Brain mets only

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wrsmith2x
wrsmith2x Member Posts: 410
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis
I am curious.....I've read that breast cancer metastasizing to the brain first is very unusual.....that it usually gets into the bone, lung or liver first.......has anyone here had it in their brain first and if so did they have any symptoms?

Please understand that I am curious....not worried!

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  • DianaT
    DianaT Member Posts: 532
    edited August 2010

    yes. I was diagnosed with 1 brain met, NED everywhere else. Cyberknifed the met and have been NED since.

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  • Garciamx
    Garciamx Member Posts: 31
    edited August 2010

    Don't know where mine started..I was diagnosed with it in my brain, liver, and bone. The symptoms for me were blurry vision and headaches. I kept feeling my head "sponge up". I had 5 treatments of radiation and feel a little better. But I am still very frightened! (These symptoms started in May 2010) I have too many tumors so radiaton and chemo are my only hope.

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  • Tabatha00
    Tabatha00 Member Posts: 133
    edited May 2011

    Just diagnosed with 3 tumors. Im having 2 surgically removed and gamma knife radiation. Dont have it anywhere else. I had my 1st surgery on Thursday and will have my second on Monday. Ill have gamma knife radiation to follow on the 3 spots.

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  • pumpkingirl
    pumpkingirl Member Posts: 3
    edited August 2011

    Hi there

    I have just been diaagnoisised with met's to the lining of my brain after being ever so vidulant after five years, but no where else. Will be having radiation treatment only for approximately five to six weeks. Symphtoms are server headaches, nausea,vommiting, lack of sleep limited walking, blurry and sometimes double vision. And that's just on the out side of the lining of your brain.

    feeling pretty tired all the time and not much energy to do anything so hopefully when the radiation starts will feel a bit better 

    stage 3 breast cancer

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  • Skandaga
    Skandaga Member Posts: 1
    edited October 2011

    A relative has just been diagnosed with 1 brain met. She is still on herceptin. I wanted to know were any of you given PET scans regularly during your initial treatment? How were the mets found?  Also when you are diagnosed with Her2 positive BC don't the oncologists have to be more proactive to check for mets ? Or does it seem like I am just trying to find someone to blame for the brain met?  How could it escape their attention when she is still in their care..? She is so scared and has 2 small children

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  • banjobanjo
    banjobanjo Member Posts: 960
    edited October 2011

    No idea.  I was diagnosed with spine and brain mets but was not told which would have come first - I suspect the 'hotspot' in the centre of my spine directed them upwards and downwards from that point but I don't know for sure - I will ask at the next opportunity I get.

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  • dharmamama
    dharmamama Member Posts: 138
    edited October 2011

    I was diagnosed with one brain met in the dura around the brain last year. Little sucker came back this year and I just had a craniotomy and cyberknife radiation. I have been clear everywhere else. Hopefully I am done with this mess.

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