Adult children and friends avoiding me since diagnosis
I have an issue since being diagnosed 10 Oct. My youngest son and his wife feel this is "horrible, and they cannot deal with how horrible this is" My youngest and his wife live 3 hours away and had plans to come for a visit prior to diagnosis, now have come up with every excuse NOT to come. They do not answer the phone when I call, do not answer texts as well. I had conversations with my boy regarding my up coming surgery and the start of chemo. We have talked about nutrition and exercise and the power of prayer and positive thoughts. I just do not understand this feeling I get from them that I am "dying".
I am not.. I have cancer, a treatable, curable disease.
Has anyone had this same issue with family and close friends?
Comments
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I'm so sorry this is happening to you. I think many of us have experienced this - sadly, it's not rare. Cancer has such power in our culture.
My own brother was the one who disappeared. During the course of my diagnosis, mastectomy, and year of tCH, I didn't hear a word from him. Typically, I take his kids for a week in the summer and that's when I heard from - his daughter. I offered to take them again (had just finished chemo) and he stayed all of 15 minutes when dropping them off.
Now that I've had progression and just had half my liver removed - again, silence.
I think he's afraid I'm going to die and so wants to distance himself. Yet, when my mother died, he was right there, supporting my father.
Fortunately, my sister is not like that and has been able to support me. And, I have found support and comfort in places you'd never expect - my coworkers, who have been amazing and kept my family fed, and also took up a donation to pay for them to stay in SF while I had my liver surgery.
The trick is to try to find the people in your life who will help and can be there for you, and learn to not rely on those who can't. Yes, it will hurt, especially when it's a child of yours. Hopefully they will come around but if not, find people in your life who can express their love in tangible ways.
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Lory,
This is unfortunately very common with cancer. I had both my brother and sister basically disappear on me - not once have they asked how I was doing. I also had two friends (one I had considered a very close friend) who literally stopped calling. Needless to say, I have crossed them off my list of friends. Like Coolbreeze said, though, other people unexpectedly step up to the plate - my coworkers and neighbors were great. It hurts, but there's not much you can do about it, other than to spend time with the people who are there for you.
Karen
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A close friend (like a sister, I thought) of 20 years is nonexistent. It stings, but I need to focus on the special people who I can lean on.....So sorry you're going through this.
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I can't speak to adult children (mine are young), but friends, absolutely. I don't think it's intentional, just uncomfortable. I know prior to my own diagnosis, I was never sure what to say when someone close to me told me they had cancer. What are the right words, really. I even find that I distance myself from friends sometimes because I know that if they knew how dire my health was it would only make us both sad. I am sorry you feel neglected. It must be hard to accept coming from family members. Friends ditching you is one thing, but family is quite another.
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Lory,
AnnaFrederik is right. Friends are one thing and family is another when they turn away. My mother, who was in remission with breast cancer for over 25 years, then needed treatment for 7 years afterward went through the same with one of my sisters. I remember telling this sister time and time again to spend time or call our mother but she had excuses such as, "I'm cooking," "I'm busy right now," and so on. Aside from this daughter, my mother did have a wonderful support group of people which helped her.
Now, I understand what my own mother went through as far as the people who came in and out of her life.
As for friends (or even family for that matter), it really doesn't take much to send a card, an e-mail, or text saying: "I'm thinking of you....." Those simple words can brighten up your day.
Your family may just need a little time to let this all sink in. And like you said, you are treatable!
Take care,
T
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Thank you so much for the "patient" perspective. It makes me feel better knowing that this happens all the time. I just need to step back and let my son figure it out, you know quit pushing.
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There are people who can deal with it and people who can't. However hurtful it is, you need to let them go and concentrate on the positive supportive people (who aren't always the ones you would expect - people can be very surprising). You are number one and have enough to deal with without being abandoned by family - leave them to their problem and just carry on looking after yourself. Maybe your son will finally confront all his fears and come back to you. Hoping so,
Barbara
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This is my second bout with two totally different cancers apart by almost 25 years. I truly believe cancer does not happen to JUST the patient but to all who love/care about them.
The first experience, I had friends come show up in ways I NEVER thought possible and my siblings disappeared. I think it is hard on family who love you and are scared of losing you. Not an excuse mind you but maybe compassion for what they are going through. I also had a friend who had a baby and she would not let me touch the baby... sigh
This time is a bit different. Feels a bit more lonely??? I have experienced a lot of talk about how people will be there for me but are not. I think there is much judgmement about how I am dealing with this cancer--like I am pushing myself too hard and they don't want to encourage it??? Not sure, but enough people have been keeping themselves scarce. It hurts and sometimes affects me emotionally (like a bit of paranoia!!LOL) but mostly it just isolates me. Its important to not dwell on those things you cannot change and if isolation is a problem, it is an easy thing to fix. There are good people everywhere and there are things you can do to help yourself.
Keep smiling!
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I am sorry that you have had a reccurrance.. And I totally get the lonliness thing. I had a good friend, (or I thought she was) totally disapear on me. I let her know if she could not support me that I will need to seperate myslef from our "friendship" I got NOTHING back from her..so that was the answer..so be it!
I have so many other friends that have really stepped up and offered help.. I have sent requests of help for a dinner dish and help with some housechores.
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I have no idea what makes people behave like this. My friend just died of lung cancer, and I was there for her as much as I possibly could be, going out to dinner with she and her husband, or taking food to the house, or even driving her to doctor appointments. In the end, I don't think she even recognized me, but she always smiled when I came in the door, so I know it brightened her day to have someone stop by and say hello. I never stayed very long after she got so sick.
I asked my daughter once why she didn't call a friend whose mother was very ill, and she replied "what would I say?" I was very disappointed in her answer, but when I think about it, she is a very self absorbed person who usually only focuses on herself and her needs. I have not yet told her that I am going through my challenge since I'm still in the diagnostic phase. I don't need disappointments right now.
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Hi Lory
I think some people just cant process it, and it must be scary to think of your mum going through it. Perhaps its easier to ignore than deal with it? I know for me Im glad its me and NOT my mum with this disease. My sister has ignored it completely and ive heard from her maybe twice in a year, and she doesnt even ask how i am then, she asks things like what my littles would like for their birthday. I take comfort that Ive made some incredible new friends in tough times, and it has cemented existing friendships in the deepest possible way, and Im sure it will be the same for you. I hope your son and his wife can find their way to supporting you in every way you need.
And its not the same, but you have all of us :-)
Lots of hugs to you xxx -
Sadly this happened to me as well. People who said they would be there were not or said the most insensitive things. Hurt so much and I am still sad about it, but making peace with letting go. They did a long time ago.
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Determined, let it go!! It's all about you! Look to those that ARE there for you.. oh and us here on this board.
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I told my DD yesterday that I was going for a biopsy on Friday and she said "I told you not to get so many mammograms, that they were going to cause cancer!" She then launched into something else that was going on in her life at the moment. What can I say...it is what it is!
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wow Finally,
I was wondering ifthere was a group of us out here and now i found it- My 22 year old is married and has three kids, and has found every excuse in the world to keep herself and my grandkids away from me, I havent been a angel- but lets just say I sure aint the party animal now. Justa card would help. My other daughter is 20 and lives 4 hrs away with her husband- she came aand stayed a week after the surgery, and keeps telling me I need to be strong for her!!!! lol And by the way doesnt call much now. And my poor son is 15, hes stuck here, and my best friend of 25 yrs daughter is here taking care of me.
(((hugs)))) connie
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Spent the day yesterday with my DGD and DGGD (six months) and cute as can be. GD is such a good mommy and I'm so proud of her! She was crying her eyes out because her father (my son) has very little contact with her and the baby. She was his child from a relationship that he had before he married my DIL and now they have another daughter that is treated like a princess while she is completely ignored. I was so upset and mad that I wanted to just call him up and tell him what a jerk he is, but then he would just take it out on her. She said that she has always felt like the black sheep of the family and that she was just a "mistake". It broke my heart. I did eveything to try and convince her otherwise. I know my DIL is a large part of this problem, and I've always tried to stay out of it, but this is really getting to me. My ex did the same thing to our family...walked away and never looked back...now he has an entire new family that he brags about constantly! My DS hates this, so why is he repeating that behavior!
If my DS doesn't watch out, he is going to lose half of his inheritance, which I will give to my GD and GGD, for their future needs, since he isn't going to help provide for them.
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It's just amazing how people act. My youngest boy STILL has yet to call me. My oldest boy called me yesterday to check how I was doing after surgery. He deploys the day I start chemo, and said he will try and call me every couple days to check on me.
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A diagnosis of cancer certainly can elicit unexpected (non)reactions from family.
I'm very thankful for the continuing support from my friends, they've been absolutely and wonderfully supportive, as have folks who I would classify as acquaintances. I have been touched by the offers of help from people that I never would have imagined would step up.
But my BIL (my husband's "nicest" sib) and his girlfriend have, for the most part, been.....silent. No visits, no calls, not even any enquiries as to how I'm doing when they see my husband. I got an email today with an apology for not calling (for five months now) saying that they wanted to "give me space". Now tell me, WTF does that mean?
I have mixed feelings about the suggestion we get together. I have replied and tossed the ball back in their court to suggest a time and place, but truly, I can't work up any enthusiasm about it.
It just makes me sad.
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Im still tryin to figure this puzzle out....some people have sooo much support from their family while others get none....i do not believe that they cannot handle it..thats a bunch of crap...i do not believe that they are in denial..thats also a bunch of crap...what i do believe is that they are too self involved and use any excuse they can just not to face the fact that their family is in crisis and its not goin away....its like leave me alone....if anyone things im wrong please tell me so..
same goes for friends.i have wonderful friends and then sometimes they say i just cannot hear anymore...well damit you betta listen cause if your my friend I need you to liste....I too have quite a friends with cancer...do i wanna hear it....hell no...do i listen...you bet i do..everyday if they need me...the bc sure does suk.
end of rant...that felt good.BTW some of my family are very supportive.SOME!!!!!!
hugggggggggs K
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You know, GrannyDukes, you may have a point....... The one friend I had for 20 years "checked out" after my BMX. Your entry just made me realize how self-involved she has been with her life (drama after drama -- on again/off again engagement for 7 years, quickie marriage, work drama, and so on). Hmmm.... now you got me thinking.
T
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My son has not been there for me or my mother. My sister and brother have been, and many friends and co-workers and new friends who just came to my side because they're "angels" and here on this earth to serve God and their fellow man. I'm greatful for all I've learned in this experience.
I love this saying:
"Fear, anger and denial are only signs of Self-Centeredness".
"Other-Centeredness is love, compassion and kindness".
You can't get nor should you expect anything from those who are just not capable of giving. I was torn apart by how I was treated by my own son but I turned it into a teachable moment and now I've moved on and understand what is going on and accept it. I do my part to support others and be there when a friend or family member is in need. I hope my post gives you some mental and emotional relief and support in this experience. Remember, we're not responsible if others are "self-centered", it's their problem.
Hugs,
Kat
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It goes without saying, or at least you would think! I called my oldest boy and let him know that I worried about his brother. I told him my concerns and he assured me he would find out what was going on in his little brothers brain.. Well, 3 days after that I called my youngest to see how he and his wife are doing. He still does not really want to "talk" about it. If I tell him how things are moving along he only responds with ok. Denial!! As for the friend I thought I had forever.. I sent her a letter (she would not answer her phone) Told her she was either in this 100% with me or out of my life for good her choice. 2 weeks later she popped in with a 1/2 drank bottle of wine talking 90 MPH.. I layed there in my chair (2 days post surgery) she did not even ask how I was doing, just rambled on about work (my former job) and people I really did not care for int eh first place.. Got up and said she needed to go..said goodbye and left..
I tell you these people are so self absorbed it's disgusting to think I called her a friend!! Just saying they are out there...lol I lean on the ones that ARE there.. the ones that do call or stopby
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Lory48: You are so right! My own DD is like that....took about a minute to absorb what I was saying...that I had been diagnosed with bc, and then she took off on her own agenda again. Oh well..I wasn't very surprised. Hasn't called me since to ask how I'm doing or how my appointments went. On the other hand, I have two DS's that call me almost every day to see how I'm doing, and another DS that is much like DD. I guess 50% isn't all bad!
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Just wanted to say in my experience and memory those that i thought would be the best help or the most supportive were often the worst and vice versa. It is really hard for some people and for others they are quite comforting.
as far as friends and family that disappoint. i tried to sort into two camps.
1) those who simply were not good or comfortable but meant well
2) those who were truly self centred and waned nothing to do with a tough situation.
in the end I always remember who I can count on but also forgave those who i felt really just let me down.
Michelle
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OK bottom line----most of the time your family really dont give a shit!!!!!most of the time.
most of the time your sooo called friends really dont give a shit either....most of the time..
some of the time and if you are lucky 1/2 of your family and 1/4 of your friends really care...that is the way i feel....
once in a while you meet people who have great friends and greater family...ONCE IN A WHILE!!!!!!
This is the best place for all the support you need!!!! BIG THANKS TO THE BCO SISTAS...they really do care...
And yes i do have a few friends and family that actually do care.huggggggggs everyone I CARE. K
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Both age and my BMX experience has made me realize that life is too short not to have "good and caring" people around you. It took some time to figure out that not every family member and friend will help guide me towards that place called "hope" during these rough times. I now know who the special people are in my life -- that circle of friends and family got smaller -- but it's a mighty one now!
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I have also been surprised by family and friends reactions to my situation. I have a group of girlfriends that I have known almost my entire life. We have always made it a point to get together at least once a month for dinner and drinks, long weekends at the beach in the summer, long weekends skiing up north, etc. One in particular has completely shocked me with her distance. On occasion her husband would complain that she was going out with "her friends" again, and she would jokingly say "hey, keep pissing me off and I will take you out. And my "friends" are the ones who would help me bury your body"! So although im expected to bury bodies I cant even get a return phone call from her. Also, its causing her a problem with the other girls who are noticing her distance. Ive chosen not to care. I need to focus my energy on getting healthy.
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Unfortunately this kind of treatment seems to be more common than I would have ever imagined. I am sorry that all of you have also had to experience this kind of hurt.
I was shocked that my one and only sibling, a sister, could be so self-centered at such a critical time in my life. She has been completely absent. She doesn't call, e-mail, text, send a note or card...NOTHING absolutely nothing! I would have never treated her this way! I do believe it is because she is so self-absorbed and only cares about her self. That is certainly no excuse, but it is very unfortunate. It makes me so sad and it hurts my feelings deeply. My mom and my grown son have been very supportive, and I am very grateful. I wanted to keep this bc ordeal a private matter, so I have only told 2 friends, which have both been supportive.
Thanks for listening. Hugs to all of you.
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My spouse made up all kinds of reasons why he could not go to the doctor's appointment with me after I had the biopsy. He would not come to the lumpectomy and node biopsy surgery either. His reasons for not wanting to be there were absolutely illogical. I think his behavior speaks volumes of his character. I would have gotten rid of him if I finacially was able to do so.
I just told him "You reap what you sow"
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Hi everyone.. Just an update.. No change!! Plans continue to be made, then "something" comes up that changes them just days before they are to drive up. I was going to go down there for Thanksgiving, but my doctor advised against going that far during treatment.. At least they are answering the phone and texts now. The thing that really pisses me off is that they can drive to my DIL's families home 3 hours the other direction, but not come here. I found this out after they said they could not make it, and FB comments showed that they went to her families house. This damn disease has changed more than just my health.. it's ruining my relationship with my son..just sux
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