Worried about ovarian mets...

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  • mom2twins34
    mom2twins34 Member Posts: 185
    edited November 2011

    Thanks, everyone...  The surgery went well.  I ended up getting sick while in the hospital and haven't been able to shake this or the fever, so I'm really sorry it has taken so long to post an update.  

    The surgery was actually a bit confusing--he ended up taking one only ovary and one fallopian tube.  He called my husband during the surgery and said that he wasn't sure if he should take the other ovary/tube and the uterus during this surgery.  He said that he wanted to, but felt like he couldn't make that call because he was concerned about me going instantly from having a lot of estrogen to none (I don't know if it's because he had just found out about my dropping EF results from my ECHOs--I was told that estrogen can offer some protection for the heart?--and he learned that I have osteopenia before they took me back??).  He said that I might be better off taking the rest in a 2nd surgery...  So during the surgery he told my husband that he would remove everything OR just take the one side and do the second surgery later--that he would be comfortable with either approach.  My husband said he didn't know what to do, so he told him to just take the one side.  I was shocked to wake up and hear this because I expected everything to be gone!  I was upset that I still had 'suspicious' parts left in me--and that I would probably have to do this all again, but mostly just about coming away from the surgery with questionable parts left in my body...  

    I'm hoping this means that things looked less ominous once he got in there and he didn't feel the same sense of urgency that he had in his office??  I haven't actually spoken to him myself, just his colleague who did rounds the next morning, but I was told that he was planning to see me this week and that he should have my biopsy results and we can go from there.

    Thank you for all of your well wishes--and for following my ongoing saga!  I guess I was hoping to have all of my answers and to be less confused after the surgery! 

    Thank you all...   

    P.S. Hi Missy, thank you--I know I haven't been back to the thread in a while, but it is so nice to "see" you. :-)    Thank you, susansgarden and janey!  

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Wow..you've been through quite a bit these past couple weeks! ...it will be interesting to hear what the doctor has to say.  From the sounds of it.. I would assume that everything looks benign?  Glad to hear you are on the other side and healing.  Thanks for the update and hope to hear more good news. :)

  • mom2twins34
    mom2twins34 Member Posts: 185
    edited November 2011

    Thanks, Susansgarden... 

  • mom2twins34
    mom2twins34 Member Posts: 185
    edited November 2011

    Just thought I would post an update...  Met with the gyn onc and my medical onco the other day.  The good news is that the ovary and fallopian tube the surgeon took were benign, but it turns out that the one he took WASN'T the one with the mass!  I was shocked to learn this--as was my regular onco who said that he feels that we still don't have any real answers.

    I was even more surprised to learn that the "bad" one wasn't biopsied at all--he said he would have had to remove the ovary.  He did say that when he was in there, the ovary that it's in was large, but that it looked smaller than it had on the scans.  And he said that he would expect it to get bigger if it had a malignancy in it.  And where my other oncos and gyns were concerned that the mass had formed a blood supply that runs through the middle of it, he said that doesn't mean anything, so I guess that's a positive (though I still don't feel terribly reassured!).  And he said that no matter what he would have taken at least the ovary/tube he took because it was so big and full of so many septated cysts.  Still, though, I knew in my heart that that one was fine, so I almost feel like the surgery was pointless.   Especially since I still have many of the same symptoms I had before the surgery and still have a belly full of fluid.

    My onco read part of the surgical report to me yesterday before I left and said that the gyn onc stated that he would have removed both ovaries/tubes and the uterus, but that he was doing what he could to preserve an ovary during the surgery because of the instant loss of estrogen AND because he believed that I hadn't made peace with losing the opportunity to have another child.  He thought that removing both at once would be physically and emotionally damaging to me.  So I guess the gyn onc was trying to do me a favor?  But after reading this, my medical onco did not seemed pleased with me and asked, "Did you tell him you wanted another baby?!"  We've talked about this at length before & he's made it clear that he thinks I should have let that go of the 'baby' idea soon after the diagnosis, so I think his focus shifted from the surgeon to me by the end of the appointment.  I guess I should have been more clear about accepting the decision to do what was safest with the surgery since I know that even if everything turned out really well, having another baby just isn't realistic just given that I have another 4 1/2 years left on Tamoxifen & there's talk of putting me on an AI after that, and ALL of my hormonal levels are in the menopausal range with the exception of a really elevated Estradiol level, so I probably couldn't even have a baby if I tried.   

    After seeing him yesterday, though, he set me up for an ultrasound tomorrow, so I'm hoping that will give more clarification.

    Thanks so much for listening...  Now I feel like it will all be benign in the end, but I REALLY didn't have that feeling before the surgery.  It was all of your support that helped me through.  You all helped me more than you'll ever know!!!    

      

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    Oy! Sounds like there still are some unresolved issues.  Though I am glad that they had benign findings on the ovary/tube they took out.  So sorry that you are still retaining the fluid and having symptoms.  Hugs to you! Hope they get it sorted out soon!  ~ Susan

  • mom2twins34
    mom2twins34 Member Posts: 185
    edited November 2011

    Thanks so much, Susan!  I hope you had a nice Thanksgiving...  :-)

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2011

    I sure did!...much less stressful than last year as it was days before my mastectomy!  Hope you are recovery well!

  • Dawn46
    Dawn46 Member Posts: 80
    edited February 2012

    Hello everyone. It's been awhile since I have visited. I have a question.....

    It has been 20 months since my intial diagnosis of ILC stage IIa, lumpectomy, TC x4 and rads. The chemo put me into menopause after the first TX. I started spotting with some slight bleeding yesterday, along with some pain in my lower left side and just wanted to know if this is normal or if it has happened to anyone else? I still have those nagging thoughts that everything could be cancer coming back. I do take Tamoxifen. I see my Onc again next month but would like more info from you ladies to educate me prior to my visit. Thank you very much!

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