MIDDLE-AGED WOMEN 40-60ish
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As for chemo what I know from my experince is the adriamycin (the red punch color) causes hair loss. I had 4 rounds of the adriamycin/cytoxan and then 4 round of taxol every two weeks it can also cause hair loss. Then gave me the neulasta shot the day after. The day before the taxol infusion I took a steroid to decrease allergic reaction to it.
Welcome newbies this a great bunch of gals.
Sherri been praying for you hope for B9 results. Get your rest.
Still not for sure if I should get the gene test done.
Well finally the last of band festivals today. State bound tomorrow big day Tuesday at 9:30am since there are some parents unable to go (like me) they will be streaming it live.
I think the pic is of wood chips but some already said that. -
Good luck at the band festival all those with kids participating. My oldest played baritone horn in the band from 4th grade through 12th. I always enjoyed the football games, concerts and festivals. Miss those, although I always did enjoy the end of the marching season. LOL
I might as well chime in that I think the pic is a bird's nest, but that has already beeb guessed.
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LOL Jo. Too bad this Vegas trip is mostly work and very little play. We did add on two nights at the end for just DH and I. Hope to see the Terry Fador ventriloquist show. I saw him on America's Got Talent a couple of years ago and he is really talented.
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Hi, all. New here, and learning so much from all of you. I'm 48. and just had rt. mastectomy and will be starting TCH in December. Planning delayed reconstruction with lat flap after chemo. Feeling pretty overwhelmed and just soaking up the wisdom here on how to get through this. Hard to get rid of the surreal feeling. Helps also to hear about how you are are dealing with others' reactions and stupid comments.
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darlam, hello and welcome! For women on the path you are on, it is best not to get anxious about the passage of time, because with treatments and recon you are giving B/C a year of your life. Just be realistic about S/E's and recovery and try to plan so you have some time to rest if the fatigue hits you hard. Lots of women work through the chemo, at least some of the first rounds, but some plan for shorter days or take one day off once they find out the pattern when chemo hits the hardest.
As for reactions and comments...unless a person had B/C, B/C in the family, or another kind of cancer themselves, you just never know what kind of stuff will come out of people's mouths. Some old friends might keep you at a distance, some new friends might step up. It is pretty unpredictable and comes with the territory. If you feel like they are making you crazy, and that includes your breast care team too, all you have to do is come to your B/C sisters here for understanding. We are hardly surprised by anything after all the things we have been through and heard. It's a calming experience to know so many share this ordeal with you.
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Just stopped by to see the mystery pic.....I know someone already guessed it, but I also think it looks like a bird's nest.
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If it's not some kind of nest, a lot of us will be in for a surprise. (See pg. 549, if you haven't guessed on the Mystery Pic yet.)
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darlam
Welcome
This a wonderful group of ladies.They have helped me lot just reading there messages everyday.Just ask any question....someone will have the answer ....or find it:)Hang in there

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Welcome darlam. Great bunch of gals here to help you through all this.
MP - Halloween scarecrow. -
darlam sorry you have to join us here but it is a great place to come for support.
I changed my bandage today and boy am I bruised. But Dr did say it was in a hard spot. I was able to switch to tylenol today. Still pretty sore but not horrible pain. Took a shower which made me feel better. DH took me to Walmart to get some bandages and then went to the nursery to get a couple of plants. Came home and went to bed, got up when a friend brought by some food and flowers ate a bite then went back to bed for a couple more hours. Guess my body needs the rest to heal. Then one of my childhood best friends called me and she wonders why I don't like telling her things. She crys and carries on like I am dying. She is one of those that her whole life is full of drama.
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sherry, you are one strong woman. walmart and the nursery so soon after surgery?? i'm glad you're feeling better and able to do some thing you need/want to do. take care of yourself!
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darlam welcome to the group. So sorry we have to meet this way. If you have any questions, just ask. We all know what its like when you have tons of them, so dont be afraid to post away.
Sherry still praying for B9 results. Take care!!!
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Oh and BTW congrats Valgean!!!!!
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Darlam - so sorry you've joined our little "club." But this is a place where you'll find answers to your questions, support, and a shoulder to cry on when you need it.
Sherry - Take it easy, please. Rest up. Keeping fingers and toes crossed for B9 results.
Valjean - Congrats on 3 years. I don't know whether I mentioned DISH status on this thread or another BCO thread. DISH stands for - Damn I'm Still Here! That's damn in a good way
It was started by Musa Mayer from the BC listserve. She's also the author of "Examining Myself, One Woman's Story of Breast Cancer Treatment and Recovery" - one of the first and most helpful books I read after being diagnosed. She also wrote. "Advanced Breast Cancer: A Guide to Living with Metastatic Disease." Anyway, back to DISH status. Originally, you earned DISH status when you reached 5 years since diagnosis. She also came up with very tongue-in-cheek rights, privileges and rewards for women who have reached this status. Women, less than 5 years from diagnosis, clamored for recognition as well, so Musa came up with a DISH level for everyone. At 3 years post diagnosis, you've reached the DISH HAHA level ("Hot as hell always.") New HAHA's will receive a year's membership at Jenny Craig, a 35,000 BTU through-the-wall air conditioner, and a walk-in freezer. You'll have the opportunity to shop for a new wardrobe from Tropical Designs, Antigua."
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Hauntie, I LOVE it:
DISH HAHA
roflmao !!!
Thank you all for your kind words. This year seems to have gone by so quickly, but I feel like I was stuck in the mud, unable to move ahead when I wanted to. I have come to realize that I can not keep thinking about what could happen. I need to do as my little saying below says and just embrace life and not just walk through it. I need to be in the here-and-now or I just might lose myself altogether.... Right?
So, hugs to everyone and thank you all for being here for me.
DISH HAHA
♥
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E ~~ With that Hippo being 'above the fold', I feel that it is looking right at me while I am at the top clicking on my Favorites tab!
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Valjea--congrats on the 3 years of NED. Feels good doesn't it??
Darlam--welcome to our little sorority, although none of us voluntarily pledged this group--we are a tight group of sisters!! Don't hesitate to vent, scream, cry here, we all understand.
Sherry--can't beleive you are up and wondering the aisles of Walmart!!! Get your rest and I will be thinking of you tomorrow when you get your path results. B-9!!!!
Mystery pic-- looks like a Halloween prank gone wrong--I see a Jack o Lantern behind all the wood chips.
E- glad you didn't show us the backside of that hippo!!!!! If you did, I would have asked where you got a picture of my butt!!!
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MP looks like the wood-chipped floor of a rodents cage.
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cm , might disagree with you on the hippo butt because i would be sure its mine , i wont wear a black swimsuit in the sea incase there's any whaling ships nearby
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That hippo is The Mona Lisa of all the other hippos. Look at the eyes.
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The hippo has great eyes but she is definitely very danty... look how she hold her legs when she swims.
MP - sticks washed up on the beach.
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Just feeling sad today. I find that I am discouraged, not encouraged by posts of "15 year survivors" and such. I want to think that I am going to travel this incredibly difficult road and then put this experience behind me; instead what I am realizing is that it will never really be over, and that a large number of people do experience recurrence, even when you are node/mets negative, and do all the tx, etc. etc. That is not a good feeling. Having said that, I realize that I "should" be grateful that I have a good chance at a significant number of more years of full living; and that others with more progressive stages of disease than mine would be thrilled to trade diagnoses with me. So then I feel guilty that I am grieving my breast, the awful year to come, my loss of health and relative youth.....I just feel like I am going to feel like a 75 yr old instead of a 48 yr old for whatever years I do have left and wonder if it is worth it. Can't seem to stop crying today. And oh, yeah, if I could just get this darned surgical drain out so I could MOVE....who knew that would be the thing that makes me the most crazy right now? Again, I'm sure there's much worse to come, but right now that's the thing just pushing me over the edge. Sorry, ladies, just needed a place to whine.
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So my DH doesn't think I need reconstructive surgery to reduce my non-cancerous breast (this month is the two year anniversary of the diagnosis) and I am finally ready to talk to a Dr about having it. He thinks I should have a double mastectomy to eliminate risk. I definitely do not like having my breasts such different sizes, but I like that they are mine. Thoughts?
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Darlam: I wish I had known about this site when I was at your stage. I had no whining location or shoulder; my wonderful husband is a gift I received after I was finished treatment. Keep coming back!
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Sorry I couldn't get back sooner.Mystery picture was a birdsnest alright so I think Prayrv was the first to guess it'.Will be intouch later in the week.
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darlam,
I for one would never trade my dx with anyone (I would be glad to give it up altogether though).
Never apologize for your feelings. No matter what stage you are this whole journey is scary, especially in the beginning.
Things will get easier for you once you have a treatment plan. Does your cancer center have a social worker you can talk to? Maybe you can get a referral from your doctor. I find it helps to talk things out (I download on my BFF). You might even consider a low dose anti-depressent if talking it out doesn,t totally help. Also check and see if there are any group meetings you can go to, it migHt help to speak to others in the same boat in person. -
darlam - I agree with Ressie - don't apologize for your feelings. They are yours and they are real. We have all been in the same boat and once you have a treatment plan in place just take things one step at a time. This journey can be overwhelming at times. This is the place to come to and often to get those thoughts and feelings out. You can send me a PM anytime. HUGS
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Reesie:
Thanks. Again, I don't mean to be insensitive to those with even more serious diagnoses. My cousin's husband is in the terminal stages of brain metastases, and like I said, I feel guilty even being sad about my own situation.
I do have a treatment plan. I have already had surgery; Rt mx. and I will start TCH on 12/1. Yes, it is better having the answers (finally)...it is quite a waiting game just to get to that point, isn't it? Took 5 weeks from diagnosis to surgery because no one agreed on the plan, biopsy didn't fit with clinical picture, etc etc.
I don't think my cancer center has a social worker, but I already see a therapist and am on Effexor due to mild depression which was very well managed...until now.
The cancer center does have a breast cancer support group BUT I will not be attending due to the fact that the nurse who facilitates them is also the one who handles counseling and coordination of BRCA results. Long story, but let's just say that my surgery was waiting to be scheduled based on these results and she couldn't be bothered to follow through appropriately. She actually lied to me about returning my phone calls and admitted it when I confronted her. I formally complained and she was aware of this. I don't think attending her support group would be helpful to me:(
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darlam I know at the start I too felt the same as you. Until recently I realized that I just had to live in this day. Its so hard to see that when you are at the start of it all. It does get better. There is hope at the end of the treatment tunnel. If you ever need someone to chat with just give me a PM.
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darlam - this forum has helped me through the last 8 months - I can't say enough good about it. There are many subjects to look through, many people to ask question - it's a place to vent, cry, & rejoice. I do have lots of help from my DH & DD (who's a 13-yr BC survivor) & DS but here is where I come for the tough discussions - the subjects that would upset my family. Whether someone has a "worse" or "better" cancer makes no difference - cancer is cancer. This forum keeps me as grounded & sane as possible. I'm sorry you're here but glad to meet you & glad you found this forum - hope to chat with you often.
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