auxillary web syndrome 1 yr after SNB

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Tg5471530
Tg5471530 Member Posts: 111
edited June 2014 in Lymphedema
(I will also put this on the hormonal therapy discussion board) I had AWS after SNB in May 2010, and again after my Bilat-mast in Oct 2010.  I did have PT to treat it till May 2011.  I had my tissue expanders out for implants in June 2011.  My AWS never fully went away but wasnt too bad till just about a month ago.  I started Aromatase inhibitors 2 months ago when (I think) this all started again.  I was on Arimidex and had such horrible SE's that I stopped it after 2 wks.  One SE was pain in my area where my lymph nodes were taken out.  I'm not sure if I had any new webbing/cording at this time.  Then my Med Onc put me on Aromasin.  After 1  wk I started having horrible joint, muscle. bone pain, weekness, and pain in my lymph node area again.  I also noticed that I have 3 new cords that hurt like crazy.  My dr thought that I might have a viral infection so she put me on Prednisone.  After 1 1/2 wk on it there is still no change in my cording/pains and SE's.  I'm not sure if this is from the AI's or something else.  I have done lots of searching on the internet and have found no answers.  Lupus keeps coming up when I put in my symptoms, possibly drug induced Lupus.  But have found any reasons why my cording would come back after over a year.  Has anyone else had this happen? 

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