Unusual Diagnosis

I've had some small flesh colored lesions on my left breast for several months. They have the texture of scar tissue. The first one appeared right next to a biopsy scar from 9 years ago. I wondered if scar tissue could spread. I had a mammogram in July which came back normal. My GP suggested I have my dermatologist look at the places on my breast. My dermatologist did a punch biopsy on one of the lesions. A week later she was stunned by the lab report: breast cancer. I have since been to Moffitt Cancer Center. A closer examiation of the original specimen showed that it was ILC; however, they have been unable to find anything actually in the breast. I have had two ultrasounds and an MRI. Still nothing. Today I had  a PEM. This is a very new device. There are only a few in my state and only one in my city. I was very fortunate to have access to one. If there is anything there the PEM will find it. It has been over a month since my original diagnosis and I still don't know what I am facing. The whole thing has been such a mystery. Has anyone had experience with ILC being diagnosed on the outside of the breast but then difficulty finding it inside the breast?

I would suggest to anyone reading this that if you see anything new on your skin particularly the skin of your breast, go immediately to your dermatologist. Have them biopsy it. I know as we age all sorts of weird things start appearing on our skin. These things on my breasts just seemed like another weird sign of aging. Also no one that saw the lesions (two GP's and the technician that did my annual mammogram) seemed too alarmed about them. They just told me to have my dermatologist look at them, which I wish I had done right away. Thinking these were no big deal, I waited until my annual dermatologist check-up. I wish I had gone in right away instead of waiting several months, almost a year. That was stupid, but I just didn't know. My deramtologist was as shocked as I was when she received the lab report saying it was breast cancer. She told me that in 27 years she had never seen anything like it. So please, if you see anything strange on your skin, particularly your breasts, get to a dermatologist right away. Get them to biopsy whatever it is. A punch biopsy is very simple and it could alert you to a hidden danger inside your breast.