DIEP 2011
Comments
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Well, met with both PS, one Wed. and one Thurs. and now have to decide. I will end up being smaller than I am now (and I'm only a B cup now), but I am okay with that as I have decided a BMX is the right decision for me and if that means I'm smaller, then so be it. I will think long and hard about it this weekend and then decide. I am happy to have two qualified PS to choose between, I just read "First you cry" and can't believe how far the field has come in the past 30 years (and truly even is the past 5!).
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Meegan... can't they do a stacked DIEP if you don't have enough fat??
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hello again,
the misery index just went up over here- my dad is now in the hospital (88 yrs old) from chemo-related problems, looks like the last lap for him, maybe a few more months..don't know when he'll be released so we might be in the hospital at the same time...
all of which has preoccupied my thoughts, but I do need to finish prepping for my Nov 8 surg.
should I get some sterile gauze and tape? What size?
thx, as always for helping us newbies out!
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Has anyone had a DIEP and no help after they go home? Is it possible?
I'm single and live in NYC in a walk-up, and my mother's of the age that coming out here and helping me is fairly hard on her. I don't have friends who I want to impose on like that, they helped me though the drama of chemo 5 years ago, and now we've drifted apart. I'm really self-sufficient and would rather just go home and take care of myself. Any thoughts?
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I took care of myself... but bear in mind, i was out of town for surgery, so coming home was like 10 days post op... but once home i was alone... and did have dinners brought in.. and also I do have a son and husband who in the after hours did carry groceries, laundry etc...
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Hello ladies...I will be having surgery on Nov the 8th. The Tram flap, was wondering if anyone has had it done and can tell me what I might need when I get home and a little about how if feels and if you are happy with it and the recovery time,,, I am freakin out here... I know these are things to ask Dr but well I have not...I know I will get a much better answer here from someone who has been through it... Thanks...
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Sandi... no TRAM, I had DIEP which is a different recovery as DIEP does not take muscle... but outcome is the same... I went back to work at 5 weeks, but could have gone back at 3...
I also have a question... I am two weeks away from my stage 2 and worry that my left breast has issues... The inside half is soft, but the outside half is still quite firm... bear in mind that my left breast was a hip flap, not an ab flap...How does fat necrosis feel? Can you have half of the breast fine and the other half not?? And what can they do if it is necrosis? Try to break it up and see what takes? I did faint in the shower a week after surgery... My friend caught me,but I wonder if I damaged something... I saw my PS a month after surgery and expressed concern that it was so firm, but he wasn't worried...
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Hi ladies,
I have finally finished reading this mega thread and thought I should say "hi" and thank you for sharing your stories along the way. It helps so much.
I am just beginning this part of the journey. I was originally DX in 3/09, had a left uni MX in 4/09 and started AC/T in May/09. I also did the Avastin trial and am still doing the Zometa arm of the bisphosphonates trial. So, it's been 2-1/2 years since my mastectomy and I am finally ready to have reconstruction. I wasn't ready at all when I finished treatment.
I had an appt scheduled for today (10/31/11) for the intial consultation with my PS. They called Friday and had to reschedule. The new appt is 12/5/11. I hate waiting another month just for the initial consult but that was the soonest he could get me in. They did have another date in November, but I will be out of town and couldn't make that.
But now I'm worried because I know it will be a month or two to get on the surgical schedule which could put me into February for surgery. I have a cruise in Hawaii planned for early April 2012. Since I haven't seen my PS yet, I have no idea how this will work out but could you have gone on a major trip two months after this surgery? It is a cruise so it can be as active or as inactive as I want, but I would like to be fairly active on it if possible. I am 49, pretty active, and I am in excellent general health. It's been two years since my last chemo so I am back to my previous activity and energy levels.
Could you have gone on a big trip two months out? Thanks!
Mary
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Mary,
Yes!
I started traveling for work at week eight-and-a-half, which involved lots of air travel. I wish it had been something fun, like a cruise!
You'll want to consider whether you'll have someone to help you carry luggage (and shopping bags???) . Even if you check luggage, it has to be lifted into car/out of car; onto airline scale/off luggage carousel. When I travel for work, I can get my bag with clothing to less than 15 pounds, which was my PS's weight restriction then, but ...work clothing is boring. On a cruise you may want to bring more than the minimalist Barbie doll mix'n'match that lets me pack four items of clothing for five days. If you have luggage help; go for it!
A cruise sounds like the perfect way to get back into normal life but still have some very attractive ways to get rest when you need it (lounge chair...).
All this assumes no complications, and I will tell you that some of my skin died, and by eight weeks it was not yet fully healed, so swimming was nixed. Something like that could put a damper on fun stuff like snorkeling. Some women have had more difficult complications that might have made travel more challenging. Can you get trip insurance in case the unexpected happens? (And read the fine print to make sure that unexpected complications from previously scheduled surgery are a reimbursable event.)
You'll get lots more perspectives here, so stay tuned for more opinions.
Carol
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Mary,
I will be going to Cancun next week at 2-1/2 months out (10 1/2 weeks). My noobs are fine, but my belly incision opened up in 2 places - 6" and 2" - and require packing with saline moistened gauze 3x/day. My PS OK'd my trip with the proviso that I not swim (ocean or pool) or sit in a jacuzzi. My lifting restrictions are a little vague, but we are packing so that my DH and I only have 1 suitcase and 1 carry-on. I would have been able to travel at 8 weeks but would have been exhausted. As it is, I am only going into the office half-days a few days a week and working from home the rest of the time. I do have co-morbidities that may contribute to fatigue, including asthma and a-fib. Both are well-controlled with medication but they do exist. I also have little reserve capacity in general, so if I get too tired, I crash and burn quickly. I think if you are fit and active, as long as you watch the weight restrictions for lifting, you are in good shape. Check with your surgeon when you see him/her and ask what his/her experiences are with patients similar to you.
More ladies will be along with their experiences. Good luck!
L -
I seem to be the one that has to be "special." My incision opened up a couple weeks after surgery, (I think because my drain fell out.) BUT while it has been slow to heal, because it's my rads side, I am happy that it is almost healed.
I had a small area on my abdominal incision open up, I was all healed in & then the top layer of skin opened up. Hoping that heals in again.
I finally get to go to Stage II surgery. Get to do lift & some reduction on the non rads side as it is quite a bit larger than the other. At least one cup size. So then I won't be a C+ & a B- anymore. We will probably schedule the surgery closer to my Christmas vacation. I can't afford to be off work.
To those having DIEP soon. It took me about 2 1/2 weeks to be able to sleep in bed instead of the recliner. Then a had a nest of pillows, one was a memory foam pillow which I am still using. It makes side sleeping easier.
I putzed around the house from the first day at home. I used those Gripper things to pick up stuff off the floor, do laundery or get dishes out of the dishwasher. DH did the cooking. Hoping all your surgeries go well. NJ
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I will be 11 weeks out this Wednesday and I have been completely fine from sx for quite a while now. Had to wait until PS released me at 6 weeks to lift more than half a gallon of milk, but was feeling completely fine by then. Currently doing rads, so that has me fatigued and sore, but not the sx.
Good luck to all having sx soon.
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NJ, you have had more than your share of set backs, hope all is healed soon. I am all healed, hoping nothing changes that with rads.
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Thanks ladies!
Some things I hadn't even thought about like if there are healing issues and not being able to swim. That would suck to go to Hawaii and not be able to swim. This is our first and probably only trip there. My husband will be with me to help with luggage although he will have his own to contend with. I'm not a very light packer but I have gotten better with all the luggage restrictions now. One good thing, we will be traveling with my mom and a friend of hers and they are both in their 70's, so we are always paying porters to help with luggage anyway. And we always get trip insurance. I will be sure and read the fine print on that to make sure this would be covered if I do need to cancel.
Hard to believe but my mastectomy at age 47 was my first ever surgery. It was pretty easy and I had a pretty quick recovery, so I don't even know what all can go wrong! I didn't have rads so my skin is okay.
I talked to my clinical trial nurse today and she is encouraging me to call the PS office every week to see if they have any openings and to let them know that I have a trip coming up. I will do that and maybe he can get me in sooner than 12/5.
I am so appreciative of all of your wisdom and experience. It helps so much to know what others have experienced.
Norma June, I hope you are healed up soon and your Stage 2 goes well.
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Eek - Got surgery date of Nov. 30th for BMX with DIEP recon. Scared and excited. Will post more later. Am trying to read whole thread, but it's slow going, finally got up to page 57 yesterday...
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ReadingMama,
It's worth reading every single page! I owe everyone in this thread a huge thank you, because what I learned in here was 100 times more than what I learned from surgeons, nurses...even though my surgical team is very kind and never scrimped on time. They just don't know about what they have not experienced.
Carol
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Hi Texas Rose. I have had a consultation for DIEP but have not had surgery yet. If I decide to it would probably be about 6 months or so out. I was wondering since your cruise is all planned why dont you book the surgery date for when you come back? I think from what people have said the recovery time can vary. Some people get back to their activity level quicker than others. Whatever you do have a great vacation when you go. sounds amazing.
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Hi Texas Rose, I had a consult in June and the conversation seemed to be implying a Septemberish procedure but when I got the OR date it was Nov. (Has even since been postponed.) so you may find your OR date isn't till after your big trip anyway. I had a big endurance run (walk) that is now just 6 weeks after my new date, so I am in exactly the same "how fast will I feel up to it?" position as you are. But I've postponed enough stuff and am just going to do it on their date for a change, and see what happens with my run (walk). I think I try to read the boards, infer average waiting times, recovery times, and feel-better times, make guesses to reduce my uncertainty and try to feel in some bit of control, but I don't really have any more control than before I guessed! Good luck with your chess game of travel planning and DIEP!
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Goldlining... I had surgery Aug 23 and Oct 15 weekend had my Avon Walk (39 miles).. I managed 23 of those miles but not because I was tired, but because I have a foot problem... You can do it!!!
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Thanks Betsy. I need that target as a reward and inventive to get my butt off the recliner afterwards! The surgeon said I was out of my mind, but not that I couldn't do it, just that my time would suck. Even without a DIEP, I'm not finishing in first place and there are enough medals for everyone. I just have to cover 13 miles in 3:30. Upstairs, no problem. I did it in under 3:00 2 months after the uni mastectomy. The abs are the mystery, but every success story gives me encouragement!
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Has anyone had pain control post-op in hospital via transverse abdominal plane nerve block?
It is a tiny tube inserted inside the abdominal incision that gets IV something-caine from the pain control department, in addition to the patient-clicker magic juice. The tiny tube or tubes that are inside the abdominal incision are pulled out before leaving the hospital (unlike one or more of the charming JP drain tubes.)
I get how the nerve block could benefit pain relief at the time, but I am most interested in knowing from anyone who's had it whether the insertion of the nerve block something-caine supply tube leaves any hurting in the muscle in any way afterwards. I don't care about the hole in my skin/incision, just whether there is any hole in the muscle that might slow down rebuilding ab strength. There seems to be confusion between the consent form that describes a cut to insert it and the descriptive comments of the anaesthesiologist who doesn't recall seeing any cutting beyond what they do to take the ab flap off.
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I did have the pain control you're describing. I wasn't really aware I was going to. At least, I didn't hear or understand it if the PS told me I was. I just woke up with it. They took it out the day I was leaving the hospital. I had no after effects or pain from it. I don't think there was any extra incisions for it. Wish I could help more, I don't remember being told about it ahead of time, so I ddin't ask any questions about it. But I definitely can tell you that I had no pain or noticed any problems at all after its removal.
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Did you get a tissue expander?
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Thanks bdavis for your reply.. I guess no one is have the Tram flap done. I will have to wing it, not know is better then knowing...right...lol...Wishing everyone a wonderful week..
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What considerations did you have before deciding to delay the diep. I'm facing something similar-would rather go with immediate diep.
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I had the pain ball... it was also there when I woke up... and when they removed it, I didn't even notice, and no after effect.
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I'm just catching up to everything that's been going on. It sounds like things are going smoothly for most everyone! Good to hear! I'm 7 months out from DIEP but about to have my 3rd round of liop/fat grafting. Life is 90% back to normal and, other than refusing to buy new bras and cool new clothes until I'm completely done, I'm feeling good.
A couple of things that I didn't need and am sorry I bought: 1) a reclider (even though it was used and very pretty). I simply found it more comfortable to sleep in my own bed. 2)special pillows. I used a lot of regular pillows to sleep. I had one on each side, one below my knees one under my head and 2 on top of me to protect me from my cats and dogs. 3) spanx/compression garmets. I had a velcro support band I wore for a month but I honestly didn't need much else.
My key items: yoga pants, tank tops, zip up jackets and a few men's shirts. I looked like a slob, but it was temporary. I then didn't feel any guilt when I threw all of those ugly clothes away.
I was back to dog walking at 4 weeks and walking 6 miles a day at 6 weeks. But, I was pretty hearty when I first had surgery. Each progressive surgery has takem me longer to recovery from even though they are easier surgeries. If you plan on traveling soon after, just allow yourself to rest and do what your body tells you to do. Pushing it a bit is good. Pushing it a lot is not.
As for taking care of yourself, it's possible IF you can get away without lifting and driving. I took advantage of my husband for a week after I got home but then he went back to work.
I will say this to those who are just starting their journey.....it will be over before you know it. It's not half as bad as it is when we're worrying about it in anticipation.
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NotAfraid - Would you mind maybe being a bit more specific by what you mean about each recovery being harder than the last? What does that mean for you . . . I know we we are all different, but my second stage 2 is coming up 10 days before Christmas and I am a bit worried, since for me, stage 2 was not a walk in the park, as I had expected it to be. I will have most of my holiday preparations done before I go down to NOLA, but i am still worried I may not be able to put together a nice holdiay for my daughter and her boyfriend who are traveling here from London. And then I go over to England mid- January . . . And can I ask what you are having done this time around? (PM me if you would rather) Thanks!
Amy (obsessing)
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Thanks for those posting about the nerve block. I think I will consent to it. I have had all the pre-admission stuff and now just that demon "anticipation" to wrestle. I'm bilat DIEP Dec 15 (one side immediate, the other delayed from last year). Not looking forward to covering over the holidays (have some ill family members I'm trying not to distress).
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Goldlining, I don't know why they would insert the tubes after you are closed up, as they can just lay them in the cavity from the flap while your "tummy" is open, and stitch you closed around them. They are really thin little tubes, and attached to a plastic ball filled with local anesthetic that slowly deflates over several days. The kind used in NOLA ,and many other places is called On-Q Ball( or something like that). You carry the balls around in pouches, like drains. They help A LOT LOT LOT!
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