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lionessdoe
lionessdoe Member Posts: 780
edited June 2014 in Lymphedema

Well my friends, it has been one helluva rooller coaster ride!

Came home one day from work and found my husband on the couch w/just foam at his mouth. Called 911 and damn near broke my bad arm trying to yank him awake, yelling out his name to arouse him. I got one eye half way open with a "non one home stare".

Turns out he took a whole bottle of my pain meds, was in cardiac care for three days. His liver died, his kidneys died and he gave himself a heart attack. Everything came back to normal and the doctor's were shocked he even lived. It's been a long haul since then. I've got PTSD real bad, nigtmares, afraid to leave him alone, in a constant state of hypervigilance and soooooooooo depressed. Anxiety has hit the roof !

Then as soon as I began to feel a little reprieve because his psychiatrist finally got him on a med coctail for his depression that seems to be working, my oldest son who wil be 34 on 11/11/11 ends up in ER with two "huge pulmonary embolisms". No known cause. Tested for Von Liedens Thrombophyllia and other Factor 5 clotting disorders. Negative on all. May be on coumadin for rest of his life. Praying for six month check up to let him know he's free of this awful medication. His psychiatrist is blaming his prozac. My son stopped it too suddenly and it does thin the blood. Scary part was they were about to discharge him telling him he was fine, until he insisted on a catscan for possible PE. Was hospitalized for 5 days.

My mother had Von Lieden's and was on it for 30 years. It saved her life but in the end it gave her bladder cancer (a known outcome).

Meanwhile, my employer handed me an HMO. My first PCP was just the most unpleasant person I had ever met and treated me like I was a bother becaue I had an HMO. Later I learned the hospital network she's in (I have twelve docotors in it) is trying to back out of this HMO. I have an appointmnet with my heart doctor, (referral only took 3 weeks) for follow up on radiation fried carotid artery. PCP wouldn't even give me my emergency antibiotics for my lymphedema. So I have to find another PCP in a different network and keep my fingers crossed I find a healer and not some greedy, careless witch. But I can't do that until December if I want my heart appt. paid for. Some great system, eh! Meanwhile, out of no where, I have developed bone pain in my hips and thighs. It literally hurts to walk and I am not on any BC meds that could cause this because of my adverse history.

I am just a wreck, seeing a pain mangement doctor, have tried every antidepressant in the book and ended up with life threatening adverse reactions.

Soooooooooooo I'm exhausted, I'm pissed, I feel terrified with this new health insurance and I also feel like my husband needed way more help than he ever got. I know what it's like to be a caregiver.......... and he and I both have had way too much of that role. There just isn't enough room in the world for my stress. But oh Yeah! I'm still working full time. Gotta bring home the bacon until we have enough saved to do some needed repairs on our retirememt home. Workin on it. But I am so dead ass tired when I come home. Some days the tears just leak out without my permission and it's difficult to get them to stop.

I want my life back and I can't have it. I want the pain to stop and I can't have it. Holidays approaching now brings dread rather than joy. Need to find some joy. 

Comments

  • DiDel
    DiDel Member Posts: 1,329
    edited November 2011

    Lionessdoe...I am so very sorry for everything you have been through and for what you will have to continue to deal with..just know that this is a good place to come vent and connect with people who understand you and will support you and listen to you.

    You certainly have been through the ringer and I feel like you need a little "me" time. I highly recommend acupunture for many things. I did it for joint pain, back pain, fatigue and to help me sleep. I loved it and am lucky to have a friend who is an acupuncturist who comes to my house and gives me 90 minute sessions. I could fall asleep it helps clear your mind and very relaxing. It wont solve all your problems but it could help you with your physical ailments and provide a tool to help you relax and have some time to yourself.

    Hang in there and know you have folks here who care and are here to talk any time you need it.

    Diane

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Doe, your post makes my heart ache for you. I wish . . I wish I could somehow help alleviate what you are experiencing. It just isn't fair. I would give you a big hug right now if you were here. Please take comfort in knowing that we all care and will listen to whatever you need to say. Wishing you peace, my friend.

  • BoobsinaBox
    BoobsinaBox Member Posts: 550
    edited November 2011

    Doe, I've been wondering about you lately, and I'm glad you wrote, but I'm so sorry for all the stress of your life.  Thinking of you and your husband and son.

    Dawn 

  • bingbing
    bingbing Member Posts: 82
    edited November 2011

    O my gosh, do you ever have a full plate. Sorry doesn't seem to go near far enough. A gentle hug and LOTS of prayers coming your way. Vent all you want--- this is a very good place and it just might make you feel a little bit better to get it all out. Will be thinking  and praying for you. Sharon

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited November 2011

    Doe:i was searching the active topics, and found you there.. i'm so glad you're back, i've seen you on other threads, and wondered where you were..I am sooo sorry for ALL you've been through, and i sure has been alot.!

      i just can't even imagine!!! ...AND; you're working full time thru it... hang in there, let your sister here give you support... all the best.. all the time.......3jaysmom

  • lionessdoe
    lionessdoe Member Posts: 780
    edited November 2011

    Geez ........... I miss you guys. Just have to make myself a priority and get here more often. Maybe trade in a half hour sleep here and there. I'm worth it and thanks for reminding me of that! You're all the best! Thank you!

  • Nordy
    Nordy Member Posts: 2,106
    edited November 2011

    Doe - I don't have any advice... just want to send you a million hugs and positive energy. You certainly have gone through so much and are still going through a lot. I do agree on the acupuncture thing - if you can get in - it really does help. Hang in there. ((((((((()))))))))

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