I had a Naturopath/MD when I was going through chemo.  To me a very important factor is there is no clinical proof that alternative/holistic is a viable alternative.  Until there is, I feel one puts oneself in great jeopardy by not at least combining alternative, holistic and medical intervention.

    All the best, She

  • fufu
    fufu Member Posts: 43
    edited November 2011

    KSteve of course she will not be doing scans as she has been taught that they are "invasive".

    She tells me that her tumor is shrinking and this is by her feeling it. I agree with you that she should be giving the oncologist and all other doctors involved in her case a chance but...................... she refuses. I will be there for her no matter what but i do not support or agree with her decision.

    Thanks

  • angelsister
    angelsister Member Posts: 474
    edited November 2011

    Fufu i'm so sorry that on top of this diagnosis for your relative that you have to think about her refusing treatment that has been shown to extend life and reduce symptoms. You do have to be there for her but if only you could get her to talk to someone who has been where she is, at a similar age and with a young family. My very kindest thoughts to you and wishes for your relative x

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Fufu, do you know specifically which alternative treatments she is receiving?   

  • lago
    lago Member Posts: 17,186
    edited November 2011

    Fufu I was scared of chemo too. When we think of chemo we think of what we see on TV… usually the character only has a week to live. Chemo isn't fun but no way near as bad as I thought. She should visit some of the treatment/chemo centers. Some are better than others. She might be surprised. 

    As far as holistic. The theory is to let the body heal itself. While I do believe out bodies do this most of the time, if you get cancer you body isn't doing it. So many of us here have had perfectly healthy life styles and "did nothing wrong" but still got cancer. I personally favor complimentary not alternative. This is because I feel there are many things that have to be in place in order to get cancer. You can't solved the problem with just one method in most cases especially the later the stage cases. While a stage 0 or I might be able to just do surgery and holistic and have very successful outcomes I have seen those successes go way down as the stage goes up.

    I would try to get you relative to talk with women that have gone through this. I would also talk in terms of complimentary. Explain that she can build her body back up after chemo with complimentary.

    BTW I have to add that I did the bilateral mastectomy, 10 nodes one side, 4 nodes other side, 6 rounds of chemo, a full year of Herceptin and now 5 years of Anstrozole (now that I'm in perminent chemo-pause) and I feel great. Almost done with my reconstruction too. Just have tattoos.

  • diana50
    diana50 Member Posts: 2,134
    edited November 2011

    having cancer is a personal nighmare.  however, it does affect all the people who love you.  my experience of this is that each patient has to make their own decisions....find their own way.  beliefs can make you choose one treatment over another.  i also believe, that people can change their minds about what they decide to so.  the initial diagnosis can totally rock your world and can take a person into various decisions....some of which may change over a course of a few months.

     i really believe, unless you have been dx with cancer; it is hard to imagine what you would do in the reality of cancer.

     for me, i really believe in current medical treatments; surgery is the most important part as it reduces the tumor burden on the body.  chemo, rads and hormone treatment clean up the rest of the bad cells.  stage III patients do get aggressive treatment becaiuse of the stage of the disease.  i am 9 years out and doing well.  i really believe in the treatment i got and why i am doing so well.

     the issue is that it is an individual decision.  people have to do what they are comfortable with. 

    i am sorry this is so hard.  maybe the best you can do is just be there. sometimes, over a

    period of time...being there can make a difference. 

    hang in there

    diana

  • calamtykel
    calamtykel Member Posts: 1,187
    edited November 2011

    I'm so sorry to hear about this - I too, am very into holistic healing, however, being the mom of four kids, there was no way I was not going to throw chemo at this monster.  That wasn't even a question.  I was told many things that were so scary to me - a woman in my church had just been through chemo and was hospitalized every time she had a treatment for rehydration -she was SO sick -- so so sick.  She was allergic to the chemo though!  She had every horror story in the book for me....and I was so scared.

    But I did well on chemo.  Yeah, the first one was hard; but that was my own fault.  I didn't take the anti-nausea medicine so I had a rough night that first night.  I never threw up after that.  I sort of got into a "rhythm" where I'd know what to expect each day.  I too, envisioned myself in bed for months at a time, but that just wasn't how it was.  I had dose dense, which is every two weeks and really the only tough time was that first week, then the second week I would feel totally normal until it was time for a treatment again.  

    Really, there are so many proactive things she can do in order to protect her body during chemo - eating right, juicing, exercise, etc. 

     I did turn down tamoxifen; which is  a five year drug, after I was on it for three weeks.  The side effects for me were unbearable and landed me in the emergency room.  But skip chemo?  No way....not worth it.  Chemo doesn't always work - in fact many times it totally fails, but it's antoher weapon to throw at this awful disease.

    To just bury your head and think that changing your eating habits or something at stage 3 is suicide IMO.  I had a cousin who did that and she was gone within three years at the age of 32.... :(  That is it was never a question for me.  

    I hope perhaps your relative may find an integrative oncologlist, who is able to work with her at both levels - holsitic and medical. 

  • anonymice
    anonymice Member Posts: 532
    edited November 2011

    This is a horrible thing to have to type, but then your friend will almost certainly be stage IV fairly quickly, probably really quickly as her grade III tumor is, by definition, aggressive. Maybe when she sees that she is dying she will change her mind, and maybe it won't be too late.

    Stage IV is not a death sentence and some folks have been living with it for years, but at that point, besides your life seriously being threatened (or taken), you often have to have chemo *forever*.   Many of us will be there anywhere but why sign up for it?  Why guarantee for yourself that you're either going to die in pain in a pretty nasty way (untreated rampant cancer) or have to be on chemo for the rest of your life?

    It makes zero sense to "heal" cancer solely with things that are good for the cancer too, like good nutrition.  Cancer is not horrible invading monster from the stars - cancer is part of the human condition that happens when cells go wonky, and they are human cells.  They (cancer cells) will very much benefit from excessive nutrients, and the cancer will likely suck them up far faster than your friend's body because that's what cancer does.

    That's why it's hard to treat.  All our older treatments are "kill the cancer before the patient".  We now have some treatments (AIs, Herceptin) that target the disease better but we're just on the cusp of that now.  I think we can expect huge jumps in cancer treatment in the next ten yrs, but if your friend doesn't treat it with our best knowledge now, she is extraordinarily unlikely to be around in 10 yrs to experience those directed treatments.

    I hope you can talk her in being brave and giving chemo a shot.  Give being *cured* a shot.  It does happen, it happened to me with the most aggressive type, at stage 3c.  I don't know how long it will last, but I know I'm alive and well today and have been given at least another healthy and happy year with my children.

  • PlantLover
    PlantLover Member Posts: 622
    edited November 2011

    fufu ... show her this thread!

  • scuttlers
    scuttlers Member Posts: 1,658
    edited November 2011

    We buried my BIL last week. My DH and I basically begged him in July to accept a second opinion and get effective treatment. His DIL (a doctor) spoke with him in September, and came to us in tears to see if we could speak with him again. His cancer type has a 2% mortality, 98% survive with proper treatment. Two weeks before he died, he changed his mind and was then ready to do whatever was necessary. It was too late.



    I had to let go of my anger that he wouldn't fight and just love him and be there to hold his hand through those horrid last two weeks. It was hard, but it was HIS decision to make, not mine - not his grand children, not his brothers, not his dear wife, or all the others that loved him so.



    It is a persons right to choose. This choice should not be based on fear. Knowledge is very important. I do not regret the choices I made. It was not an easy road, and I'm aware it will have some rough times ahead. Another day, another week, another year to see my grand children to laugh with my husband - it is worth it all.



    You may have to just be there with and for her. Love her though, whatever her decision is - it is hers to make. Don't make every last moment and memory an argument. It was hard to do for my BIL, but we did have some good memories as a family in the last few months that will be cherished.

  • Denise2730
    Denise2730 Member Posts: 648
    edited November 2011

    FuFu - I understand the fear your friend is going through. I personally am more afraid of chemo than cancer which sounds crazy. 

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Thank you Racy, my heart still aches every minute of every day.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Thanks She,

    I am not against complimenatary myself but alternative scares me. I have encouraged her to consider surgery but the answer is NO.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Thank you cynister, believe me i am trying to get her to talk and listen, i will keep trying i will be damned if i sit back and watch without at least trying.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Hello princess123,

    Yes i do and i wouldn't exactly call them treatments. My cousin went to the hippocrates health institute in west plam beach, florida where they taught her to live a holistic lifestyle. She is now a raw vegan, cut out all food groups and eats only some vegetable and only raw.She consumes a lot of wheatgrass and juices a lot, has weekly enemas and sometimes colonics, and takes lots and lots of supplements. Thank you

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Hi Lago,

    I know that chemo is not fun, believe me i have seen what it does several times in my life with several loved one's. You did it and you are here to talk about it which is amazing. God bless.

  • lago
    lago Member Posts: 17,186
    edited November 2011

    No it isn't amazing I'm here to talk about it. Chemo works more often than it fails.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Thanks diana, I will be there for her no matter what. This is definately not about me it's about her it's about giving herseld a fighting chance that is all i want. As for you God bless! nine years is amazing.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Calamtykel you did the best thing for your family. And i do agree with you at her stage it can be "suicide". Thank you for taking the time.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Pamonymous, i agree with what you are saying , and i am afraid that those cells are already invading other parts of her body, but i am trying so desperately to make her understand she won't listen but i will continue to try. I wish you very many years with your children.

  • fufu
    fufu Member Posts: 43
    edited November 2011

    Hello Plantlover, If only it were that easy. Can't force someone who has officialy been brainwashed, but will keep trying and i will definately be telling her about this thread perhaps i can get her to read it. And yes! i said brainwashed that is what i believe.

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