Mastectomy with Recon. or Lumpetomy with RAD?

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pupmom
pupmom Member Posts: 5,068

I, like many, am facing this choice. I'm starting to be horrified about the effects of radiation. Should I seriously consider mastectomy instead? As an aside I am also being tested for the genetic link to breast/ovarian cancer. Of course if I am positive both boobs are coming off, plus, I HOPE, the ovaries. But if it's negative any suggestions about my choices? Husband and I are not as concerned about cosmetics as survival and reduction of pain. 

Comments

  • cycle-path
    cycle-path Member Posts: 1,502
    edited October 2011

    I didn't want radiation and was able to have IORT (intraoperative radiation therapy) instead of whole or partial breast irradiation. I think it's the best thing ever!

    The downside is that it's available in relatively few locations. You might have to travel to get it, and there's a very good chance you'd need to go to another surgeon. IMO it's worth it, though!

    PM me if you want to know more.

    http://www.breastcanceriort.org/ 

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011

    Thanks so much cycle-path! I PM'd you.

  • ej01
    ej01 Member Posts: 155
    edited October 2011

    I recommend talking to the radiation ongologist before you make a decision.  I had a lumpectomy but was terrified of the idea of radiation and was ready to decline radiation altogether.  (my cancer was very small stage 0)  I found out that some of the side effects that had been associated with whole breast radiation in the past that I was reading about (such as cracked ribs) were now much less of a concern because of better radiation technology.   I took an option for external beam 'partial breast' radiation....it is 5 days (2x per day) instead of 5-6 weeks and I had zero side effects of burning, tender skin etc.   there are also other partial breast radiation techniques available based on the location of your cancer.  I am not sure which cancer pathologies are candidates for partial breast radiation and which are not.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited October 2011

    yorkiemom, it's not standard treatment but I believe some women choose lumpectomy and no radiation.  Obviously, the risk of recurrence would be higher without rads. I believe the women who chose this were grade 1 with very small tumors. (5 mm or even less?) And in that case, I think you'd want the BS to get very good margins.

    FWIW, I was worried about the SE of rads myself and got really stressed out by the decision-making process. So good luck with your decision making process. 

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011

    Ladies, thank you so much for this information. I never even thought lumpectomy without rad was an option. I will check this out. I found out that I am ER, PR + and HER2-. My tumor is on the right breast.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2011

    Sometime to consider from the BCO research page a couple weeks ago.

    Adding Radiation Cut Breast Cancer Recurrence in Half

    For women diagnosed with early-stage breast cancer, lumpectomy followed by radiation therapy has been shown to be as effective as mastectomy without radiation for removing the cancer AND minimizing the risk of the cancer coming back (recurrence). Doctors call radiation therapy given after surgery adjuvant radiation therapy or adjuvant radiotherapy. Adjuvant radiation therapy can destroy any cancer cells that may have been left behind after surgery, making recurrence less likely. Almost all women get adjuvant radiation therapy after lumpectomy. Most doctors believe adjuvant radiation therapy's greatest value is to reduce the risk of the cancer coming back in the breast area (locoregional recurrence).

    A very large study has found that radiation therapy after lumpectomy offers more benefits and keeps offering benefits much longer after diagnosis than doctors realized. Recurrence risk was cut in half when adjuvant radiation therapy was included in the treatment plan for women diagnosed with early-stage breast cancer who had lumpectomy. Adjuvant radiation therapy also reduced the risk that the cancer would come back in parts of the body away from the breast (metastatic recurrence) -- not just locoregional recurrence risk -- and improved long-term overall survival. The results were published in the Oct. 15, 2011 issue of The Lancet.

    A meta-analysis is an analysis of the results of a number of completed studies. This meta-analysis looked at 17 studies on the benefits of adjuvant radiation therapy after lumpectomy involving more than 10,000 women; the 17 studies compared the outcomes of women who got adjuvant radiation therapy to women who didn't. Half of the women were followed for more than 9.5 years and the others were followed for a shorter time. Some of the women were followed for more than 20 years.

    In the 10 years after surgery:

    • 19.3% of women who got adjuvant radiation therapy had a cancer recurrence
    • 35% of women who didn't get radiation therapy had a recurrence

    In the 15 years after surgery, researchers projected that:

    • 21.4% of women who got adjuvant radiation therapy did or would have a recurrence and die as a result
    • 25.2% of women who didn't get radiation therapy did or would have a recurrence and die as a result

    The results mean that for every four recurrences prevented by adjuvant radiation therapy, one death from breast cancer also would be prevented.

    It's important to know that many of the women followed in the 17 studies analyzed had clear lymph nodes, meaning the cancer hadn't spread to nearby lymph nodes. These women were considered at low risk for breast cancer recurrence. Still, the results strongly suggest that adjuvant radiation therapy after lumpectomy can reduce the risk of recurrence and improve survival for all women diagnosed with early-stage breast cancer, no matter their estimated risk of recurrence at the time of surgery.

    The results also strongly support doctors' current understanding that lumpectomy followed by radiation therapy is a very good alternative to mastectomy for many women.

    If you've been diagnosed with early-stage breast cancer, you and your doctor will consider the characteristics of the cancer, your unique situation, your surgical options, and your treatment options after surgery when creating your treatment plan. If you choose lumpectomy, it's very likely that radiation will be recommended after surgery. If radiation therapy isn't recommended, you may want to talk to your doctor about this study and ask why adjuvant radiation therapy isn't recommended for you.

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011

    Docs have already told me it will be radiation with lumpectomy, unless of course further testing determines I need a mast or I opt for one (right now, after hearing my PS's plan for recon, my preference is lumpectomy). Most important thing to me, obviously, is survival. That means getting it all out and never getting it back! I was surprised that it is EVER ok to have a lumpectomy and no rad.

  • ej01
    ej01 Member Posts: 155
    edited October 2011

    yorkiemom,

    you said " I was surprised that it is EVER ok to have a lumpectomy and no rad."   Lumpectomy with no rad may not be advisable in your situation.  Sometimes with DCIS radiation will not be needed with lumpectomy.    (low grade, small tumor, with good margins, etc).   the idea is that the expected reoccurance rate for some people is already pretty low. There are a number of factors to consider.

    I dont know the standards for other types of BC. 

    http://www.theeffectivetruth.info/wksht1.html

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011

    I can see that. My tumor is about 1 cm., lobular invasive, Grade 1. From what I've read and heard I will definitely need rads with a lumpectomy.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2011

    I had a lumpectomy and rads with no problems what-so-ever. I was thrilled to be able to have breast conserving surgery (as there are a lot of potential bad SE with the more major surgery of a mastectomy, and if you want reconstruction, then you will be dealing with a lot more time, pain, money, possible negative SEs from that too). I was glad to have rads also, because I never want to play this game again!!!!!

  • peggy_j
    peggy_j Member Posts: 1,700
    edited October 2011

    yorkiemom, my tumor was IDC, grade 1 and 0.5 cm and I had rads. I believe the no rads option is chosen by women with tumors smaller than mine (my BS's nurse educator remembered one patient where the docs offered her the option of doing rads or not, and she chose rads).  FWIW, I was concerned about any potential long term SEs of rads (I have a very rare bone condition). My RO was awesome and during the "simulation" they were able avoid my sternum completely while still getting good coverage on my breast. But my RO said I have "good anatomy" so I guess I got lucky on that part of the random crapshoot known as BC. FWIW, my RO gave me the full 33 (35?) days of treatment on the lowest dosage possible to be effective. In his opinion that was safer (fewer risks of long term side effects) and had the longest track compared to other protocols. I know other members here have tried other protocols, so there may be different advantages to them. Anyway, good luck! Your dog is cute! ;)

  • cycle-path
    cycle-path Member Posts: 1,502
    edited October 2011

    "My tumor is about 1 cm., lobular invasive, Grade 1. From what I've read and heard I will definitely need rads with a lumpectomy."

    That's certainly what will be recommended. If you had only DCIS, no invasive component, you MIGHT have been told that rads are optional, but once there's invasion they want to do rads.

    Age is another component. The younger you are, the more it's recommended to be to treat BC aggressively. 

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011
    I'm 62. For the first time in my life, being older seems better, relative to bc that is! Laughing
  • Iz_and_Lys_Mum
    Iz_and_Lys_Mum Member Posts: 126
    edited October 2011

    Hi yorkiemom



    My options were to stop after the lumpectomy and have rads, or to procede with a mastectomy with recon. I choose the latter. Its been a long year, but Im definitely sure for me it was the right decision. It came down to the fact that i would rather live with a foob, than keep the original and worry about recurrence.



    Its such a personal choice and so dependant on individual circumstances, but my docs were totally supportive.



    Good luck with your choice x

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011

    Iz_and_Lys_Mum,

    Thanks. I'm still somewhat undecided. Since I posted this I talked with my PS and his plan for my reconstruction with lumpectomy makes a lot of sense. Unless I need a mast I will probably go for lump and assume, as the data shows, that rad will kill off any lingering cancer cells. Although I definitely can feel the urge to just get it all off and not have to worry, AT ALL.

  • cycle-path
    cycle-path Member Posts: 1,502
    edited October 2011

    "For the first time in my life, being older seems better."

    Breast cancer treatment and senior discounts -- two of the very few, positive aspects to getting older! 

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2011
  • mla88
    mla88 Member Posts: 6
    edited November 2011

    Has anyone had mastectomy and reconstruction with implant (or other form of reconstruction) before radiation? My oncologist insists I do radiation so I am looking to do prophylactic mastectomy first, but I understand there can be damage to the implant and complications.

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