Did your tumor(s) end up being bigger or small?

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TectonicShift
TectonicShift Member Posts: 752

So.... I've had my lumpectomy and SNB and am waiting for the path report. I have two tumors -- or maybe one bigger one -- they can't really tell from the U/S and MRI. It's either two tumors that measure approximately 2.6cm and 1.8cm, separated by about 7mm, or else it's one big tumor that's like 6cm. I'm hoping it's the former, not the latter.

Anyway, my BS said the U/S and the MRI (especially the MRI) tend to exaggerate the size of the tumor. She thinks it's actually two smaller tumors close together. My onc is less certain.

So my question to everyone is this: when your final path came in after surgery, were you pleasantly surprised to find your tumor(s) smaller than originally thought, dismayed to find it larger, or was it just about what had originally been predicted by U/S and MRI? 

Also, while I'm at it, my BS took only the one sentinel node. I guess that's the new thing now, to take as little as possible. Anybody else's surgeon do that? I kind of wish she had taken two or three. 

Thank you in advance. 

Comments

  • shadylady1
    shadylady1 Member Posts: 75
    edited November 2011

    Hi Posy!  They told me my tumor was 0.5 cm (this was after mammography and MRI).  It was actually 1.5 c.m.  My surgery was a week after my MRI.  I had a full axillary node dissection b/c they could see 3 positive lymph nodes.  I wouldn't worry about the size.  Just focus on the treatment.  You will get through this!  Emily

  • starbeauty
    starbeauty Member Posts: 327
    edited November 2011

    MRI showed a 7cm tumor with additional sites throughout and around the local site. I had a MX vs. Lumpectomy based on these findings. It was 2 cm. However, due to a single strand extending down toward the chest wall I would never have obtained clean margins... So the MX was best in the end.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    My tumor was about the same as they had anticipated. (1.4cm x 1 cm)

    My BS took 3 sentinel nodes. There was some reason why she took 3 instead of 1 and now I can't remember.  I'll have to ask her at my next appt.  I'm thinking it was because the dye traveled to all 3 nodes?

    I'll cross my fingers for a good path report for you! :) 

  • Miller1353
    Miller1353 Member Posts: 84
    edited November 2011

    My tumor was estimated at 6mm. It was 1.4cm, twice as big. I had 5 nodes taken at lumpectomy. I had unusual nodal anatomy. Go figure...

  • changes
    changes Member Posts: 622
    edited November 2011

    The ultrasound estimated the tumor at 1.4 cm, but it was actually only 1.1 cm. The surgeon only took one sentinel node - I think they take wherever the dye goes.

  • coraleliz
    coraleliz Member Posts: 1,523
    edited November 2011

    My 2 tumors were smaller on pathology than on US or MRI. The radiologist explained to me that the reason the measurements vary is that when you have a Mamogram you are standing up & the breast tissue lays(& is squished) one way. When you have an US you are laying on your back & the breast lays differently. During a MRI, you're laying on you stomach & this cause the breast to hang down. So I guess our tumors are pliable. I don't remember exactly but both my tumors were believed to be 2-3cm & my largest came back at 1.6cm. As far as how many nodes, the current thinking seems to be the fewer the better.

  • Rennasus
    Rennasus Member Posts: 1,267
    edited November 2011
    My tumor (3.2 cm) was a little bigger than they estimated. Three sentinel nodes took up the dye so BS removed them; they tested negative, but he went back and took 5 more. (He was being ultra-cautious.) Final path came back negative for all 8 nodes.
  • sundermom
    sundermom Member Posts: 463
    edited November 2011

    I had a PET prior to my BMX. The PET showed one lesion 2.3cm and no positive nodes. The actual tumor was 2.6cm and the first 2 nodes were positive. I've driven myself crazy worrying that the BC grew that quickly in the 3 weeks from my PET to the actual surgery. My onc assures me that this is not the case, but rather that surgical pathology is just more accurate than even the most complex imaging. As it's been said already on this thread, try not to worry about the size of the mass. The outcome of the nodes, grade, and presence of LVIV will direct your treatment plan.

  • Sandlake
    Sandlake Member Posts: 211
    edited November 2011

    Hi posy1... I had my lumpectomy and SNB on Oct 10th.  I only had the sentinel node removed and was negative.  My tumor was 2.5cm, surgeon said the tumor was larger then it appeared on U/S and MRI. I did get clean margins.  I had my port surgery today, start DD A/C on Nov 18th. 

    Waiting for results is hard, keep an optimistic outlook.  The support from all these wonderful ladies has kept me goingSmile 

  • michelleo13
    michelleo13 Member Posts: 342
    edited November 2011

    My U/S showed the tumour to be 3 cm but the final path report was only 1.6 cm. The tumour was attached to some non-cancerous tissue which made it appear larger than it really was.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2011

    posy - my tumor was very close to its estimated size on mammography, ultrasound and pre-surgical MRI.  As far as nodes, surgeons will take as many as dye travels to, or sometimes in the little pocket of fat there are nodes attached to each other, or close together.  So a SNB ends up being 1 or more than 1, depending on the situation.  My SNB (1 node) was initially negative in the OR, but post-op pathology showed a micromet.  I had a complete AND 5 weeks later which yielded a 6mm node out of 11 additional taken.  The current thinking is to have the fewest nodes removed, while still getting an accurate look at whether there is nodal spread.

  • otter
    otter Member Posts: 6,099
    edited November 2011

    posy, as you can see from the replies here, there's a lot of variability in the accuracy of size measurements from imaging.

    My tumor was never seen on mammograms, because my breast tissue was too dense.  It was estimated to be 1.6 cm in diameter on the ultrasound image.  I had a contrast breast MRI a few days later, and the tumor was clearly visible -- it was measured at 2.0 cm in diameter.  When they report those sizes, the number is the diameter "in greatest dimension," which means the lump itself won't be quite as big overall as you might think from the number they quote you.

    I had a mastectomy 3 weeks after my biopsy, and the pathologist reported that the whole tumor was 1.8 cm x 1.6 cm x 1.7 cm.  So, in my case, the estimates turned out to be pretty close.  My surgeon said the tumor was bigger than she thought it would be; but it was smaller than I had feared it would be.

    Before my surgery, she told me the average number of sentinel nodes she found and removed was 2 or 3.  My cancer center used a SNB method that involved injection of a radioactive material (technitium-99) prior to surgery, and injection of a blue dye in the operating room; and then removal of any nodes that were radioactive, blue, or both. I found out after surgery that she had taken out 3 nodes, all of which were negative for cancer cells.  I'm confident that if there had only been one node labeled with radioactive tracer and/or blue dye, she'd have removed just that one.

    Different surgeons have different protocols, though, as you can tell from these replies.  The best thing to do is just keep yourself distracted until you get the phone call.

    otter

  • peggy_j
    peggy_j Member Posts: 1,700
    edited November 2011

    My tumor came in smaller. It was hard to see (on the mammogram it was only visible from top view not from the side, so the US tech has fun trying to find it.) The original estimate was 7 or 8 mm and the final path said 5mm. The nurse educator said "well, it's nice to see they can turn out smaller" which made me think this is not very common (I know of two people whose tumors were larger). FWIW, I think this makes sense, because our diagnostic tools are limited. I agree, don't worry about the size. You'll get through this. Good luck!

  • mks16
    mks16 Member Posts: 415
    edited November 2011

    My tumour ended up only being half the estimated size, although it did have some DCIS attached, not sure if that played a role.

    In any case, from 3.5 cm estimated, it turned out to be 1.6 cm.

  • duckyb1
    duckyb1 Member Posts: 13,369
    edited November 2011

    My tumor was estimated from the US to be about 2cm.......................it ended up being 1.1cm................certainly good news...................and no node involvement.............rads and Femara...........doing fine so far.......................hugs

  • WaveWhisperer
    WaveWhisperer Member Posts: 898
    edited November 2011

    Posy, mine was estimated as 9 mm on the ultrasound, 1.3 cm on the biopsy and, after surgery, turned out to be 1.1 cm. So pretty close. 

  • bgud2me2
    bgud2me2 Member Posts: 28
    edited November 2011

    mks...did you have an oncotype test, and did you have to do chemo?  My tumor afer mri was 2.5, then after mx, it was on the report as 2.0, with dcis behind the main tumor. So as far as I know I just had one tumor and it was smaller than estimated.I still do not know the treatment plan.

  • dreaming
    dreaming Member Posts: 473
    edited November 2011

    They told it was small, the oncologist recommended only lumpectomy and no further treatment.

    I called my surgeon and told her I wanted a very aggressive treatment, I wanted a mastectomy and chemo, reluctantly she agreed.

    During my mastectomy they found a larger tumor, invasive that was different from the one on the excisio for my  biopsy.

    No tests showed it. I am a long term survivor.

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