who has been diagnosed with both ILC & IDC

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LisaWade
LisaWade Member Posts: 61
edited June 2014 in High Risk for Breast Cancer

WOW I have always been different but to find out that I have ILC IDC and ILC in situ who would have ever thought! Nothing aboutme is ordinary I was told I could never have children and yet I have 3 beautiful daughters. I have been told I could not do a great many other thing but... I am me and so I did then all just to prove I could, but today I got my final path report and even I couldn't believe what it said 3 cancers... WTH??? anyone in my shoes or a story to tell PLEASE WEIGH IN! thanks <3 Lisa

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2011

    Lisa Wade - I had DCIS and IDC in the right breast, with 2 pos nodes, and ADH and ALH in the left "prophy" breast.  The hyperplasia (both kinds) and nodes were a post-op pathology surprise, none of it was picked up on MRI, mammography or US.  Is your "in situ" cancer LCIS?  You wouldn't have ILC in situ because it wouldn't be classified as invasive, would it?  I think this happens more often than we think, but it does make one feel like an overachiever, yes?

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  • BlueCowgirl
    BlueCowgirl Member Posts: 667
    edited November 2011

    I had both ILC and IDC...All in one breast though. Busy little bugger! My initial scans were suggestive of features of both, MX pathology confirmed it. Didn't change the treatment protocol at all for me. Lisa, neither my oncologist or my surgeon seemed especially concerned about this, do yours? Hoping the best for you :)

    I agree SpecialK, I bet this does happen more often than we think.

    -Another "overachiever" 

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  • dlb823
    dlb823 Member Posts: 9,430
    edited November 2011

    Another overachiever here!  My primary lesion was mixed IDC & ILC; plus 2 small ILC lesions; plus a tiny spot of tubular (which is a form of IDC); also had some ADH "suspiscious for DCIS & LCIS," and a positive node.  For me, I believe the major catalyst was HRT, but it was kind of shocking to realize that so many things were going haywire.    Deanna

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  • LisaWade
    LisaWade Member Posts: 61
    edited November 2011

    wow and I was afraid I was alone, my "bad breast had ILC and IDC and my "good breast" the one they didn't want to remove had as per my surgeron "ILC insitu" and  to have her smile today when she came to give me the results was wierd to say the least, she told me I made a good choice to have the BMX done even though she felt it was over kill and unnecessary... I have never been so please yet sad in my life.

    My next move is to have my histormectomy (excuse spelling please I've always been bad with that) then 5 yrs of tamoxifin

    FYI we just said goodbye to my aunt this weekend, she was so many things to me, but mostly she was just a wonderful person. she had bc that was fast spreading to her liver and 6 weeks after her 2nd diag we said goodbye love her dearly and will miss her always...

     Sorry I just wanted you  all to understand my mind set "I will beat this for her and I" and as she did I will fight til the end

    To all the over achivers we will kick BC's ass!

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  • bookgirl
    bookgirl Member Posts: 128
    edited November 2011

    Add me to the list IDC, ILC, LCIS in left breast. I guess since ILC can be hard to spot the IDC made it show up while still small. I felt lucky about that. The whole combined mess was treated as IDC. Take care!

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  • BlueCowgirl
    BlueCowgirl Member Posts: 667
    edited November 2011

    This makes me wonder if I should have gone for BMX instead of just lefty...Any insight as to whether this diagnosis warrants that? I am considering having the other removed when I have reconstruction...

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  • suzieq60
    suzieq60 Member Posts: 6,059
    edited November 2011

    I had ILC in the left one and IDC in the right one. Just did lupmectomies for now.

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited November 2011

    Big over achiever here too!  IDC, ILC, and DCIS all in left breast and after I had a Bilat-mast they also found pre-cancerous grouping in right breast too.  So having both removed was the right move for me.   

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  • BlueCowgirl
    BlueCowgirl Member Posts: 667
    edited November 2011

    Tammy, was that just a typo or was all that cancer on the left?

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  • Tg5471530
    Tg5471530 Member Posts: 111
    edited November 2011
    BlueCowgirl - Thanks for pointing that out.  I fixed my mistake.  All of the cancer was in the left breast and after the Bilat-mast they also found grouping in the right breast as well.
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  • LisaWade
    LisaWade Member Posts: 61
    edited November 2011
    Specialk I had to phone my dr's receptionist and get a lesson on what the heck I have and you are of course correct I now understand its LCIS the non invasive one sorry for my ignorance I misunderstood the doc - well stopped listening I think when she was explaining my results now I have another form of bc to research thank you for helping me out on that one. I am still very confused by all of this but I'm going to sit down and read up on all the different types now
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  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2011

    LisaWade - happy to help!  It is a lot to take in all at once, isn't it?  What kind of surgery did you end up having?

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  • LisaWade
    LisaWade Member Posts: 61
    edited November 2011

    I had a lumpectomy and SNB in June then because the margins weren't clean I had a BMX on October 17th the surgeon didnt want to remove both breasts originally but was very happy that I chose to when she got the path report back, she even smiled at me (this doc doesn't do that offen)

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  • nwest125
    nwest125 Member Posts: 240
    edited November 2011

    I had IDC and ILC in right side , found ILC during second surgery for clear margins, ended up with BMX.

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  • Trisha-Anne
    Trisha-Anne Member Posts: 2,112
    edited November 2011

    Hi Lisa

    I also had ILC and IDC in the same breast.  Yes - it was a shock for me too.  Breast surgeon and radiologist didn't seem too concerned though - it happens.  I also had a small amount DCIS and LCIS in the breast, but that's fairly normal too.

    Don't worry about it - at least it's been found and can be taken care of.

    Edited as I thought you were HER2+, but now see you aren't. :-)

    Trish

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