Sept 2011 Rads

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    Stormy, this one is for you!  Congrats!

    Stock Photo - celebrations : champagne and party streamers. fotosearch - search stock photos, pictures, wall murals, images, and photo clipart

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  • tamcathtech
    tamcathtech Member Posts: 42
    edited October 2011

    Stormy --- CONGRATS

    Kate, just a thought about your back, have you ever thought of a chiropractor, I know some people dont "believe" in them but it is non-invasive and they will tell u if they cant help u. I workd for one for 5 years and still go occ. Just a suggestion, take care.

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  • Leighsa
    Leighsa Member Posts: 63
    edited October 2011

    Hooray Stormy!!!!!

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited October 2011

    Congratulations Stormy!!!!!!!!! What a wonderful day. You are so right about this discussion group. The information and inspiration I have gotten from everyone has been priceless.



    My last treatment is scheduled for tomorrow. I was beginning to think it would never come. I leave Saturday for San Diego and a week long blues cruise. It is a charter cruise with all blues music all the time! I am so ready for the relaxation and recovery!

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  • SAB
    SAB Member Posts: 1,498
    edited October 2011

    Congrats Stormy!  Ceezthe day I am finishing with you tomorrow!

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Thanks for the suggestion Tamcathtech I hadn't yhought about a chiropractor.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2011

    Congrats stormy and to the ones finishing tomorrow!  WE DID IT!

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  • Ceeztheday
    Ceeztheday Member Posts: 403
    edited October 2011

    SAB-We will be doing the happy dance together!!!!! Hooray!

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Ceeztheday your cruise sounds like so much fun. Can you pack me in your suitcase lol.

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Cingrats Sab, Stormy and Ceezthe day!

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  • stephN
    stephN Member Posts: 284
    edited October 2011

    Congrats, Stormy!!

    Ceeztheday and SAB, you're so close!!  One more!  Woot!

    Kate, hope your back is feeling better soon.  I've gone to the chiro for back pain too. It's usually really helpful. 

    I finished my last whole breast treatment today and will start 8 boosts tomorrow.  My skin did great for the WB, with only small blisters on my chest until today and I have a major "sunburn."  Yikes.

    Love seeing everyone getting through!  Great job, y'all! 

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Thank you Stephn. Congrats on finishing your whole breast rads.

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  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Wow, Ladies, what a party! Ksmathews and Stormy.....ALL DONE, WAY TO GO! Tamcathtech you're just about there, and Sab, you're done in less than a day.....AMAZING, And Ceeztheday day! You're not only done tomorrow, but leaving on a Cruise.....GREAT PLAN,



    StephN.....you and I are on the same finishing line. I have one more full breast tomorrow, then 7 boosts so will finish with you on Halloween. Think we should dress up as the "no longer pink ladies"?



    My skin is holding in there if you don't mind bright red areas on top of the breast, and then the totally dark brown with very deep red overtones under the arms, and the loveliest part, the very rashy area under my breast which has dark brown spots amongst the red rash! But......no blisters so I'm hopeful!



    Enjoy your new found freedom all of you, and the rest of us will just keep on getting it done so we can join you soon.

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  • dogeyed
    dogeyed Member Posts: 884
    edited October 2011

    STORMY, ohhhhhh, wow, cannot believe you got freedom sprung on you outta nowheres!!!  There you was thinking you had to go thru yet another weekend knowing a Monday of rads was in store, and then they moved it to Friday, and all of a sudden YOU IS DONE!!!  I've enjoyed posting alongside you here, you've been good to all of us, so go on out in that world and breathe it in deep.

    ALL, I had another "down" day AGAIN yesterday, that's two this week.  I started taking an extra pill I take for chronic depression, will continue to end of rads that way. I told rads doc I had had it with all this, and will see her today as regular visit and ask for pain medicines.  Like some of you all, SEW in particular, my rash and the most hurt is under where my boob used to be, and I've noticed when skin gets folded over here and there or if I pull too hard, this intense chaffing type pain happens.  And as I said I'd do, I told my rads doc to blast that discolored spot to kingdom come, just burn the thing right off my body, please.  She said, "I think we can arrange that," as she was poking me with the ink needle.  I cannot believe they missed that place during surgery and will definitely whine to cancer surgeon mid-Nov about it.

    Earlier in week I paid all the bills, made followup appoint w/cancer doc, still need to clean bathroom.  Today I have to go to grocery store last trip, hate it, but husband will do it during the two weeks I'm locking myself away from the world when the very end of all my treatments are over.  Next week, gotta go to pharmacy to get my regular pills, hopefully pain pills, and my prescription lotion renewed, doing it the day before rads end, so I can walk straight out of the hospital Friday and be FREE at last.  GG  P.S. I'd LOVE to go over to TJ Maxx and buy me some clothes, my fav clothing and objects d'art store.   

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    dogeyed...so sorry about another down day!  Sending you happy hugs, hoping you can catch one.  Rads will wear you out.  I hope you feel better soon hon. 

    MostlySew....I meant to PM you but will in a bit.  Busy, tired, now trying a new burn ointment and just resting as much as possible.  I have been told the less I can move my arm, the quicker the last of the open burns will heal.  Your breast sounds like mine was.....multi colored.  Then I blistered and had all the oozing sores.  UGH.  I did start a new ointment yesterday called Vasolex.  Hoping this will heal up the last stubborn ones.

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    Ceezetheday and SAB......for you ladies.  Enjoy your day!

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  • stephN
    stephN Member Posts: 284
    edited October 2011

    Janis, I hope the Vasolex helps the last of the burns heal up!  I know you are ready.

    MostlySew, I'll be pulling for you and thinking about you as I go every day!  We will definitely have a party on Oct 31!  I have a new very sore rash under my breast since yesterday.  The joys...

    Steph

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Thank you everyone for the congrats messages!

    Janis, I love the pictures you have been posting!

    Dogeyed, I'm sending you a cyber hug ((((((hug))))))! Sorry you are having down days, I know it sucks. Most of the time I do ok. Even yesterday when at work, it was a very stressful day, I had to go to the restroom and just cry.  I just don't do that, yet its like the second or third time for me at work to lose it.  That is why I took today and Friday off from work, I'm just mentally and physically at my breaking point I guess. As I sit here, its 9:30 am , I have been able to sleep in and I am very happy that I'm done with rads, yet I feel sad, WTF? Why should I be feeling down? I hate it when I can't even figure myself out!? lol My oldest is home from work today as well so maybe after I con her into doing some house work for me, I will take her out to lunch. tehehehe Anyways, dogeyed, I do hope you have a better day today :)

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  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    I'm Tired:

          I'm tired of the burn pain under my arm

          I'm tired of putting goopy stuff on my boob 4 times a day and sitting with no clothes on while I try to get it dry

          I'm tired of second guessing the doctors and wondering if I should have more tests (blood work, cat scans) or different pills (Arimidex vs Tamoxifen and Fosomax) of whether the radiation is really in the right spot....(why am I so burned around my sentinel node bioopsy, I don' thave any node involvement).

         I'm tired of having to go out evey day of the week

         I'm tirred of having sciatica nerve problems for over a week down my entire leg and into my foot

         I'm tired of the extra 10 pounds I've gained

         I'm tired of all my clothing being too tight

         I'm tired of not being able to exercise either because I don't feel well enough, or my leg hurts too much, or I can't strap down my boob anymore so it hurts too much to even walk fast.

          I'm tired of wondering just how ugly my breast area will be each morning

         I'm tired of waking up in the night and having to put more lotion on to calm down the pain of the burns

         I'm tired of sleeping in a t-shirt and having it get tangled around my body each time I turn over

         I'm tired of injuying my leg each time I turn over at night

         I'm tired of the sheer exhaustion that can hit at the drop of a hat

          I'm tired of feeling sorry for myself 

          I'm tired of crying at the drop of a hat

          I'm just plain tired of all this breast cancer stuff!  I'm ready to be done.

        THERE......That's my whine for the day/month/year.  Anyone else want to add on?  I feel better already.  Last "regular" rad today then just 7 boosts.  Sure hope they're going to avoid this nasty looking SNB site.

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Mostleysew I hear you and I surely understand. I am blanking tired of it all too. Hugs for you!

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  • kll22
    kll22 Member Posts: 124
    edited October 2011

    I am joining the crew that is done, Done, DONE!  Nothing left but follow-up appointments and healing.  I can't wait to return to a more normal life and put this chapter behind me.

    Congrats to all of you who are finished and best wishes to those nearing the finish line. I wish I had words of wisdom for those having trouble with SEs.  I agree with whoever wrote that the Vigilon patches are a godsend.

    Leighsa, I would love to hear your thoughts on the Livestrong program at the YMCA.  The Y here is justing starting the program and I am waiting for information on it.

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  • Purl51
    Purl51 Member Posts: 190
    edited October 2011

    WinkCongratulations to all who have finished and I hope you heal up fast. I'm at 19 of 33 and very red/itchy.  Attempted to go braless yesterday at work.  Left mastectomy, right breast a D....I don't think I'll do THAT again.

    Mostly Sew - I hear you too! (as I yawn)

    Janis - Best wishes with your thyroid.  I have a 4CM nodule and most likely will have surgery in January. 

    All, bless you for sharing your feelings,tips and experiences.  It really helps knowing I'm not alone.

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  • ksmatthews
    ksmatthews Member Posts: 812
    edited October 2011

    Mostly sew!  I am right there with ya, I am tired of it all too! 

    to all the girls who finished today yeah!!!!  You did it!

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  • SAB
    SAB Member Posts: 1,498
    edited October 2011

    Done.   Sending congrats to my sisters who crossed the finish line and cheering on those of you who are coming close! It really does end.  I thought I would be burning rubber out of the parking lot, but honestly I had to just sit with my emotions for awhile.  Then I went for a long brisk walk.

    Thank you for the support and the encouragement everyone.  I love the picture Janis!  I'll hang out around here 'til you guys are done.

    Hey Mostly Sew I'm sure you speak for lots of us!  Hang in there!

    Lavendar, my boobs are uneven from a partial, and I go braless (even with a D) by wearing a variety of vests with texture or ruffles over stretchy camisoles or t-shirts.  I cannot stand a bra right now...though I do put on a stretchy bandeau style to walk.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2011

    Mostlysew, I hear you. I was just checking on here for the lastest posts before I take a nap! Let me add to your list, although I think you really did cover about everything.

    I'm tired of the pain in my chest that is not caused by rads.

    I'm tired of the pain meds that give me relief from chest pain but gives me a headache.

    Nap time.....

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    MostlySew......LOL, boy can I relate!  A good rant is good for the soul.  I know where are at.  It will get better.  I know right nw it doesn't seem that way.  Feel better soonest!

    kll...congratulations on finishing.  Great plan, focus on healing!

    SAB...same to you.  You did it!  Happy dance.  I still can't wear a bra either!

    Stormy....I still get the fatigue and I am two weeks post rads.  I understand how it feels.

    Tomorrow I go to the hospital for pre-op blood work and pre admission stuff.  I have such an exciting life!

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  • stephN
    stephN Member Posts: 284
    edited October 2011

    I can relate too.  So tired of all of it.  I still leave the cancer center sometimes and still can't believe that I am actually a patient there.  All of this seems like a very bad dream.

    Janis, my tech told me today that the radiation keeps working in the body for another 2-3 weeks after radiation, so it makes sense that the fatigue hangs on.  I hope you get to feeling better.  I have to have surgery soon, too.   More surgery is the last thing I want to do--I feel for you.

    First boost today.  It took a while because they had to get it all set up, but tomorrow it will go faster.  Only seven more.  

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  • katehudson25
    katehudson25 Member Posts: 2,467
    edited October 2011

    Congratulationskll22! I went to see my medical oncologist today and was surprised that he isn't angry with me for refusing Tamoxifen. He said that because my tumor was so small, and stage 1 and no lymph node involvement, with a Nottingham score of 3 that I should be ok without it. He is having me go for a back x-ray tomorrow. If that doesn't show anything then I will go for an mri.

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  • MostlySew
    MostlySew Member Posts: 1,418
    edited October 2011

    Glad you ladies related so well to my rant and thanks for adding some Stormy. It did feel good!



    Kate, I'm so sorry your back is still giving you fits. I do second Tamcathtecs idea of a chiropractor if the x-ray and MRI don't show anything. I had to resort to one years ago when regular medicine could only offer heavy meds and the chiropractor was able to fix me up.



    Janice, I'll send you a message about this thyroid surgery thing. It's scary, but not that bad really. I hope your new cream is working wonders and you're able to get that blasted under arm healed.....post haste!



    Steph, I'm so sorry you're facing more surgery soon too. Better stay on these boards so we can cheer you on thru that one too. Congrats on your 1st boost today. Mine's tomorrow



    Sab, I sure understand just sitting in the parking lot dealing with your emotions. I fully expect to just fall apart and cry on my techs shoulder when I'm done. Hmmm....reminds me to make sure I've got some Ativan with me. Works great for getting emotions under control. I love that you went for a brisk walk.



    Kll22.....WHOOOOOOO HOOOOOOO, a FREE, DONE, WOMAN. Good for you! Hope you had a leisurely dinner out on the town!



    Dogeyed........hang in there friend, you'll get thru this. You've come so far and it does feel a bit unsettling to be almost done, doesn't it? Kinda like graduation but no clue of what the next step will be.



    Have a great night everyone....

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  • justmejanis
    justmejanis Member Posts: 1,847
    edited October 2011

    Steph...not you too!  I hope whatever you are doing it goes well for you.  When is it, do you have it scheduled yet?  Keep us posted.  Hugs!

    Kate, hope you find some relief with the back soon.

    MostlySew....Working on a cure for the last of the burns.  So slow!  It is so frustrating but I have made a ton of progress in the past week.  I know the rest will finally heal up. 

    Good luck all of you who can finally see the finish line! :)

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