Is There A September 2011 Chemo Group?

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  • RaeBob
    RaeBob Member Posts: 79
    edited November 2011

    Hi everyone haven't felt well enough to post lately but today is a little better.

    Kelli: so sorry to hear about the liver stuff and then having to wait on top of it glad it that it didn't turn out to be anything more.

    Cooka: I am sorry you are going through this but was so glad to hear someone else talk about how tired you are walking up the stairs. I just want to lay in bed all day I get breathless walking around my house. My onc told me this is the nature of the beast and said even though I seem to be more sensitive to chemo than a lot of people that means the cancer cells will be sensitive too and die off more easily. I guess that is supposed to make me feel better about the SEs

    Belle: we should have had lunch together we could have been hanging over the toilet discussing world events. Two weeks out from my last big chemo and I am supposed to be in the good days. Never saw nausea sneaking up on me.

    Kimberly: I have become Dr. Jekyll and Mr Hyde at my house. I find myself alternately yelling or crying. Right now I am in my nice phase just about the time I get reinstated back into everyone's good graces time for chemo chaos to resume.

    I have two treatments left I don't know how much lower I can go and I think I am one who is a flight risk I can't stand the thoughts of going back in. To think I started this so positive and now I just cry when everyday it is some new SE presenting itself.

    Maggie: hoping tomorrow's SEs are minimal.

    LeeAnn: I am sorry about your new SE there is obviously no body parts that are immune to this stuff. I got sores on the back side of things. SEs have no respect!

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited November 2011

    I have wanted this on my signature line and just can't seem to make it happen, but this is one of the most uplifting and powerful videos for me.  When I say HUGS to you guys.  I mean this.  I love everything from the old lady touching his cheek to the free fall jumping hugs.  I love the lyrics that "I wouldn't dare to fix the twist in you."

    http://www.youtube.com/watch?v=1WbQLNjTuTo

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Kimberly: Love that video!  I think all these wall street occupiers should spend their time standing for HUGS!

    Thanks for dosage info, I am really interested in my dosages, I will find out at next Mondays tx.

    Sara ♥

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  • SCPMadi
    SCPMadi Member Posts: 42
    edited November 2011

    Hi Everyone

    I have been having a good week three. Picked up my steroids that I have to start tomorrow for round 4 Taxotere. Is anyone else taking this drug? I am really nervous about this round. I am not ready to start over with the SE's. I keep telling myself that the SE sheet say less nausea and less fatigue with his one I am just not ready to trade those off for anything worse. 

    I have been having some trouble with my Pick line. Extreme redness and sore. Nurse says it is okay but it makes it uncomfortable to sleep. 

    Is anyone feeling less then festive. I live in the Niagara area and the Festival of lights started last week. All the lights just remind me of all the shopping, decorating and baking I would usually be enjoying but have no energy or no motivation to do. And of course every second commercial is a toy that one of the kids wants and I of course wnat to buy it all to make up for the fact I have been sick. I can't stop tearing up every time I think about Christmas I feel like a crazy person.

     Kelli: Happy to hear that your scans all worked out. I had a terrible sty between round 2 and 3. I tried a old home remedy Tea bags and it worked like a charm. Hope it clears up fast. 

    Hope you all have a Great Weekend!

    Sarah

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  • bluejay58
    bluejay58 Member Posts: 62
    edited November 2011

    My last treatment was this morning (I was TCx4).  I'd like to celebrate, but so far I just feel kind of numb and a little spacy.  I'll start radiation sometime next month.

     <3<3<3 to all.

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011
    SCP- Your Picc line is Red and sore?????? call your Onc It should not be RED or sore, Ive had mine in for 4 months now and never had any issues with redness or pain... Thats NOT right......  Watch for fever it may be infected....... Mine come OUT tomorrow woohooo last treatment Smile
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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    WAY TO GO BLUEJAY Happy Dance woot woot xx HUGS to You 

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  • bluejay58
    bluejay58 Member Posts: 62
    edited November 2011

    Heh, THANK YOU Terry71.

    :D

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    You are So very welcome ((((((Hugs)))))))

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  • belleeast
    belleeast Member Posts: 653
    edited November 2011

    rae, that's funny,don't know how much talking i could have done. it sucks anytime but esp when there is no warning.

    bluejay, woohoo congrats on being done with chemo.

    kimberly, enjoy your posts and appreciate the info, video was great.

    terry,way to go hope you have no se,congrats.

    everyone else,hope you are doing well. today was better day. mo appt tomorrow, blood draw, hope the results for the brca test are back and praying they are neg. don't know if i can handle anymore changes.

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited November 2011

    Hey Bluejay - Congrats on last treatment.  Me too.  I guess it's not really over until the SE stop, but It feels so good to say it.  Done, Done, Done. Done.  Well still 5 years of Arimidex but I'm hoping that's a lot easier than this.

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  • lwarstler
    lwarstler Member Posts: 341
    edited November 2011

    Yay Bluejay, Terry and Kimberly...I am so excited for you! I count mine by when the SE's stop too, but it must be so nice to know that when they end this time it will be over. 

    RAE: my daughter and son have accused me of being bi-polar the last 2 weeks. Hang in there, I know what you mean about new SE's. Chemopause is in full swing and the new SE's with the old have me convinced most times that I am going to die! I just keep reading as each of our friends finishes or gets close and reallize that the end will come. Like you though, I cry for a couple days leading up to the next one terrified of what is next.

    Anyone who went through menopause or chemopause and has suggestions for these crazy hot flashes they want to share...I would more than welcome it! 

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  • bluejay58
    bluejay58 Member Posts: 62
    edited November 2011

    THANK YOU, belleeast, Kimberly, and lwarstler!

    Belleeast, I hope your BRCA test comes back negative! <3

    Kimberly, god yes the side effects.  My brain is not braining at all tonight -- there's just empty space up there.

    lwarstler, I'm in menopause (I'm 53) AND chemopause.  I was having ferocious hot flashes last week -- they haven't made themselves known today and I hope they stay away.  As a matter of fact, my internal thermostat has been out of whack most of November -- usually I'm freezing and have to pile extra robes and blankets on the bed while my husband sleeps in boxers and a t-shirt (TMI?)  I wish I had an answer for you.  I just end up fanning myself with whatever's handy.  :)

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  • Jerseylicious
    Jerseylicious Member Posts: 44
    edited November 2011

    Bluejay, Yay for you! This time tomorrow I will be in the same boat as you. My last TC is tomorrow at 10 am.  And as much as I HATE knowing the SE are coming, I would gladly crawl at 4 in the morning on my hands and knees to the chemo spa to get my last treatment...just so this freaking nightmare can be closer to over.  Rads start in Dec for me too.

    To all who still have more treatments to come...know that the end DOES eventually come:) I love all you guys!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited November 2011

    I am so happy for all who are finishing or done...wow and to think we just began to be chemosabes in sept--stole your word Jersey!!  I am getting #5 as we speak..the A part is done just getting the cytoxin infusion.  Scared for the next few days but happy to only have 3 more...better than halfway and glad I did dose dense.  I start rads in late Jan when chemo done.  Horray for US!

    Maggie

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Jersey- Way to go, I have my last treament tomorrow morning at 10 AM............. for those of us finishing up Im so proud of all of us, to those who are not far behind us You's can do it, we all can....... We are WARRIORS...... and we SHINE   Love you all ladies, we have and will make it through this journey to the Home safe line TOGETHER <3 

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  • bluejay58
    bluejay58 Member Posts: 62
    edited November 2011

    Thank you, Jerseylicious!  And Maggie, YAY FOR BETTER THAN HALFWAY.  :D

    Meanwhile on my end, I think that not only has my brain stopped braining, it has fallen onto the floor and is rolling off into a corner.  Plus I just had a #%&@ hot flash.  Gah.

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Arghhhhhhhhhhhhh me too but mine is because of the steroids I had to start today.... as for the brain I lost that 4 treatments ago and its never been found. LOL

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  • lwarstler
    lwarstler Member Posts: 341
    edited November 2011

    LOL...thank you ladies for the laugh...and although I am sorry you are dealing with these #%&@ hotflashes too...I'm glad I'm not alone!

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  • RaeBob
    RaeBob Member Posts: 79
    edited November 2011

    My friend came by tonight to visit and brought me a little doll called the Dammit Doll. I think the word is out that I need something to take my frustration out on and they are taking pity on my family. The little poem that goes along with the doll goes like this:



    Whenever things don't go so well,

    And you want to hit the wall and yell,

    Here's a little dammit doll,

    That you can't do without,

    Just grasp it firm by the legs

    And find a place to slam it

    And as you whack the stuffing out

    Yell "Dammit! Dammit! Dammit!"



    What a great gift if you need one you can get them online. I have already put mine to good use.

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  • Rockym
    Rockym Member Posts: 1,261
    edited November 2011

    Kimberly1961, thanks for all the great information regarding dosing of TC.  I have a feeling you were right in that MO was playing it safe.  I called MO office yesterday and let them know that SEs were pretty nasty this time and asked what their plans were for the last TC tx.  MO said that I was now at my maximum dose so I can count on no increase for treatment on Monday.  Yay!

    Sara, hope your sleep has been better.  You'll have to let us know what you find out about dosages.  Someone sent me this link to a Body Surface Area calculator that is similar to Kimberly's, but it has some additional information.  I never knew anything about BSA until the two ladies here pointed me in this direction.  This calculator tells you your percentages for your weight combined with your height, both for your age and in general.  It was also informative for me to check my kid's proportions.

    http://www.halls.md/body-surface-area/bsa.htm

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  • Rockym
    Rockym Member Posts: 1,261
    edited November 2011

    TO THOSE WHO FINISHED:

    Bluejay, Kimberly, Terry and Jersey

    CONGRATULATIONS!

    Come Monday I'll be right there with you. RADS a coming soon and then hormonal meds and then... moving on!

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  • mags20487
    mags20487 Member Posts: 1,591
    edited November 2011

    had #5 yesterday...the new meds  AC for me.  So far so good...taking the zofran for nausea and just have no appetite today but no nausea.    3 more to go!!

     Raebob love the dammit doll!

    Maggie

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  • PinkShirtNow
    PinkShirtNow Member Posts: 134
    edited November 2011

     I gotta get myself one of those Dammit Dolls!

     Maggie - I'm glad to hear that all is well so far after your first AC.  I am a few weeks behind you.  I have my last taxol on Monday and then I start AC in December.  The thought scares me more than I care to admit.  

     Congrats to all of you who are winding up your chemo treatments!  I am so happy for you!  It gives me hope to see that we can all get through this.  I may be the last one in the is forum at the end of January when I finally finish.  I will celebrate and them move to the "waiting for surgery" threads since I am doing chemo before surgery.  

    Time to drag myself upstairs to take my shower.  It is amazing how much effort that can take! 

    Big hugs to everyone!

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    Just got home from LAST treatment, Picc line is OUT, woohoooo... Feeling great, neulasta tomorrow at noon, then the joint pain for 10 days and In good... I did it ladies, and so can all of you. Huge hugs to you all xx

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  • cooka
    cooka Member Posts: 278
    edited November 2011

    WooHoo Terry!! Way to hang tough, with a Picc line no less. You must be soo glad to have that contraption out.  I am right behind you and the others tomorrow if all goes as planned. Like Jersey, I will crawl in there on hands and knees if I need to to get this shtuff over with! for those who are halfway there or have a ways to go we will still be here checking in and standing by if you need us until all the September crew has crossed the finish line:)

    Rae- don't pulverize your Dammit Doll too quick, need to make that baby last;) 

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  • belleeast
    belleeast Member Posts: 653
    edited November 2011

    gosh dang it, it has been a crappy day, i am so tired of it all!

    myraid labs lost my permission slip so have to wait another frigging 2 wks for results.

    i have thrush so another pill added to mix.

    have to do c diff test because of diarreha.

    my wbc is 2.2 and i have a hometown xmas to go to and i'm going i don't care. i'm slightly anemic too.

    and to top it all off, i thought my last chemo was dec 20, i've been telling myself over and over,you'll be done by xmas. H*LL NO, it's JAN 3 RD. it was hard not to start crying right then and there, i was so upset! i am so TIRED of it all. I WANT,NO I NEED A DAMMIT DOLL!!!!

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  • Kimberly1961
    Kimberly1961 Member Posts: 407
    edited November 2011

    Maggie - Good luck with the AC.  Hope you make it through this next section without major nausea or side effects.

    Belle - Sorry for your awful day.  I hope you are able to make it to "hometown xmas." What is that by the way? 

    PinkShirt - You may end up being last, but you are getting the most specialized treatment and a lot of close follow up.  Hope that eases the pain a little. 

    Rae - Don't use up all your energy whacking on that doll.

    RJ - Are you okay?

    SCPMadi - How is your PICC line doing?  Any better?

    CONGRATULATIONS TERRY AND JERSEY!!!

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  • belleeast
    belleeast Member Posts: 653
    edited November 2011

    kimberly, my sister sue and her co-workers at city hall in a local town started it and have santa ,free pictures and treat bags for kids,local vendors, free drawings for donated items every 20 mins, 50/50 drawing,music, food etc. anyone can set up a table to sell stuff at no charge. lasts about 3 hrs. just always a good time!

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  • Terry71
    Terry71 Member Posts: 293
    edited November 2011

    CONGRATS to all of us who have finished, and To ll the ladies that are coming up to the finish line.... WE GOT THIS...... We will all get past it..... Hugs hugs to all of you for all your support through this journey, I thank you all from the bottom of my heart... xx

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