Sort of OT: Frozen shoulder, anyone?
Comments
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Thanks Coolbreeze and Pitanga for the responses. I'm scheduled to see the Ortho Doc tomorrow for a possible cortisone shot so that I can tolerate physical therapy. It's so frustrating because I was just beginning to feel a lot better after Chemo/Rads and now this! I knew the treatment would be rough but I didn't count on some of these painful, long-term secondary problems (I also have neuropathy in my hands). I'm relieved to hear that the frozen shoulder will eventually get a lot better because it really hurts and I can't sleep...
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Dragonfly1... We feel your pain!!! I am 6 months post surgery. I still am doing my strengthening exercises for both shoulders. I was a little lax for a few weeks and BAM, I had pain during the night. That was my wake up call that I will have to do my exercises for a very long time. I agree that in order to do PT you might need more than just a cortisone shot. Nothing short of surgery helped me. In retrospect I wish I could have tolerated pain meds so I could do the PT and avoided surgery. Good luck!!
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Hi ladies! I am in my 8th month of PT for frozen shoulder. I have made good progress with range of motion in most directions, but one. I still have alot of pain and can't do some things. I can reach behind my back, but it hurts. I just keep plugging along with therapy. My insurance for PT ran out in Aug., but my therapist is only charging me $15 to come in once a week and get stretched. My ortho still doesn't think a manual manipulation is necessary. This is on my non-reconstructed side. So both sides have issues. I just want to feel normal again!!
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Dragonfly, I also had a cortisone shot but even then I had to take additional pain meds to make it through the PT sessions. Like you I could not sleep from the pain. The shot will help a lot and the pain meds too. Hang in there!
TifJ-- my frozen should was also on the non-surgery side. Years ago when I had the lymph node dissection the doctors were insistent that I had to start moving my arm soon after surgery and doing the walk-up-the-wall exercises. All they said was that I might not get my range of motion back unless I did. It was not till I got the frozen shoulder on the other side, years later, that I reallized the real importance of those walk-up-the-wall exercises. I think this is what gives the "Reach for Recovery" program its name.
Hi Voracious! So sorry to hear you suffered a minor relapse. I stopped doing PT a year or so ago but I am doing Pilates. The teacher knows my shoulder history and always gives me lots of shoulder stretching exercises. Insurance does not cover it but I feel I have to invest, given the possible consequences of not doing it. Reaching behind me is still the hardest part and kind of painful, the other movements are nearly normal. Two years into this game!
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Pitanga... My nephew was visiting for the week and he is a physical therapist. He went over my exercises with me. He told me that I should rotate my exercises every six weeks. Have you ever heard of that? Anyway, today I bought 3 lb walking weights (they have Velcro). After walking with them, my Shoulders and upper arms feel so much better from the strengthening and stretching. Having now had surgery on both shoulders, I have resigned myself to doing my exercises indefinitely. Thankfully, I had the strength to hold my nephew's three month old son with little difficulty.
I was telling Kira on the lymphadema thread that women really need to be informed better about shoulder issues following surgery. She agreed.
I wish you and the other sisters well.... And all of us a good night's sleep! -
Voracious, no I didnt know that about rotating the exercises. Though I have noticed that my Pilates teacher tends not to repeat the same exercises. I will ask her about it, she is also a physical therapist.
Arm weights, what a good idea! I will look into it, maybe leg weights as well. I need all the exercise I can get.
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I would go to a PT who specializes in frozen shoulder and axillary web. I have axillary web and have the same symptoms--pain radiates from my shoulder down to fingertips. The PT does stretching to help you regain mobility, and to reduce scar tissue. Go to this website to find a qualified PT near you: www.lymphnet.org.
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Victoria. You're so sweet! Been there and done that!!
I had axillary web too! Hope you're feeling better soon!!! Massaging and warm showers really helped mine!!!
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I also have to tell you, that I did PT 4x week for 7 weeks, made great strides, and then took 1 1/2 weeks off for second opinions, etc. All the progress that I made went down the tubes--pain and immobility returned! Now I'm wondering if this will be a lifelong thing if I don't keep up with the exercises-
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VictoriaB...From my experience, I kind of think the answer to your question is, "Yes."
However, the good news is, as long as we do our exercises, we CAN keep the pain at bay...and get compliments on how toned our arms are!
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Not to repeat all the wonderful advice, but I had a frozen shoulder after my mastectomy, I saw a physical therapist who is certified in lymphedema as well as has extra training for golfing... I can't believe the exercises made the pain go away, 100%. But it was very painful in the beginning (the therapy).....
Denise
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Interesting. I am considering BMX. I hope to heck that doesn't create even more problems. They told me implants would cause a more pain bcause of the AX, which is why I am considering tissue transfer. What do you all think?
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Victoria my experience is that I really dislike my implant. It is hard and feels like I have a tennis ball glued to my chest, and it is at least an inch or so higher than the other breast even after getting a lift on the other side, LOL. If you get a BMX you will be symmetrical at least, but the reconstruction involving real tissue might be more natural feeling than implants. On the reconstruction forum I am sure they will have many more words of wisdom for you.
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This article appears in today's NY Times regarding sports injuries and MRIs. I know it's a little off topic, but it reminded me of when I had my first shoulder MRI 5 years ago for my other shoulder. Interestingly, the MRI MISSED some of the damage and some bone spurs in my shoulder. At the time, the doctor told me that the MRI was only 60 - 70% accurate. With my current shoulder problem in the other shoulder, the same doctor told me, based on the X-Ray, that I didn't even need an MRI, but he was going to do it anyway to confirm that I needed surgery. Once again, the MRI UNDER diagnosed the extent of the problem. The article below deals more with OVER diagnosing problems. Leaves me wondering for orthopedics exactly how important an MRI is. I think like the article states, the history, symptoms and X-Ray are of greater importance in determining whether or not a person needs a procedure.
BC-EXP-MRI-OVERUSE-NYT
Sat, 10/29/2011 - 01:33No descr The Associated Press
(This article is part of TIMES EXPRESS. It is a condensed version of a story that will appear in tomorrow's New York Times.)
c.2011 New York Times News Service<
Dr. James Andrews, a widely known sports medicine orthopedist in Gulf Breeze, Fla., wanted to test his suspicion that MRIs, the scans that almost every injured athlete or casual exerciser gets, might be a bit misleading. So he scanned the shoulders of 31 perfectly healthy professional baseball pitchers.
The pitchers were not injured and had no pain. But the MRIs found abnormal shoulder cartilage in 90 percent of them and abnormal rotator cuff tendons in 87 percent.
"If you want an excuse to operate on a pitcher's throwing shoulder, just get an MRI," Andrews says.
He and other eminent sports medicine specialists are taking a stand against what they see as the vast overuse of magnetic resonance imaging in their specialty.
MRIs can be invaluable in certain situations - finding serious problems like tumors or helping distinguish between competing diagnoses that fit a patient's history and symptoms. They also can make money for doctors who own their own machines. And they can please sports medicine patients, who often expect a scan.
But scans are easily misinterpreted and can result in misdiagnoses leading to unnecessary or even harmful treatments.
For example, said Dr. Bruce Sangeorzan, professor and vice chairman of the department of orthopedics and sports medicine at the University of Washington, if a healthy, uninjured person goes out for a run, a scan afterward will show fluid in the knee bone. It is inconsequential. But, in an injured person, fluid can be a sign of a bone that is stressed or even has a crack and is trying to heal.
And scans almost always find something abnormal, although most abnormalities are of no consequence.
In sports medicine, where injuries are typically torn muscles or tendons or narrow cracks in bones, specialists like Andrews say MRIs often are not needed - they usually can figure out what is wrong with just a careful medical history, a physical exam and, sometimes, a simple X-ray.
MRIs are not the only scans that are overused in medicine but, in sports medicine, where many injuries involve soft tissues like muscles and tendons, they rise to the fore.
The price, which medical facilities are reluctant to reveal, depends on where the scan is done and what is being scanned. One academic medical center charges $1,721 for an MRI of the knee to look for a torn ligament. The doctor who interprets the scan gets $244. Doctors who own their own MRI machines - and many do - can pocket both fees. Insurers pay less than the charges - an average of $150 to the doctor and $960 to the facility.
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Hi all, thank you Dragonfly1 for pointing me to this thread
Lisa I still have to have my ovaries removed and am waiting to see if my final path report is going to bring chemo with it, so I need to get this shoulder fixed up as soon as possible it seems to be effecting my neck now too
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Ok, so I was feeling sooooo much better and was only having shoulder pain at night after 4 weeks of PT. Then, yesterday I ended up right back where I started:( I have excruciating pain radiating down my arm, shoulder is painful to touch, can't lift my arm without pain, can't turn a doorknob, can't drive the stick shift in my car (because I can't push the gears forward), was awake from 2 am on last night because there was no position that didn't hurt terribly and I ended up sitting upright on the sofa just to tolerate it. What I can't understand is how it's become so inflamed again when I didn't do anything different and I was progressing so well? The only other variable I can think of is that I had a Herceptin infusion this week as well and I wonder if it triggered inflammation? I'm so annoyed. I don't have another appt with the Ortho doc until the week after Thansgiving. Meanwhile, I'm taking the prescription anti-inflammatories again and I'm going to take a Vicodin with my dinner....ARGGHHHH Have other people had this kind of flare-up and what causes it to happen?
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Dragonfly.... Door knob??? That might be an ulner nerve compression. When I had it, I couldn't turn a door knob or turn the ignition switch either. You might have inflamed the ulner nerve from your shoulder exercises.
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Do you have numbness in your fingers?
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No, no numbness in my hand-it just sends pain through my upper arm every time I put pressure on it i.e. turning/pressing anything at the same time. I can't raise my arm or move it to the side very far either. Feels just like it did when this all started and I can't understand how it became so inflamed in my shoulder again. I'm going to call the ortho to see if there is any chance I can get in tomorrow instead of waiting a week. I'm supposed to drive several hrs tomorrow to visit my dad for an early thanksgiving and it will be a painful trip if I don't do something quick. The Vicodin took the edge off at least-hope I can sleep...
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Oy! Dragonfly...
I know how frustrated you feel. Don't look for a reason why it might have happened. You could have sneezed hours before and inflammed the area and THEN felt the pain hours later when you were turning the knob on your front door. I also can appreciate your frustration in driving. Even today, after years of shoulders, arm and hand surgery, I MUST drive a car that I'm comfortable in. For years when I would rent cars with front-wheel drive, I would be in AGONY after an hour of driving. Did I tell you I even get sciatica from time to time? My driver's seat also has to be "just so" or I am in agony!
Are you applying ice and/or heat? Ice was the only thing that helped me. My doctor told me to ice my shoulder for a half hour before going to sleep. It worked for half the night. When I woke up from the pain, I would then stretch my arm and then do another 15 minutes of ice and then I would get through the rest of the night.
I couldn't take narcotics because I get sick from them. I would highly recommend that you take anti-inflammatories around the clock, if your stomach can tolerate them. My doctor said that I had to take the anti-inflammatories around the clock for the duration of the pain and then to continue taking a lower dose of the anti-inflammatories for another week AFTER the pain subsided.
Hope you get relief soon! And...I hope you get a good night's rest!
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Thanks voraciousreader,
Yes, the ice/heat rotation helps somewhat. I hate painkillers-never took them for surgery, etc. so it was only in desperation that I used one last night. It took the edge off the pain at least-at least I got some sleep. I'm a little better this morning. I'm taking the prescription anti-inflammatory regularly and it's beginning to work. I'll definitely keep taking it. I can't get in to the ortho doc until a week from today...
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Dragonfly, so sorry to hear about your relapse! Have you seen your orthopedist yet? Was there some movement you made--or some movement made during PT-- that might have triggered the problem?
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Pitanga I wasn't scheduled to see the Ortho until next Monday but managed to change the appt to tomorrow afternoon. The anti-inflammatories are helping but it's still really painful. There was definitely no specific movement or injury that brought this on-it just happened over several days and became excruciating again:( I'll keep you posted after I see the Ortho tomorrow...
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Ok, so I went to the Ortho doc for followup today. He wants me to stop the anti-inflammatories unless the pain flares up again and wants me to continue the PT. He still didn't want to give me a cortisone shot because he's worried about overlapping with the Herceptin infusions and confusing the situation. I also mentioned that I'm beginning to get pain in my other shoulder now as well and in my right hip although it's not severe at all. He moved my hip and said I have tendonitis in the hip-it hurt pretty badly when he moved it in certain directions and put pressure on specific places-ouch! What is going on? I find it rather coincidental that I'm having shoulder problems and now hip tendinitis after all of this treatment. Ortho doc called my MO who said she doesn't think the Herceptin could aggravate any of this but wonders if Tamoxifen is contributing. Well that sucks since I need to be on the Tamox for 5 years. I may completely fall apart in that time:(
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Oy Dragonfly!!!! Just want you to know that my better shoulder started to hurt too! I felt like I was falling apart! I couldn't get a sweater or coat on! I don't understand why he wants you to stop anti inflammatories? How does he think you will sleep? Or do PT? Maybe it is time for a second opinion or you need to see a pain management doctor. I am pretty stiff in my hips too. I mentioned it to my internist a few weeks ago and he thinks it is due to the Lupron injections. I am taking Tamoxifen too. The only thing that helps me is doing my shoulder exercises and walking each day for a minimum of an hour. The more I walk, the less stiff I am. I don't take anti inflammatories regularly now. Only occasionally. But I don't know how I would have gotten through the night before my surgery if I wasn't taking anti inflammatories. What about the ice and heat?
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Dragonfly, what a situation you are in! When I had the frozen shoulder I used pain meds in addition to anti-inflammatories. Tylenol with codeine was VERY helpful.
Joint problems can be related to estrogen depletion. I did not experience them with Tamoxifen and don´t know if it is a known side effect of it, but joint pain is a major side effect of aromatase inhibitors which I am on now. In the 2 years I have been on them the pain has migrated from joint to joint. It´s weird. It was awful when I was on Arimidex but my onc switched me to Aromasin and it has gotten a lot better--but has not disappeared entirely.
I agree with Voracious, your doctor should not ignore your pain issues. If he thinks anti-inflammatories interfact with Herceptin, why not pain killers?
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Voraciousreader and Pitanga Yes, the heat and ice definitely provide some relief so I'm using them at night when I'm home from work. I'll keep the anti-inflammatories on hand in case this flares up badly again because it's the only thing that calms it down. Last weekend I couldn't move my arm and couldn't even lay down to sleep-there was no position that would isolate the shoulder so I sat up all night on the sofa. The doctor wants to proceed with PT for one more month and then see me again. He kept saying over and over "these problems are common even for people who haven't been through this kind of treatment". I was a bit argumentative and said "really? well, isn't it a bit coincidental that I have a right frozen shoulder, right hip tendonitis and pain in my left shoulder and it all started within the past 2 months?" Hmmm. I'm not buying it-we'll have to agree to disagree and he's not offering any explanation for why I had a sudden, unexplainable recurrance w/ the right shoulder after more than a month of PT. I may have to switch doctors eventually anyway-he came back from the phone call to my MO and said "she says she doesn't think you have BC anyway". Huh? I gave him a blank look and said "well, I certainly hope I don't after all of this treatment" WTF? Maybe I was just in a bad mood and not feeling well but the Ortho doc and I were not on the same wavelength. I agreed to continue the PT (he added my hip to the order) and that he would hear from me immediately if the severe pain returns again. I'm one week from the anniversary of my diagnosis and I'm so sick of all of this! I just want some semblance of normal life back.
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Dragonfly!!! One year out and you want to feel normal??!!! What's normal? I don't think there will ever be a normal again! I am almost two years out from diagnosis and I am still trying everyday to keep my shoulders from hurting. No doubt since my second shoulder surgery, I feel better. But when I look back on these last two years, I can't believe how many treatments and therapy I have had! And did I mention that my husband is disabled and chronically sick? In September he had a six hour heart procedure. Between the two of us, I can't remember a single week in the last two years that neither of us didn't have some kind of medical appointment. And while I am on a roll, shall I tell you about my gums??? I feel your pain! I am sick of being sick! And despite it all...I try hard every day to feel well! I keep walking everyday because I swear that "normal" is right around the corner and I will find it! I wish you well and "normal" and a good night's sleep! And if you find "normal" before I do... Would you mind sending it my way???
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Voraciousreader I know, it's only been a year and I've been through a lot but I think the problem is that I was really starting to feel like I was rapidly improving after chemo/Rads. The energy was coming back and I was picking up some stamina as well when this shoulder issue knocked me down again. I guess I expected to just keep getting stronger. It never occurred to me that I could have all these setbacks. I was looking forward to fewer doctors appts. and really looked forward to Feb as an end-point when I finish the Herceptin infusions. Instead, I'm attending PT and ortho appts now too. You obviously understand. Last week I was ready to just quit PT and try to do everything on my own-join the gym, etc. so that I could move away from life as a patient-I'm really struggling to break away from that role I suppose. Then the pain came back with a vengeance. So, I remain at the mercy of these doctors for now. But I'll keep searching for normal and I'll definitely send some your way when I find it:)
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Dragonfly, I can relate to your frustration. When my frozen shoulder set in, I had just begun to recover normal movements again after two months of hobbling around in extreme pain from a problem in my hip. When the doctor told me that the frozen shoulder can take a year to overcome I was devastated. I did my time--six months of daily PT, then four more months of twice-weekly water therapy (fabulous! I really recommend it if you have the option)--and when the light at the end of the tunnel was appearing, I began having severe pain in my lower back. Meanwhile, the stiffness in my hands that had begun after I started Arimidex progressed to something called trigger finger. I was a mess, one thing after another. Gobbling Tylenol with codeine. But when my onc switched me to Aromasin and took me off Zometa I suddenly could move again.
I think you should try seeing another orthopedist. I think a lot of them have no idea about the side effects of estrogen blockers.
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