I'm bitchy, I moan, I groan.....anyway.
Comments
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Thanks Harley .. I think we will have a pretty nice holiday and the same to you.
Too you ladies ... Have a great Thanksgiving Day!
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Sue, that is AMAZING!!!!! I love how the circle of life grinds on. You are there now aren't you? We need pics!!! Or do you get there on the 21st....????
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OMG I LOVE seeing these pics of newborns...just gives me hope...
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Oh precious wee one~ Congrats Granny! If that doesn't melt your heart and give reason to the season upon us, nothing will
{{Harley}} do you think perhaps he has medical issues you aren't aware of? I know someone mentioned their onco was just dx with cancer himself...that wasn't you, was it? Hope you get into see him or find someone else soon hon
{{Kathleen}} surely hope the dizziness is less each day hon. Can't imagine that full time
Hopefully, the kids will somehow remind them (their parents) just what 'family' means before Christmas rolls up
Glad to hear you have appts set up...that should help the fear some
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Wishiwere ... thanks for the hugs. I am anxious to find out what is going on - having a second stroke is really scary. I was on 2 of the 3 drugs they use to prevent strokes and you can't be on all three. I hope the cleaning out of the right carotid artery will do the trick. Also the unexpected dizziness has me almost house-bound from fear of falling - I use a walker and it helps but not enough. I am not very steady on my feet and really can't be falling anymore. I wish I could check into a hospital and have everything fixed!
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Sue, what a beautiful baby! Thanks for sharing!
Wish,
No, he doesn't have cancer, at least, not that I know. His Mom died from breast cancer, but that
was long ago... 10 years ago or something like that. I have thought it over, and I think that
because TRICARE doesn't pay very much, maybe that is why he said that I can keep going to see him every 6 months... but in fact, I don't want to see him TWICE a year... just want to go back to a NORMAL schedule... but I think I will tell him it's ok... I'll see him every 6 months... that way
he will get more money...
Harley
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Harley ..., that's extremely considerate of you; however, has he told you why he wants to see you every six months? I know once I asked my gynecologist why he was ordering a text and he said tha onestly it had more to do with his malpractice insurance than anything else!
Sue ... what a perfect little miracle! Again, congratulations!
Wishiwere ... appreciate the concern - it is very transitory but I forget about it and when I either lie down or stand up from lying down it is always a shock. If it was continuous I am afraid I would be writing this from the funny farm.
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Kathleen,
My onc. told me that he 'will let me continue to see him every 6 months', because...
He said:
You are so scared and you always have so many good questions.
Well... I bet that ALL of us are scared and especially when I am going to see him, I don't want to waste MY time, so I make a list of things I have been thinking about, and list some questions.
I assume that EVERYONE does this... I mean, with my memory issues, I forget unless I write
it down...
HAPPY THANKSGIVING to everyone!
Harley
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Harley, can you come with me to my next onc appt? I never seem to know the good questions to ask.
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dutchgirl6,
I would, if I could. Funny thing is that I never told my onc that I WANTED to see him every 6 months... all I said was: When will I go to every 6 months??
When do you go again?? I would have to hitch a ride, I see you live in CANADA??
Hugs
Harley
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Harley ... is he at least good looking? Otherwise tell him you are going to say scared and if you think of any really good questions between ANNUAL appointments you'll email him.
HAVE A LOVELY THANKSGIVING DAY!!
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Thanks, Kathleen. No, he isn't good looking... He is about 10 years OLDER than me...
Hope everyone had a wonderful Thanksgiving.
Harley
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Here comes a great big vent ... I am sick and tired of being sick and tired! I bought an expensive health insurance policy to tide me over from the end of COBRA coverage until Medicare kicks in - a period of 7 months. I paid $500 each month for a "catastrophic" medical policy. In April I ran into the wall getting up to go to the bathroom. I still don't know what happened. Spent 4 days in the hospital where they did every test imaginable - ruled out a lot of stuff but no diagnosis. My insurance had a $10,000 deductible (yes, you read that right) plus I have to pay 30% of the leftovers. Out of pocket had to reach $16,000 before covered at 100%. Then at the end of October (4 days before Medicare became effective) had a second stroke! At least the 10 days in the rehab facility will be covered. I am going for tests on November 30th and seeing my cardiologist on December 12th - I need the plaque removed from my carotid artery. If that's not enough I have constant diarrhea. I take an Immodian and am alright for 36 hours and then its back so I will have to see a gastroenterologist. And I still have dizziness upon getting out of bed and lying back down in bed. I fail to find any of this amusing!
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(((Kathleen))) I'm sorry that you are going through so much suckage.
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Dutchgirl6 ... thank you. It feels better out than in. I'll take it one problem at a time.
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oh, Kathleen!
I am sorry you are having to deal with so much crap! That 'catastrophic' insurance policy really sucks! How do they think ANYONE can pay that kind of money??
Sending ((HUGS)) your way!!
Will be praying for you.
Harley
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Just want to say that you are all in my prayers. You are loved!!!!!
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Kathleen, I HATE that you have to worry about money as well as your health!! Come and live with me up here and we can play all day...! Hugs to you sweetie!
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Barbe ,,, I would love to!! As of December 1 I have Medicare and a supplemental plus drug coverage - finally!!!!!!! Canada has the right idea - socialize it all. I can't tell you what problems I've had getting this straight. I would still rather come play with you!
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Keeping all in prayers and good thoughts....not on a lot now, but will be soon
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It's not socialized medicine - it's UNIVERSAL. That means NO ONE gets left out.
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Sue.........beautiful sweet baby!!!! I want one!!!!! Hope you get to enjoy him lots!
I have a wicked toothache!! Off to dentist tomorrow............ouch! Mammo and bone scans next week ladies.......................ugh, you know what I mean........ugh, they always want to mammo the MX side too! Double UGH! I really want to say NO to that!
Goodnite all...........toothache=headache=bitchy
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Viv, they want to mammo me too! I have LE on my cancer side and refuse it. The tech says "Oh, we do LE patients all the time!" Right.......well, I said they weren't going to do me!
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I guess I don't get it - if you've had a mastectomy what are they looking at? There is no breast tissue.
I have the carotid artery and femoral artery dopplers today. Now if I can just get away from the bathroom! I go see the gastroenterologist on Dec. 6th. What the heck can it be? Then I see the cardiologist on Dec., 12 so that we can schedule a rotor rooter of the carotid artery. Life can so much fun sometimes!
To everyone having tests ... prayers for good results.
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Kathleen, they pull about an inch of skin and try to trap it under the plates. Then I get a letter saying CONGRATULATIONS! Your mammo is clear!! See you in two years.
Ya right.
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Kathleen, sorry for your major suckage. THAT SUCKS!! Catastrophic insurance, indeed, as in CATASTROPHIC to your finances!! But WHY is it all so expensive?!?!?! I got a thing from my insurance company today that they are paying $2,342.00 a DAY for my 28 radiation treatments...HOW do people pay for this who don't have insurance? How can it cost that much? I guess I just need to be grateful that both times I've had rads, it has happened when I've maxed out my out-of-pocket for the year...and I'll be done with rads on December 19th!!
I haven't been on here much lately. Tell the truth, I haven't been anywhere much. I think I am depressed. I know I am depressed. I have lost about thirty pounds since I was diagnosed in August, I just have no interest in food anymore. That has NEVER happened. I am almost afraid of food--what feeds my immune system but not the cancer cells? The experience of going to radiation again every day is soul-numbing for me, I can almost feel myself disassociating as soon as I turn into the parking lot. Either that, or I have tears in my eyes the whole time. I don't know why it's so hard, and heartbreaking. I have a new grandson, my first, that I can't go visit because, did I mention I am doing radiation, and he's 2000 miles away...I am struggling to keep up with my housework and laundry and just to get up and shower and get dressed every day. I am seeing a counselor next week...just determined not to take the antidepressants this time. They do take away the painful feelings but for me, they also take the joy. Head down, one foot in front of the other, this too shall pass....I just don't remember ever feeling this down for this long. Of course, I have never been diagnosed with a disease that is now incurable before, either, so that may explain it.
Thanks for the rant. As Kathleen says, better out than in!
Much love,
Sue
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Sue ... I like your quote at the bottom of your posts - I've always said God has something really big in store for me considering all the near misses I have had. I am so sorry you are having to go through this. I wish I were closer to you so I couild help out or at least be near. I know how dibilitating depression can be - there are nights I literally want to jump out of my skin. Hang in there girlfriend!
I had my doppler and guess what? I have only 65% blood flow in the right leg anfd 55% in the left. I think they should just start at the top and rotor rooter all my veins. So that means they have to take care of the carotid artery first and then the legs - which of course can't be at the same time so that means two hospital trips. Grrrrrrrrrrrrrrrrrr!
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Over $2,300 a day! A year ago I paid just over $900 here. After my deductible [$250] Medicare and my insurance paid it all.
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Re insurance ... Under HIPAA laws you cannot be denied insurance if you have maintained insurance for the past 63 days - what they don't tell you is that by circumventing the Underwrifing Dept (which most of us couldn't pass) they can charge anything they like -- and do!
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