When a family member is not participating
I didn't know what else to title this, but...
Long story short, my brother and I have always been very close. He was very supportive at the beginning of my cancer diagnosis - calling all the time, sending gifts, invitations to visit, etc. Lately he has all but cut me out of his life, and despite the fact that our dad is terminally ill, he is basically ignoring my dad too. He says he "just can't handle it." So here I am, exhausted, taking care of myself and my dad, while my brother goes along his merry way.
In a weak moment my mom said she was upset by my brother's lack of participation, but for the most part, when I have tried to discuss it with my parents, I am labeled as being negative and mean. I can't get angry or stay angry at my dad, who is having brain issues, but I feel like I am doing so much for my parents, while being sick myself, and somehow, I am the terrible one? I think what it really is, is I am *here* for both of them to vent to, and my brother is not. He has talked about coming for Thanksgiving, and here's how it will go: "Oh boy, J. is visiting! His daughter is so perfect! We love J." But meanwhile, he's not the one who changes Dad's diapers and helps him with his PT and carries his wheelchair to the car and comes running when he rings his bedside bell in the middle of the night. And he's also not the one who gets any grief from parents, that would be me.
Anyone else dealt/dealing with a situation like this? I know that was a lot to read, but if you made it all the way through, I'd love to hear your thoughts...What I can do to make things better...
Comments
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I know this is lot less amusing than the walrus, but no one else here who wants to talk with me about their dysfunctional family or at least tell me I'm not (totally) crazy? Really?
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Ok that sounded *really* passive-agressive, sorry, but I'm right, right? The original post, I mean. I have a reason to be upset, right? Aaargh. Not expressing myself very well tonight
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Unfortunatly there probably is not anything you can do about your brothers behavior. He is in Denial.
Can you get home health to come in for your parents to help out and give you some down time?
Yes you do have reason to be upset. Call in a social worker and see what options there are for the care of your Father, it may be a hard thing to do, but it will be the right thing. Keep strong.
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Yay, a reply! Thank you Mommarch. We had a home health care aide come a few times after being misled to think insurance would cover it...but unfortunately it doesn't and is just too expensive. My mom and I trade off caring for my dad, with her doing more than I actually, but brother doing ZERO just pisses me off...And parents thinking I'm a bad person for being upset with him pisses me off too.
I probably, no, definitely, need to find a psychiatrist here (had one during early cancer treatment, but not since moving here temporarily to help out w dad). My mom and dad both certainly need counseling but are opposed to it. I have suggested family therapy a few times, and my mom says no, no, no...and the last time I mentioned it, she said, "You don't want to hear what I'd say about you." Nice, huh?
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I have two close family situations in which the one sibling is absent and the other does all the work, and then when the absent one does the LEAST tiny thing, the parents ooh and aah and make a huge fuss. In BOTH cases, it is very painful for the 'good' sibling. I can only share my love and support (I am close to both 'good' siblings) and listen to them. And btw, they sound exactly like what you wrote.
So no, you are not crazy at all. You are normal.BUT I also think your parents are normal too, in that they don't want to face how much their child (your brother) is letting them down, so they look away (denial) and then are so thrilled with the slightest positive word or action from him. No parent wants to face that their child is a disappointment.
Of course ALL this is exacerbated by the fact that you are going through a medical crisis yourself. I dont' know if ANYTHING is going to reach your brother. But I wonder if you did have a social worker involved in regard to your dad's care, and the social worker called a 'family meeting' and could talk to the both of you about what is needed, maybe he would be able to 'hear' that from an outsider. That's the only thing I can think of, other than, if it is too much for you, bring in some outside help (paid) to assist with your dad's care.
I am so sorry.
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Hi, I agree that you have a right to feel angry with your brother, but, and I say this with love, he is in total denial both for the fact that sooner rather than later he will lose his father and the possibility, in his eyes, of loosing his only sister. Now that is a wall that is very difficult to scale and most men don't have the wherewithal to do that so they cut themselves off. I know that doesn't help how you feel but it is an explanation of his actions. The easiest way to deal with anything is to pretend it's not there.
I understand that you are feeling used and abused and you also have to deal with your own illness and yes, perhaps a councilor would be of help for you all but if your mother is not up for it, there is not much you can do for her but for yourself you may find some solace in talking and getting it out of your system.
Is there any other extended family that could perhaps help? or even a church group that could lend a hand is some small way to aide the running of your home so leaving your mom and yourself time to breathe and do for your dad.
I sure hope things get better for you.
Love n hugs. Chrissy
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Agree with Chrissy B. You don't see many men at support groups! But, it's no excuse for his behavior. I have many friends who've been through this type of issue with bearing the brunt of care for one or both elderly parents.
But, I think most of us have been let down by a friend or loved one after the "c" diagnosis. It's something we certainly do not expect. I was very resentful. The problem is that it's not healthy for us and WE are the one's who suffer in silence. In my case, I called my family member out on it. I said my peace and I feel better. However, nothing changed. So, I had to come to the realization that the family member is NEVER going to meet my needs or expectations and I've had to let it go. It's so hard.
On the up side, people whom I never expected came out of the woodwork to help. So, I
guess it's just a tribute to humanity. There have been some positives to come out of it. -
Thank you Amy, Chrissy, and Patriotic. Reading all the posts here has really helped. And Patriotic, I have thought more than once, the big C really shows you who your friends are. Thankfully my closest friends other than my brother have been incredible, and a few people who I wasn't especially close to before my diagnosis have really been an amazing source of support. So thanks too for reminding me of that. I have many people in my life to be thankful for...
I know I need to try and forgive my brother, but I'm really good at holding a grudge...And *not* a good time to call him out on it...it would be very upsetting for my dad, who would inevitably be drawn into the fallout.
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Blue, trying to forgive your brother may be very difficult but in the long run by doing this, you are going to put your mind at ease. He on the other hand is going to have to live with the guilt of his neglect. I would much rather a mind at peace that one burdened with guilt.
Love n hugs. Chrissy
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No I have not dealt with this but my brother has always been, well, my older brother. I tried to look into this, and although it's no excuse, I have found a few things. 1) Men are not traditionally caregivers and are not sure how to act. 2) When men try to help, they often don't have the support system that women do, " Hey friend, I am so overwhelmed, can I talk to you about this and can you help me with some things?" 3) They are afraid of being so in pain and losing someone so they withdraw. I don't know if these things are true, but I think that men should ask for help the way women do, and ask other people for help with caring for people, It may be the way we are raised, I am not excusing anyone. It's just something I read. My brother is OK, and said for the first time in my life that he loved me after my diagnosis, but he is one strange bird. I am so sorry you are going through this, I've had so many different reactions. The longer things go on, the less the "drop outs" hurt and the more grateful I am for those who stuck by me. I know it's painful and I hope that you get the support you deserve. My brother didn't help when my Mom was ill either, but I don't think that he would have been much help, I don't think he knew how to help, I know it's stinks.
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My two cents:
Accept that your brother is the way he is. You are just going to drive yourself crazy thinking about him and what he is or is not doing.
Accept that your parents love you and him. They don't want to hear anything negative from you even if it is true.
Help your father because you want to, and don't think about how much your brother is or is not doing for him. My brother was in denial about my Dad dying. I saw more of the nitty gritty, but I also got some good quality time with my Dad. I remember how he appreciated my visits at the end. I cherish that memory and the time I spent wondering why my brother never visited has faded into the past.
Remember to take care of yourself first. FIRST. Try to take breaks from caring for others to care for yourself. Turn to people who are supportive. Sounds like these will not be your family members. Friends can be the BEST!
I wish you the best and hope this might help.
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will your dads plan cover hospice or pallitive care? maybe worth contacting a social worker to see what your dad is entitled to,ordoes his insurance co. have navigators that can help?
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Maybe you could try talking to your brother. Something like "You can't handle being around ill people, but I can't handle you not being able to be around me. I want you here!". Better to start there than in the "Here I am taking all the shit and you do nothing" end, even if that one may feel more to the point for you. If you get him "online" with you, maybe he can start seeing what all the family needs?
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Oh boy, do I EVER know what you're going through!!! When my Dad was dying of lung cancer, my little bro and I were the only ones in driving distance (1 hour). The older bro and sis were on the other coast. So I dropped in to see my Dad once a week sporadically as I was on the road selling flooring and never knew where I'd be from one day to the next. My little bro got caught DUI and didn't have his car for the last 3 months of my Dad's life! So I'd be at my Dads with the treats I'd brought to stimulate his appetite and I'd have to listen to an hour of him being angry at my bro. We weren't allowed to tell my dad WHY my bro couldn't come so it was very hard. I went to every surgery and tried to be there as much as I could. What did I get? My dad introducing me to his hospice nurse as his daughter "The Mouth" and him telling me to go into another room because I had "too much energy coming off me". So much for healing vibes, eh?
So my sister flies in at the end (10 days before he dies) and the world is right again!!! SHE handled my Dad's death with grace!!! She got gifted with a valuable antique from my step-mother's mom for being there for my Dad. WTF?????
So, yep, I've walked where you're walking now. What did I learn? No matter what I do or don't do, the reality will be different to everyone that was around me. So don't knock yourself out trying to get your bro involved and back off your Dad if you need to. After your Mom's comment (mine was worse and told me she never loved me!) I'd back off support on her, too. Let them see what it's like to be alone. Sounds vicious? Nope. You have to think of YOU right now and take care of YOU. It won't matter when he passes...trust me.
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Barbe, that's so sad and rings such a bell with me. When my brother comes to visit - he is only a few hours away - you can be sure than my mom will be talking about it for days, preparing his favorite foods, making plans to go somewhere special, etc. YES, the "world is right again" is how it will feel. I can so totally relate.
Thanks everyone for your comments and PMs. I can't decide now whether I need a kick in the pants, a confrontation, or forgiveness in my heart, all of which have been suggested. Oh well, at least you've shown me some options, whereas before I felt like I had none
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BluCowgirl, no matter what you say to your mother about your brother, she won't acknowledge his neglect because it is too painful.
I suggest you talk to him about this - ONCE. More than that will be useless, either he'll hear or he won't. Tell him how hurt you are, tell him how physically draining it is for you and your mother. And the most important thing - tell him you're worried about him because if he can't deal with this situation now how will he deal with the future, when your dad is gone? How will he face himself in the mirror with the guilt at his neglect? If that doesn't change things, nothing will. When you talk to him, make sure you have privacy (away from your parents). This really isn't about them but about you and your brother.
After that you'll have to decide what you want to do about your relationship with him.
I wish you the best.
Leah
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Hi BlueCowgirl - Unfortunately, in our society, I think a lot of people still feel that it is more the role of daughters to look after aging parents and let the sons more or less off the hook which isn't fair. This happened to me and I see it with my friends as well. Women feel obligated, while men feel it's optional.
It is stressful and builds up resentment against our brothers. For the sake of your own mental and physical well-being, I think it would be good to at least try to talk to both your brother and your mother about this situation. Tell your brother that it is too much for you and he needs to shoulder some of the burden, then tell him specifically the amount of time that he needs to provide help e.g. two days a week, either personally or pay for someone to come in. If after that you don't get any help from him then contact outside resources, e.g. social services, neighbours or the church. Your parents' family doctor may be able to provide some contacts.
I would tell your mother that what she is saying is hurtful to you and makes you feel as if she doesn't love you. I'm sure she loves you deeply and is just lashing out in her worry about the health of you and your father. No doubt she is hurt by your brother's lack of support, but is afraid of alienating him and possibly losing contact with him and her granddaughter.
The bottom line is that you need some help and if your brother isn't going to do it, you need to find it elsewhere.
All the best to you.
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Spent all day taking care of Dad while Mom did some errands and enjoyed some "alone" time. She just got home, a family friend dropped by to visit, and the main topic of conversation was how excited they both are that brother is coming for Thanksgiving. WTF.
I know you are all right - it's not even so much the *help* that is needed, an occasional phone call would be nice, maybe a card, just a visit every once in a while. Brother's job is remote-internet work, so technically he can work *anywhere*. His wife is a stay-at-home mom, so it's not like his kid would be left alone. I left behind a business, a boyfriend, all my close friends, to come back east for better medical care for myself - then went to parents' because of Dad's diagnosis, leaving Dana-Farber to go to a small local hospital because I thought helping with my dad and getting to spend time with him was more important than getting the best care for myself I could find. Maybe now I am just resentful...but I really don't think I would be resentful at all if my brother was visiting regularly and my mom had more appreciation for my being here...
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BlueCowgirl, these sibling dynamics with elderly parents can really suck. I didn't respond to your post until now because the issues hit too close to home.
So many of us at this age have parents with health problems. Combine that with unresolved sibling conflict (I think it's residual sibling rivalry in my family), and the tension can poison any attempt to work things out.
I realized that I was carrying way too much resentment, and it affected the way I interacted with other family members. The time I did spend with my elderly parents was filled with tension and harsh words, coming from all directions. My mom, like yours, tended to overlook bad behavior from one child, lavishing praise on him/her, and scold the other one for not being "sympathetic" to the first child's misfortunes. In our case, both "children" were in their mid-50's.
I thought seriously about going to a counselor to try to figure out how to cope with what was going on before it was too late. I missed my chance -- my mom died this past year. I did find a book that was helpful at the time. It's called "They're Your Parents, Too!: How Siblings Can Survive Their Parents' Aging Without Driving Each Other Crazy" --http://www.amazon.com/Theyre-Your-Parents-Too-Siblings/dp/0553806998
I didn't find a definitive "cure" in that book, but it was refreshing to read stories about other adult children who were having the same problems. There were plenty of suggestions, and some reassurance that things would either be okay or I would survive anyway. As I wrote this post, I discovered that the author of that book has a website on the topic: http://www.yourparentstoo.com/
Obviously, I don't have a solution to the problem. Even though my mom has passed away, my sibling and I still battle regularly about everything my mom left behind -- including, sadly, my dad, who has advanced dementia and is in a nursing home. <sigh>
otter
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This is a common family drama..... I had years of "walk on water" brothers for two generations. and, then I left moving across country.
Are you being treated for breast cancer now - i.e. getting chemo or radiation? If so, then now is when you back off. If it is just your Mom, she will figure out a way to cover your shifts. Just tell them you will be by x times a week to visit.
However, if your mom is rude, I would not take that. A simple "I am sorry, are you talking to me?" indicator should be in order. And if you have to do consequences - such as "I will leave if you talk to me like that" then do it.
It sounds like your dad is in tough shape. If you look ahead 10 months or 10 years, where will you be and more importantly what type of relationship do you want to have with your brother and mother?
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Bluecowgirl: I'll try not to go on for ages, let me just say BTDT.
Dad died in 2004 after a one year struggle. My sister "L" was there for him. I am 1 1/2 hrs away and did all I could do, which, in restrospect, was not enough. Just maybe every other weekend. Neither sister nor I were ill. Both are parents of children under 10 (at the time). She just lived 15 minutes from him, I lived 1/5 hrs. She never asked for help. He had a wife and some outside help. In retrospect, I should have offered. We have 4 other siblings, none of whom helped AT ALL. We all live w/in 2 hrs of Dad.
Mom fell, stroked and was hospitalized in Oct 2010. The hospital was literally across the parking lot from my husband's workplace. He visited her every single day from the day she entered that hospital until the day we brought her home to die on hospice, 12/28/2010. He watched the sign in sheets and was stunned, disappointed, and angry that none of my siblings visited more than 2-3 times in the 2 months she was there. I was there about 3-4 x week. It was 30 minute drive for me from home, 15 from work, so I made the time, even if only for a 5 minute visit. Again, all siblings w/in a 2 hr drive. Sad. I handled all the legal, insurance, care decisions, etc.. I had her power of attorney and was her medical power of attorney as well. I had to make those hard decisions, even after having her direction.
Once she came home on hospice, it was 24/7 care by me, my husband, and sister "K", with the daily and weekly RN and CNA visits from hospice. She passed on 1/10/2011, while I was out of town on a business trip (oh the guilt of THAT).
I carried the disappointment, resentment, anger, etc... for quite awhile after her death. Up to and including when I travelled to Texas, by car, to scatter her ashes on the family property in July. I handled her estate. I handled it all...... Yeah, I had some strong resentment. Right up until siblings asked when they would get the $$ from her estate. (There was a whopping $1,200 in her accounts). I finally grew a backbone and let out my resentment in one short statement. "THERE IS NO MONEY. I used what was left to help pay for her disposal...I want you to know it cost over $3,000, but that $1,200 sure helped. NO YOU DO NOT GET "your" lousy $200." (There were 6 kids).
Having made that statement, fortunately only twice, I felt so much better and was able to let my resentment and other negative feelings go.
The point of my long story here is....perhaps you need to make one, well planned, strong statement of how you are feeling to each your brother and your mother. Then let it go. You are going to do what you choose to do. You choose to be there for your father, and God bless you for that. It IS a choice, after all. But, just because it was your choice, does not mean you are not allowed to have some raw feelings. Have them. Express them. But, do not let them destroy you.
I want to send you big ol' internet ((((((HUGS))))) because, it sounds like you need them.
I miss my mommy. At times I really wish she was here to help me through my struggle. On the other hand, it would have killed her to see me go through this. So........
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Although I think it is deplorable when I hear there are some members of families who fail to step up when needed (and the males are particularly more likely to be neglectful like this,) I just wanted to comment to you and anyone who is/was the main caregiving sibling:
You just cannot expect it to be fair (because how often does that happen in the rest of life?) Also, however much caregiving you do, don't hold it up as a yardstick to measure others against. YOU are choosing how much time and effort you want to devote to caregiving based on what your own loving heart tells you is right. Wouldn't you do this regardless of getting a thank-you in return, just because of your own sense of duty? (I'm not saying that getting a thank-you isn't nice, or should not be given.) I am saying be the person you are and let it go at that because there is no forcing it to be otherwise, no forcing others to behave better. You are a good daughter. If you get into a comparing and judgemental thing with siblings, that is the type thing that harms and destroys relationships with them. Almost as bad as the proverbial squabbling over the inheiritance.
I agree with what pebee said, you don't have to take on the extra burden of rudeness. I can understand your parents needing to vent the stress of it all, but that should not be directed at you. You are stressing too, so make sure to get out and take a break when you start to feel like tearing their heads off. Make sure not to neglect yourself or overdo it. Maybe you have some friends or a community organization that could give you some back up? Also, why not try to ask your brother for help in very specific ways. What ever you need, but spell it out for him. You know men need that.
Wishing you a continued recovery from your own B/C, and the coping skills needed to deal with the family situation.
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Has this been suggested? Ask them for monetary help. Even a half-day cleaner. A nurse for three hours, etc.
I don't quite agree with the "you are choosing" line. You think - and I expect a lot of us think - that it would be wrong for you not to help. That really limits one's choices when all the alternatives are immoral ones. We live in a rude and cruel world, but I don't think I choose to not be rude and cruel. There's a real sense in which decent people can't just opt out. -
Bluecowgirl-
This is not unusual. Most important...take care of yourself. Does not matter why people are they way they are around illness. What matters is YOU and that you take care of YOURSELF first. Anything else will lead to pain you don't need. Be gentle and kind...to yourself...that is what you should do. Focus off of them and on you..xo
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Tarry, I don't know that her brother is immoral, selfish maybe.
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Thanks everyone for your input. I have taken it all to heart and am feeling much less resentful.
I just wish this weren't all happening now. Brother and I are in our 30's, dad is in his 60's, neither this - nor having cancer myself - were things I expected to deal with until later in my life. You know, after I got married and had kids and a nice nest egg. I know that some folks have it a lot harder than I do...I mean, I'm not *that* young, I have a place to live and food to eat, I have health insurance, and I have great friends. I have mostly great family. I think I just need to stop whining, count the blessings for what I *do* have, and enjoy the gift of time with my dad.
So thanks again for helping me pull my head out of my ass. I needed that.
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You go girl
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I think people behave exactly the way they are supposed to...sometimes they surprise us, but most of the time not. You can beat your head against the wall trying to talk sense into them, or trying to shame them into doing something and they just don't get it...must be written in their DNA.
I made a decision a long time ago to let go of my emotions towards people like that...family or otherwise. They don't give a sh*# and you end up driving yourself nuts. If I really want to get it off my chest, I write them a letter telling them just what I think of them! You can deliver the letter, put it away to be read after your death, or throw it away. I've done all of the above, but I feel a lot better after I've done it. My most recent letter was to my ex who walked away years ago and never looked back, leaving me to raise 4 kids with no support from him. Then he had the nerve to show up at our son's wedding and brag about how great his "new" family was. Good thing I wasn't in possession of a weapon that evening! He better hope he predeceases me, because he sure isn't going to like my letter when he gets it...lol. The best part is he won't be able to call and yell at me about it:)
Life is short...don't sweat the small stuff.
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I think Blue, that you will come out of this with feelings of peace and gratitude...... If you can just handle this each day, without letting them get to you....Without a lot of feelings of blame and resentment.
I somehow wound up taking care of my step Grandma.... For years, she was the crankiest, little old woman on this earth... And the whole family avoided her as much as possible....I did too! But she had a heart attack, and her world came crashing down.... So I was there for her, in the hospital, then moving her to an Assisted living place a block from my house.... She just kept getting worse every day...losing her mind. Forgot she had a Son, (My Dad) Forgot she had a home, and a little dog I was taking care of. Dementia had ahold of her, and it took her mind, and every memory.
I cried every day I left her...I was the only one she knew....no-one else cared! I had to move her to a nursing home, then another, and finally one more.... For 3 years she was like "my little girl." I hated that no-one else cared...that I was all alone in this! But she was "mine" and I was always there for her...every day... We had picnics, I even danced with her once when a piano player was there at the home....I pushed her around the gardens, I sang to her, and after awhile, she just didn't even know I was there. I made sure the nurses kept leg-warmers on her, lots of blankets, & my visits were just me laying there on her bed talking to her while she "slept"....
No-one helped me.... And yes, I felt hurt for her, that her step-son, my DAD was never there for her..... But I guess he had his reasons. This was about 15 years ago, and I still think about the time I had with her...& how much she meant to me. That is all that matters. No-one else.
So "fix" what you can, & take care of yourself....You are the only one that matters....Make it easier on yourself. What is.....IS! We can't make people do what we want, or feel like we want them to.
Take good care......
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Hi, it sounds really tough for you. We're a family of 4 sisters and 1 of them certainly does'nt participate. We've tried to make excuses and think of reasons but always get back to her being selfish. I guess the only thing you can change is how you react but its always gonna hurt your feelings. You will keep on doing the right thing and thats all you can do x x x
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