I did ask my DH what HIS opinion was regarding the SC, I waited a couple of days so the heat of the moment did not taint his response. He said, "it literally took about 20 years off". I sat for a minute and then said "really, you are not just saying that to get more tonight?". He said, "seriously, it was like you were 20 years younger down there".



OK, going to blush off into my corner. Felt you all had a right to know.

Wish I had an update   The pharmacy keeps sending a fax approval for lidocaine cream.  I gave them a written prescription for that cream.  I NEED THE SCREAM CREAM!  I can't get my oncologists office and the pharmacy together on this!  The pharmacy keeps telling me they are trying to get approval on scream cream.  The oncologist office keeps telling me they are sending approval for lidocaine!

I am ready for action but can't get the stuff I need

So I have no idea where there are compounding pharmacies in Israel. We have socialized medicine here through HMOs and they also have pharmacies, so I get all my prescriptions that way. There are regular (private) pharmacies also but I don't know if they're compounding ones or not (they're the Rexall, Shopper's Drug Mart type). I'll have to look into this.

My onc is very kind, compassionate, and easy to talk with. So when I get up the nerve to ask for Scream Cream I will have no problem going to my (female) gyn.

I haven't told my dh yet about the existance of Scream Cream. Hey! Just had a good idea! Let him deal with getting it from the pharmacy!

Leah

Now that I have had to talk to no less than 5 people to get this issue resolved between the oncologist and the pharmacy - I don't have a problem calling it scream cream.  The first 2 people I talked to - well let's just say I was so embarrassed - I wish they would come up with another name for it!

Jelson, there may be an issue with the DHEA because of the hormonal components (especially for those with ER+ cancer). I would also be wary of the steroid components. (check the full list of components on search or Wiki.)



I do not use the lidocaine ointment. The SC does not really provide a totally topical experience, but it seems to "kick start" what used to be a natural reaction for me.



Scream Cream contains a combination of prescription and non-prescription components described as blood flow enhancers and vasodilators.  Each ½ gram dose contains Aminophylline 15-mg., Isosorbid dinitrate 1.25-mg, Ergoloid mesylate 0.25-mg, Pentoxifylline 25-mg. and L-Arginine 30-mg. Dissolved in a water based hypoallergenic transdermal vehicle.  



A pharmacy will not carry this product. You need to find a "compounding pharmacy" with a knowledgable pharmacist who will be willing to order the ingredients and make the compound. I printed the PDF and gave it to both the onc and the pharmacist. The only one locally was a small "family" pharmacy that had been here for decades. (CVS, Walgreens, Costco etc. were all clueless). Or of course the mail order route, making sure the formula is followed with detail.

scuttlers - you are right, there are issues - although my Med Onc will just say NO - and not provide the reasons as you have.

Anyway,  that is what the clinical trial is for - I have cut and pasted the description of the study population they hope to recruit to test the DHEA. I'd volunteer if I lived in Iowa!!!

• Postmenopausal women with a history of breast or gynecologic cancer (currently no evidence of disease)

  • Postmenopausal status determined by the following criteria:

    • 12 months without a period or bilateral oophorectomy or complete chemical ovarian suppression for the past 12 months with continued suppression planned throughout the course of the study
    • FSH and an estradiol value in the postmenopausal range (generally FSH >40 IU/L and estradiol < 10 pg/mL, depending on laboratory) if 9 months without a period OR post hysterectomy with at least one ovary remaining and less than 55 years old
    • For age 55 or older, menopausal status does not need to be determined by laboratory exams
• Significant vaginal complaints defined as persistent vaginal dryness and/or pain with intercourse (dyspareunia) of sufficient severity to make a patient desire therapeutic intervention
• Eligibility questionnaire response must be moderate or worse levels of severity on one of the two symptoms, either dryness or dyspareunia
• Vaginal symptoms must have been present ≥ 2 months prior to randomization

For me, the SC is not a lubricant but seems to get my body to lubricate itself. I was not pleased with the regular lube products and felt they were messy.



I do not get a topical "feeling" from the SC other than the first few seconds of application. It seems to kick start my body to a more natural experience. Has this been others experience?

Got the scream cream and it works!  Ok, didn't get the dh involved - used the toy because I didn't want to get dh all worked up and then make him quit since it has been so long.  For the first time I didn't feel pain. 

And....I will have to say the SC makes your body inside feel 20 years younger - not like a dried up menopausal woman.

I would love to go tell DH but he has been sick all evening as he got the flu shot today and has been hurting ever since.

I talked with my onc about the lidocaine and she said NO.  She said it too much could be absorbed in the lining and that my DH would be absorbing it as well, so not a good idea.  She did recommend a product called Pur Eros.  Anyone hear of this? 

Hi,  where do I find the compounding instructions for the pharmacy.  My doctor ok'd the scream cream but I need to find the ingredient's.

 Thank you,

Kodapants

You've probably already seen this information, but could be helpful . . .

 http://www.breastcancer.org/treatment/side_effects/vaginal_dry.jsp 

Thanks Scuttlers and LivingIt; we'll pass your suggestions along to the editorial team.

--The Mods

Hi everyone-

I know this was a Stage IV topic in the beginning, but everyone has jumped in, so I hope it's okay to be here.  I talked to my MD today about our "issue" and managed to show him the S.C. compound ingredient (although I'm sure my face was flaming RED).  He looked it over, said he had no problems with it, gave me a prescription, and off I went to the compounding pharmacy.  He said many women might be interested in this, so I shoud let him know how it goes.  It was "easy-peasy", and all my anxiety was over nothing.

Catbill

PS  He also gave me Metformin, too.

(edited for spelling)

Metformin is commonly used for Diabetes