Spinal hemangioma

Seeking advice--I very much welcome your thoughts.

I went to a neurologist earlier in the month for a consult about a herniated thoracic vertebra.  During the consult the doctor mentioned that I have a lesion on my spine, a benign hemangioma.  He assured me that "it is not a metastasis."  I went away fat, dumb, and happy.  Then, when I got home and sat quietly to think, it dawned on me that he was the only person who's ever mentioned the hemangioma.  The radiologist didn't even mention it as an incidental finding.  It wasn't mentioned in the last MRI that I had.  It wasn't mentioned after several Pet/CT scans or a CT scan (all done with contrast).  The neurologist described it as having been there "forever" and that it likely wouldn't cause me any problems.  Being the ever-paranoid breast cancer survivor, I am still concerned.  Would you be concerned?  Anybody dealt with anything similar to this?

Thanks,

Nita 

Comments

  • dreaming
    dreaming Member Posts: 473
    edited November 2011

    I get a yearly MRI of my spine, I had it done and was called and told it was fine except the herniated disk that is chronic.

    A month later, I went to my doctor for a follow up for my PMR and the  receptionist told me , if I wanted the copy of the report from my MRI.

    I sat reading and went into a panic mode, when I read "hemangioma",  I almost passed out,my doctor told it is an enlarge vessel, benign."Not to worry" Like you , in a second I was back into the day I was diagnosed, unfortunately I am not that naive.

    Because I found out in another facility that in the US they are outsourcing CT,MRI, etc, etc to India, China to save money, reports are many times very concise, that is how I found my MRI had been outsourced.

    SELF magazine had a report about outsourcing key health tests.

    The last report was excellent in the description of the lesions. Please let me know if you found out any more about your hemangioma.

    I am going again in January for another MRI. I am also worried, special because of the pain.

  • Naniam
    Naniam Member Posts: 1,766
    edited November 2011

    I have lots of problems with my lower back.  I have "buldging disc, lots of degenerative disease"  They actually told me I would need a spinal fusion and I saw a neurosurgeon.  My MRI report had areas they couldn't decide if was metastatic disease or hemangioma.  My oncologist ordered a PET scan and that was negative - hemangioma was the conclusion.  I have them in my liver and so does my husband. 

    I know that hemangioma is a benign finding.  I have never worried about them. My film are read locally and at the teaching hospital where I went for my cancer treatment.  They are not outsourced from those two locations.

    I always get copies of my reports - that way I know who read them.    

    Hope this helps .  

  • dreaming
    dreaming Member Posts: 473
    edited November 2011

    I was told by my doctor that they will follow up with MRI because sometimes it can grow and cause pain and numbness.

    Regarding outsourcing, they sign like it is done in the US,  there are done electronically.

    I saw a difference in my report, some thing were missing, too concise. I questioned the radiology department, It was a lot of investigating to finally find out that only time I went to this facility it was outsourced my MRI.

    I am in the medical field and work in a hospital, but I keep my professional and personal life separated. also I keep a copy of my medical chart/history at home.

    I do my tests where the State football team is look after, they have a radiologist on site, female radiologist for females exams.

  • debbie6122
    debbie6122 Member Posts: 5,161
    edited November 2011

    HMMM, this makes me wonder if mine had been outsourced too, My biopsy report and other medical tests took almost 2 1/2 weeks to get back, that was a couple of years ago in another state, where my daughter who lived in another state got hers back within a couple of days. I wonder how you can find out if your hospital does outscourcing?

  • Naniam
    Naniam Member Posts: 1,766
    edited November 2011

    Both my husband and I have liver hemangiomas - mine has not changed in 6 years, his hasn't since they were found 2 1/2 years ago.  I have them in the lumbar area of the spine.  I was told that it was rare for them to grown to ever cause problems or the need of surgery.  It was a pretty common finding - especially as people age. 

    In the beginning I never got copies of my records - then I realized that was a mistake.  I have copies of my husband's colon cancer scans, labs and mine also from my BC. 

    I have always had any scan reports back within a week; maybe earlier. I had a bone biopsy a week ago Friday; will meet with my oncologist on Monday for the plan of treatment. Have always wondered if it makes a difference where we live - seems how oncologist approach things are always different too.

  • nita1027
    nita1027 Member Posts: 26
    edited November 2011

    Sigh...I wish I could say I wouldn't be concerned even if some of the issues I mentioned were addressed satisfactorily, but I would still be anxious.  It's that cancerversary time of year....thank you all for your responses.  

    Nita 

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