BRCA 1 AND BRCA 2 mutations, I have both? Anyone else?

Options
Youwearpink
Youwearpink Member Posts: 87
edited June 2014 in High Risk of Recurrence or Second Breast Cancer
BRCA 1 AND BRCA 2 mutations, I have both? Anyone else?
· Share on FacebookShare on Twitter

Comments

  • Youwearpink
    Youwearpink Member Posts: 87
    edited March 2008

    Hello All,

    I am wondering if anyone else out there has both BRCA 1 & 2 mutations?  I have not met anyone or spoke to anyone with the same. Are you out there and R u okay?

    · Share on FacebookShare on Twitter
  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    Hey Ladies,

    I check this strand daily hoping for someone to respond. Anyone out there with some good news or positive stories???????????????

    · Share on FacebookShare on Twitter
  • roxy42
    roxy42 Member Posts: 495
    edited April 2008

    Yes I do.Well I should say that my dr thinks I do because i have another mutation gene p53 and if you have that chances are you have the BRCA 1 and 2.I'm In the high risk group because how large the tumor was 3cm and 1 node positive,and because of that mutation.Its been along 9 months of treatment.I have had 6 months of kemo 6 weeks of radiation 2 lumpectomy and a week ago I had a full historectomy because my cancer was ER/PR positive her2 negative.I hope and pray that the historectomy worked and it keeps me from having a reacurance.My Dr for the first time is being positive about my chances.Its a scary thing to have BC but to have the mutations it makes it more stressfull.I'm positive that all will be ok I'm a strong beleaver in the power of prayer.God has got me through every step of the way.Godbless roxy

    · Share on FacebookShare on Twitter
  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    Hello Roxy,

    Thank you for your response. I really appreciate.I had a hysterectomy too. I am HR/PR negative. I just did it to avoid ovarian cancer.I am tri neg. I am 5 1/2 years out. I am very fortunate! I remember when I was first diagnosed I was asking God to let me see my daughter enter kindergarten, ...She is in 3rd now.  Wow, I am fortunate and I plan on seeing my grandbabies in kindergarten.  I am always looking over my shoulder. Nervous about what my funky genes are going to stir up next. Thank you again for your response. I wish you the best recovery! Godbless you too!

    Stacy

    · Share on FacebookShare on Twitter
  • veggievet
    veggievet Member Posts: 72
    edited April 2008

    Dear Stacy,

    We have had several women with both mutations on the FORCE website.  You might also post there (http://www.facingourrisk.org) .  The website is devoted to people with hereditary breast or ovarian cancer or a BRCA mutation.

    I have a BRCA 2 mutation myself.

    Hugs and love,

    Sue

    · Share on FacebookShare on Twitter
  • Hannahbanana
    Hannahbanana Member Posts: 170
    edited April 2008

    I am waiting for my test result to come back.  I keep wondering if I did the right thing in being tested but my mother passed away from ovarian cancer at 56 and I have an aunt with bc.  I have had a mastectomy on my right breast after dx of dcis and my surgeon brought up the test from my history and being 44.

    Did you have a hysterectomy by choice because of a positive test?

    · Share on FacebookShare on Twitter
  • Youwearpink
    Youwearpink Member Posts: 87
    edited April 2008

    Hello,

    I did have a hysterectomy because of the results, I also already had cancer twice at the age of 26.  I am planning a left mastec this summer. Already had the rt. when diagnosed,

    · Share on FacebookShare on Twitter
  • Poogle
    Poogle Member Posts: 4
    edited November 2011

    I am positive for BRCA 1 and BRCA 2, thanks to my dad (BRCA 1) and my mom (BRCA 2).  I had a proph ooph at 40, dx with BC at 41 (IDC) underwent chemo and lumpectomy and have been clear for 8 years.  I have a mamo and MRI each year and for about 3 years, had CAT and PET scans regularly.

    · Share on FacebookShare on Twitter

Categories