Dr. Stanislaw R. Burzynski

Anyone remember DES or DDT? FDA & Government were singing praises for these drugs and their safety. spraying DDT through neighborhoods where children played everyday. And prescribing DES to pregnant Mothers......well there were TERRIBLE consequences....TERRIBLE. If we allow the government to dictate our health...well we aren't exactly being responsible consumers. We have to be our own health advocates. Do the research, if it makes sense & the benefits out way the risks...then he'll yes begin treatment. If your doctor ( & FDA ) suggests taking a medication that is a known carcinogen to potentially prevent a recurrence of BC and it doesn't feel right to you ( as in my case) ....then he'll no. Learn about doctors like Burzynski, Blaylock & Forsythe. People will always say the pioneers of anything new are quacks. The world is not flat.....the pioneers that suggested it was wasn't...well I am sure they were deemed quacks as well..

Burzynski is a quack. Period. If any one knows, I do, I was the chief medical officer and senior oncologist at the Burzynski Clinic for a year and a half

Sorry He might be a good doctor still he loses pastients( like other doctors) He treats all cancers.I would not go to him.I would have to pay out off my own pocket's.because I am Canadian.My neighbour down the street lost her live after two years going to him she had lung cancer.And her husband ended paying for her treaments a lot of money.She could have the same treatments in Canada.And have the same outcome.If I would seek treaments in the USA it would be one off the big cancer centers in the states not Dr BURZYNSKI.I saw his show with Susan Somers and I did not like his answers.

I don't know this J. Joshi person but I just Googled and it does come up as someone at the Burzynski Clinic.  Of course I have no way of knowing if the person posting here is that person.  I am prejudiced to believe he is as I know someone who almost died doing the Burzynski protocol.

I really don't want to get into whether the protocol works for some or not.  I've made up my mind where I stand on that but don't feel the need to convince others. 

JJoshi has written his biography on his profile. He must be feeling like people who write medical testimonials but no one knows whether it's genuine, a fraud, or just an exaggeration.

We need some sort of register for people who want to supply testimonials where they can supply medical proof of their diagnosis and their progress. This could come under some sort of research budget and be used by statisticians to look for correlations that are deserving of further study.

If we are to take cancer seriously then we need to categorize cancer into early and metastatic.  It's pointless anyone claiming they have defeated cancer when they had surgery for a primary tumour.  AFIK only a few stage IV cancers can be beaten if there is only one secondary that is surgically removed.  All other unexpected long term remissions from stage IV need to be validated and researched.

Historically, cures have come from people experimenting with different methods and substances till they had some results, then others copying their successes.  As an addition to our current research methods, we need to get back to basics with the addition of proper validation so that people can't fraudulently claim they have a cure, and potential cures aren't lost because no one will listen. 

I stopped in at a yardsale today. The yard sale was to raise money for a young girl who has brain stem cancer. I mentioned Burzynski and the woman said the child came home from his clinic two weeks ago. She had a mri last week and the tumor is signifantly smaller. The family was very impressed with Burzynski clinic and treatment. They will be going back I'm sure for more treatment. Great that families like this have hope and there is someone like Burzynski who has dedicated himself to fighting cancer.

I get the feeling that jj was a hit and run.

I am about halfway through Suzanne Summer's book "Knockout" and in it she interviews Dr. Burzynski, as well as survivors of his treatments.  I have also read about him on Dr. Whitaker and Dr. Mercola's sites.  Obviously the traditional medical community does not support his alternative treatments, although the FDA does support clinical trials that utilize his discoveries.  His treatments fall under alternative therapy and therefore would not be covered by insurance, so I'm not sure how one could afford to have treatment unless you are wealthy or get selected for a clinical trial that involve using his therapies.

As for hs being a quack, he was acquitted of all charges filed against him, and still has his license to practice. He has a clinic in Houston, Texas.  He is very honest in his interview about not having all the answers and not being able to help all cancer patients.  He does use some very low doses of chemo, but low enough that the SE's are minimal to non existant.  The treatment plan is designed for the patient individually whereas under conventional programs, that is not always the case, according to him.

The book is worth a read, then decide for yourself how you choose to accept the use of alternative therapies in treating cancer. 

grannydukes:  Read the book...it is filled with vital infomation about the role diet and nutrition plays in managing your disease, and there are integrative medical doctors that will treat the disease from a nutritional standpoint.  I'm sure there many books out there that deal with this subject...I just happened to pick this one up at the book store and found it to be very educational.

I'm in the early stages of evaluation and diagnosis, and I want to be certain that I am making the choices that are best for me.  It's not that I don't trust conventional medicine, it's just that I know it is based on long held theories of standard of care that may or may not be in every patient's best interests.   

He refused to be part of reputable monitoring of his research.

One has to pay cash.

He uses a product that is made from human urine that he collects.

When patients are terminal or run out of money they are are ask to go somewhere else.

I have seen the exact "add "in different cancer forums.

The film was not a science proving fact supported one, it is a PR film.

Why not summit his finding facts to be investigated by government agencies like other scientist do?

He has never been approved for any research grant or funds, public or private for the same reason.

These are my conclusions about Dr Burzynski's work:

1. He is not a quack, the man is a well trained oncologist who discovered peptides in the urine of healthy individuals and found these to have antineoplastic properties. After looking at all of the publications and patients testimonies, I conclude the activity is limited to central nervous system tumors and only works in a subset of patients. The treatment is well tolerated with an excellent toxicity profile.

2. These treatment have not been approved to be used outside the context of a clinical trial due to bad rapport between the NCI and Dr Burzynski.

3. Dr Burzynski combines antineoplastons with the current therapies such as:  hormonal , chemotherapy, immunotherapy, targeted therapy for any type of cancer patient that seeks his medical care. But the real question remains if antineoplastons add anything to the current standards of care, since this has not been tested in clinical trials.

4. It is very expensive to see Dr Burzynski, he will charge you cash for the manufacture of antineoplastons, your insurance company should cover the cost of imaging procedures, chemotherapy, labs, clinic visits as long as it falls in the current standards of care.

In Conclusion you will likely get the same treatment at Dr Burzynski's Cancer center than anywhere else and by this I mean good medical treatment and the standard of care, you will in addition get antineoplastons which have not been shown to have activity as single agents in most tumors with the exception of Central Nervous system tumors where I believe has been well documented. There might be anecdotal data in some other tumors.

My sister recently went to see him, he takes cash only.  SO far the consultation cost almost 2k.  He will bill her for tests he ordered, that jad to be prcessed by his facility (which would have been paid by her insurance at a hospital). She is stage 4 (liver mets) he offered her chemo, along with a drug that was also being used in teh medical industry that is being used was for post-menopausal women (she is pre-menopausal).  I forgot teh names of teh drugs, sorry.  He was a waste of time and money for her.  husg terri in MI

We are all big girls who are entitled to our opinions on Burzynski or any other course of treatment . jaborobson, you have every right to your opinion but no need to fling an insult at sassa. I am always intrigued by civil discourse . Can we please keep it civil? Caryn

exbrnxgrl you're right, i sometimes let my emotions get the better of me. I too find discourse captivating and occasionally fire back, but being civil is the best approach to most situations.

jaborobson, those of us who watched the film and checked further into Burzynski know he's ok. It is my take on it that there are a few people, who visit this thread or forum  to make a whole lot out of nothing. If they can find someone or something alternative to rag on they will. They are here with the red pen to correct, police us or to just polk fun at us. They want us to accept their opinions or ideas, and don't give us the freedom even on our own forum to express ours. They seem to be here to discredit alternative or holistic medicine. Sad